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X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20261112T080000
DTEND;TZID=America/Halifax:20261113T170000
DTSTAMP:20261001T190948Z
CREATED:20261001T190948Z
LAST-MODIFIED:20261001T190948Z
UID:11741-1794470400-1794589200@canadianrdn.ca
SUMMARY:CORD Fall Conference 2026
DESCRIPTION:From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey\, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans.
URL:https://canadianrdn.ca/event/cord-fall-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/lg_SavetheDateFallConference2026-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261112T080000
DTEND;TZID=America/Toronto:20261113T170000
DTSTAMP:20261027T165652Z
CREATED:20261027T165652Z
LAST-MODIFIED:20261027T165652Z
UID:11885-1794470400-1794589200@canadianrdn.ca
SUMMARY:Journées scientifiques du CARES
DESCRIPTION:La CARES vous donne rendez-vous les 12 et 13 novembre 2026\, à Québec\, pour deux journées de rencontres\, de partage et de réflexions autour de la santé en régions rurales et éloignées.
URL:https://canadianrdn.ca/event/journees-scientifiques-du-cares/
CATEGORIES:Conferences,Healthcare,In Person,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/affiche-cares-2026.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261113
DTEND;VALUE=DATE:20261114
DTSTAMP:20261027T162520Z
CREATED:20261027T162520Z
LAST-MODIFIED:20261027T162520Z
UID:11845-1794528000-1794614399@canadianrdn.ca
SUMMARY:Research as Care: Why Rare Diseases Matter for Europe's Future
DESCRIPTION:More than 30 million people across Europe live with a rare disease. This event explores how research and innovation can become the standard of care for all rare diseases — building momentum for a coordinated EU Action Plan\, examining the Biotech Act’s role in strengthening Europe’s innovation base and competitiveness\, and demonstrating what happens when patients are true partners.
URL:https://canadianrdn.ca/event/research-as-care-why-rare-diseases-matter-for-europes-future/
CATEGORIES:Clinical Trials,Events,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Event-Registration.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261113T080000
DTEND;TZID=America/Toronto:20261114T170000
DTSTAMP:20261027T163009Z
CREATED:20261027T163009Z
LAST-MODIFIED:20261027T163009Z
UID:11851-1794556800-1794675600@canadianrdn.ca
SUMMARY:TREAT-NMD and the Muscular Dystrophy Association- LGMD Masterclass
DESCRIPTION:This masterclass is designed for healthcare professionals to support integrated care and includes sessions on diagnosis\, genetic testing\, imaging\, muscle biopsy\, physiotherapy\, cardiac and respiratory management\, clinical trials\, standards of care and patient advocacy. As such\, it may be of interest to neurologists\, paediatricians\, geneticists\, physiotherapists\, rehabilitation specialists\, cardiologists\, specialist nurses\, care coordinators and other allied healthcare professionals involved in the management of LGMD.
URL:https://canadianrdn.ca/event/treat-nmd-and-the-muscular-dystrophy-association-lgmd-masterclass/
CATEGORIES:Clinical Trials,Events,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Website-Banners-13.png
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261113T080000
DTEND;TZID=America/Toronto:20261114T170000
DTSTAMP:20261027T164655Z
CREATED:20261027T164655Z
LAST-MODIFIED:20261027T164655Z
UID:11869-1794556800-1794675600@canadianrdn.ca
SUMMARY:Canadian Symposium on Lysosomal Diseases
DESCRIPTION:The fourth Canadian Symposium on Lysosomal Diseases focuses on advances in disease mechanisms\, diagnosis\, and management of lysosomal storage disorders\, including Gaucher disease\, Fabry disease\, Pompe disease\, and Niemann-Pick disease.
URL:https://canadianrdn.ca/event/canadian-symposium-on-lysosomal-diseases/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261118T120000
DTEND;TZID=America/Toronto:20261118T140000
DTSTAMP:20261027T162658Z
CREATED:20261027T162658Z
LAST-MODIFIED:20261027T162658Z
UID:11848-1795003200-1795010400@canadianrdn.ca
SUMMARY:HDRN Canada Discussion Session: From IDEA to Action: Three New Tools for Health Data Research
DESCRIPTION:The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan:\n🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to administrative health data research.\n🔹 IDEA Benchmarking Tool — to help organizations assess current IDEA initiatives and identify opportunities for future action.\n🔹 Core Questions Reflection Tool — to prompt researchers and data administrators to consider IDEA from the earliest stages of project design. \nHear the thinking behind each tool\, how they were developed and how they can be put to work in real-world settings.
URL:https://canadianrdn.ca/event/hdrn-canada-discussion-session-from-idea-to-action-three-new-tools-for-health-data-research/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1792701356267.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261118T190000
DTEND;TZID=America/Toronto:20261118T200000
DTSTAMP:20261027T164427Z
CREATED:20261027T164427Z
LAST-MODIFIED:20261027T164427Z
UID:11866-1795028400-1795032000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada: Gene Therapy Education Night
DESCRIPTION:Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne\, sponsored by REGENXBIO\, Roche Canada\, and Solid Biosciences. Together with patient voices and clinical expertise\, they’ll help translate complex science into clear\, practical information you can use. \n 
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-gene-therapy-education-night/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1792075442229.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261125T190000
DTEND;TZID=America/Toronto:20261125T203000
DTSTAMP:20261027T164901Z
CREATED:20261027T164901Z
LAST-MODIFIED:20261027T164901Z
UID:11872-1795633200-1795638600@canadianrdn.ca
SUMMARY:CASL-CaNAL Autoimmune Liver Disease Case Spotlight Series Third Edition
DESCRIPTION:The Canadian Association for the Study of the Liver (CASL)\, in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL)\, is hosting a national webinar focused on autoimmune and rare liver diseases. The session features Dr. Aldo Montano-Loza of the University of Alberta and Dr. Gideon M. Hirschfield of Toronto General Hospital’s Autoimmune and Rare Liver Disease Program. The activity is accredited for continuing medical education.
URL:https://canadianrdn.ca/event/casl-canal-autoimmune-liver-disease-case-spotlight-series-third-edition/
CATEGORIES:Caregiver,Events,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/CASL-CaNAL-AILD-Pan-Canadian-Webinar-Series-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261130T080000
DTEND;TZID=America/Toronto:20261130T170000
DTSTAMP:20261027T164202Z
CREATED:20261027T164202Z
LAST-MODIFIED:20261027T164202Z
UID:11863-1796025600-1796058000@canadianrdn.ca
SUMMARY:AI for Health 2026
DESCRIPTION:The Symposium on AI for Health is a one-day event that brings together researchers\, clinicians\, industry partners\, and policymakers to explore how artificial intelligence can accelerate biomedical innovation and advance RNA-based technologies. The symposium will highlight emerging research\, foster cross-sector collaboration\, and identify opportunities to translate scientific discoveries into real-world health impact. This event is co-organized by D2R-HeDS\, IVADO and the RI-MUHC (Research Institute of the McGill University Health Centre).
URL:https://canadianrdn.ca/event/ai-for-health-2026/
CATEGORIES:Events,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1792070658009.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261130T080000
DTEND;TZID=America/Toronto:20261201T170000
DTSTAMP:20261027T165053Z
CREATED:20261027T165053Z
LAST-MODIFIED:20261027T165053Z
UID:11876-1796025600-1796144400@canadianrdn.ca
SUMMARY:MITO2026 International Conference
DESCRIPTION:The MITO2026 International Conference\, organized by MITO2i and MitoCanada\, brings together people working across the mitochondrial disease research community. Mitochondrial disorders can affect multiple organs and systems and include many rare genetic conditions. \n 
URL:https://canadianrdn.ca/event/mito2026-international-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Mito2026-Conference-Banner-main-page-1200x533-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261214T070000
DTEND;TZID=America/Edmonton:20261214T080000
DTSTAMP:20261027T163327Z
CREATED:20261027T163327Z
LAST-MODIFIED:20261027T163327Z
UID:11854-1797231600-1797235200@canadianrdn.ca
SUMMARY:ERDERA Joint Transnational Call 2027: Information Webinar
DESCRIPTION:This information webinar on the 2027 Joint Transnational Call for Proposals is scheduled for 14 December 2026.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2027-information-webinar/
CATEGORIES:Clinical Trials,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/ERDERA-funding-visual-1-1024x724-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20270125T080000
DTEND;TZID=America/Toronto:20270126T170000
DTSTAMP:20260817T162431Z
CREATED:20260817T162431Z
LAST-MODIFIED:20260817T162431Z
UID:11430-1800864000-1800982800@canadianrdn.ca
SUMMARY:Inaugural Canadian Gene & Cell Therapy Conference
DESCRIPTION:Convened by RareKids-CAN in partnership with the Conference Organizing Committee\, the conference will bring together researchers\, clinicians\, manufacturers\, industry leaders\, regulators\, trainees\, and patient and family partners from across the full translational pipeline.
URL:https://canadianrdn.ca/event/inaugural-canadian-gene-cell-therapy-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1784829020316.jpg
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