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X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Toronto:20260919T090000
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UID:11420-1789808400-1789826400@canadianrdn.ca
SUMMARY:SickKids: Neurovascular Family Education Day 2026
DESCRIPTION:Please join SickKids for an educational event for patients\, families\, and care-givers featuring expert speakers on Moyamoya Disease.
URL:https://canadianrdn.ca/event/sickkids-neurovascular-family-education-day-2026/
CATEGORIES:Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/images.jpg
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DTSTART;TZID=America/Toronto:20260919T100000
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UID:11109-1789812000-1789833600@canadianrdn.ca
SUMMARY:Regroupement Quebecois des Maladies Orphelines (RQMO) Educational Day 2026
DESCRIPTION:This year\, the RQMO Educational Day will be held at the Travelodge Hotel in Quebec City (3125 Hochelaga Boulevard) and will have the theme “The impacts of rare diseases – towards better inclusion”. \nThis awareness day aims to be a space for exchange\, reflection\, and sharing about the realities experienced by people living with rare diseases. RQMO wants to highlight the daily challenges\, but also concrete ways to build a more inclusive society.
URL:https://canadianrdn.ca/event/regroupement-quebecois-des-maladies-orphelines-rqmo-educational-day-2026/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781626049176.jpg
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DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20250812T194434Z
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
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DTSTART;TZID=America/Toronto:20261003T080000
DTEND;TZID=America/Toronto:20261004T170000
DTSTAMP:20260817T160153Z
CREATED:20260817T160131Z
LAST-MODIFIED:20260817T160153Z
UID:11423-1791014400-1791133200@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada: Family Forum 2026
DESCRIPTION:Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation\, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada will come together to learn from leading experts\, share experiences\, and build lasting friendships with others who understand the journey.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-family-forum-2026/
CATEGORIES:Caregiver,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/08/Event-Image.png
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DTSTART;TZID=America/Toronto:20270125T080000
DTEND;TZID=America/Toronto:20270126T170000
DTSTAMP:20260817T162431Z
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LAST-MODIFIED:20260817T162431Z
UID:11430-1800864000-1800982800@canadianrdn.ca
SUMMARY:Inaugural Canadian Gene & Cell Therapy Conference
DESCRIPTION:Convened by RareKids-CAN in partnership with the Conference Organizing Committee\, the conference will bring together researchers\, clinicians\, manufacturers\, industry leaders\, regulators\, trainees\, and patient and family partners from across the full translational pipeline.
URL:https://canadianrdn.ca/event/inaugural-canadian-gene-cell-therapy-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1784829020316.jpg
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