BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Canadian Rare Disease Network - ECPv6.15.20//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:Canadian Rare Disease Network X-ORIGINAL-URL:https://canadianrdn.ca X-WR-CALDESC:Events for Canadian Rare Disease Network REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:America/Edmonton BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20240310T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20241103T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20250309T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20251102T080000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0700 TZOFFSETTO:-0600 TZNAME:MDT DTSTART:20260308T090000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0600 TZOFFSETTO:-0700 TZNAME:MST DTSTART:20261101T080000 END:STANDARD BEGIN:DAYLIGHT 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BEGIN:VTIMEZONE TZID:Europe/Amsterdam BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20240331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20241027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20250330T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20251026T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20260329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20261025T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20260210T100000 DTEND;TZID=America/Edmonton:20260210T120000 DTSTAMP:20260409T102751 CREATED:20260126T210326Z LAST-MODIFIED:20260126T210326Z UID:9650-1770717600-1770724800@canadianrdn.ca SUMMARY:Community Engagement Series Event: From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network DESCRIPTION:Join the upcoming Community Engagement Series event: From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network. Hear from Maureen Smith🇹🇩 and Beth Potter about how to evaluate engagement beyond process metrics\, and what this means for future patient engagement practice and evaluation. URL:https://canadianrdn.ca/event/community-engagement-series-event-from-intent-to-impact-evaluating-patient-engagement-within-a-rare-disease-pediatric-network/ CATEGORIES:Caregiver,Events,National,Patient Focused,Policy,Research Focused,Virtual,Webinars ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768575949974.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/Lisbon:20260210T080000 DTEND;TZID=Europe/Lisbon:20260212T170000 DTSTAMP:20260409T102751 CREATED:20250812T193701Z LAST-MODIFIED:20250812T193701Z UID:8705-1770710400-1770915600@canadianrdn.ca SUMMARY:8th TREAT-NMDÂź International Conference – Lisbon\, 2026 DESCRIPTION:Join TREAT-NMD at this vital\, in-person gathering where patients\, clinicians\, researchers\, industry\, and regulators come together to tackle the biggest challenges in neuromuscular treatment development\, diagnosis and care. Topics will include; disrupted clinical trial delivery\, regulatory uncertainty\, global access inequalities and shrinking public funding\, they’ll tackle these themes with a holistic\, solutions-driven approach and a patient centric and global focus. URL:https://canadianrdn.ca/event/8th-treat-nmd-international-conference-lisbon-2026/ CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/town-5621642_1280-702x526-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20260209T100000 DTEND;TZID=America/Edmonton:20260209T120000 DTSTAMP:20260409T102751 CREATED:20260126T213141Z LAST-MODIFIED:20260128T191059Z UID:9680-1770631200-1770638400@canadianrdn.ca SUMMARY:RQMO: 3rd Zebinary of the Month of Zebra 2026 DESCRIPTION:3rd Zebinary of the Month of Zebrier 2026 \nSpeaker: – David Cohen\, Professor\, Faculty of Health\, Sorbonne University\, Paris\, France URL:https://canadianrdn.ca/event/rqmo-3rd-zebinary-of-the-month-of-zebrier-2026/ CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z3.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20260206T100000 DTEND;TZID=America/Edmonton:20260206T120000 DTSTAMP:20260409T102751 CREATED:20260126T211405Z LAST-MODIFIED:20260126T211405Z UID:9659-1770372000-1770379200@canadianrdn.ca SUMMARY:OSSU World CafĂ© Conversations Series:"Find and Seek: Conversations on Matching Researchers and Lived Experience Partners" DESCRIPTION:OSSU World CafĂ© Conversations series with Maureen Smith🇹🇩\, Aleisha F. and supported by Ontario SPOR SUPPORT Unit (OSSU): \n“Find and Seek: Conversations on Matching Researchers and Lived Experience Partners” URL:https://canadianrdn.ca/event/ossu-world-cafe-conversations-seriesfind-and-seek-conversations-on-matching-researchers-and-lived-experience-partners/ CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768404542117.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20260205T100000 DTEND;TZID=America/Edmonton:20260205T120000 DTSTAMP:20260409T102751 CREATED:20260126T213014Z LAST-MODIFIED:20260126T213014Z UID:9677-1770285600-1770292800@canadianrdn.ca SUMMARY:RQMO: 2nd Zebinary of the Month of Zebra 2026 DESCRIPTION:Speaker: Dr. AndrĂ© Megarbane\, Professor\, Department of Human Genetics\, lebanese American University\, Beirut\, Lebanon URL:https://canadianrdn.ca/event/rqmo-2nd-zebinary-of-the-month-of-zebra-2026/ CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20260203T170000 DTEND;TZID=America/Edmonton:20260203T183000 DTSTAMP:20260409T102751 CREATED:20260105T200023Z LAST-MODIFIED:20260105T200023Z UID:9585-1770138000-1770143400@canadianrdn.ca SUMMARY:RealiseD Webinar 3: Single arm\, RCT or something in between – how to enrich clinical trial design and analysis in rare diseases DESCRIPTION:Single-arm trials remain a cornerstone of rare disease research\, but their limitations and complexities cannot be ignored. In the third webinar\, experts Yulia Dyachkova (Merck Healthcare)\, Jenny Devenport (Roche)\, Cornelia Dunger-Baldauf (Novartis) abd Guillaume Canaud will lead a deep dive into the evolving role of SATs in drug development. The discussion will cover regulatory and HTA perspectives\, review case studies of success and failure\, and explore advanced statistical methods designed to optimise trial design. This session is not just about understanding the current landscape—it is about shaping the future of evidence generation for rare and ultra-rare diseases. URL:https://canadianrdn.ca/event/realised-webinar-3-single-arm-rct-or-something-in-between-how-to-enrich-clinical-trial-design-and-analysis-in-rare-diseases/ CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/RealiseD-Visuals-Webinars-2026-800x450-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20260129T180000 DTEND;TZID=America/Toronto:20260129T193000 DTSTAMP:20260409T102751 CREATED:20260105T194852Z LAST-MODIFIED:20260105T194852Z UID:9575-1769709600-1769715000@canadianrdn.ca SUMMARY:Defeat Duchenne Canada-Research Grant Announcement 2026 DESCRIPTION:Mark your calendar for Thursday\, January 29\, 2026\, from 6:00–7:30 p.m. ET\, and join Defeat Duchenne Canada online for an evening celebrating the incredible progress of their  community and the promise of the future. URL:https://canadianrdn.ca/event/defeat-duchenne-canada-research-grant-announcement-2026/ CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Research-grant-cycle-banner.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20260128T140000 DTEND;TZID=America/Toronto:20260128T153000 DTSTAMP:20260409T102751 CREATED:20260113T164448Z LAST-MODIFIED:20260113T164448Z UID:9608-1769608800-1769614200@canadianrdn.ca SUMMARY:Canada's Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process DESCRIPTION:Join CDA’s preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. \nYou will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews. URL:https://canadianrdn.ca/event/canadas-drug-agency-preconsultation-webinar-improvements-to-the-drug-reimbursement-review-process/ CATEGORIES:Caregiver,Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/CDA-Drug.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20260120T170000 DTEND;TZID=America/Edmonton:20260120T183000 DTSTAMP:20260409T102751 CREATED:20260105T195814Z LAST-MODIFIED:20260105T195814Z UID:9582-1768928400-1768933800@canadianrdn.ca SUMMARY:RealiseD Webinar 2: Evidence Assessment Framework. A need to change mindset from developers\, regulators and HTA DESCRIPTION:The second webinar turns the spotlight on one of the most critical issues in rare disease research: the generation and assessment of evidence. François Meyer\, a leading consultant in health technology assessment\, will examine why current frameworks often fail to deliver predictable and aligned outcomes\, resulting in delays and inequalities in patient access. The session will explore the global and European initiatives aimed at addressing these shortcomings and present the RealiseD consortium’s efforts to advance scientific and operational solutions. More importantly\, it will advocate for a fundamental shift in mindset—one that embraces flexibility and innovation in the way evidence is generated\, interpreted\, and assessed. URL:https://canadianrdn.ca/event/realised-webinar-2-evidence-assessment-framework-a-need-to-change-mindset-from-developers-regulators-and-hta/ CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/images.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20260119T190000 DTEND;TZID=America/Toronto:20260119T200000 DTSTAMP:20260409T102751 CREATED:20260101T231935Z LAST-MODIFIED:20260101T231935Z UID:9500-1768849200-1768852800@canadianrdn.ca SUMMARY:Knowledge Sharing Sessions – Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy. DESCRIPTION:Dr. Geoff Frost will be leading NMD4C’s first Physiatrist Community of Practice (CoP) Knowledge Sharing Session. He will present a recent article authored by Iraqi et al. on a work conducted in Canada by  fellow NMD4C members: “Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy.”\nThe session will take place on January 19th\, 2026 at 7:00 PM EST. To register\, please contact CoP manager Maria Masnata. Once registered\, Maria will send a calendar invite so you can easily save the date. We are looking forward to seeing you there! URL:https://canadianrdn.ca/event/knowledge-sharing-sessions-feasibility-of-a-home-based-exergaming-intervention-for-youth-with-spinal-muscular-atrophy/ CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20260115T053000 DTEND;TZID=America/Edmonton:20260115T063000 DTSTAMP:20260409T102751 CREATED:20260111T210920Z LAST-MODIFIED:20260111T210920Z UID:9596-1768455000-1768458600@canadianrdn.ca SUMMARY:Rare Disease Internation-Moving the WHA Resolution on Rare Diseases Forward: From Promise to Action DESCRIPTION:Join RDI for this public webinar where they will discuss the current status of the WHA Resolution implementation\, as they approach the World Health Organization Executive Board meeting taking place in February 2026. This webinar will engage in a multistakeholder dialogue focusing on the necessary path forward to accelerate the implementation of the Resolution and importantly the development of the GAPRD. \n  URL:https://canadianrdn.ca/event/rare-disease-internation-moving-the-wha-resolution-on-rare-diseases-forward-from-promise-to-action/ CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767795977515.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20260114T190000 DTEND;TZID=America/Edmonton:20260114T200000 DTSTAMP:20260409T102751 CREATED:20260113T165855Z LAST-MODIFIED:20260113T165855Z UID:9617-1768417200-1768420800@canadianrdn.ca SUMMARY:CanPKU+: Advocacy in Action Update Sessions DESCRIPTION:Join the Advocacy in Action Update Sessions with John Adams in order to hear updates on various campaigns and what needs to be done to move things forward for the PKU community. URL:https://canadianrdn.ca/event/canpku-advocacy-in-action-update-sessions/ CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767738677475.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20260113T170000 DTEND;TZID=America/Edmonton:20260113T183000 DTSTAMP:20260409T102751 CREATED:20260105T195201Z LAST-MODIFIED:20260105T200439Z UID:9578-1768323600-1768329000@canadianrdn.ca SUMMARY:RealiseD Webinar 1: Realising Clinical trials in Ultra-Rare diseases DESCRIPTION:Join RealiseD’s first webinar to learn how RealiseD is pioneering a collaborative and comprehensive approach to clinical trials in ultra-rare diseases. During the webinar\, they’ll walk you through the project’s objectives\, structure\, and methodologies—and show how you can be part of this transformative journey. URL:https://canadianrdn.ca/event/realised-realising-clinical-trials-in-ultra-rare-diseases/ CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1765887061354.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20251216T150000 DTEND;TZID=America/Edmonton:20251216T170000 DTSTAMP:20260409T102751 CREATED:20251126T193306Z LAST-MODIFIED:20251126T193306Z UID:9204-1765897200-1765904400@canadianrdn.ca SUMMARY:ERDERA: Joint Transnational Call 2026 DESCRIPTION:This information webinar on the 2026 Joint Transnational Call for Proposals is scheduled for 16 December 2025\, 15:00–17:00 CET\, focusing on resolving unsolved rare genetic and non‑genetic diseases. URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2026/ CATEGORIES:Healthcare,International,Policy,Research Focused,Virtual,Webinars END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20251213T110000 DTEND;TZID=America/Toronto:20251213T140000 DTSTAMP:20260409T102751 CREATED:20251126T191558Z LAST-MODIFIED:20251126T191558Z UID:9192-1765623600-1765634400@canadianrdn.ca SUMMARY:SMA Together: Learn. Share. Connect. A Mini-Regional Conference - Toronto DESCRIPTION:The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them\, in-person on December 13 to learn about the latest updates in spinal muscular atrophy\, including: URL:https://canadianrdn.ca/event/sma-together-learn-share-connect-a-mini-regional-conference-toronto/ CATEGORIES:Caregiver,Conferences,Events,Healthcare,In Person,National,Patient Focused,Policy,Research Focused END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20251209T080000 DTEND;TZID=America/Edmonton:20251210T170000 DTSTAMP:20260409T102751 CREATED:20250902T192732Z LAST-MODIFIED:20250902T192732Z UID:8848-1765267200-1765386000@canadianrdn.ca SUMMARY:2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases DESCRIPTION:This second edition will convene a wide range of international experts\, including researchers\, clinicians\, patient advocates\, industry representatives\, policymakers\, and funders to strengthen the collaborative ecosystem that underpins clinical research in rare diseases worldwide. URL:https://canadianrdn.ca/event/2nd-international-conference-on-clinical-research-networks-crns-for-rare-diseases/ CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20251208T170000 DTEND;TZID=America/Edmonton:20251208T190000 DTSTAMP:20260409T102751 CREATED:20251126T191844Z LAST-MODIFIED:20251126T191844Z UID:9195-1765213200-1765220400@canadianrdn.ca SUMMARY:FA Together: Learn. Share. Connect. mini-regional conference in Calgary DESCRIPTION: URL:https://canadianrdn.ca/event/fa-together-learn-share-connect-mini-regional-conference-in-calgary/ CATEGORIES:Events,Healthcare,In Person,Industry,National,Patient Focused,Policy,Provincial,Research Focused END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Los_Angeles:20251205T080000 DTEND;TZID=America/Los_Angeles:20251207T170000 DTSTAMP:20260409T102751 CREATED:20250728T214728Z LAST-MODIFIED:20250728T214728Z UID:8604-1764921600-1765126800@canadianrdn.ca SUMMARY:36th International Symposium on ALS/MND DESCRIPTION:The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year they bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease. URL:https://canadianrdn.ca/event/36th-international-symposium-on-als-mnd/ CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20251205T080000 DTEND;TZID=America/Toronto:20251205T170000 DTSTAMP:20260409T102751 CREATED:20251027T200957Z LAST-MODIFIED:20251027T201013Z UID:9097-1764921600-1764954000@canadianrdn.ca SUMMARY:CARELeuko Symposium 2025 DESCRIPTION:The Canadian Association for Research Excellence in Leukodystrophy (CARELeuko) is excited to welcome you to the 2025 CARELeuko Symposium: Uniting Canada’s Leukodystrophy Community to Drive Collaboration and Accelerate Research and Care! \nThe 2025 CARELeuko Symposium is taking place on Friday\, December 5\, 2025\, at the Research Institute of the McGill University Health Centre in Montreal\, Quebec\, Canada. URL:https://canadianrdn.ca/event/careleuko-symposium-2025/ CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20251202T123000 DTEND;TZID=America/Toronto:20251202T133000 DTSTAMP:20260409T102751 CREATED:20251129T212525Z LAST-MODIFIED:20251129T212525Z UID:9213-1764678600-1764682200@canadianrdn.ca SUMMARY:Introduction to the Disability Tax Credit DESCRIPTION:A presentation about the gateway tax credit and the benefits it unlocks: \n\nLearn how the credit works and who qualifies\nLearn how the credit unlocks other federal benefits\nDiscover practical tips for your application URL:https://canadianrdn.ca/event/introduction-to-the-disability-tax-credit/ CATEGORIES:Caregiver,Patient Focused,Policy,Virtual,Webinars END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20251125T080000 DTEND;TZID=America/Toronto:20251126T170000 DTSTAMP:20260409T102751 CREATED:20250703T162704Z LAST-MODIFIED:20250703T162809Z UID:8507-1764057600-1764176400@canadianrdn.ca SUMMARY:CORD: Rare Disease Conference Fall 2025 DESCRIPTION: URL:https://canadianrdn.ca/event/rare-disease-conference-fall-2025/ CATEGORIES:Conferences,Hybrid,Industry,National,Patient Focused,Policy,Research Focused END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/Zurich:20251118T080000 DTEND;TZID=Europe/Zurich:20251118T170000 DTSTAMP:20260409T102751 CREATED:20250812T193902Z LAST-MODIFIED:20250812T193902Z UID:8708-1763452800-1763485200@canadianrdn.ca SUMMARY:ITINERARE Symposium 2025 DESCRIPTION:The programme features experts from a variety of fields\, ranging from basic and translational research to clinical application and the ethical\, social and legal aspects of rare disease research. URL:https://canadianrdn.ca/event/itinerare-symposium-2025/ CATEGORIES:Clinical Trials,Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/Pic-webpage.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20251117T080000 DTEND;TZID=America/Toronto:20251118T170000 DTSTAMP:20260409T102751 CREATED:20250916T185738Z LAST-MODIFIED:20250916T185738Z UID:8909-1763366400-1763485200@canadianrdn.ca SUMMARY:Pan-Canadian OMOP Common Data Model Engagement Event DESCRIPTION:This pan-Canadian event brings together teams using the OMOP common data model to advance research collaboration across Canada and beyond. URL:https://canadianrdn.ca/event/pan-canadian-omop-common-data-model-engagement-event/ CATEGORIES:Conferences,Healthcare,In Person,Industry,Policy,Research Focused END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20251110T120000 DTEND;TZID=America/Toronto:20251110T140000 DTSTAMP:20260409T102751 CREATED:20251024T183314Z LAST-MODIFIED:20251024T183314Z UID:9084-1762776000-1762783200@canadianrdn.ca SUMMARY:ISCT North America Regional Virtual Town Hall DESCRIPTION:Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. Hemalatha Rangarajan\, leader of the gene therapy program for non-malignant disorders\, who has also launched multiple clinical trials in transplant for SCD at Nationwide Children’s Hospital (NCH). URL:https://canadianrdn.ca/event/isct-north-america-regional-virtual-town-hall/ CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20251107T080000 DTEND;TZID=America/Toronto:20251108T170000 DTSTAMP:20260409T102751 CREATED:20251014T174326Z LAST-MODIFIED:20251014T174326Z UID:9002-1762502400-1762621200@canadianrdn.ca SUMMARY:2025 Canadian Fragile X Conference DESCRIPTION:November 7–8\, 2025 | Toronto\, Ontario Canada’s first national Fragile X conference URL:https://canadianrdn.ca/event/2025-canadian-fragile-x-conference/ CATEGORIES:Conferences,In Person,National,Patient Focused,Policy,Research Focused END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20251029T080000 DTEND;TZID=America/Toronto:20251031T170000 DTSTAMP:20260409T102751 CREATED:20250902T192527Z LAST-MODIFIED:20250902T192527Z UID:8845-1761724800-1761930000@canadianrdn.ca SUMMARY:Cardiac Precision Medicine in the 21st Century DESCRIPTION:The 10th International Cardiovascular Genomic Medicine & SickKids Cardiac Precision Medicine Conference is making its debut in North America! This year’s theme\, “Cardiac Precision Medicine in the 21st Century\,” delves into cardiovascular genomics and precision medicine in the era of ‘Omics’\, AI and digital medicine. Join us as we bring together international experts and innovators to explore transformative research and collaborative opportunities that can shape the future of cardiovascular medicine. \nThis event will feature the 4th William Harvey Oration delivered by Dr. Sharlene Day and the Dr. Michael Braudo Lectureship delivered by Dr. Ma’n H. Zawati. URL:https://canadianrdn.ca/event/cardiac-precision-medicine-in-the-21st-century/ CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20251029T080000 DTEND;TZID=America/Toronto:20251030T170000 DTSTAMP:20260409T102751 CREATED:20250529T204853Z LAST-MODIFIED:20250529T204853Z UID:8388-1761724800-1761843600@canadianrdn.ca SUMMARY:The 5th Annual Canadian Children\, Youth and Communities (CCYC) In | Equity Conference DESCRIPTION:This conference reaches a national\, interdisciplinary audience and is a collaborative space where ideas are put into practice. Together\, you’ll explore how sustainable solutions and community partnerships can improve child and youth health equity. URL:https://canadianrdn.ca/event/the-5th-annual-canadian-children-youth-and-communities-ccyc-in-equity-conference/ CATEGORIES:Conferences,National,Patient Focused,Policy,Research Focused,Virtual END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/Amsterdam:20251027T080000 DTEND;TZID=Europe/Amsterdam:20251029T170000 DTSTAMP:20260409T102751 CREATED:20250618T150752Z LAST-MODIFIED:20250618T150752Z UID:8460-1761552000-1761757200@canadianrdn.ca SUMMARY:The World Orphan Drug Congress DESCRIPTION:The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress. URL:https://canadianrdn.ca/event/the-world-orphan-drug-congress/ CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Toronto:20251022T080000 DTEND;TZID=America/Toronto:20251022T170000 DTSTAMP:20260409T102751 CREATED:20250812T195732Z LAST-MODIFIED:20250812T195732Z UID:8730-1761120000-1761152400@canadianrdn.ca SUMMARY:Building Bridges: Advancing Collaborative Pediatric Palliative Care DESCRIPTION:This pediatric palliative care symposium is for health care professionals interested in increasing their knowledge and skill in working with children with serious illness and their families. \nThe goal is to share research and clinical experiences that broaden the perspectives and collaborative efforts to enhance the care delivery in hospital\, home and hospice. \nPediatric-focused clinician’s and adult palliative care clinicians most welcome URL:https://canadianrdn.ca/event/building-bridges-advancing-collaborative-pediatric-palliative-care/ CATEGORIES:Caregiver,Events,Healthcare,In Person,National,Patient Focused,Policy,Research Focused END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/Edmonton:20251016T080000 DTEND;TZID=America/Edmonton:20251017T170000 DTSTAMP:20260409T102751 CREATED:20250729T164926Z LAST-MODIFIED:20250729T164926Z UID:8613-1760601600-1760720400@canadianrdn.ca SUMMARY:2nd Canadian Symposium on Neurofibromatosis DESCRIPTION:This Symposium is aimed at the patients and families\, as well as clinicians and health professionals (doctors\, nurses\, researchers). URL:https://canadianrdn.ca/event/2nd-canadian-symposium-on-neurofibromatosis/ CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused END:VEVENT END:VCALENDAR