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X-WR-CALDESC:Events for Canadian Rare Disease Network
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UID:8088-1746259200-1746291600@canadianrdn.ca
SUMMARY:FSHD 360 Conference
DESCRIPTION:FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research and advocacy leaders in Ontario as well as from biopharmaceutical companies that are working on FSHD therapies. Get answers to your questions about your health\, maintaining optimal function through physical therapy\, exercise\, assistive devices\, and more. Don’t miss out on the opportunity to meet patients and families and network with FSHD Society leaders and activists in the community!
URL:https://canadianrdn.ca/event/fshd-360-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,Industry,Patient Focused,Provincial,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250507T080000
DTEND;TZID=America/New_York:20250508T170000
DTSTAMP:20260410T050545
CREATED:20250111T002336Z
LAST-MODIFIED:20250111T002336Z
UID:7361-1746604800-1746723600@canadianrdn.ca
SUMMARY:2025 NMD4C Basic Research Summer School
DESCRIPTION:The annual NMD4C summer school provides lecture-based and hands-on training workshops to neuromuscular trainees in cutting-edge wet lab techniques\, while providing an environment for trainees to present their research and network in-person with colleagues and senior investigators from across Canada.
URL:https://canadianrdn.ca/event/2025-nmd4c-basic-research-summer-school/
CATEGORIES:Events,In Person,Provincial,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250526T080000
DTEND;TZID=America/New_York:20250530T170000
DTSTAMP:20260410T050545
CREATED:20250107T230203Z
LAST-MODIFIED:20250227T033823Z
UID:7320-1748246400-1748624400@canadianrdn.ca
SUMMARY:International Myotonic Dystrophy Consortium (IDMC-15)
DESCRIPTION:The event will now make a stop in Canada\, in the picturesque and warm Saguenay—Lac-Saint-Jean region of the province of Quebec. \nA unique opportunity to network and share advances and initiatives in myotonic dystrophy research! Take advantage of this not-to-be-missed event!
URL:https://canadianrdn.ca/event/international-myotonic-dystrophy-consortium-idmc-15/
CATEGORIES:Conferences,Industry,Patient Focused,Provincial,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250529T080000
DTEND;TZID=America/Edmonton:20250530T170000
DTSTAMP:20260410T050545
CREATED:20250529T205729Z
LAST-MODIFIED:20250529T205729Z
UID:8394-1748505600-1748624400@canadianrdn.ca
SUMMARY:unfolding PANS PANDAS | reshaping BRAIN+BODY health
DESCRIPTION:This inaugural national conference brings together leading experts from Canada and beyond to explore the physiological and psychological complexities of Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS).
URL:https://canadianrdn.ca/event/unfolding-pans-pandas-reshaping-brainbody-health/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,Patient Focused,Policy,Provincial,Research Focused
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DTSTART;TZID=America/New_York:20250531T080000
DTEND;TZID=America/New_York:20250531T170000
DTSTAMP:20260410T050545
CREATED:20250304T033141Z
LAST-MODIFIED:20250304T033141Z
UID:7614-1748678400-1748710800@canadianrdn.ca
SUMMARY:Unity Through Rheumatic Diseases: In-Person Event
DESCRIPTION:
URL:https://canadianrdn.ca/event/unity-through-rheumatic-diseases-in-person-event/
CATEGORIES:Caregiver,Conferences,Industry,National,Patient Focused,Provincial,Research Focused
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