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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251201T083000
DTEND;TZID=America/Edmonton:20251201T093000
DTSTAMP:20260514T011008
CREATED:20251126T194515Z
LAST-MODIFIED:20251126T194515Z
UID:9210-1764577800-1764581400@canadianrdn.ca
SUMMARY:Child Health and Wellness Seminar: The Evolution of Medical AI: Progress\, Potential\, and Responsibility
DESCRIPTION:The Evolution of Medical AI: Progress\, Potential\, and Responsibility Speaker: Dr. Eman Rezk\, PhD NSERC Postdoctoral Fellow Department of Electrical and Computer Engineering\, University of Waterloo Host: Dr. Mohamed Eltorki\, MD\, FRCPC Associate Professor\, University of Calgary
URL:https://canadianrdn.ca/event/child-health-and-wellness-seminar-the-evolution-of-medical-ai-progress-potential-and-responsibility/
CATEGORIES:Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251205T080000
DTEND;TZID=America/Toronto:20251205T170000
DTSTAMP:20260514T011008
CREATED:20251027T200957Z
LAST-MODIFIED:20251027T201013Z
UID:9097-1764921600-1764954000@canadianrdn.ca
SUMMARY:CARELeuko Symposium 2025
DESCRIPTION:The Canadian Association for Research Excellence in Leukodystrophy (CARELeuko) is excited to welcome you to the 2025 CARELeuko Symposium: Uniting Canada’s Leukodystrophy Community to Drive Collaboration and Accelerate Research and Care! \nThe 2025 CARELeuko Symposium is taking place on Friday\, December 5\, 2025\, at the Research Institute of the McGill University Health Centre in Montreal\, Quebec\, Canada.
URL:https://canadianrdn.ca/event/careleuko-symposium-2025/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251205T080000
DTEND;TZID=America/Los_Angeles:20251207T170000
DTSTAMP:20260514T011008
CREATED:20250728T214728Z
LAST-MODIFIED:20250728T214728Z
UID:8604-1764921600-1765126800@canadianrdn.ca
SUMMARY:36th International Symposium on ALS/MND
DESCRIPTION:The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year they bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease.
URL:https://canadianrdn.ca/event/36th-international-symposium-on-als-mnd/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251205T123000
DTEND;TZID=America/Edmonton:20251205T133000
DTSTAMP:20260514T011008
CREATED:20251204T203358Z
LAST-MODIFIED:20251204T203358Z
UID:9253-1764937800-1764941400@canadianrdn.ca
SUMMARY:STAGE International Speaker Seminar Series (ISSS)-Laura Arbour
DESCRIPTION:Reducing Genetic and Genomic Health Disparities for Indigenous People of Canada: Insights from the Silent Genomes Project \n 
URL:https://canadianrdn.ca/event/stage-international-speaker-seminar-series-isss-laura-arbour/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/12/dr_laura_arbour_doctors_making_a_difference_custom_photo_id_233643.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251208T170000
DTEND;TZID=America/Edmonton:20251208T190000
DTSTAMP:20260514T011008
CREATED:20251126T191844Z
LAST-MODIFIED:20251126T191844Z
UID:9195-1765213200-1765220400@canadianrdn.ca
SUMMARY:FA Together: Learn. Share. Connect. mini-regional conference in Calgary
DESCRIPTION:
URL:https://canadianrdn.ca/event/fa-together-learn-share-connect-mini-regional-conference-in-calgary/
CATEGORIES:Events,Healthcare,In Person,Industry,National,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251209T070000
DTEND;TZID=America/Edmonton:20251209T090000
DTSTAMP:20260514T011008
CREATED:20251202T164751Z
LAST-MODIFIED:20251202T164803Z
UID:9223-1765263600-1765270800@canadianrdn.ca
SUMMARY:Webinar: 'The importance of genetic counselling in the diagnostic of rare neurological disorders' by Maria Judit Molnar
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/webinar-the-importance-of-genetic-counselling-in-the-diagnostic-of-rare-neurological-disorders-by-maria-judit-molnar/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251209T080000
DTEND;TZID=America/Edmonton:20251210T170000
DTSTAMP:20260514T011008
CREATED:20250902T192732Z
LAST-MODIFIED:20250902T192732Z
UID:8848-1765267200-1765386000@canadianrdn.ca
SUMMARY:2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases
DESCRIPTION:This second edition will convene a wide range of international experts\, including researchers\, clinicians\, patient advocates\, industry representatives\, policymakers\, and funders to strengthen the collaborative ecosystem that underpins clinical research in rare diseases worldwide.
URL:https://canadianrdn.ca/event/2nd-international-conference-on-clinical-research-networks-crns-for-rare-diseases/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251210T100000
DTEND;TZID=America/Edmonton:20251210T120000
DTSTAMP:20260514T011008
CREATED:20251129T212732Z
LAST-MODIFIED:20251129T212732Z
UID:9217-1765360800-1765368000@canadianrdn.ca
SUMMARY:Modeling the disease to better fight it: a new approach to heart enlargement associated with RASopathies
DESCRIPTION:Full title: Modeling the disease to better fight it: a new approach to heart enlargement associated with RASopathies \nEpisode 3 of the RQMO – RARE webinar series. QC presented by Anais Medouni\, PhD student in Anatomy and Cell Biology in the laboratory of Dr. Gregor Andelfinger\, CHU Sainte Justine Research Center\, Université de Montréal \nModerator: Jonathan Pratt\, Executive Director of the RQMO
URL:https://canadianrdn.ca/event/modeling-the-disease-to-better-fight-it-a-new-approach-to-heart-enlargement-associated-with-rasopathies/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251211T173000
DTEND;TZID=America/Edmonton:20251211T183000
DTSTAMP:20260514T011008
CREATED:20251126T193637Z
LAST-MODIFIED:20251126T193637Z
UID:9207-1765474200-1765477800@canadianrdn.ca
SUMMARY:Every Relapse Matters: The Evolving NMOSD & MOGAD Treatment Landscape in Canada
DESCRIPTION:The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday\, December 11th at 7:30 PM EST. This session will explore the evolving treatment options for individuals living with AQP4+ NMOSD\, seronegative NMOSD\, and MOGAD in Canada.
URL:https://canadianrdn.ca/event/every-relapse-matters-the-evolving-nmosd-mogad-treatment-landscape-in-canada/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251212T120000
DTEND;TZID=America/Edmonton:20251212T140000
DTSTAMP:20260514T011008
CREATED:20251014T175031Z
LAST-MODIFIED:20251014T175031Z
UID:9005-1765540800-1765548000@canadianrdn.ca
SUMMARY:Canadian Fragile X Research Rounds: Protein Replacement Therapy for Fragile X Syndrome
DESCRIPTION:
URL:https://canadianrdn.ca/event/canadian-fragile-x-research-rounds-protein-replacement-therapy-for-fragile-x-syndrome-2/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251213T080000
DTEND;TZID=America/Edmonton:20251214T170000
DTSTAMP:20260514T011008
CREATED:20251126T192929Z
LAST-MODIFIED:20251126T192929Z
UID:9201-1765612800-1765731600@canadianrdn.ca
SUMMARY:Duchenne Patient Academy 2025
DESCRIPTION:
URL:https://canadianrdn.ca/event/duchenne-patient-academy-2025/
CATEGORIES:Caregiver,Events,Healthcare,National,Patient Focused,Research Focused,Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251213T110000
DTEND;TZID=America/Toronto:20251213T140000
DTSTAMP:20260514T011008
CREATED:20251126T191558Z
LAST-MODIFIED:20251126T191558Z
UID:9192-1765623600-1765634400@canadianrdn.ca
SUMMARY:SMA Together: Learn. Share. Connect. A Mini-Regional Conference - Toronto
DESCRIPTION:The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them\, in-person on December 13 to learn about the latest updates in spinal muscular atrophy\, including:
URL:https://canadianrdn.ca/event/sma-together-learn-share-connect-a-mini-regional-conference-toronto/
CATEGORIES:Caregiver,Conferences,Events,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251216T150000
DTEND;TZID=America/Edmonton:20251216T170000
DTSTAMP:20260514T011008
CREATED:20251126T193306Z
LAST-MODIFIED:20251126T193306Z
UID:9204-1765897200-1765904400@canadianrdn.ca
SUMMARY:ERDERA: Joint Transnational Call 2026
DESCRIPTION:This information webinar on the 2026 Joint Transnational Call for Proposals is scheduled for 16 December 2025\, 15:00–17:00 CET\, focusing on resolving unsolved rare genetic and non‑genetic diseases.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2026/
CATEGORIES:Healthcare,International,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251217T120000
DTEND;TZID=America/Toronto:20251217T140000
DTSTAMP:20260514T011008
CREATED:20251126T192615Z
LAST-MODIFIED:20251126T192615Z
UID:9198-1765972800-1765980000@canadianrdn.ca
SUMMARY:Webinar: Lymphodepletion for CAR-T/IEC Outcomes
DESCRIPTION:Achieving consistent and effective outcomes in CAR T and other immune effector cell (IEC) therapies relies heavily on getting lymphodepletion “right.” Emerging evidence shows that both under- and over-exposure can impact safety\, efficacy\, and long-term persistence\, making optimized dosing strategies increasingly critical as the field evolves. \nThis webinar will explore how model-informed and data-driven approaches can help identify the optimal lymphodepletion exposure window\, improve predictability\, and support more standardized practices across patient populations and treatment centers. Speakers will discuss current challenges\, scientific rationale\, clinical insights\, and practical considerations for implementation.
URL:https://canadianrdn.ca/event/webinar-lymphodepletion-for-car-t-iec-outcomes/
CATEGORIES:Clinical Trials,International,Research Focused,Virtual,Webinars
END:VEVENT
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