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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251005T080000
DTEND;TZID=America/Edmonton:20251008T170000
DTSTAMP:20260409T115510
CREATED:20250520T192119Z
LAST-MODIFIED:20250520T192119Z
UID:8301-1759651200-1759942800@canadianrdn.ca
SUMMARY:CAGC & CCMG Joint Conference
DESCRIPTION:The CAGC & CCMG Joint Conference will be a unique gathering of medical and laboratory geneticists and genetic counsellors with diverse expertise\, all sharing a common interest in education and advocating for best practices in clinical and laboratory genetics. Through presentations\, workshops\, breakout sessions\, abstract sessions\, and engagement with industry partners\, the event propels forward clinical practice\, scientific advancements\, and excellence across all aspects of genetics in Canada.
URL:https://canadianrdn.ca/event/cagc-ccmg-joint-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250925T080000
DTEND;TZID=America/Edmonton:20250927T170000
DTSTAMP:20260409T115510
CREATED:20250812T195243Z
LAST-MODIFIED:20250812T195243Z
UID:8724-1758787200-1758992400@canadianrdn.ca
SUMMARY:6th Western Canadian Neuromuscular Conference
DESCRIPTION:The 6th Western Canadian Neuromuscular\nConference is confirmed for 2026! Don’t miss\nthe opportunity to network with leading experts\nand stay at the forefront of medical\nadvancements in the field of neuromuscular\ndiseases.
URL:https://canadianrdn.ca/event/6th-western-canadian-neuromuscular-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250919T080000
DTEND;TZID=America/Toronto:20250919T170000
DTSTAMP:20260409T115510
CREATED:20250827T170011Z
LAST-MODIFIED:20250827T170011Z
UID:8784-1758268800-1758301200@canadianrdn.ca
SUMMARY:2e Journée québécoise sur les sarcomes
DESCRIPTION:La 2e édition de la Journée québécoise sur les sarcomes rassemble la communauté médicale et scientifique québécoise œuvrant dans le domaine des sarcomes. Il offre une occasion unique pour : \n\nAssister à des conférences et présentations de pointe\nFavoriser des collaborations interinstitutionnelles porteuses\nRenforcer les liens entre chercheuses\, chercheurs\, cliniciennes et cliniciens pour maximiser notre impact collectif.
URL:https://canadianrdn.ca/event/2e-journee-quebecoise-sur-les-sarcomes/
CATEGORIES:Events,In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250912T080000
DTEND;TZID=America/Toronto:20250912T170000
DTSTAMP:20260409T115510
CREATED:20250729T165741Z
LAST-MODIFIED:20250729T165741Z
UID:8616-1757664000-1757696400@canadianrdn.ca
SUMMARY:2nd Edition of the Symposium on Genetic Medicine
DESCRIPTION:This year\, the symposium will be dedicated to rare diseases\, a major topic in genetics. \n 
URL:https://canadianrdn.ca/event/2nd-edition-of-the-symposium-on-genetic-medicine/
CATEGORIES:Conferences,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250911T170000
DTSTAMP:20260409T115510
CREATED:20250812T195526Z
LAST-MODIFIED:20250812T195526Z
UID:8727-1757577600-1757610000@canadianrdn.ca
SUMMARY:2025 NMD4C Annual Meeting
DESCRIPTION:Registration is now open for the 2025 NMD4C Annual Meeting!\nJoin NMD4C in Ottawa on Thursday\, September 11\, for a full day of dynamic discussions\, research updates\, and networking opportunities—just ahead of the 7th Ottawa International Conference on Neuromuscular Disease & Biology.
URL:https://canadianrdn.ca/event/2025-nmd4c-annual-meeting/
CATEGORIES:Clinical Trials,Events,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250826T080000
DTEND;TZID=America/Edmonton:20250826T170000
DTSTAMP:20260409T115510
CREATED:20250730T205148Z
LAST-MODIFIED:20250730T205148Z
UID:8632-1756195200-1756227600@canadianrdn.ca
SUMMARY:2025 Transdisciplinary Child & Maternal Health Trainee Research Day
DESCRIPTION:Led by the Alberta Children’s Hospital Research Institute Trainee Association (ACHRITA) in partnership with the Owerko Centre and ACHRI\, the graduate portion of this symposium is funded by UCalgary’s Graduate Students’ Association.
URL:https://canadianrdn.ca/event/2025-transdisciplinary-child-maternal-health-trainee-research-day/
CATEGORIES:Conferences,In Person,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250812T080000
DTEND;TZID=America/Edmonton:20250815T170000
DTSTAMP:20260409T115510
CREATED:20250703T195305Z
LAST-MODIFIED:20250703T195305Z
UID:8517-1754985600-1755277200@canadianrdn.ca
SUMMARY:7th International Indigenous Voices in Social Work Conference 2025 One Child Every Child:  Indigenous Ways of Knowing\, Doing\, Connecting\, and Being  for Advancing the Well-Being of Our Future Generations
DESCRIPTION:Situated between the Rocky Mountains and prairielands of Treaty 7 Territory in what we now call Southern Alberta\, Canada\, the 7th International Indigenous Voices in Social Work (IIVSW) Conference is a vital forum for sharing Indigenous perspectives and experiences in the field of social work. \nThis global gathering brings together a diverse and inspiring community of individuals dedicated to Indigenous social work\, healing\, and systemic change. IIVSW will provide a powerful space to connect\, learn\, and share knowledge across borders and cultures. \nHosted by UCalgary’s One Child Every Child\, the Office of Indigenous Engagement and the Faculty of Social Work\, the 7th IIVSW gathering welcomes all people from communities\, practice\, and research to gather for cultural exchange\, shared learning and shared wisdom. From August 12 – 15\, attendees will strengthen their spirits while walking parallel paths and sharing ethical space to advance the well-being of children\, future generations and communities. Participants will meet\, feast\, and travel for experiential learning.
URL:https://canadianrdn.ca/event/7th-international-indigenous-voices-in-social-work-conference-2025-one-child-every-child-indigenous-ways-of-knowing-doing-connecting-and-being-for-advancing-the-well-being-of-our-future-generati/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/IIVSW-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250618T123000
DTEND;TZID=America/Edmonton:20250618T140000
DTSTAMP:20260409T115510
CREATED:20250618T150444Z
LAST-MODIFIED:20250618T150444Z
UID:8457-1750249800-1750255200@canadianrdn.ca
SUMMARY:ALS Canada: Webinar-Driving Progress Forward
DESCRIPTION:In anticipation of Global ALS Awareness Day on June 21\, join ALS Canada’s CEO Tammy Moore and the ALS Canada Team for a free\, insightful webinar. Discover the comprehensive services and programs ALS Canada offers to Canadians living with and affected by ALS. \nThis engaging session will cover all mission areas\, including community services\, advocacy\, research\, and knowledge exchange\, showcasing the extensive resources available nationwide.
URL:https://canadianrdn.ca/event/als-canada-webinar-driving-progress-forward/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Policy,Provincial,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250531T080000
DTEND;TZID=America/New_York:20250531T170000
DTSTAMP:20260409T115510
CREATED:20250304T033141Z
LAST-MODIFIED:20250304T033141Z
UID:7614-1748678400-1748710800@canadianrdn.ca
SUMMARY:Unity Through Rheumatic Diseases: In-Person Event
DESCRIPTION:
URL:https://canadianrdn.ca/event/unity-through-rheumatic-diseases-in-person-event/
CATEGORIES:Caregiver,Conferences,Industry,National,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250529T080000
DTEND;TZID=America/Edmonton:20250530T170000
DTSTAMP:20260409T115510
CREATED:20250529T205729Z
LAST-MODIFIED:20250529T205729Z
UID:8394-1748505600-1748624400@canadianrdn.ca
SUMMARY:unfolding PANS PANDAS | reshaping BRAIN+BODY health
DESCRIPTION:This inaugural national conference brings together leading experts from Canada and beyond to explore the physiological and psychological complexities of Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS).
URL:https://canadianrdn.ca/event/unfolding-pans-pandas-reshaping-brainbody-health/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250526T080000
DTEND;TZID=America/New_York:20250530T170000
DTSTAMP:20260409T115510
CREATED:20250107T230203Z
LAST-MODIFIED:20250227T033823Z
UID:7320-1748246400-1748624400@canadianrdn.ca
SUMMARY:International Myotonic Dystrophy Consortium (IDMC-15)
DESCRIPTION:The event will now make a stop in Canada\, in the picturesque and warm Saguenay—Lac-Saint-Jean region of the province of Quebec. \nA unique opportunity to network and share advances and initiatives in myotonic dystrophy research! Take advantage of this not-to-be-missed event!
URL:https://canadianrdn.ca/event/international-myotonic-dystrophy-consortium-idmc-15/
CATEGORIES:Conferences,Industry,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250507T080000
DTEND;TZID=America/New_York:20250508T170000
DTSTAMP:20260409T115510
CREATED:20250111T002336Z
LAST-MODIFIED:20250111T002336Z
UID:7361-1746604800-1746723600@canadianrdn.ca
SUMMARY:2025 NMD4C Basic Research Summer School
DESCRIPTION:The annual NMD4C summer school provides lecture-based and hands-on training workshops to neuromuscular trainees in cutting-edge wet lab techniques\, while providing an environment for trainees to present their research and network in-person with colleagues and senior investigators from across Canada.
URL:https://canadianrdn.ca/event/2025-nmd4c-basic-research-summer-school/
CATEGORIES:Events,In Person,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250503T080000
DTEND;TZID=America/Toronto:20250503T170000
DTSTAMP:20260409T115510
CREATED:20250501T161048Z
LAST-MODIFIED:20250501T161048Z
UID:8088-1746259200-1746291600@canadianrdn.ca
SUMMARY:FSHD 360 Conference
DESCRIPTION:FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research and advocacy leaders in Ontario as well as from biopharmaceutical companies that are working on FSHD therapies. Get answers to your questions about your health\, maintaining optimal function through physical therapy\, exercise\, assistive devices\, and more. Don’t miss out on the opportunity to meet patients and families and network with FSHD Society leaders and activists in the community!
URL:https://canadianrdn.ca/event/fshd-360-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,Industry,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250424T080000
DTEND;TZID=America/New_York:20250425T170000
DTSTAMP:20260409T115510
CREATED:20250118T001616Z
LAST-MODIFIED:20250118T001616Z
UID:7374-1745481600-1745600400@canadianrdn.ca
SUMMARY:Limb-Girdle Muscular Dystrophy Masterclass
DESCRIPTION:Are you involved in diagnosing or managing Limb-Girdle muscular dystrophy (LGMD)? This April 2025\, join TREAT-NMD™ in Montreal\, Canada\, for an in-person educational event designed for healthcare professionals in the neuromuscular field.
URL:https://canadianrdn.ca/event/limb-girdle-muscular-dystrophy-masterclass/
CATEGORIES:In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T083000
DTEND;TZID=America/New_York:20250407T093000
DTSTAMP:20260409T115510
CREATED:20250326T033414Z
LAST-MODIFIED:20250326T033414Z
UID:7832-1744014600-1744018200@canadianrdn.ca
SUMMARY:Child Health and Wellness Seminar: Discovery Series: Understanding Mental Health and Neurodiversity Through Systems Neuroscience
DESCRIPTION:Understanding and supporting mental health and neurodiversity requires insight into the brain systems that regulate attention\, motivation\, mood and thought. Dr. Gruber’slab studies the brain’s role in these functions and how they are shaped by risk factors such as stress\, inflammation and abused drugs. \n 
URL:https://canadianrdn.ca/event/child-health-and-wellness-seminar-discovery-series-understanding-mental-health-and-neurodiversity-through-systems-neuroscience/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/13714_COLOURBOX31156818.rev_.1742924419.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250331T083000
DTEND;TZID=America/New_York:20250331T093000
DTSTAMP:20260409T115510
CREATED:20250326T033117Z
LAST-MODIFIED:20250326T033117Z
UID:7829-1743409800-1743413400@canadianrdn.ca
SUMMARY:Understanding what matters to children and families: The socioeconomic impact of childhood arthritis
DESCRIPTION:This presentation will share findings from the Health Economics research lead by\nDr. Marshall as part of the international UCAN CAN-DU and CURE research program\non childhood arthritis.
URL:https://canadianrdn.ca/event/understanding-what-matters-to-children-and-families-the-socioeconomic-impact-of-childhood-arthritis/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250329T080000
DTEND;TZID=America/Los_Angeles:20250329T133000
DTSTAMP:20260409T115510
CREATED:20250123T230329Z
LAST-MODIFIED:20250123T230329Z
UID:7423-1743235200-1743255000@canadianrdn.ca
SUMMARY:Vancouver Patient Education Meeting – IN-PERSON
DESCRIPTION:
URL:https://canadianrdn.ca/event/vancouver-patient-education-meeting-in-person/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250318T183000
DTEND;TZID=America/Halifax:20250318T213000
DTSTAMP:20260409T115510
CREATED:20250307T042503Z
LAST-MODIFIED:20250307T042503Z
UID:7694-1742322600-1742333400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 by McGill’s RareDIG
DESCRIPTION:McGill’s RareDIG is excited to welcome you to their seventh edition of Rare Disease Day! Students\, researchers\, physicians\, patients\, and community members\, including the RQMO\, will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) in Montreal on March 18th at 6:30 pm to discuss the challenges faced by people with rare diseases\, research and advocacy efforts. Poster presentations will also be prepared by student researchers with a keen interest in making a difference in the rare disease field. \nPresentations are open to all and free of charge. Presentations will be in English only\, and the event will be held in person only\, with no online broadcast.
URL:https://canadianrdn.ca/event/rare-disease-day-2025-by-mcgills-raredig/
CATEGORIES:Events,In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250228T090000
DTEND;TZID=America/New_York:20250228T130000
DTSTAMP:20260409T115510
CREATED:20250225T041117Z
LAST-MODIFIED:20250225T041117Z
UID:7560-1740733200-1740747600@canadianrdn.ca
SUMMARY:Rare Disease Day and World Birth Defects Symposium
DESCRIPTION:Join on February 28\, 2025\, for the Rare Disease Day and World Birth Deficit Symposium\, an event dedicated to raising awareness and fostering meaningful discussions on the challenges faced by individuals and families affected by rare diseases. This symposium will bring together patients\, caregivers\, healthcare professionals\, and community advocates to share experiences\, promote equity\, and drive change.
URL:https://canadianrdn.ca/event/rare-disease-day-and-world-birth-defects-symposium/
CATEGORIES:Events,Hybrid,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250228T080000
DTEND;TZID=America/Denver:20250228T160000
DTSTAMP:20260409T115510
CREATED:20250219T015433Z
LAST-MODIFIED:20250219T015433Z
UID:7498-1740729600-1740758400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 University of Alberta
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-day-2025-university-of-alberta/
CATEGORIES:Events,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/02/Rare-Disease-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250224T080000
DTEND;TZID=America/Chicago:20250226T170000
DTSTAMP:20260409T115510
CREATED:20250219T015946Z
LAST-MODIFIED:20250219T015946Z
UID:7504-1740384000-1740589200@canadianrdn.ca
SUMMARY:2025 Clinical Trials Training Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2025-clinical-trials-training-summit/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241203T080000
DTEND;TZID=America/Halifax:20241203T170000
DTSTAMP:20260409T115510
CREATED:20240523T213710Z
LAST-MODIFIED:20240531T021448Z
UID:4222-1733212800-1733245200@canadianrdn.ca
SUMMARY:Spinal Muscular Atrophy Outcome Measures Workshop (English Language)
DESCRIPTION:Earlier this year\, NMD4C\, MDC and Quebec SMA Network hosted the first interactive training session for French-speaking physiotherapists and occupational therapists on assessment measures and practices for Spinal Muscular Atrophy (SMA). \nTo complement this training session\, the NMD4C will be hosting an English-language interactive training workshop on standardizing assessment practices in SMA outcome measures. \nThis workshop will be taking place the day before the Allied Professionals Forum in Montreal. \nPlease ensure you register before the deadline of June 18th\, 2024.
URL:https://canadianrdn.ca/event/spinal-muscular-atrophy-outcome-measures-workshop-english-language/
LOCATION:Le Centre Sheraton Montreal\, Montreal\, Quebec\, Canada
CATEGORIES:Healthcare,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241202T080000
DTEND;TZID=America/Denver:20241203T170000
DTSTAMP:20260409T115510
CREATED:20241121T024400Z
LAST-MODIFIED:20241121T024400Z
UID:7020-1733126400-1733245200@canadianrdn.ca
SUMMARY:Child Health Hub in Transition to Adult Healthcare
DESCRIPTION:The Child Health Hub in Transition to Adult Healthcare is excited to be hosting the 2nd Transition to Adulthood Pop-Up event on December 2-3\, 2023\, at the beautiful Hyatt Regency in downtown Vancouver. This event aims to bring together youth\, families\, trainees\, researchers\, clinicians\, and policy/decision makers to celebrate the best of what we are learning\, and doing\, to help young people to develop fully\, even when they are challenged by health conditions. For those unable to join in-person\, aspects of the event will be made available in a virtual format.
URL:https://canadianrdn.ca/event/child-health-hub-in-transition-to-adult-healthcare/
CATEGORIES:Caregiver,Healthcare,Hybrid,Industry,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241109T083000
DTEND;TZID=America/New_York:20241109T130000
DTSTAMP:20260409T115510
CREATED:20241107T230742Z
LAST-MODIFIED:20241107T230742Z
UID:6973-1731141000-1731157200@canadianrdn.ca
SUMMARY:Montreal Patient Education Meeting – IN-PERSON
DESCRIPTION:
URL:https://canadianrdn.ca/event/montreal-patient-education-meeting-in-person/
CATEGORIES:Caregiver,Conferences,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241105
DTEND;VALUE=DATE:20241106
DTSTAMP:20260409T115510
CREATED:20240730T020251Z
LAST-MODIFIED:20240730T020251Z
UID:4886-1730764800-1730851199@canadianrdn.ca
SUMMARY:2024 Annual Pain Centre Conference - Building Bridges to Reduce Disparities in Pediatric Pain
DESCRIPTION:
URL:https://canadianrdn.ca/event/2024-annual-pain-centre-conference-building-bridges-to-reduce-disparities-in-pediatric-pain/
LOCATION:toronto\, ontario\, 686 Bay Street\, Toronto\, Ontario\, M5G 0A4\, Canada
CATEGORIES:Healthcare,In Person,National,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241102T080000
DTEND;TZID=UTC:20241102T180000
DTSTAMP:20260409T115510
CREATED:20241017T225433Z
LAST-MODIFIED:20241017T225433Z
UID:6108-1730534400-1730570400@canadianrdn.ca
SUMMARY:The Association X Fragile Québec Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/the-association-x-fragile-quebec-conference/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/cropped-logo-axfq_coul_rgb.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241031T120000
DTEND;TZID=America/Denver:20241031T130000
DTSTAMP:20260409T115510
CREATED:20240828T231253Z
LAST-MODIFIED:20240828T231253Z
UID:5502-1730376000-1730379600@canadianrdn.ca
SUMMARY:CRDN Townhall – An Update on the Co-Development of our Strategic Plan
DESCRIPTION:Join the Canadian Rare Disease Network (CRDN) – Réseau Canadien des Maladies Rares – for a dynamic townhall to engage with thought leaders\, experts\, and the rare disease community as we explore and shape the future of rare disease care and research in Canada. This townhall will provide an overview of the CRDN and its draft strategic plan. Following the presentation\, there will be an opportunity to ask questions and contribute to the co-development of CRDN’s strategic plan. Whether you are a patient\, caregiver\, researcher\, healthcare provider\, advocate\, or other member of the rare disease community\, your voice is vital in building a more integrated\, inclusive\, and compassionate approach to rare disease care and research in Canada. Register now to be part of this conversation!
URL:https://canadianrdn.ca/event/crdn-townhall-an-update-on-the-co-development-of-our-strategic-plan/
CATEGORIES:Caregiver,Events,National,Patient Focused,Policy,Provincial,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/Town-Hall-Eng.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/St_Johns:20241020T080000
DTEND;TZID=America/St_Johns:20241022T210000
DTSTAMP:20260409T115510
CREATED:20240730T202537Z
LAST-MODIFIED:20240730T202537Z
UID:4890-1729411200-1729630800@canadianrdn.ca
SUMMARY:#ChildHealthCan2024
DESCRIPTION:Children’s Healthcare Canada and co-hosts\, the Janeway Children’s Hospital Foundation and NL Health Services\, invite you to join us in picturesque Newfoundland and Labrador from October 20-22\, at the St. John’s Convention Centre for their 2024 Annual Conference\, Right-Sizing Health Systems for Kids: Navigating to Brighter Futures. For those unable to attend in person\, a real-time virtual option will also be available. \nChildren’s Healthcare Canada is on a mission to Right-Size Child Healthcare Systems. In 2024\, they will explore how to pave the way for brighter futures for children\, youth\, and families within the healthcare systems. Through the collective efforts of their members\, strategic partners\, and sponsors\, they are dedicated to ensuring that all children and youth in Canada have access to the healthcare services they require in a timely manner. \nWe are thrilled to share that we will be hosting another conference in the Spring of 2025\, giving attendees the opportunity to engage in two conferences within a six-month period! \nJoin us at our upcoming conferences in October 2024 and 2025 as they delve into the concept of right-sizing health systems. Together\, they will discuss what it takes to establish a flexible and responsive system that meets the unique needs of children and youth\, ultimately leading to improved outcomes for all. \nDon’t miss the opportunity to contribute to the conversation on shaping a better future for the health and well-being of our youngest generation. They eagerly anticipate welcoming you to St. John’s\, Newfoundland and Labrador\, as we work towards a brighter tomorrow for our children and families.
URL:https://canadianrdn.ca/event/childhealthcan2024/
LOCATION:St.Johns\, Newfoundland\, 50 New Gower Street\, St.Johns\, Newfoundland\, A1C 1J3\, Canada
CATEGORIES:Caregiver,Conferences,Hybrid,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/07/1707853515557.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241019T080000
DTEND;TZID=America/Halifax:20241019T170000
DTSTAMP:20260409T115510
CREATED:20240923T212950Z
LAST-MODIFIED:20240923T212950Z
UID:5915-1729324800-1729357200@canadianrdn.ca
SUMMARY:RQMO Educational Day 2024
DESCRIPTION:The 2024 RQMO educational day will focus on a theme that affects many families who have a child with a rare disease: \nThe transition to adulthood of children with differences.
URL:https://canadianrdn.ca/event/rqmo-educational-day-2024/
CATEGORIES:In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240927T170000
DTEND;TZID=America/Chicago:20240929T130000
DTSTAMP:20260409T115510
CREATED:20240522T224236Z
LAST-MODIFIED:20240531T022345Z
UID:4144-1727456400-1727614800@canadianrdn.ca
SUMMARY:Western Canadian Neuromuscular Conference (WCNMC)
DESCRIPTION:This is the 5th WCNMC and is being held in Calgary on September 27 – 29\, 2024. The conference has rotated locations in Western Canada with the inaugural conference hosted in Calgary in 2013. This weekend conference is designed for general neurologists\, neuromuscular specialists\, physical medicine and rehabilitation specialists\, trainee physicians with interest in Neuromuscular Medicine and allied health members from the neuromuscular community. \nThe conference anticipates 100 – 150 attendees. The majority of attendees will come from Calgary\, Edmonton and Vancouver\, with a smaller but important complement of colleagues travelling from mid-sized centres such as Victoria\, Regina\, Kelowna\, Lethbridge and Saskatoon. \nThis conference has been well received in the past within the neuromuscular community as an opportunity to update and share knowledge. The conference has not been held in-person since 2017 and there is much excitement and enthusiasm for this conference within the neuromuscular community to reconnect in person. \nThe conference will update participants on recent advances in the diagnosis and management of common nerve\, muscle and motor neuron diseases. The format will be a blend of short didactic presentations with interactive discussions\, international keynote speakers leading the plenary sessions and question answer sessions. Additionally\, the conference will provide ample networking opportunities as the exhibit hall will be in the same space as all meals and include a robust welcome reception. \nIf you have questions about speakers\, sponsorship or anything else regarding WCNMC\, please contact info@wcnmc.ca.
URL:https://canadianrdn.ca/event/western-canadian-neuromuscular-conference-wcnmc/
LOCATION:Hotel Arts Calgary\, Calgary\, Alberta\, Canada
CATEGORIES:Healthcare,In Person,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/05/1709814041logo-jpg1709814041.jpg
END:VEVENT
END:VCALENDAR