Rare Disease Day 2025 University of Alberta
2025-02-28 08:00 - 16:00 (America/Denver)

Rare Disease Day and World Birth Defects Symposium
2025-02-28 09:00 - 13:00 (America/New_York)
Join on February 28, 2025, for the Rare Disease Day and World Birth Deficit Symposium, an event dedicated to raising awareness and fostering meaningful discussions on the challenges faced by individuals and families affected by rare diseases. This symposium will bring together patients, caregivers, healthcare professionals, and community advocates to share experiences, promote equity, and drive change.

Rare Disease Day 2025 by McGill’s RareDIG
2025-03-18 18:30 - 21:30 (America/Halifax)
McGill’s RareDIG is excited to welcome you to their seventh edition of Rare Disease Day! Students, researchers, physicians, patients, and community members, including the RQMO, will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) in Montreal on March 18th at 6:30 pm to discuss the challenges faced by people with rare diseases, research and advocacy efforts. Poster presentations will also be prepared by student researchers with a keen interest in making a difference in the rare disease field.
Presentations are open to all and free of charge. Presentations will be in English only, and the event will be held in person only, with no online broadcast.

Vancouver Patient Education Meeting – IN-PERSON
2025-03-29 08:00 - 13:30 (America/Los_Angeles)

Understanding what matters to children and families: The socioeconomic impact of childhood arthritis
2025-03-31 08:30 - 09:30 (America/New_York)
This presentation will share findings from the Health Economics research lead by
Dr. Marshall as part of the international UCAN CAN-DU and CURE research program
on childhood arthritis.

Child Health and Wellness Seminar: Discovery Series: Understanding Mental Health and Neurodiversity Through Systems Neuroscience
2025-04-07 08:30 - 09:30 (America/New_York)
Understanding and supporting mental health and neurodiversity requires insight into the brain systems that regulate attention, motivation, mood and thought. Dr. Gruber’slab studies the brain’s role in these functions and how they are shaped by risk factors such as stress, inflammation and abused drugs.

Limb-Girdle Muscular Dystrophy Masterclass
2025-04-24 08:00 - 2025-04-25 17:00 (America/New_York)
Are you involved in diagnosing or managing Limb-Girdle muscular dystrophy (LGMD)? This April 2025, join TREAT-NMD™ in Montreal, Canada, for an in-person educational event designed for healthcare professionals in the neuromuscular field.

FSHD 360 Conference
2025-05-03 08:00 - 17:00 (America/Toronto)
FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research and advocacy leaders in Ontario as well as from biopharmaceutical companies that are working on FSHD therapies. Get answers to your questions about your health, maintaining optimal function through physical therapy, exercise, assistive devices, and more. Don’t miss out on the opportunity to meet patients and families and network with FSHD Society leaders and activists in the community!

2025 NMD4C Basic Research Summer School
2025-05-07 08:00 - 2025-05-08 17:00 (America/New_York)
The annual NMD4C summer school provides lecture-based and hands-on training workshops to neuromuscular trainees in cutting-edge wet lab techniques, while providing an environment for trainees to present their research and network in-person with colleagues and senior investigators from across Canada.

International Myotonic Dystrophy Consortium (IDMC-15)
2025-05-26 08:00 - 2025-05-30 17:00 (America/New_York)
The event will now make a stop in Canada, in the picturesque and warm Saguenay—Lac-Saint-Jean region of the province of Quebec.
A unique opportunity to network and share advances and initiatives in myotonic dystrophy research! Take advantage of this not-to-be-missed event!

unfolding PANS PANDAS | reshaping BRAIN+BODY health
2025-05-29 08:00 - 2025-05-30 17:00 (America/Edmonton)
This inaugural national conference brings together leading experts from Canada and beyond to explore the physiological and psychological complexities of Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS).

Unity Through Rheumatic Diseases: In-Person Event
2025-05-31 08:00 - 17:00 (America/New_York)

ALS Canada: Webinar-Driving Progress Forward
2025-06-18 12:30 - 14:00 (America/Edmonton)
In anticipation of Global ALS Awareness Day on June 21, join ALS Canada’s CEO Tammy Moore and the ALS Canada Team for a free, insightful webinar. Discover the comprehensive services and programs ALS Canada offers to Canadians living with and affected by ALS.
This engaging session will cover all mission areas, including community services, advocacy, research, and knowledge exchange, showcasing the extensive resources available nationwide.

7th International Indigenous Voices in Social Work Conference 2025 One Child Every Child: Indigenous Ways of Knowing, Doing, Connecting, and Being for Advancing the Well-Being of Our Future Generations
2025-08-12 08:00 - 2025-08-15 17:00 (America/Edmonton)
Situated between the Rocky Mountains and prairielands of Treaty 7 Territory in what we now call Southern Alberta, Canada, the 7th International Indigenous Voices in Social Work (IIVSW) Conference is a vital forum for sharing Indigenous perspectives and experiences in the field of social work.
This global gathering brings together a diverse and inspiring community of individuals dedicated to Indigenous social work, healing, and systemic change. IIVSW will provide a powerful space to connect, learn, and share knowledge across borders and cultures.
Hosted by UCalgary’s One Child Every Child, the Office of Indigenous Engagement and the Faculty of Social Work, the 7th IIVSW gathering welcomes all people from communities, practice, and research to gather for cultural exchange, shared learning and shared wisdom. From August 12 – 15, attendees will strengthen their spirits while walking parallel paths and sharing ethical space to advance the well-being of children, future generations and communities. Participants will meet, feast, and travel for experiential learning.

2025 Transdisciplinary Child & Maternal Health Trainee Research Day
2025-08-26 08:00 - 17:00 (America/Edmonton)
Led by the Alberta Children’s Hospital Research Institute Trainee Association (ACHRITA) in partnership with the Owerko Centre and ACHRI, the graduate portion of this symposium is funded by UCalgary’s Graduate Students’ Association.

2025 NMD4C Annual Meeting
2025-09-11 08:00 - 17:00 (America/Toronto)
Registration is now open for the 2025 NMD4C Annual Meeting!
Join NMD4C in Ottawa on Thursday, September 11, for a full day of dynamic discussions, research updates, and networking opportunities—just ahead of the 7th Ottawa International Conference on Neuromuscular Disease & Biology.

2nd Edition of the Symposium on Genetic Medicine
2025-09-12 08:00 - 17:00 (America/Toronto)
This year, the symposium will be dedicated to rare diseases, a major topic in genetics.

2e Journée québécoise sur les sarcomes
2025-09-19 08:00 - 17:00 (America/Toronto)
La 2e édition de la Journée québécoise sur les sarcomes rassemble la communauté médicale et scientifique québécoise œuvrant dans le domaine des sarcomes. Il offre une occasion unique pour :

Assister à des conférences et présentations de pointe
Favoriser des collaborations interinstitutionnelles porteuses
Renforcer les liens entre chercheuses, chercheurs, cliniciennes et cliniciens pour maximiser notre impact collectif.

6th Western Canadian Neuromuscular Conference
2025-09-25 08:00 - 2025-09-27 17:00 (America/Edmonton)
The 6th Western Canadian Neuromuscular
Conference is confirmed for 2026! Don’t miss
the opportunity to network with leading experts
and stay at the forefront of medical
advancements in the field of neuromuscular
diseases.

CAGC & CCMG Joint Conference
2025-10-05 08:00 - 2025-10-08 17:00 (America/Edmonton)
The CAGC & CCMG Joint Conference will be a unique gathering of medical and laboratory geneticists and genetic counsellors with diverse expertise, all sharing a common interest in education and advocating for best practices in clinical and laboratory genetics. Through presentations, workshops, breakout sessions, abstract sessions, and engagement with industry partners, the event propels forward clinical practice, scientific advancements, and excellence across all aspects of genetics in Canada.

RQMO 2025 Education Day
2025-10-18 08:00 - 17:00 (America/Toronto)
Under the theme “Rare Diseases: Let’s Break Isolation Together!”, this event aims to build bridges between those who live the daily reality of rare diseases and those who accompany and care for them.

YPAHD Day + National Conference
2025-10-30 08:00 - 2025-11-01 17:00 (America/Toronto)

Le poisson-zèbre pour accélérer la recherche sur les maladies rares.
2025-11-13 10:00 - 11:30 (America/Edmonton)
Episode 2 of the RQMO – RARE webinar series. QC presented by Éric Samarut, Assistant Professor and regular researcher at the CHUM Research Centre, Université de Montréal
Moderator: Jonathan Pratt, Executive Director of the RQMO

Child Health and Wellness Seminar: The Evolution of Medical AI: Progress, Potential, and Responsibility
2025-12-01 08:30 - 09:30 (America/Edmonton)
The Evolution of Medical AI: Progress, Potential, and Responsibility Speaker: Dr. Eman Rezk, PhD NSERC Postdoctoral Fellow Department of Electrical and Computer Engineering, University of Waterloo Host: Dr. Mohamed Eltorki, MD, FRCPC Associate Professor, University of Calgary

FA Together: Learn. Share. Connect. mini-regional conference in Calgary
2025-12-08 17:00 - 19:00 (America/Edmonton)

When Nutrient Sensing Goes Wrong: How Metabolic Signals Can Drive Epilepsy and Autism
2026-01-15 10:00 - 11:00 (America/Edmonton)
4e épisode de la série de webinaires en collaboration avec Rare.qc et le RQMO.
Titre complet : When Nutrient Sensing Goes Wrong: How Metabolic Signals Can Drive Epilepsy and Autism
Paul A. Dutchak, Ph.D is an Associate Professor at Université Laval and Principal Investigator at the CERVO Brain Research Centre (Québec, Canada). His laboratory studies how genetic mutations in the GATOR1 amino acid–sensing complex drive epilepsy and autism spectrum disorders through disruptions in cellular signaling, neurometabolism, and brain excitability. His group has developed a first-in-class antisense oligonucleotide therapeutic targeting this pathway, with strong preclinical efficacy in genetic epilepsies. His research program is currently supported by the Canadian Institute of Health Research.
Moderator : Jonathan Pratt, Executive director of the RQMO

CATALIS-Clinical Research 101: Webinar 1
2026-01-22 18:00 - 18:30 (America/Toronto)
Webinar 1 on January 22, 2026 from 6 pm to 6:30 pm

CATALIS-Clinical Research 101: Webinar 2
2026-01-29 18:00 - 18:30 (America/Toronto)
Webinar 2 on January 29, 2026 from 6 pm to 6:30 pm

Massey College: Rare Disease Day
2026-02-27 12:00 - 13:30 (America/Toronto)
This Rare Disease Day, Massey College is the Massey community to join us for a special Fireside Chat on an issue that touches more lives than many realize.
Lindy Forte, Mai K., Catherine Stratton, MPH, and Ian Stedman will share brief opening reflections from their respective perspectives on rare diseases. Together, they’ll explore how we can move beyond viewing rare diseases as isolated diagnoses and instead recognize them as part of one heterogeneous community united by shared experiences. The discussion will also highlight some of the most pressing challenges in the rare disease space today.

RQMO 2026 International Rare Disease Day
2026-02-28 10:00 - 16:00 (America/Toronto)
On February 28th, from 10 a.m. to 4 p.m., we invite you to participate in the RQMO 2026 International Rare Disease Day. The event will be held in hybrid mode, meaning that it will be possible to attend in person or virtually.
