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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Toronto:20260528T150000
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DTSTAMP:20260609T143508
CREATED:20260527T195336Z
LAST-MODIFIED:20260527T195336Z
UID:10708-1779980400-1779987600@canadianrdn.ca
SUMMARY:A REAL disease\, NOT imagined
DESCRIPTION:IMAGINE spending years\, or even your entire life\, trying to figure out what is wrong with you while being told “it’s all in your head”. The Ehlers-Danlos Syndromes (EDS)\, are complex connective tissue disorders that are frequently misunderstood and stigmatized within the healthcare system. \nThis Canadian documentary explores the difficult reality of living with EDS\, focusing on the common experience where patients spend years searching for an accurate diagnosis and adequate care. Through testimonials from patients and healthcare professionals\, this project seeks to shift medical attitudes to ensure those affected receive the same quality of services as any other patient. EDS is not an imaginary disease!
URL:https://canadianrdn.ca/event/a-real-disease-not-imagined/
CATEGORIES:Caregiver,Events,Hybrid,National,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779837311762.jpg
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