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BEGIN:DAYLIGHT
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BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250909T080000
DTEND;TZID=America/Vancouver:20250911T170000
DTSTAMP:20260403T135957
CREATED:20250501T162813Z
LAST-MODIFIED:20250501T162813Z
UID:8117-1757404800-1757610000@canadianrdn.ca
SUMMARY:2025 C-Path Global Impact Conference
DESCRIPTION:As C-Path celebrates its 20th anniversary\, CGIC 2025 stands out as a milestone event—bringing together a global community dedicated to advancing medical innovation and improving patient outcomes. \nWhether you’re joining us from industry\, regulatory agencies\, academia\, patient organizations\, or as someone with lived experience\, you’ll find valuable insights\, thought-provoking discussions\, and meaningful opportunities to collaborate.
URL:https://canadianrdn.ca/event/2025-c-path-global-impact-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745860975996.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250909T080000
DTEND;TZID=America/Edmonton:20250910T170000
DTSTAMP:20260403T135957
CREATED:20250723T141417Z
LAST-MODIFIED:20250723T141417Z
UID:8591-1757404800-1757523600@canadianrdn.ca
SUMMARY:Rare Trials Summit
DESCRIPTION:Bringing together key stakeholders in the clinical research community to accelerate the development of new rare disease therapies from average 10-12 years to under 3 years.
URL:https://canadianrdn.ca/event/rare-trials-summit/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/registration-card-image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Belize:20250904T080000
DTEND;TZID=America/Belize:20250905T170000
DTSTAMP:20260403T135957
CREATED:20250827T170339Z
LAST-MODIFIED:20250827T170339Z
UID:8787-1756972800-1757091600@canadianrdn.ca
SUMMARY:6th International Hypothalamic Hamartoma Symposium
DESCRIPTION:Presented by Hope for HH and Hospital Sant Joan de Déu Barcelona\, this symposium will gather leading experts\, patients\, and caregivers from around the world to share the latest research\, clinical advances\, and treatment strategies for Hypothalamic Hamartoma (HH)! Alexis Arzimanoglou and Helen Cross are part of the Symposium Committee.
URL:https://canadianrdn.ca/event/6th-international-hypothalamic-hamartoma-symposium/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1756288209490.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250903T080000
DTEND;TZID=America/Denver:20250904T170000
DTSTAMP:20260403T135957
CREATED:20250618T151109Z
LAST-MODIFIED:20250618T151109Z
UID:8463-1756886400-1757005200@canadianrdn.ca
SUMMARY:2025 RARE Drug Development Symposium
DESCRIPTION:Rare disease patient advocates are taking the lead in research like never before\, driven by the urgent need for new treatments. The RARE Drug Development Symposium hosted by Global Genes in partnership with Boston Children’s Hospital is designed to equip advocates with the knowledge\, skills\, and connections to navigate early-stage research with confidence. During this 1.5 day event\, attendees will have a mix of main stage sessions\, targeted breakouts\, group presentations\, and hands-on workshopping. Whether you’re initiating research efforts or looking to refine your strategy\, this symposium offers practical insights to accelerate progress in research strategies and activities.
URL:https://canadianrdn.ca/event/2025-rare-drug-development-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/Screenshot-2024-04-08-at-17.15.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250828T060000
DTEND;TZID=America/Edmonton:20250828T073000
DTSTAMP:20260403T135957
CREATED:20250728T213522Z
LAST-MODIFIED:20250728T213535Z
UID:8595-1756360800-1756366200@canadianrdn.ca
SUMMARY:WHA Resolution Coalition Webinar: Turning the WHA Resolution on Rare Diseases into Action
DESCRIPTION:This Coalition webinar will further discuss the formalization of the Coalition as well as the updates and next steps in the implementation of the WHA Resolution on Rare Diseases and the development of the Global Action Plan.
URL:https://canadianrdn.ca/event/wha-resolution-coalition-webinar-turning-the-wha-resolution-on-rare-diseases-into-action/
CATEGORIES:Hybrid,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/1753701477773.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250827T000000
DTEND;TZID=America/Edmonton:20250827T000000
DTSTAMP:20260403T135957
CREATED:20250827T165451Z
LAST-MODIFIED:20250827T165535Z
UID:8777-1756252800-1756252800@canadianrdn.ca
SUMMARY:Webinar: Patient Partnership 2025 – The Lupus100 Project
DESCRIPTION:Co-developed by ERN ReCONNET and LUPUS EUROPE\, The Lupus100 Project is a multilingual resource based on real patient questions about lupus\, turning a national patient booklet into a Europe-wide\, medically validated information tool. Speakers Eric Hachulla (clinician\, ERN ReCONNET)\, Jeanette Andersen (patient representative\, ERN ReCONNET)\, and Zoe Karakikla-Mitsakou (General Secretary\, Lupus Europe) will share how meaningful collaboration between patients and clinicians shaped this impactful communication initiative!
URL:https://canadianrdn.ca/event/webinar-patient-partnership-2025-the-lupus100-project/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Lupus100-Webinar-FT-2048x640-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250826T080000
DTEND;TZID=America/Edmonton:20250826T170000
DTSTAMP:20260403T135957
CREATED:20250730T205148Z
LAST-MODIFIED:20250730T205148Z
UID:8632-1756195200-1756227600@canadianrdn.ca
SUMMARY:2025 Transdisciplinary Child & Maternal Health Trainee Research Day
DESCRIPTION:Led by the Alberta Children’s Hospital Research Institute Trainee Association (ACHRITA) in partnership with the Owerko Centre and ACHRI\, the graduate portion of this symposium is funded by UCalgary’s Graduate Students’ Association.
URL:https://canadianrdn.ca/event/2025-transdisciplinary-child-maternal-health-trainee-research-day/
CATEGORIES:Conferences,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/Capture.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250821T080000
DTEND;TZID=America/Edmonton:20250824T170000
DTSTAMP:20260403T135957
CREATED:20250526T204722Z
LAST-MODIFIED:20250526T204722Z
UID:8328-1755763200-1756054800@canadianrdn.ca
SUMMARY:Building Bridges "Bridging" Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/building-bridges-bridging-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1748280301575.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250819T120000
DTEND;TZID=America/Edmonton:20250819T133000
DTSTAMP:20260403T135957
CREATED:20250812T200201Z
LAST-MODIFIED:20250812T200201Z
UID:8741-1755604800-1755610200@canadianrdn.ca
SUMMARY:Genome Editing in Stem Cells and Regenerative Medicine
DESCRIPTION:CRISPR-based genome editing has revolutionized biomedical research\, offering powerful tools to investigate gene function\, model diseases\, and develop novel therapies. This focused workshop will provide participants with both theoretical grounding and practical insights into current genome editing technologies. \nThe Stem Cell Network (SCN) is pleased to offer the online workshop “Genome Editing in Stem Cells and Regenerative Medicine”. This workshop will equip participants with both a theoretical grounding and practical insights into current genome editing technologies. It will also explore key concepts in experimental design\, delivery\, and selection methods.
URL:https://canadianrdn.ca/event/genome-editing-in-stem-cells-and-regenerative-medicine/
CATEGORIES:National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1752150318229.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250819T080000
DTEND;TZID=America/Edmonton:20250819T090000
DTSTAMP:20260403T135957
CREATED:20250729T164703Z
LAST-MODIFIED:20250729T164703Z
UID:8610-1755590400-1755594000@canadianrdn.ca
SUMMARY:PxP Australia 2025
DESCRIPTION:PxP Australia is a regional webinar\, led by Letisha Living and Janelle Bowden who are members of the 2025 steering committee for the global PxP conference taking place in September. The theme of PxP Australia is “working well together” and Dr. Joan Carlini will be joining the session as a speaker.
URL:https://canadianrdn.ca/event/pxp-australia-2025/
CATEGORIES:International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/GxCMjC_bUAIXkYa.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250813T180000
DTEND;TZID=America/Edmonton:20250813T200000
DTSTAMP:20260403T135957
CREATED:20250728T214152Z
LAST-MODIFIED:20250728T214152Z
UID:8598-1755108000-1755115200@canadianrdn.ca
SUMMARY:PxP Africa 2025: Virtual Meeting August 13\, 2025 From Research Participants to Patient Partners in Research: Centering African Patients Voices
DESCRIPTION:PxP Africa is the first regional PxP meeting\, led by Joab Wako and Kwanele Asante who are members of the 2025 steering committee for the global PxP conference taking place in September. PxP Africa will spotlight the critical role of patient partners—especially African patients—as active contributors in research\, not just research participants. The session will challenge the traditional top-down model of research and explore how lived experience can inform\, shape\, and lead meaningful\, inclusive studies.
URL:https://canadianrdn.ca/event/pxp-africa-2025-virtual-meeting-august-13-2025-from-research-participants-to-patient-partners-in-research-centering-african-patients-voices/
CATEGORIES:International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/GwjyWBlbQAEkCpf.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250813T130000
DTEND;TZID=America/Edmonton:20250813T150000
DTSTAMP:20260403T135957
CREATED:20250729T162316Z
LAST-MODIFIED:20250729T162316Z
UID:8607-1755090000-1755097200@canadianrdn.ca
SUMMARY:ALS Canada: Driving & ALS Webinar
DESCRIPTION:Join ALS Canada and Sunnybrook Health Sciences Centre to learn about the impact of ALS on driving ability\, adaptive driving equipment\, how an ALS diagnosis may affect insurance\, and available alternative options.
URL:https://canadianrdn.ca/event/als-canada-driving-als-webinar/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/GxB7vNBW0AI1BWE.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250812T080000
DTEND;TZID=America/Edmonton:20250815T170000
DTSTAMP:20260403T135957
CREATED:20250703T195305Z
LAST-MODIFIED:20250703T195305Z
UID:8517-1754985600-1755277200@canadianrdn.ca
SUMMARY:7th International Indigenous Voices in Social Work Conference 2025 One Child Every Child:  Indigenous Ways of Knowing\, Doing\, Connecting\, and Being  for Advancing the Well-Being of Our Future Generations
DESCRIPTION:Situated between the Rocky Mountains and prairielands of Treaty 7 Territory in what we now call Southern Alberta\, Canada\, the 7th International Indigenous Voices in Social Work (IIVSW) Conference is a vital forum for sharing Indigenous perspectives and experiences in the field of social work. \nThis global gathering brings together a diverse and inspiring community of individuals dedicated to Indigenous social work\, healing\, and systemic change. IIVSW will provide a powerful space to connect\, learn\, and share knowledge across borders and cultures. \nHosted by UCalgary’s One Child Every Child\, the Office of Indigenous Engagement and the Faculty of Social Work\, the 7th IIVSW gathering welcomes all people from communities\, practice\, and research to gather for cultural exchange\, shared learning and shared wisdom. From August 12 – 15\, attendees will strengthen their spirits while walking parallel paths and sharing ethical space to advance the well-being of children\, future generations and communities. Participants will meet\, feast\, and travel for experiential learning.
URL:https://canadianrdn.ca/event/7th-international-indigenous-voices-in-social-work-conference-2025-one-child-every-child-indigenous-ways-of-knowing-doing-connecting-and-being-for-advancing-the-well-being-of-our-future-generati/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/IIVSW-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250730T120000
DTEND;TZID=America/Edmonton:20250730T130000
DTSTAMP:20260403T135957
CREATED:20250722T203941Z
LAST-MODIFIED:20250722T203941Z
UID:8584-1753876800-1753880400@canadianrdn.ca
SUMMARY:Community of Practice- Beyond Inclusion: Co-Designing with Lived Experience to Build Meaningful Partnerships in Stroke Research
DESCRIPTION:📢 On July 30th from 12:00 – 1:00 pm EST Emine Kocabas\, Ashley Berger\, & Vishma Sookdeo will be speaking about “Beyond Inclusion: Co-Designing with Lived Experience to Build Meaningful Partnerships in Stroke Research”.
URL:https://canadianrdn.ca/event/community-of-practice-beyond-inclusion-co-designing-with-lived-experience-to-build-meaningful-partnerships-in-stroke-research/
CATEGORIES:Healthcare,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/1753191975283.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250724T080000
DTEND;TZID=America/Denver:20250727T170000
DTSTAMP:20260403T135957
CREATED:20250321T031237Z
LAST-MODIFIED:20250321T031237Z
UID:7805-1753344000-1753635600@canadianrdn.ca
SUMMARY:The 16th International CHARGE Syndrome Conference\, “The Grand Adventure\,”
DESCRIPTION:
URL:https://canadianrdn.ca/event/the-16th-international-charge-syndrome-conference-the-grand-adventure/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/2025-Charge-Syndrome-Logo-Colored-Horizontal-1-2048x661-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250721T120000
DTEND;TZID=America/Toronto:20250721T130000
DTSTAMP:20260403T135957
CREATED:20250625T030325Z
LAST-MODIFIED:20250625T030325Z
UID:8484-1753099200-1753102800@canadianrdn.ca
SUMMARY:IMPaCT Webinar - An Overview of Current and Future Clinical Trials in Children: a European Perspective
DESCRIPTION:Dr. Eva Degraeuwe (MD-PhD) is a dedicated pediatric resident and researcher in pediatric nephrology and global clinical trial optimilisation. Working in many Global networks focused on rare and low prevalance diseases\, she has completed her PhD in 2024 participating and guiding over 35 clinical trials. Moreover\, she has a passion for patient engagement\, especially within a clinical trial setting. \nWebinar Overview: \n– European network setting and the role of networks \n– Pathways to clinical trial optimilisation \n– Patient engagement and what has been achieved
URL:https://canadianrdn.ca/event/impact-webinar-an-overview-of-current-and-future-clinical-trials-in-children-a-european-perspective/
CATEGORIES:Clinical Trials,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/IMPaCTWebinarJune.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250719T100000
DTEND;TZID=America/Toronto:20250719T140000
DTSTAMP:20260403T135957
CREATED:20250625T024315Z
LAST-MODIFIED:20250625T024315Z
UID:8472-1752919200-1752933600@canadianrdn.ca
SUMMARY:CANAIRI Co-Design Workshop
DESCRIPTION:This workshop will co-design resources to support patients and families navigating the era of AI in medicine! The workshop is open to all and we welcome youth\, adults\, and families!
URL:https://canadianrdn.ca/event/canairi-co-design-workshop/
CATEGORIES:Caregiver,Healthcare,Hybrid,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/1750802485465.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Atlantic/Azores:20250715T080000
DTEND;TZID=Atlantic/Azores:20250717T170000
DTSTAMP:20260403T135957
CREATED:20250304T032515Z
LAST-MODIFIED:20250304T032515Z
UID:7608-1752566400-1752771600@canadianrdn.ca
SUMMARY:Summer School on Genome Stability 2025 Montpellier
DESCRIPTION:This Summer school is designed to provide students and postdocs with up-to-date knowledge in the field of Genome Stability. \nThis will be provided from July 15th to 17th through lectures by ten experts in the field\, oral presentations by participants as well as round table discussions. Emphasis will be on promoting interactions and discussions between participants and experts. July 18th will be a symposium day\, similar to an international conference\, with short presentations from the invited speakers and poster presentations by the participants. On the morning of July 19th\, there will be direct interactions between participants and research teams in Genome Stability from IGH (https://www.igh.cnrs.fr/en/) and IGMM (https://www.igmm.cnrs.fr/en/)\, two research institutes in Montpellier.
URL:https://canadianrdn.ca/event/summer-school-on-genome-stability-2025-montpellier/
CATEGORIES:Healthcare,In Person,International,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/026e883c-92a8-4413-b350-024896fc70f2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250708T170000
DTEND;TZID=America/Toronto:20250708T180000
DTSTAMP:20260403T135957
CREATED:20250625T030048Z
LAST-MODIFIED:20250625T030100Z
UID:8481-1751994000-1751997600@canadianrdn.ca
SUMMARY:NMD Rounds & Educational Webinars-Bulbar impact of SMA: approach to assessment and treatment
DESCRIPTION:NMD4C and MDC are pleased to invite you to a CPD-accredited webinar Bulbar impact of SMA: approach to assessment and treatment. NMD4C and MDC are providing organizational and technical support. This webinar is supported by Novartis through a restricted educational sponsorship with no involvement or influence on program content.
URL:https://canadianrdn.ca/event/nmd-rounds-educational-webinars-bulbar-impact-of-sma-approach-to-assessment-and-treatment/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/July8NMD4C_BulbarImpactSMA-scaled-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250707T080000
DTEND;TZID=America/New_York:20250709T170000
DTSTAMP:20260403T135957
CREATED:20250321T031011Z
LAST-MODIFIED:20250321T031011Z
UID:7802-1751875200-1752080400@canadianrdn.ca
SUMMARY:2nd Global Cell & Gene Therapy Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2nd-global-cell-gene-therapy-summit/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Hybrid,International,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/cell-and-gene-therapy-summit.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Atlantic/South_Georgia:20250627T080000
DTEND;TZID=Atlantic/South_Georgia:20250627T170000
DTSTAMP:20260403T135957
CREATED:20250501T163500Z
LAST-MODIFIED:20250501T163500Z
UID:8126-1751011200-1751043600@canadianrdn.ca
SUMMARY:Living Rare\, Living Stronger
DESCRIPTION:
URL:https://canadianrdn.ca/event/living-rare-living-stronger/
CATEGORIES:Events,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1746046621484.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250625T080000
DTEND;TZID=America/Detroit:20250628T170000
DTSTAMP:20260403T135957
CREATED:20250618T145641Z
LAST-MODIFIED:20250618T145641Z
UID:8448-1750838400-1751130000@canadianrdn.ca
SUMMARY:The 2025 CRF International Conference
DESCRIPTION:The Choroideremia Research Foundation (CRF) cordially invites you to join them June 25 – 28\, 2025\, for their International Conference at the Radisson Blu Mall of America in Bloomington\, MN. This event seeks to improve the quality of life for all those impacted by choroideremia (CHM) through educational programming\, interactive engagement and networking.
URL:https://canadianrdn.ca/event/the-2025-crf-international-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250624T080000
DTEND;TZID=America/Denver:20250628T170000
DTSTAMP:20260403T135957
CREATED:20250207T040321Z
LAST-MODIFIED:20250207T040321Z
UID:7468-1750752000-1751130000@canadianrdn.ca
SUMMARY:United in Hope: 2025 Global Prader-Willi Syndrome Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/united-in-hope-2025-global-prader-willi-syndrome-conference/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250624T080000
DTEND;TZID=America/New_York:20250625T170000
DTSTAMP:20260403T135957
CREATED:20241112T225405Z
LAST-MODIFIED:20241112T225405Z
UID:6982-1750752000-1750870800@canadianrdn.ca
SUMMARY:THE FESTIVAL OF GENOMICS & BIODATA Boston
DESCRIPTION:The Festival is designed principally for scientists and clinicians who are working in the fields of genomics\, other omics\, and/or using biodata \, to further research\, drug discovery\, healthcare and – ultimately – deliver better patient outcomes.\n\nTopics covered include genomics\, single cell/spatial biology\, multiomics\, biodata\, cancer research\, drug discovery\, AI\, microbiome\, proteomics\, liquid biopsy and so much more.
URL:https://canadianrdn.ca/event/the-festival-of-genomics-biodata-boston/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250623T160000
DTEND;TZID=America/Edmonton:20250623T170000
DTSTAMP:20260403T135957
CREATED:20250618T145940Z
LAST-MODIFIED:20250618T145940Z
UID:8451-1750694400-1750698000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada-Industry Partner Update: REGENXBIO
DESCRIPTION:Join Defeat Duchenne Canada for an educational webinar featuring Dr. Jahannaz Dastgir\, Executive Director of Clinical Development at REGENXBIO\, as she shares the latest updates on RGX-202\, an investigational gene therapy for the treatment of Duchenne muscular dystrophy\, and their Phase 1/2/3 AFFINITY DUCHENNE® trial. \nThis session will provide valuable insights into the science behind RGX-202\, trial progress\, and what this potential investigational treatment could mean for the Duchenne community. Whether you are a parent\, caregiver\, clinician\, or advocate\, this webinar is an opportunity to stay informed and ask questions directly to the team leading this important research.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-industry-partner-update-regenxbio/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/Gs8jXy9WYAA0ZX1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20250621T080000
DTEND;TZID=America/Kentucky/Louisville:20250621T170000
DTSTAMP:20260403T135957
CREATED:20250421T223116Z
LAST-MODIFIED:20250421T223116Z
UID:8030-1750492800-1750525200@canadianrdn.ca
SUMMARY:Mito Med 2025 Masterclass on Primary Mitochondrial Myopathy with a Focus on TK2d
DESCRIPTION:New this year for Clinical-Scientific Attendees to UMDF’s #MitoMed Conference — a Masterclass on Primary Mitochondrial Myopathy (#PMM) with a Focus on #TK2d. Tracks for Early Career Investigators and for Up-and-Coming Clinicians.
URL:https://canadianrdn.ca/event/mito-med-2025-masterclass-on-primary-mitochondrial-myopathy-with-a-focus-on-tk2d/
CATEGORIES:Events,International,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/GndfV5aWwAAtTgH.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250618T183000
DTEND;TZID=Europe/London:20250618T210000
DTSTAMP:20260403T135957
CREATED:20250520T192927Z
LAST-MODIFIED:20250520T192927Z
UID:8310-1750271400-1750280400@canadianrdn.ca
SUMMARY:The Cambridge Rare Disease Showcase
DESCRIPTION:This annual event celebrates the innovative work and powerful stories emerging from the rare disease community – uniting patient groups\, researchers\, clinicians\, industry professionals\, and more from across the UK and beyond.
URL:https://canadianrdn.ca/event/the-cambridge-rare-disease-showcase/
CATEGORIES:Events,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/GrT5pzrWQAAnEbH.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250618T123000
DTEND;TZID=America/Edmonton:20250618T140000
DTSTAMP:20260403T135957
CREATED:20250618T150444Z
LAST-MODIFIED:20250618T150444Z
UID:8457-1750249800-1750255200@canadianrdn.ca
SUMMARY:ALS Canada: Webinar-Driving Progress Forward
DESCRIPTION:In anticipation of Global ALS Awareness Day on June 21\, join ALS Canada’s CEO Tammy Moore and the ALS Canada Team for a free\, insightful webinar. Discover the comprehensive services and programs ALS Canada offers to Canadians living with and affected by ALS. \nThis engaging session will cover all mission areas\, including community services\, advocacy\, research\, and knowledge exchange\, showcasing the extensive resources available nationwide.
URL:https://canadianrdn.ca/event/als-canada-webinar-driving-progress-forward/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Policy,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/GtkfXV9WMAAP6DY.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250618T120000
DTEND;TZID=America/Edmonton:20250618T130000
DTSTAMP:20260403T135957
CREATED:20250526T204049Z
LAST-MODIFIED:20250526T204049Z
UID:8322-1750248000-1750251600@canadianrdn.ca
SUMMARY:Webinar - Key Considerations for Including Pediatric Populations with Neurodevelopmental Conditions in Clinical Trials
DESCRIPTION:Speakers: Evdokia Anagnostou and Mayada Elsabbagh Title: Key considerations for including pediatric populations with neurodevelopmental conditions in clinical trials
URL:https://canadianrdn.ca/event/webinar-key-considerations-for-including-pediatric-populations-with-neurodevelopmental-conditions-in-clinical-trials/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1748012679658.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Atlantic/Azores:20250613T080000
DTEND;TZID=Atlantic/Azores:20250615T170000
DTSTAMP:20260403T135957
CREATED:20250304T032811Z
LAST-MODIFIED:20250304T032811Z
UID:7611-1749801600-1750006800@canadianrdn.ca
SUMMARY:FSHD Connect Europe patient meeting 2025​​​​​​​​​​​​​​​​​
DESCRIPTION:FSHD Europe will organize\, in collaboration with the FSHD Society\, the first FSHD Connect Europe meeting on June 13th – June 15th\, 2025\, in Amsterdam\, The Netherlands. This is a networking meeting for FSHD patients and their families. It is a great opportunity to connect with other patients and families across Europe.
URL:https://canadianrdn.ca/event/fshd-connect-europe-patient-meeting-2025/
CATEGORIES:Caregiver,Conferences,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/b72f2ade515ce31e4f203496a96dc6e9.jpg
END:VEVENT
END:VCALENDAR