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BEGIN:DAYLIGHT
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250503T080000
DTEND;TZID=America/Toronto:20250503T170000
DTSTAMP:20260409T132941
CREATED:20250501T161048Z
LAST-MODIFIED:20250501T161048Z
UID:8088-1746259200-1746291600@canadianrdn.ca
SUMMARY:FSHD 360 Conference
DESCRIPTION:FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research and advocacy leaders in Ontario as well as from biopharmaceutical companies that are working on FSHD therapies. Get answers to your questions about your health\, maintaining optimal function through physical therapy\, exercise\, assistive devices\, and more. Don’t miss out on the opportunity to meet patients and families and network with FSHD Society leaders and activists in the community!
URL:https://canadianrdn.ca/event/fshd-360-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,Industry,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250424T080000
DTEND;TZID=America/New_York:20250425T170000
DTSTAMP:20260409T132941
CREATED:20250118T001616Z
LAST-MODIFIED:20250118T001616Z
UID:7374-1745481600-1745600400@canadianrdn.ca
SUMMARY:Limb-Girdle Muscular Dystrophy Masterclass
DESCRIPTION:Are you involved in diagnosing or managing Limb-Girdle muscular dystrophy (LGMD)? This April 2025\, join TREAT-NMD™ in Montreal\, Canada\, for an in-person educational event designed for healthcare professionals in the neuromuscular field.
URL:https://canadianrdn.ca/event/limb-girdle-muscular-dystrophy-masterclass/
CATEGORIES:In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T083000
DTEND;TZID=America/New_York:20250407T093000
DTSTAMP:20260409T132941
CREATED:20250326T033414Z
LAST-MODIFIED:20250326T033414Z
UID:7832-1744014600-1744018200@canadianrdn.ca
SUMMARY:Child Health and Wellness Seminar: Discovery Series: Understanding Mental Health and Neurodiversity Through Systems Neuroscience
DESCRIPTION:Understanding and supporting mental health and neurodiversity requires insight into the brain systems that regulate attention\, motivation\, mood and thought. Dr. Gruber’slab studies the brain’s role in these functions and how they are shaped by risk factors such as stress\, inflammation and abused drugs. \n 
URL:https://canadianrdn.ca/event/child-health-and-wellness-seminar-discovery-series-understanding-mental-health-and-neurodiversity-through-systems-neuroscience/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/13714_COLOURBOX31156818.rev_.1742924419.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250331T083000
DTEND;TZID=America/New_York:20250331T093000
DTSTAMP:20260409T132941
CREATED:20250326T033117Z
LAST-MODIFIED:20250326T033117Z
UID:7829-1743409800-1743413400@canadianrdn.ca
SUMMARY:Understanding what matters to children and families: The socioeconomic impact of childhood arthritis
DESCRIPTION:This presentation will share findings from the Health Economics research lead by\nDr. Marshall as part of the international UCAN CAN-DU and CURE research program\non childhood arthritis.
URL:https://canadianrdn.ca/event/understanding-what-matters-to-children-and-families-the-socioeconomic-impact-of-childhood-arthritis/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250329T080000
DTEND;TZID=America/Los_Angeles:20250329T133000
DTSTAMP:20260409T132941
CREATED:20250123T230329Z
LAST-MODIFIED:20250123T230329Z
UID:7423-1743235200-1743255000@canadianrdn.ca
SUMMARY:Vancouver Patient Education Meeting – IN-PERSON
DESCRIPTION:
URL:https://canadianrdn.ca/event/vancouver-patient-education-meeting-in-person/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250318T183000
DTEND;TZID=America/Halifax:20250318T213000
DTSTAMP:20260409T132941
CREATED:20250307T042503Z
LAST-MODIFIED:20250307T042503Z
UID:7694-1742322600-1742333400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 by McGill’s RareDIG
DESCRIPTION:McGill’s RareDIG is excited to welcome you to their seventh edition of Rare Disease Day! Students\, researchers\, physicians\, patients\, and community members\, including the RQMO\, will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) in Montreal on March 18th at 6:30 pm to discuss the challenges faced by people with rare diseases\, research and advocacy efforts. Poster presentations will also be prepared by student researchers with a keen interest in making a difference in the rare disease field. \nPresentations are open to all and free of charge. Presentations will be in English only\, and the event will be held in person only\, with no online broadcast.
URL:https://canadianrdn.ca/event/rare-disease-day-2025-by-mcgills-raredig/
CATEGORIES:Events,In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250228T090000
DTEND;TZID=America/New_York:20250228T130000
DTSTAMP:20260409T132941
CREATED:20250225T041117Z
LAST-MODIFIED:20250225T041117Z
UID:7560-1740733200-1740747600@canadianrdn.ca
SUMMARY:Rare Disease Day and World Birth Defects Symposium
DESCRIPTION:Join on February 28\, 2025\, for the Rare Disease Day and World Birth Deficit Symposium\, an event dedicated to raising awareness and fostering meaningful discussions on the challenges faced by individuals and families affected by rare diseases. This symposium will bring together patients\, caregivers\, healthcare professionals\, and community advocates to share experiences\, promote equity\, and drive change.
URL:https://canadianrdn.ca/event/rare-disease-day-and-world-birth-defects-symposium/
CATEGORIES:Events,Hybrid,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250228T080000
DTEND;TZID=America/Denver:20250228T160000
DTSTAMP:20260409T132941
CREATED:20250219T015433Z
LAST-MODIFIED:20250219T015433Z
UID:7498-1740729600-1740758400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 University of Alberta
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-day-2025-university-of-alberta/
CATEGORIES:Events,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/02/Rare-Disease-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250224T080000
DTEND;TZID=America/Chicago:20250226T170000
DTSTAMP:20260409T132941
CREATED:20250219T015946Z
LAST-MODIFIED:20250219T015946Z
UID:7504-1740384000-1740589200@canadianrdn.ca
SUMMARY:2025 Clinical Trials Training Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2025-clinical-trials-training-summit/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241203T080000
DTEND;TZID=America/Halifax:20241203T170000
DTSTAMP:20260409T132941
CREATED:20240523T213710Z
LAST-MODIFIED:20240531T021448Z
UID:4222-1733212800-1733245200@canadianrdn.ca
SUMMARY:Spinal Muscular Atrophy Outcome Measures Workshop (English Language)
DESCRIPTION:Earlier this year\, NMD4C\, MDC and Quebec SMA Network hosted the first interactive training session for French-speaking physiotherapists and occupational therapists on assessment measures and practices for Spinal Muscular Atrophy (SMA). \nTo complement this training session\, the NMD4C will be hosting an English-language interactive training workshop on standardizing assessment practices in SMA outcome measures. \nThis workshop will be taking place the day before the Allied Professionals Forum in Montreal. \nPlease ensure you register before the deadline of June 18th\, 2024.
URL:https://canadianrdn.ca/event/spinal-muscular-atrophy-outcome-measures-workshop-english-language/
LOCATION:Le Centre Sheraton Montreal\, Montreal\, Quebec\, Canada
CATEGORIES:Healthcare,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241202T080000
DTEND;TZID=America/Denver:20241203T170000
DTSTAMP:20260409T132941
CREATED:20241121T024400Z
LAST-MODIFIED:20241121T024400Z
UID:7020-1733126400-1733245200@canadianrdn.ca
SUMMARY:Child Health Hub in Transition to Adult Healthcare
DESCRIPTION:The Child Health Hub in Transition to Adult Healthcare is excited to be hosting the 2nd Transition to Adulthood Pop-Up event on December 2-3\, 2023\, at the beautiful Hyatt Regency in downtown Vancouver. This event aims to bring together youth\, families\, trainees\, researchers\, clinicians\, and policy/decision makers to celebrate the best of what we are learning\, and doing\, to help young people to develop fully\, even when they are challenged by health conditions. For those unable to join in-person\, aspects of the event will be made available in a virtual format.
URL:https://canadianrdn.ca/event/child-health-hub-in-transition-to-adult-healthcare/
CATEGORIES:Caregiver,Healthcare,Hybrid,Industry,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241109T083000
DTEND;TZID=America/New_York:20241109T130000
DTSTAMP:20260409T132941
CREATED:20241107T230742Z
LAST-MODIFIED:20241107T230742Z
UID:6973-1731141000-1731157200@canadianrdn.ca
SUMMARY:Montreal Patient Education Meeting – IN-PERSON
DESCRIPTION:
URL:https://canadianrdn.ca/event/montreal-patient-education-meeting-in-person/
CATEGORIES:Caregiver,Conferences,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241105
DTEND;VALUE=DATE:20241106
DTSTAMP:20260409T132941
CREATED:20240730T020251Z
LAST-MODIFIED:20240730T020251Z
UID:4886-1730764800-1730851199@canadianrdn.ca
SUMMARY:2024 Annual Pain Centre Conference - Building Bridges to Reduce Disparities in Pediatric Pain
DESCRIPTION:
URL:https://canadianrdn.ca/event/2024-annual-pain-centre-conference-building-bridges-to-reduce-disparities-in-pediatric-pain/
LOCATION:toronto\, ontario\, 686 Bay Street\, Toronto\, Ontario\, M5G 0A4\, Canada
CATEGORIES:Healthcare,In Person,National,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241102T080000
DTEND;TZID=UTC:20241102T180000
DTSTAMP:20260409T132941
CREATED:20241017T225433Z
LAST-MODIFIED:20241017T225433Z
UID:6108-1730534400-1730570400@canadianrdn.ca
SUMMARY:The Association X Fragile Québec Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/the-association-x-fragile-quebec-conference/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/cropped-logo-axfq_coul_rgb.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241031T120000
DTEND;TZID=America/Denver:20241031T130000
DTSTAMP:20260409T132941
CREATED:20240828T231253Z
LAST-MODIFIED:20240828T231253Z
UID:5502-1730376000-1730379600@canadianrdn.ca
SUMMARY:CRDN Townhall – An Update on the Co-Development of our Strategic Plan
DESCRIPTION:Join the Canadian Rare Disease Network (CRDN) – Réseau Canadien des Maladies Rares – for a dynamic townhall to engage with thought leaders\, experts\, and the rare disease community as we explore and shape the future of rare disease care and research in Canada. This townhall will provide an overview of the CRDN and its draft strategic plan. Following the presentation\, there will be an opportunity to ask questions and contribute to the co-development of CRDN’s strategic plan. Whether you are a patient\, caregiver\, researcher\, healthcare provider\, advocate\, or other member of the rare disease community\, your voice is vital in building a more integrated\, inclusive\, and compassionate approach to rare disease care and research in Canada. Register now to be part of this conversation!
URL:https://canadianrdn.ca/event/crdn-townhall-an-update-on-the-co-development-of-our-strategic-plan/
CATEGORIES:Caregiver,Events,National,Patient Focused,Policy,Provincial,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/Town-Hall-Eng.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/St_Johns:20241020T080000
DTEND;TZID=America/St_Johns:20241022T210000
DTSTAMP:20260409T132941
CREATED:20240730T202537Z
LAST-MODIFIED:20240730T202537Z
UID:4890-1729411200-1729630800@canadianrdn.ca
SUMMARY:#ChildHealthCan2024
DESCRIPTION:Children’s Healthcare Canada and co-hosts\, the Janeway Children’s Hospital Foundation and NL Health Services\, invite you to join us in picturesque Newfoundland and Labrador from October 20-22\, at the St. John’s Convention Centre for their 2024 Annual Conference\, Right-Sizing Health Systems for Kids: Navigating to Brighter Futures. For those unable to attend in person\, a real-time virtual option will also be available. \nChildren’s Healthcare Canada is on a mission to Right-Size Child Healthcare Systems. In 2024\, they will explore how to pave the way for brighter futures for children\, youth\, and families within the healthcare systems. Through the collective efforts of their members\, strategic partners\, and sponsors\, they are dedicated to ensuring that all children and youth in Canada have access to the healthcare services they require in a timely manner. \nWe are thrilled to share that we will be hosting another conference in the Spring of 2025\, giving attendees the opportunity to engage in two conferences within a six-month period! \nJoin us at our upcoming conferences in October 2024 and 2025 as they delve into the concept of right-sizing health systems. Together\, they will discuss what it takes to establish a flexible and responsive system that meets the unique needs of children and youth\, ultimately leading to improved outcomes for all. \nDon’t miss the opportunity to contribute to the conversation on shaping a better future for the health and well-being of our youngest generation. They eagerly anticipate welcoming you to St. John’s\, Newfoundland and Labrador\, as we work towards a brighter tomorrow for our children and families.
URL:https://canadianrdn.ca/event/childhealthcan2024/
LOCATION:St.Johns\, Newfoundland\, 50 New Gower Street\, St.Johns\, Newfoundland\, A1C 1J3\, Canada
CATEGORIES:Caregiver,Conferences,Hybrid,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/07/1707853515557.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241019T080000
DTEND;TZID=America/Halifax:20241019T170000
DTSTAMP:20260409T132941
CREATED:20240923T212950Z
LAST-MODIFIED:20240923T212950Z
UID:5915-1729324800-1729357200@canadianrdn.ca
SUMMARY:RQMO Educational Day 2024
DESCRIPTION:The 2024 RQMO educational day will focus on a theme that affects many families who have a child with a rare disease: \nThe transition to adulthood of children with differences.
URL:https://canadianrdn.ca/event/rqmo-educational-day-2024/
CATEGORIES:In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240927T170000
DTEND;TZID=America/Chicago:20240929T130000
DTSTAMP:20260409T132941
CREATED:20240522T224236Z
LAST-MODIFIED:20240531T022345Z
UID:4144-1727456400-1727614800@canadianrdn.ca
SUMMARY:Western Canadian Neuromuscular Conference (WCNMC)
DESCRIPTION:This is the 5th WCNMC and is being held in Calgary on September 27 – 29\, 2024. The conference has rotated locations in Western Canada with the inaugural conference hosted in Calgary in 2013. This weekend conference is designed for general neurologists\, neuromuscular specialists\, physical medicine and rehabilitation specialists\, trainee physicians with interest in Neuromuscular Medicine and allied health members from the neuromuscular community. \nThe conference anticipates 100 – 150 attendees. The majority of attendees will come from Calgary\, Edmonton and Vancouver\, with a smaller but important complement of colleagues travelling from mid-sized centres such as Victoria\, Regina\, Kelowna\, Lethbridge and Saskatoon. \nThis conference has been well received in the past within the neuromuscular community as an opportunity to update and share knowledge. The conference has not been held in-person since 2017 and there is much excitement and enthusiasm for this conference within the neuromuscular community to reconnect in person. \nThe conference will update participants on recent advances in the diagnosis and management of common nerve\, muscle and motor neuron diseases. The format will be a blend of short didactic presentations with interactive discussions\, international keynote speakers leading the plenary sessions and question answer sessions. Additionally\, the conference will provide ample networking opportunities as the exhibit hall will be in the same space as all meals and include a robust welcome reception. \nIf you have questions about speakers\, sponsorship or anything else regarding WCNMC\, please contact info@wcnmc.ca.
URL:https://canadianrdn.ca/event/western-canadian-neuromuscular-conference-wcnmc/
LOCATION:Hotel Arts Calgary\, Calgary\, Alberta\, Canada
CATEGORIES:Healthcare,In Person,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/05/1709814041logo-jpg1709814041.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240925T080000
DTEND;TZID=UTC:20240928T170000
DTSTAMP:20260409T132941
CREATED:20240819T214651Z
LAST-MODIFIED:20240819T214651Z
UID:5216-1727251200-1727542800@canadianrdn.ca
SUMMARY:Canadian Association of Genetic Counsellors 2024 Annual Education Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/canadian-association-of-genetic-counsellors-2024-annual-education-conference/
CATEGORIES:Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20240821T120000
DTEND;TZID=America/Halifax:20240821T130000
DTSTAMP:20260409T132941
CREATED:20240807T015306Z
LAST-MODIFIED:20240807T015306Z
UID:4945-1724241600-1724245200@canadianrdn.ca
SUMMARY:CORD Hosts Open Dialogue with Health Canada Webinar
DESCRIPTION:1st Bilateral agreement to deliver on Canada’s promise of accelerating access to therapies for rare disease patients has been signed with BC. Two drugs are listed in the announcement. How will the program work in BC and other provinces? Which provinces are next? Which drugs are next? How will patients and others be involved? Guest Speaker: Daniel MacDonald\, Director General\, Drugs for Rare Diseases\, Strategic Policy Branch\, Health Canada
URL:https://canadianrdn.ca/event/cord-hosts-open-dialogue-with-health-canada-webinar/
CATEGORIES:Healthcare,Provincial,Research Focused,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Dubai:20240620T120000
DTEND;TZID=Asia/Dubai:20240620T130000
DTSTAMP:20260409T132941
CREATED:20240613T020315Z
LAST-MODIFIED:20240613T020315Z
UID:4435-1718884800-1718888400@canadianrdn.ca
SUMMARY:LGBTQ+ Health Care Praxis: Building More Equitable and Just Futures Today
DESCRIPTION:This conference is part of the Montréal Health Ethics Lecture Series 2024. It will be presented in English. \nHow might we build more equitable and just futures for LGBTQ+ people and communities\, and what does health care have to do with it? This talk explores the connections between care ethics\, care practices\, organizational cultures\, and praxis—that is\, the practical application of theories in our work—in the context of LGBTQ+ health care. Informed by historical and contemporary examples\, it offers opportunities for solidarity and collective resistance among patients and providers working together to dismantle and transform unjust systems
URL:https://canadianrdn.ca/event/lgbtq-health-care-praxis-building-more-equitable-and-just-futures-today/
CATEGORIES:National,Patient Focused,Policy,Provincial,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240619T100000
DTEND;TZID=America/Chicago:20240619T110000
DTSTAMP:20260409T132941
CREATED:20240619T200815Z
LAST-MODIFIED:20240619T200815Z
UID:4497-1718791200-1718794800@canadianrdn.ca
SUMMARY:Alberta SPOR Support Unit - Patient Engagement Team Journal Club
DESCRIPTION:Join us for June’s Journal Club discussing “Being a sibling of a youth with a neurodisability: A qualitative study about the roles and responsibilities during the transition to adulthood”.  Register here: http://bit.ly/3V57YJB Questions? Ask Sadia Ahmed (sadahmed@ucalgary.ca)
URL:https://canadianrdn.ca/event/alberta-spor-support-unit-patient-engagement-team-journal-club/
CATEGORIES:Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Dubai:20240604T140000
DTEND;TZID=Asia/Dubai:20240604T150000
DTSTAMP:20260409T132941
CREATED:20240530T011323Z
LAST-MODIFIED:20240531T211918Z
UID:4304-1717509600-1717513200@canadianrdn.ca
SUMMARY:FcRn Inhibitors and Novel Options for Myasthenia Gravis
DESCRIPTION:Muscular Dystrophy Canada (MDC) is pleased to present a webinar on the neonatal Fc receptor (FcRn) pathway for people with generalized Myasthenia Gravis (gMG). MDC is excited to have their webinar speaker discuss next generation treatments for Myasthenia Gravis and help us understand how these treatments work in the neuromuscular pathway.
URL:https://canadianrdn.ca/event/fnrn-inhibitors-and-novel-options-for-myasthenia-gravis/
CATEGORIES:Provincial,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240524T150000
DTEND;TZID=America/Chicago:20240524T160000
DTSTAMP:20260409T132941
CREATED:20240525T012031Z
LAST-MODIFIED:20240531T031642Z
UID:4227-1716562800-1716566400@canadianrdn.ca
SUMMARY:IMAGINE Patient Training Experiences Through the PaCER Program
DESCRIPTION:Join IMAGINE SPOR tomorrow for Dr. Deborah Marshall’s (Steering Committee Member) session on : “IMAGINE Patient Training Experiences Through the PaCER Program” at the 2024 Northwest SPOR Collaborative Forum!
URL:https://canadianrdn.ca/event/imagine-patient-training-experiences-through-the-pacer-program/
LOCATION:Best Western Plus Village Park Inn\, Calgary\, Alberta\, Canada
CATEGORIES:In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
END:VCALENDAR