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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260421T190000
DTEND;TZID=America/Toronto:20260421T200000
DTSTAMP:20260409T083557
CREATED:20260401T193125Z
LAST-MODIFIED:20260401T193125Z
UID:10079-1776798000-1776801600@canadianrdn.ca
SUMMARY:Ontario Rare Action Group Information Meeting
DESCRIPTION:Join the Ontario Rare Action Group information meeting April 21\, 2026. They will be talking to you about what they’ve been up to the last month and how the community is continuing to grow.
URL:https://canadianrdn.ca/event/ontario-rare-action-group-information-meeting/
CATEGORIES:Caregiver,Patient Focused,Policy,Provincial,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774982101843.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260423T050000
DTEND;TZID=America/Edmonton:20260423T060000
DTSTAMP:20260409T083557
CREATED:20260401T192204Z
LAST-MODIFIED:20260401T192204Z
UID:10064-1776920400-1776924000@canadianrdn.ca
SUMMARY:Innovative Financing for Rare Diseases
DESCRIPTION:How can innovative financing approaches improve equitable access to diagnosis\, treatment\, and care for people living with rare diseases? \nJoin RDI-International for a new webinar series bringing together health economists\, policymakers\, patient advocates\, and payers. Through a multistakeholder dialogue\, this series will examine key financing gaps and barriers to access\, map these challenges to relevant innovative financing mechanisms\, discuss enabling conditions for implementation\, and inform policy and advocacy actions.
URL:https://canadianrdn.ca/event/innovative-financing-for-rare-diseases/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773674001238.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260425T080000
DTEND;TZID=America/Toronto:20260426T170000
DTSTAMP:20260409T083557
CREATED:20260401T192005Z
LAST-MODIFIED:20260401T192005Z
UID:10061-1777104000-1777222800@canadianrdn.ca
SUMMARY:ALS Disrupt
DESCRIPTION:A bold new meeting designed to bring together global leaders in #ALS for open\, timely\, and collaborative discussions that move the field forward.
URL:https://canadianrdn.ca/event/als-disrupt/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773237619453-1.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260513T073000
DTEND;TZID=America/Toronto:20260513T093000
DTSTAMP:20260409T083557
CREATED:20260401T192911Z
LAST-MODIFIED:20260401T192911Z
UID:10076-1778657400-1778664600@canadianrdn.ca
SUMMARY:Voices for Rare Advocacy Day
DESCRIPTION:A day dedicated to bringing the voices of Ontario’s rare disease community directly to policymakers.
URL:https://canadianrdn.ca/event/voices-for-rare-advocacy-day/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Patient Focused,Policy,Provincial
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1775052370537.jpg
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BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20260524T080000
DTEND;TZID=Asia/Karachi:20260529T170000
DTSTAMP:20260409T083557
CREATED:20241215T024241Z
LAST-MODIFIED:20241215T024241Z
UID:7226-1779609600-1780074000@canadianrdn.ca
SUMMARY:15th edition of the International Myotonic Dystrophy Consortium (IDMC-15)
DESCRIPTION:The event will now make a stop in Canada\, in the picturesque and warm Saguenay—Lac-Saint-Jean region of the province of Quebec. \nA unique opportunity to network and share advances and initiatives in myotonic dystrophy research! Take advantage of this not-to-be-missed event!
URL:https://canadianrdn.ca/event/15th-edition-of-the-international-myotonic-dystrophy-consortium-idmc-15/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/12/1734027557266.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260531T080000
DTEND;TZID=America/Edmonton:20260602T170000
DTSTAMP:20260409T083557
CREATED:20250827T162014Z
LAST-MODIFIED:20250827T162014Z
UID:8774-1780214400-1780419600@canadianrdn.ca
SUMMARY:2026 Children’s Healthcare Canada Annual Conference\, “Tomorrow’s Promise\, Today’s Plan: Transforming Children’s Healthcare in Canada”
DESCRIPTION:📆Save the date: May 31-June 2
URL:https://canadianrdn.ca/event/2026-childrens-healthcare-canada-annual-conference-tomorrows-promise-todays-plan-transforming-childrens-healthcare-in-canada/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261018T080000
DTEND;TZID=America/Edmonton:20261020T170000
DTSTAMP:20260409T083557
CREATED:20251113T224713Z
LAST-MODIFIED:20251113T224713Z
UID:9153-1792310400-1792515600@canadianrdn.ca
SUMMARY:Kids Brain Health Network (KBHN) Annual Conference
DESCRIPTION:Save the Date! \nKids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference\, happening October 18–20\, 2026\, in Calgary\, Alberta!
URL:https://canadianrdn.ca/event/kids-brain-health-network-kbhn-annual-conference/
CATEGORIES:Caregiver,Conferences,In Person,Industry,National,Patient Focused,Provincial,Research Focused
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