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X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20260526T080000
DTEND;TZID=Asia/Karachi:20260530T170000
DTSTAMP:20260507T152227Z
CREATED:20241215T024241Z
LAST-MODIFIED:20260507T152227Z
UID:7226-1779782400-1780160400@canadianrdn.ca
SUMMARY:15th edition of the International Myotonic Dystrophy Consortium (IDMC-15)
DESCRIPTION:The event will now make a stop in Canada\, in the picturesque and warm Saguenay—Lac-Saint-Jean region of the province of Quebec. \nA unique opportunity to network and share advances and initiatives in myotonic dystrophy research! Take advantage of this not-to-be-missed event!
URL:https://canadianrdn.ca/event/15th-edition-of-the-international-myotonic-dystrophy-consortium-idmc-15/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/12/IDMC15-768x720-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260528T150000
DTEND;TZID=America/Toronto:20260528T170000
DTSTAMP:20260527T195336Z
CREATED:20260527T195336Z
LAST-MODIFIED:20260527T195336Z
UID:10708-1779980400-1779987600@canadianrdn.ca
SUMMARY:A REAL disease\, NOT imagined
DESCRIPTION:IMAGINE spending years\, or even your entire life\, trying to figure out what is wrong with you while being told “it’s all in your head”. The Ehlers-Danlos Syndromes (EDS)\, are complex connective tissue disorders that are frequently misunderstood and stigmatized within the healthcare system. \nThis Canadian documentary explores the difficult reality of living with EDS\, focusing on the common experience where patients spend years searching for an accurate diagnosis and adequate care. Through testimonials from patients and healthcare professionals\, this project seeks to shift medical attitudes to ensure those affected receive the same quality of services as any other patient. EDS is not an imaginary disease!
URL:https://canadianrdn.ca/event/a-real-disease-not-imagined/
CATEGORIES:Caregiver,Events,Hybrid,National,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779837311762.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260531T080000
DTEND;TZID=America/Edmonton:20260602T170000
DTSTAMP:20260508T191633Z
CREATED:20250827T162014Z
LAST-MODIFIED:20260508T191633Z
UID:8774-1780214400-1780419600@canadianrdn.ca
SUMMARY:2026 Children’s Healthcare Canada Annual Conference\, “Tomorrow’s Promise\, Today’s Plan: Transforming Children’s Healthcare in Canada”
DESCRIPTION:May 31-June 2
URL:https://canadianrdn.ca/event/2026-childrens-healthcare-canada-annual-conference-tomorrows-promise-todays-plan-transforming-childrens-healthcare-in-canada/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260602T160000
DTEND;TZID=America/Toronto:20260602T200000
DTSTAMP:20260526T021026Z
CREATED:20260526T021026Z
LAST-MODIFIED:20260526T021026Z
UID:10679-1780416000-1780430400@canadianrdn.ca
SUMMARY:Canadian Genomics Innovation Showcase
DESCRIPTION:​Join the Consulate General of Canada in Boston for an exclusive program showcasing the strength and momentum of Canada’s genomics and life sciences ecosystems.
URL:https://canadianrdn.ca/event/canadian-genomics-innovation-showcase/
CATEGORIES:Conferences,Healthcare,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1778853497835.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260608T080000
DTEND;TZID=America/Toronto:20260610T170000
DTSTAMP:20260527T195016Z
CREATED:20260527T161034Z
LAST-MODIFIED:20260527T195016Z
UID:10696-1780905600-1781110800@canadianrdn.ca
SUMMARY:Brain-Heart Interconnectome (BHI) State of the Science Summit
DESCRIPTION:The summit is an international conference meant to highlight the latest science at the crossroads of brain and heart health\, showcasing innovation and state-of-the-art research.
URL:https://canadianrdn.ca/event/brain-heart-interconnectome-bhi-state-of-the-science-summit/
CATEGORIES:Conferences,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/05/BHI-Website-Hero-images-25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260617T100000
DTEND;TZID=America/Edmonton:20260617T110000
DTSTAMP:20260526T015813Z
CREATED:20260526T015813Z
LAST-MODIFIED:20260526T015813Z
UID:10670-1781690400-1781694000@canadianrdn.ca
SUMMARY:Regroupement québécois des maladies orphelines: NRGI - open science to understand common and rare neurological disorders
DESCRIPTION:
URL:https://canadianrdn.ca/event/regroupement-quebecois-des-maladies-orphelines-nrgi-open-science-to-understand-common-and-rare-neurological-disorders/
CATEGORIES:Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779725763822.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260618T083000
DTEND;TZID=America/Toronto:20260618T170000
DTSTAMP:20260526T020611Z
CREATED:20260526T020611Z
LAST-MODIFIED:20260526T020611Z
UID:10676-1781771400-1781802000@canadianrdn.ca
SUMMARY:4th Edition of the Sickle Cell Awareness Day Education Conference
DESCRIPTION:The Sickle Cell Disease Association of Canada (SCDAC)\, in partnership with the Interdisciplinary Centre for Black Health (ICBH)\, is bringing the sickle cell community together at the University of Ottawa for a one-day gathering of learning\, collaboration and action. \nThis conference brings together patients\, families\, healthcare professionals\, researchers\, advocates\, educators and caregivers.
URL:https://canadianrdn.ca/event/4th-edition-of-the-sickle-cell-awareness-day-education-conference/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779405047460.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260627T130000
DTEND;TZID=America/Halifax:20260627T140000
DTSTAMP:20260624T183025Z
CREATED:20260624T183025Z
LAST-MODIFIED:20260624T183025Z
UID:11088-1782565200-1782568800@canadianrdn.ca
SUMMARY:RareKids-CAN-Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
DESCRIPTION:Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. \nThese free sessions are designed for families\, caregivers\, and community members interested in learning more about pediatric rare diseases\, the diagnostic journey\, available supports\, patient advocacy resources\, and opportunities to participate in research and clinical trials. \n📍 Multiple Halifax Public Library locations throughout June and August
URL:https://canadianrdn.ca/event/rarekids-can-kids-rare-disorders-awareness-supporting-early-recognition-families-in-nova-scotia/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781261330862.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260814T080000
DTEND;TZID=America/Toronto:20260815T170000
DTSTAMP:20260625T185220Z
CREATED:20260624T183417Z
LAST-MODIFIED:20260625T185220Z
UID:11093-1786694400-1786813200@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario-Annual Summit 2026 Registration
DESCRIPTION:Join SCAGO for an educational two-day summit bringing together researchers\, clinicians\, advocates\, and community members all working to transform sickle cell care.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-annual-summit-2026-registration/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781618228846.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260829T100000
DTEND;TZID=America/Halifax:20260829T110000
DTSTAMP:20260624T183145Z
CREATED:20260624T183145Z
LAST-MODIFIED:20260624T183145Z
UID:11091-1787997600-1788001200@canadianrdn.ca
SUMMARY:RareKids-CAN-Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
DESCRIPTION:Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. \nThese free sessions are designed for families\, caregivers\, and community members interested in learning more about pediatric rare diseases\, the diagnostic journey\, available supports\, patient advocacy resources\, and opportunities to participate in research and clinical trials. \n📍 Multiple Halifax Public Library locations throughout June and August
URL:https://canadianrdn.ca/event/rarekids-can-kids-rare-disorders-awareness-supporting-early-recognition-families-in-nova-scotia-2/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781261330862.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260918T080000
DTEND;TZID=America/Toronto:20260919T160000
DTSTAMP:20260624T184340Z
CREATED:20260624T184340Z
LAST-MODIFIED:20260624T184340Z
UID:11099-1789718400-1789833600@canadianrdn.ca
SUMMARY:Cavernous Malformation Canada Clinical & Scientific Symposium
DESCRIPTION:Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board\, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only for the experienced but also those early in their understanding of this disease.
URL:https://canadianrdn.ca/event/cavernous-malformation-canada-clinical-scientific-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/06/4b14bd73-3e6c-41b0-9f2c-ac58e0add962.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260918T080000
DTEND;TZID=America/Toronto:20260919T170000
DTSTAMP:20260624T184512Z
CREATED:20260624T184512Z
LAST-MODIFIED:20260624T184512Z
UID:11102-1789718400-1789837200@canadianrdn.ca
SUMMARY:Cavernous Malformation Canada Patient & Family Conference
DESCRIPTION:Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers\, interactive opportunities between patients and clinicians\, and meaningful moments of connection and sharing with others impacted by cavernous malformation. 
URL:https://canadianrdn.ca/event/cavernous-malformation-canada-patient-family-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/06/ce2b7ab4-753a-41b5-80ce-de2f738e0aaf.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260919T100000
DTEND;TZID=America/Toronto:20260919T160000
DTSTAMP:20260625T190021Z
CREATED:20260625T190021Z
LAST-MODIFIED:20260625T190021Z
UID:11109-1789812000-1789833600@canadianrdn.ca
SUMMARY:Regroupement Quebecois des Maladies Orphelines (RQMO) Educational Day 2026
DESCRIPTION:This year\, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme “The impacts of rare diseases – towards better inclusion”. \nThis awareness day aims to be a space for exchange\, reflection\, and sharing about the realities experienced by people living with rare diseases. RQMO wants to highlight the daily challenges\, but also concrete ways to build a more inclusive society.
URL:https://canadianrdn.ca/event/regroupement-quebecois-des-maladies-orphelines-rqmo-educational-day-2026/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781626049176.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20260924T080000
DTEND;TZID=America/Vancouver:20260926T170000
DTSTAMP:20260624T183648Z
CREATED:20260624T183634Z
LAST-MODIFIED:20260624T183648Z
UID:11096-1790236800-1790442000@canadianrdn.ca
SUMMARY:Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
DESCRIPTION:🔬 Thursday\, September 24\nCPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals\, researchers\, and invited network members. \n🩺 Friday\, September 25\nScientific Sessions — a full day dedicated to the latest PH research\, clinical advancements\, and collaboration among healthcare professionals and researchers. The day concludes with the Patient & Family Symposium Welcome Reception\, where the entire PH community comes together. \n💜 Saturday\, September 26\nPatient & Family Symposium — designed specifically for PH patients\, caregivers\, family members\, and supporters. A day of education\, inspiration\, connection\, and community.
URL:https://canadianrdn.ca/event/pulmonary-hypertension-association-canadas-ph-community-conference-scientific-sessions/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1780531229165.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261018T080000
DTEND;TZID=America/Edmonton:20261020T170000
DTSTAMP:20251113T224713Z
CREATED:20251113T224713Z
LAST-MODIFIED:20251113T224713Z
UID:9153-1792310400-1792515600@canadianrdn.ca
SUMMARY:Kids Brain Health Network (KBHN) Annual Conference
DESCRIPTION:Save the Date! \nKids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference\, happening October 18–20\, 2026\, in Calgary\, Alberta!
URL:https://canadianrdn.ca/event/kids-brain-health-network-kbhn-annual-conference/
CATEGORIES:Caregiver,Conferences,In Person,Industry,National,Patient Focused,Provincial,Research Focused
END:VEVENT
END:VCALENDAR