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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250501T080000
DTEND;TZID=America/New_York:20250504T170000
DTSTAMP:20260404T070219
CREATED:20241128T232045Z
LAST-MODIFIED:20241128T232045Z
UID:7081-1746086400-1746378000@canadianrdn.ca
SUMMARY:Myotonic Dystrophy Foundation Conference 2025
DESCRIPTION:MDF invites you to attend the Professional Track at the 2025 MDF Conference in Indianapolis\, Indiana from May 1st to May 4th! Sometimes called the “DM family reunion” – the MDF Conference is an event to unite the DM community in our journey towards treatments and a cure for myotonic dystrophy (DM). This year’s program includes educational sessions exploring research\, drug development\, symptom management\, and other critical topics for DM families\, plus opportunities for formal and informal networking\, wellness\, and fun!
URL:https://canadianrdn.ca/event/myotonic-dystrophy-foundation-conference-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250501T183000
DTEND;TZID=America/Edmonton:20250501T203000
DTSTAMP:20260404T070219
CREATED:20250501T161720Z
LAST-MODIFIED:20250501T161720Z
UID:8103-1746124200-1746131400@canadianrdn.ca
SUMMARY:Managing Anxiety in Children and Adolescents with Neurodevelopmental Disorders (NDDs)
DESCRIPTION:Presenters: Thomas Qiao\, MSc\, Research Coordinator\, Department of Psychiatry\, University of Calgary Noah Furlani\, MSc\, Research Coordinator\, Department of Psychiatry\, University of Calgary Dr. Kara Murias\, MD PhD FRCPC\, Pediatric Neurologist\, Alberta Children’s Hospital; Assistant Professor\, Department of Pediatrics and Clinical Neuroscience\, University of Calgary
URL:https://canadianrdn.ca/event/managing-anxiety-in-children-and-adolescents-with-neurodevelopmental-disorders-ndds/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745532032179.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250503T080000
DTEND;TZID=America/Toronto:20250503T170000
DTSTAMP:20260404T070219
CREATED:20250421T222047Z
LAST-MODIFIED:20250421T222047Z
UID:8020-1746259200-1746291600@canadianrdn.ca
SUMMARY:FSHS 360 Conference
DESCRIPTION:Patients and family members affected by FSHD are invited to attend an event hosted by the FSHD Canada Foundation and the FSHD Society! The FSHD 360 Conference Ontario is an event where patients and family can meet leaders in FSHD research and hear the latest updates\, including presentations from NMD4C investigators Dr Lawrence Korngut and Dr Hanns Lochmuller.
URL:https://canadianrdn.ca/event/fshs-360-conference/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1743602806527.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250503T080000
DTEND;TZID=America/Toronto:20250503T170000
DTSTAMP:20260404T070219
CREATED:20250501T161048Z
LAST-MODIFIED:20250501T161048Z
UID:8088-1746259200-1746291600@canadianrdn.ca
SUMMARY:FSHD 360 Conference
DESCRIPTION:FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research and advocacy leaders in Ontario as well as from biopharmaceutical companies that are working on FSHD therapies. Get answers to your questions about your health\, maintaining optimal function through physical therapy\, exercise\, assistive devices\, and more. Don’t miss out on the opportunity to meet patients and families and network with FSHD Society leaders and activists in the community!
URL:https://canadianrdn.ca/event/fshd-360-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,Industry,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1743602806527.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250505T150000
DTEND;TZID=America/New_York:20250505T170000
DTSTAMP:20260404T070219
CREATED:20250403T022441Z
LAST-MODIFIED:20250403T022441Z
UID:7894-1746457200-1746464400@canadianrdn.ca
SUMMARY:Applying Principles of Equity\, Diversity\, Inclusion\, and Accessibility in Patient Engagement with Equity Seeking Groups
DESCRIPTION:
URL:https://canadianrdn.ca/event/applying-principles-of-equity-diversity-inclusion-and-accessibility-in-patient-engagement-with-equity-seeking-groups/
CATEGORIES:Caregiver,Events,Healthcare,National,Patient Focused,Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250506T190000
DTEND;TZID=America/Edmonton:20250506T200000
DTSTAMP:20260404T070219
CREATED:20250501T163054Z
LAST-MODIFIED:20250501T163054Z
UID:8120-1746558000-1746561600@canadianrdn.ca
SUMMARY:Palliative Care in Chorea and Huntington's Disease
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/palliative-care-in-chorea-and-huntingtons-disease/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1743598476117.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250507T080000
DTEND;TZID=Europe/Helsinki:20250508T170000
DTSTAMP:20260404T070219
CREATED:20241021T213932Z
LAST-MODIFIED:20241021T213932Z
UID:6186-1746604800-1746723600@canadianrdn.ca
SUMMARY:Medicines Reimagined: Unlocking the Potential of Existing Drugs for Patient Benefit
DESCRIPTION:Join iDR25 – the international drug repurposing conference – to unlock the full potential of medicines by driving innovation for patient benefit. From cutting-edge AI approaches transforming drug discovery to exploring innovative business models and regulatory pathways for market access
URL:https://canadianrdn.ca/event/medicines-reimagined-unlocking-the-potential-of-existing-drugs-for-patient-benefit/
CATEGORIES:Clinical Trials,Conferences,Industry,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/IDR25_webcard-1024x576-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250508T080000
DTEND;TZID=UTC:20250508T170000
DTSTAMP:20260404T070219
CREATED:20250207T035749Z
LAST-MODIFIED:20250207T035749Z
UID:7462-1746691200-1746723600@canadianrdn.ca
SUMMARY:TruePKU Meeting
DESCRIPTION:Mark your calendar for May 8\, 2025\, for the TruePKU meeting – a first-of-its-kind opportunity for members of the PKU community to share their experiences\, needs\, and treatment priorities directly with the U.S. Food and Drug Administration\, life science companies with active PKU programs\, researchers\, and healthcare professionals.
URL:https://canadianrdn.ca/event/truepku-meeting/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250508T080000
DTEND;TZID=America/Denver:20250508T170000
DTSTAMP:20260404T070219
CREATED:20250225T041704Z
LAST-MODIFIED:20250225T041704Z
UID:7567-1746691200-1746723600@canadianrdn.ca
SUMMARY:Save the date: Redefining Patient Engagement
DESCRIPTION:
URL:https://canadianrdn.ca/event/save-the-date-redefining-patient-engagement/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/02/1740074652997.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250508T110000
DTEND;TZID=America/Edmonton:20250508T120000
DTSTAMP:20260404T070219
CREATED:20250501T163248Z
LAST-MODIFIED:20250501T163248Z
UID:8123-1746702000-1746705600@canadianrdn.ca
SUMMARY:Webinar for Patient Groups: Evolving Patient Group Input in Drug Reimbursement Reviews
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-for-patient-groups-evolving-patient-group-input-in-drug-reimbursement-reviews/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/8a892476-2fc8-476b-a4e2-b0950c425eb9.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250509T120000
DTEND;TZID=America/Toronto:20250509T130000
DTSTAMP:20260404T070219
CREATED:20250507T180114Z
LAST-MODIFIED:20250507T180114Z
UID:8170-1746792000-1746795600@canadianrdn.ca
SUMMARY:Webinar: Canadian Survey on the Impact of Disease
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-canadian-survey-on-the-impact-of-disease/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/05/CORD-Survey-Promo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250512T120000
DTEND;TZID=America/Vancouver:20250512T130000
DTSTAMP:20260404T070219
CREATED:20250421T222546Z
LAST-MODIFIED:20250421T222546Z
UID:8026-1747051200-1747054800@canadianrdn.ca
SUMMARY:PxP-Upcoming webinar: Growing your influence and a patient partner
DESCRIPTION:Join PxP for an engaging webinar hosted in collaboration with the Patient Engagement Research Ambassadors at the Institute of Musculoskeletal Health and Arthritis.
URL:https://canadianrdn.ca/event/pxp-upcoming-webinar-growing-your-influence-and-a-patient-partner/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1744843903932.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250512T120000
DTEND;TZID=America/Edmonton:20250512T130000
DTSTAMP:20260404T070219
CREATED:20250507T175854Z
LAST-MODIFIED:20250507T175905Z
UID:8166-1747051200-1747054800@canadianrdn.ca
SUMMARY:The Canadian Friedreich Ataxia Journey
DESCRIPTION:Muscular Dystrophy Canada recognizes World Friedreich Ataxia Awareness Day on May 17th 2025. Join them as they share their learnings from their recent Friedreich Ataxia journey mapping project!
URL:https://canadianrdn.ca/event/the-canadian-friedreich-ataxia-journey/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/GqWjQPsXQAAaz8A-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250513T080000
DTEND;TZID=Europe/Paris:20250515T170000
DTSTAMP:20260404T070219
CREATED:20250130T025241Z
LAST-MODIFIED:20250130T025241Z
UID:7447-1747123200-1747328400@canadianrdn.ca
SUMMARY:15th MGFA International Conference on Myasthenia and Related Disorders
DESCRIPTION:Hosted by the MGFA\, this influential gathering of neuromuscular researchers and medical professionals is a prominent opportunity to present your work and hear from accomplished peers from around the world. We hope that you will be able to join us for this premier scientific gathering of global MG leaders.
URL:https://canadianrdn.ca/event/15th-mgfa-international-conference-on-myasthenia-and-related-disorders/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/noche-en-den-haag-cut-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250518T080000
DTEND;TZID=America/Vancouver:20250521T170000
DTSTAMP:20260404T070219
CREATED:20250421T222319Z
LAST-MODIFIED:20250421T222319Z
UID:8023-1747555200-1747846800@canadianrdn.ca
SUMMARY:Society for Clinical Trials’ 2025 Annual Meeting “Shaping the Future: The Right Questions\, Robust Answers”
DESCRIPTION:
URL:https://canadianrdn.ca/event/society-for-clinical-trials-2025-annual-meeting-shaping-the-future-the-right-questions-robust-answers/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1744206140042.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250520T120000
DTEND;TZID=America/Vancouver:20250520T130000
DTSTAMP:20260404T070219
CREATED:20250501T161428Z
LAST-MODIFIED:20250501T161428Z
UID:8097-1747742400-1747746000@canadianrdn.ca
SUMMARY:KidsAction Coaching: Community physical activity programs tailored for you!
DESCRIPTION:🎤 Dr. Stephanie Glegg—a pediatric occupational therapist\, researcher\, and proud parent of a child with neurodiversity—will share how KidsAction Coaching supports children with exceptionalities to thrive in community-based physical activity programs. \n🌍 You’ll learn about:\n✅ Free online resources for families & program leaders\n✅ 140+ inclusive physical activities\n✅ Goal-setting & adaptation strategies\n✅ Cultural safety & child-centered programming
URL:https://canadianrdn.ca/event/kidsaction-coaching-community-physical-activity-programs-tailored-for-you/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745514165892.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250521T180000
DTEND;TZID=Europe/Paris:20250521T203000
DTSTAMP:20260404T070219
CREATED:20250307T042107Z
LAST-MODIFIED:20250307T042107Z
UID:7691-1747850400-1747859400@canadianrdn.ca
SUMMARY:Milestones & Momentum: 10 Years of Progress\, 10 Years of Possibility
DESCRIPTION:RDI will be holding a side event at World Health Assembly 78 in Geneva. Join them as the community celebrates 10 years of progress and looks forward to 10 more years of redefining what’s possible!
URL:https://canadianrdn.ca/event/milestones-momentum-10-years-of-progress-10-years-of-possibility/
CATEGORIES:Conferences,Hybrid,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1741270169138.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250522T130000
DTEND;TZID=America/Edmonton:20250522T140000
DTSTAMP:20260404T070219
CREATED:20250520T191925Z
LAST-MODIFIED:20250520T191925Z
UID:8298-1747918800-1747922400@canadianrdn.ca
SUMMARY:Indigenous Data Governance Principles & New Approaches to Race-Related Data
DESCRIPTION:Working closely with First Nations\, Inuit and Métis partners as well as urban Indigenous health service providers\, ICES has developed unique partnerships that include data governance and data sharing agreements. This work\, supported by the Indigenous Partnerships\, Data and Analytics department at ICES\, enables Indigenous-driven analyses using ICES data. In this session\, Dominique Legacy and Laura Ferreira-Legere will discuss becoming a trusted partner and forming partnerships with Indigenous communities and organizations. They’ll explore current processes for using Indigenous data\, and share how this work has informed planning for community governance of immigration data at ICES
URL:https://canadianrdn.ca/event/indigenous-data-governance-principles-new-approaches-to-race-related-data/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1747427539341.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20250524T080000
DTEND;TZID=Europe/Vienna:20250527T170000
DTSTAMP:20260404T070219
CREATED:20250507T175117Z
LAST-MODIFIED:20250507T175117Z
UID:8162-1748073600-1748365200@canadianrdn.ca
SUMMARY:European Society of Human Genetics Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/european-society-of-human-genetics-conference/
CATEGORIES:Conferences,Hybrid,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/05/eshg_logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250526T080000
DTEND;TZID=America/New_York:20250530T170000
DTSTAMP:20260404T070219
CREATED:20250107T230203Z
LAST-MODIFIED:20250227T033823Z
UID:7320-1748246400-1748624400@canadianrdn.ca
SUMMARY:International Myotonic Dystrophy Consortium (IDMC-15)
DESCRIPTION:The event will now make a stop in Canada\, in the picturesque and warm Saguenay—Lac-Saint-Jean region of the province of Quebec. \nA unique opportunity to network and share advances and initiatives in myotonic dystrophy research! Take advantage of this not-to-be-missed event!
URL:https://canadianrdn.ca/event/international-myotonic-dystrophy-consortium-idmc-15/
CATEGORIES:Conferences,Industry,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/01/thumbnail_image001.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250529T080000
DTEND;TZID=America/Edmonton:20250530T170000
DTSTAMP:20260404T070219
CREATED:20250529T205729Z
LAST-MODIFIED:20250529T205729Z
UID:8394-1748505600-1748624400@canadianrdn.ca
SUMMARY:unfolding PANS PANDAS | reshaping BRAIN+BODY health
DESCRIPTION:This inaugural national conference brings together leading experts from Canada and beyond to explore the physiological and psychological complexities of Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS).
URL:https://canadianrdn.ca/event/unfolding-pans-pandas-reshaping-brainbody-health/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/05/Pans.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250531T080000
DTEND;TZID=America/Edmonton:20250531T163000
DTSTAMP:20260404T070219
CREATED:20250526T204245Z
LAST-MODIFIED:20250526T204245Z
UID:8325-1748678400-1748709000@canadianrdn.ca
SUMMARY:XLID98 1st Annual Conference 2025
DESCRIPTION:
URL:https://canadianrdn.ca/event/xlid98-1st-annual-conference-2025/
CATEGORIES:Events,National,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1747841039325.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250531T080000
DTEND;TZID=America/New_York:20250531T170000
DTSTAMP:20260404T070219
CREATED:20250304T033141Z
LAST-MODIFIED:20250304T033141Z
UID:7614-1748678400-1748710800@canadianrdn.ca
SUMMARY:Unity Through Rheumatic Diseases: In-Person Event
DESCRIPTION:
URL:https://canadianrdn.ca/event/unity-through-rheumatic-diseases-in-person-event/
CATEGORIES:Caregiver,Conferences,Industry,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250531T080000
DTEND;TZID=America/New_York:20250531T170000
DTSTAMP:20260404T070219
CREATED:20250403T023343Z
LAST-MODIFIED:20250403T023343Z
UID:7903-1748678400-1748710800@canadianrdn.ca
SUMMARY:Unity Through Rheumatic Diseases: In-Person Event
DESCRIPTION:Take a Pain Check Foundation is thrilled to invite you to Unity Through Rheumatic Diseases\, an in-person event dedicated to promoting collaboration and driving change in rheumatology. Join us on Saturday\, May 31\, 2025\, from 8:00 AM to 5:00 PM EST at the InterContinental Toronto Centre (225 Front St W\, Toronto\, ON M5V 2X3) for a day of insightful discussions\, networking\, and empowerment.
URL:https://canadianrdn.ca/event/unity-through-rheumatic-diseases-in-person-event-2/
CATEGORIES:Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250602T080000
DTEND;TZID=America/Vancouver:20250603T170000
DTSTAMP:20260404T070219
CREATED:20250421T220628Z
LAST-MODIFIED:20250421T220827Z
UID:8010-1748851200-1748970000@canadianrdn.ca
SUMMARY:Advancing Innovation in Rare Disease Research
DESCRIPTION:Join researchers\, clinicians\, and industry leaders to discuss real-world research breakthroughs\, novel #ClinicalTrial designs\, and how NORD’s Rare Disease Centers of Excellence are leading collaborative efforts in #RareDisease innovation.
URL:https://canadianrdn.ca/event/advancing-innovation-in-rare-disease-research/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/GmBHaV4XUAA077o-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250604T180000
DTEND;TZID=America/Toronto:20250604T200000
DTSTAMP:20260404T070219
CREATED:20250529T205430Z
LAST-MODIFIED:20250529T205450Z
UID:8391-1749060000-1749067200@canadianrdn.ca
SUMMARY:BHI Cafe Scientific-Where the brain and heart meet
DESCRIPTION:This event will highlight innovative\, patient-oriented strategies designed to address fragmented care for brain and heart conditions. Although brain and heart health are closely linked\, the heath care system often treats them in isolation. This Café Scientific will showcase how research is driving real-world solutions that enhance patient care.
URL:https://canadianrdn.ca/event/bhi-cafe-scientific-where-the-brain-and-heart-meet/
CATEGORIES:Caregiver,Healthcare,Hybrid,National,Patient Focused,Research Focused,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/05/Event-Page-Heros-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250607T080000
DTEND;TZID=America/New_York:20250607T170000
DTSTAMP:20260404T070219
CREATED:20250122T001108Z
LAST-MODIFIED:20250122T001108Z
UID:7394-1749283200-1749315600@canadianrdn.ca
SUMMARY:Wilson Disease Event for patients\, families\, and caregivers
DESCRIPTION:The newly formed Canadian chapter of Wilson Disease Association is hosting a one day conference for WD patients\, caregivers\, friends\, medical students\, physicians and supporters. \nThey are bringing together the top Canadian doctors who treat Wilson disease. \nGreat opportunity to network and learn more about treatment options for Wilson disease. \nMore details and registration link coming soon. \nOpen to everyone interested in learning more about this rare genetic disorder. \nFor more information\, visit alice.williams@wilsonsdisease.org.
URL:https://canadianrdn.ca/event/wilson-disease-event-for-patients-families-and-caregivers/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250611T080000
DTEND;TZID=America/Halifax:20250613T170000
DTSTAMP:20260404T070219
CREATED:20250325T075403Z
LAST-MODIFIED:20250325T075403Z
UID:7820-1749628800-1749834000@canadianrdn.ca
SUMMARY:Superficial Siderosis Symposium 2025
DESCRIPTION:Join the Superficial Siderosis Research Alliance (SSRA) for a three-day symposium dedicated to patients\, caregivers\, clinicians\, and researchers focused on advancing care\, treatment\, and research for superficial siderosis.
URL:https://canadianrdn.ca/event/superficial-siderosis-symposium-2025/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Superficial-Siderosis-Symposium-June-1024x569-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250612T160000
DTEND;TZID=America/Edmonton:20250612T170000
DTSTAMP:20260404T070219
CREATED:20250520T191546Z
LAST-MODIFIED:20250520T191546Z
UID:8295-1749744000-1749747600@canadianrdn.ca
SUMMARY:Community Conversation: The Living Rare Study
DESCRIPTION:Join NORD on Thursday\, June 12 at 4 p.m. ET for a virtual conversation about the #LivingRareStudy. This session will guide you through joining the first large-scale study in the U.S. focused on tracking the real-life experiences of individuals and caregivers impacted by #RareDiseases\, including how to create an #IAMRARE account\, review the consent form\, and navigate the platform.
URL:https://canadianrdn.ca/event/community-conversation-the-living-rare-study/
CATEGORIES:Caregiver,Events,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1747765981496.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Atlantic/Azores:20250613T080000
DTEND;TZID=Atlantic/Azores:20250615T170000
DTSTAMP:20260404T070219
CREATED:20250304T032811Z
LAST-MODIFIED:20250304T032811Z
UID:7611-1749801600-1750006800@canadianrdn.ca
SUMMARY:FSHD Connect Europe patient meeting 2025​​​​​​​​​​​​​​​​​
DESCRIPTION:FSHD Europe will organize\, in collaboration with the FSHD Society\, the first FSHD Connect Europe meeting on June 13th – June 15th\, 2025\, in Amsterdam\, The Netherlands. This is a networking meeting for FSHD patients and their families. It is a great opportunity to connect with other patients and families across Europe.
URL:https://canadianrdn.ca/event/fshd-connect-europe-patient-meeting-2025/
CATEGORIES:Caregiver,Conferences,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/b72f2ade515ce31e4f203496a96dc6e9.jpg
END:VEVENT
END:VCALENDAR