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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260317T080000
DTEND;TZID=America/Edmonton:20260317T090000
DTSTAMP:20260403T161502
CREATED:20260311T225739Z
LAST-MODIFIED:20260311T225739Z
UID:9934-1773734400-1773738000@canadianrdn.ca
SUMMARY:Palliative care for leukodystrophies and other rare neurological diseases (pediatric focus)
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/palliative-care-for-leukodystrophies-and-other-rare-neurological-diseases-pediatric-focus/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1771348322685.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260317T080000
DTEND;TZID=America/Edmonton:20260319T170000
DTSTAMP:20260403T161502
CREATED:20260204T172823Z
LAST-MODIFIED:20260204T172823Z
UID:9748-1773734400-1773939600@canadianrdn.ca
SUMMARY:Rare Disease Summit: Access USA
DESCRIPTION:The Rare Disease Summit unites stakeholders to accelerate therapeutic innovation for areas of unmet medical need. Gain actionable insights on launch planning\, market access\, reimbursement strategies and strategic partnerships to optimize rare disease commercialization and elevate patient impact.
URL:https://canadianrdn.ca/event/rare-disease-summit-access-usa/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770040824093.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260318T070000
DTEND;TZID=America/Edmonton:20260318T080000
DTSTAMP:20260403T161502
CREATED:20260225T181636Z
LAST-MODIFIED:20260225T181636Z
UID:9870-1773817200-1773820800@canadianrdn.ca
SUMMARY:Rare Diseases International-Global Perspectives on Rare Disease Centers: What We Learned from Case Studies
DESCRIPTION:Join RDI for a public webinar exploring how rare disease centers are organized and how they function in practice across different countries and health system contexts. Rare disease centers play a critical role in improving diagnosis\, care coordination\, research\, and access to treatment for people living with rare diseases. Yet\, their structures\, levels of recognition\, funding models\, and integration into national and international networks vary widely. To better understand this diversity\, Rare Diseases International (RDI) conducted a series of qualitative case studies of selected rare disease centers worldwide. This public webinar will present key insights from the case studies. Through a panel discussion with representatives from participating centers\, the session will reflect on shared enablers and barriers and highlight practical lessons learned.
URL:https://canadianrdn.ca/event/rare-diseases-international-global-perspectives-on-rare-disease-centers-what-we-learned-from-case-studies/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1771933530600.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260318T080000
DTEND;TZID=Europe/Rome:20260319T170000
DTSTAMP:20260403T161502
CREATED:20260126T212507Z
LAST-MODIFIED:20260126T212507Z
UID:9671-1773820800-1773939600@canadianrdn.ca
SUMMARY:MAINFRAME Symposium on AI-Driven Small-Molecule Drug Discovery
DESCRIPTION:Co-organized by Conscience in partnership with The Structural Genomics Consortium (SGC) and local organizers at the Vall d’Hebron Institute of Oncology (VHIO)\, the Barcelona Supercomputing Center (BSC)\, and the Institute of Research in Biomedicine (IRB)\, this two-day in-person symposium will bring together the global community working at the intersection of artificial intelligence\, computational chemistry\, and small-molecule drug discovery.
URL:https://canadianrdn.ca/event/mainframe-symposium-on-ai-driven-small-molecule-drug-discovery/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Capture.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260318T163000
DTEND;TZID=America/Toronto:20260318T193000
DTSTAMP:20260403T161502
CREATED:20260212T205707Z
LAST-MODIFIED:20260212T205707Z
UID:9787-1773851400-1773862200@canadianrdn.ca
SUMMARY:RAREDIG McGill: Rare Disease Day 2026
DESCRIPTION:McGill’s RareDIG is excited to welcome you to the eighth edition of Rare Disease Day! Millions of individuals are affected by rare diseases worldwide and Rare Disease Day is hosted in support of these patients and family members. \n\nStudents\, researchers\, physicians\, patients\, and community members will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) in Montreal on March 18th to discuss the challenges faced by people with rare diseases\, research and advocacy efforts. Poster presentations will also be prepared by student researchers with a keen interest in making a difference in the rare disease field.
URL:https://canadianrdn.ca/event/raredig-mcgill-rare-disease-day-2026/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/webp:https://canadianrdn.ca/wp-content/uploads/2026/02/Featured-Image-RareDiseaseDay-2026.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260318T180000
DTEND;TZID=America/Edmonton:20260318T190000
DTSTAMP:20260403T161502
CREATED:20260311T225219Z
LAST-MODIFIED:20260311T225219Z
UID:9928-1773856800-1773860400@canadianrdn.ca
SUMMARY:CIHR Café Scientifique: Chronic Pain and Primary Care
DESCRIPTION:Join on Zoom for a free CIHR Café Scientifique! | March 18 @ 6:00 pm MST \nTogether you’ll explore what chronic pain looks like for young people and their families\, how pain can occur across generations\, and why quality care in our communities matters.
URL:https://canadianrdn.ca/event/cihr-cafe-scientifique-chronic-pain-and-primary-care/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1773157132669.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260319T190000
DTEND;TZID=America/Toronto:20260319T200000
DTSTAMP:20260403T161502
CREATED:20260316T133623Z
LAST-MODIFIED:20260316T133623Z
UID:9941-1773946800-1773950400@canadianrdn.ca
SUMMARY:People's Perspectives: Living with Loeys-Dietz Syndrome
DESCRIPTION:For the first time\, the Loeys-Dietz Syndrome Foundation Canada and the Loeys-Dietz Syndrome Foundation – a division of the Marfan Foundation – are joining forces to bring you real talk about LDS from those with lived experience. Join four community members – two from the United States and two from Canada – for this dynamic moderated discussion.
URL:https://canadianrdn.ca/event/peoples-perspectives-living-with-loeys-dietz-syndrome/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1773507672043.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260325T080000
DTEND;TZID=America/Toronto:20260327T170000
DTSTAMP:20260403T161502
CREATED:20260101T231316Z
LAST-MODIFIED:20260101T231316Z
UID:9497-1774425600-1774630800@canadianrdn.ca
SUMMARY:4th Annual Scientific Symposium on SPG4
DESCRIPTION:The premier gathering for childhood-onset SPG4 research returns in 2026 — uniting leading scientists\, clinicians\, industry innovators\, patient advocates\, and families for three days of focused collaboration. Designed to accelerate the path from discovery to treatment\, the symposium will feature experts from across the U.S. and abroad\, offering a rare opportunity to share knowledge\, align priorities\, and drive progress.
URL:https://canadianrdn.ca/event/4th-annual-scientific-symposium-on-spg4/
CATEGORIES:Clinical Trials,Conferences,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260325T100000
DTEND;TZID=America/Edmonton:20260325T110000
DTSTAMP:20260403T161502
CREATED:20260311T230004Z
LAST-MODIFIED:20260311T230004Z
UID:9937-1774432800-1774436400@canadianrdn.ca
SUMMARY:PiPER Community of Practice: Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience
DESCRIPTION:Save the date on *March 25th 2026*  for a dynamic session entitled “Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience”.
URL:https://canadianrdn.ca/event/piper-community-of-practice-patient-partners-in-learning-health-systems-the-centre-for-digital-health-evaluation-experience/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1772648035669.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260325T100000
DTEND;TZID=America/Edmonton:20260325T120000
DTSTAMP:20260403T161502
CREATED:20260316T133840Z
LAST-MODIFIED:20260316T133840Z
UID:9944-1774432800-1774440000@canadianrdn.ca
SUMMARY:Gene Therapy for IEI: It's Taken Us So Long 'Cause We've Got So Far To Come
DESCRIPTION:Moderated by Dr. Jordan Orange\, this important conversation will explore the progress\, promise\, and future of gene therapy for Inborn Errors of Immunity.
URL:https://canadianrdn.ca/event/gene-therapy-for-iei-its-taken-us-so-long-cause-weve-got-so-far-to-come/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1772805626074.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260327T080000
DTEND;TZID=America/Toronto:20260327T170000
DTSTAMP:20260403T161502
CREATED:20260101T231010Z
LAST-MODIFIED:20260101T231010Z
UID:9494-1774598400-1774630800@canadianrdn.ca
SUMMARY:RARE.Qc's Scientific Day and Annual General Meeting
DESCRIPTION:The event will take place in the Cruess Amphitheatre and the Elspeth McConnell Atrium at the Research Institute of the McGill University Health Centre (RI-MUHC) in Montréal\, and will also be offered in a virtual format.
URL:https://canadianrdn.ca/event/rare-qcs-scientific-day-and-annual-general-meeting/
CATEGORIES:Conferences,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Affiche_JourneeScientifique_RARE-Qc_2026_EN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260407T150000
DTEND;TZID=America/Edmonton:20260407T170000
DTSTAMP:20260403T161502
CREATED:20260212T205259Z
LAST-MODIFIED:20260212T205259Z
UID:9784-1775574000-1775581200@canadianrdn.ca
SUMMARY:CPD-Accredited Webinar | Duchenne Muscular Dystrophy in the New Steroid Age: Practical Considerations
DESCRIPTION:NMD4C\, MDC\, and Defeat Duchenne Canada are pleased to invite you to a CPD-accredited webinar on Duchenne Muscular Dystrophy in the Evolving Steroid Era: Practical Neuromuscular and Endocrine Considerations. This CPD-accredited webinar is primarily targeted at Canadian clinicians\, academics and trainees with an interest in neuromuscular diseases.
URL:https://canadianrdn.ca/event/cpd-accredited-webinar-duchenne-muscular-dystrophy-in-the-new-steroid-age-practical-considerations/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770814888758.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260409T080000
DTEND;TZID=America/Toronto:20260409T170000
DTSTAMP:20260403T161502
CREATED:20260401T192410Z
LAST-MODIFIED:20260401T192410Z
UID:10067-1775721600-1775754000@canadianrdn.ca
SUMMARY:MitoRevolution Research Symposium and Innovation Day
DESCRIPTION:Researchers\, clinicians\, and trainees working in mitochondrial science are invited to attend the 6th Annual MitoRevolution Research Symposium and Innovation Day\, hosted by their partners Mito2i\, on Thursday\, April 9\, 2026\, at the MaRS Auditorium in Toronto.
URL:https://canadianrdn.ca/event/mitorevolution-research-symposium-and-innovation-day/
CATEGORIES:Caregiver,Clinical Trials,Events,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773856526059-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260409T080000
DTEND;TZID=America/Edmonton:20260410T170000
DTSTAMP:20260403T161502
CREATED:20260401T192545Z
LAST-MODIFIED:20260401T192545Z
UID:10070-1775721600-1775840400@canadianrdn.ca
SUMMARY:Ehlers-Danlos Syndrome (EDS) Research Symposium
DESCRIPTION:The Ehlers-Danlos Syndrome (EDS) Research Symposium is a two-day event\, April 9-10\, designed to bring together clinicians\, researchers\, students\, patients\, and community partners to examine current research\, clinical challenges\, and emerging approaches to the diagnosis and management of the Ehlers-Danlos syndromes.⁠\n⁠
URL:https://canadianrdn.ca/event/ehlers-danlos-syndrome-eds-research-symposium/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774621936518.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260410T130000
DTEND;TZID=America/Toronto:20260410T140000
DTSTAMP:20260403T161502
CREATED:20260401T191832Z
LAST-MODIFIED:20260401T191832Z
UID:10058-1775826000-1775829600@canadianrdn.ca
SUMMARY:ALS Clinical Trials Unboxed
DESCRIPTION:On Friday\, April 10\, at 1:00 p.m. ET\, tune into ALS Clinical Trials Unboxed to learn about ongoing ALS clinical trials in Canada and globally for people living with ALS. In this webinar\, Dr. Tyrell J. Simkins\, DO\, PhD\, Senior Director of Clinical Development at Coya Therapeutics\, will discuss the scientific rationale behind COYA 302 and the design of the ALSTARS trial.
URL:https://canadianrdn.ca/event/als-clinical-trials-unboxed-3/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774278028229-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260411T080000
DTEND;TZID=America/Edmonton:20260411T170000
DTSTAMP:20260403T161502
CREATED:20260401T192740Z
LAST-MODIFIED:20260401T192740Z
UID:10073-1775894400-1775926800@canadianrdn.ca
SUMMARY:Wilson Disease Association Spring Support Symposium
DESCRIPTION:Join the WDA Spring Support Symposium in Ann Arbor\, Michigan\, on April 11\, 2026\, to hear directly from patients and a caregiver as they share their real-life stories.
URL:https://canadianrdn.ca/event/wilson-disease-association-spring-support-symposium/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774553166245.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260416T080000
DTEND;TZID=America/Toronto:20260417T170000
DTSTAMP:20260403T161502
CREATED:20251113T230417Z
LAST-MODIFIED:20251113T230417Z
UID:9159-1776326400-1776445200@canadianrdn.ca
SUMMARY:3rd Symposium on Autoinflammation and Immune Dysregulation: “Celebrating Autoinflammation: On the Shoulders of a Giant
DESCRIPTION:This 3rd NIH Symposium on autoinflammatory and immunedysregulatory diseases marks a unique occasion to honor Dr. Dan Kastner\, the founding father of autoinflammation\, for his invaluable contributions in establishing and advancing the field.
URL:https://canadianrdn.ca/event/3rd-symposium-on-autoinflammation-and-immune-dysregulation-celebrating-autoinflammation-on-the-shoulders-of-a-giant/
CATEGORIES:Conferences,Healthcare,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/G4RzzlwXcAAK5iV-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260416T170000
DTEND;TZID=America/Toronto:20260416T180000
DTSTAMP:20260403T161502
CREATED:20260401T193421Z
LAST-MODIFIED:20260401T195449Z
UID:10082-1776358800-1776362400@canadianrdn.ca
SUMMARY:CHILD-BRIGHT Network EDI-DI Youth Empowerment Program Knowledge Mobilization Showcase
DESCRIPTION:Over the past few weeks\, youth from across Canada have come together to explore equity\, diversity\, inclusion\, decolonization\, and Indigenization in brain-based developmental disability research. Now\, they are ready to share what they have created!
URL:https://canadianrdn.ca/event/child-bright-network-edi-di-youth-empowerment-program-knowledge-mobilization-showcase/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774903947681.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260421T190000
DTEND;TZID=America/Toronto:20260421T200000
DTSTAMP:20260403T161502
CREATED:20260401T193125Z
LAST-MODIFIED:20260401T193125Z
UID:10079-1776798000-1776801600@canadianrdn.ca
SUMMARY:Ontario Rare Action Group Information Meeting
DESCRIPTION:Join the Ontario Rare Action Group information meeting April 21\, 2026. They will be talking to you about what they’ve been up to the last month and how the community is continuing to grow.
URL:https://canadianrdn.ca/event/ontario-rare-action-group-information-meeting/
CATEGORIES:Caregiver,Patient Focused,Policy,Provincial,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774982101843.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260422T120000
DTEND;TZID=America/Toronto:20260422T130000
DTSTAMP:20260403T161502
CREATED:20260401T193543Z
LAST-MODIFIED:20260401T193543Z
UID:10086-1776859200-1776862800@canadianrdn.ca
SUMMARY:Building Business Cases for Genomics
DESCRIPTION:In this panel discussion and interactive Q & A with Dr. Colleen Campbell\, Andrea Spencer\, MBA\, CHE\, CMP (Prosci)\, Megan Trinkle-Knotts\, and host DNA Today‘s Kira Dineen\, MS\, LCGC\, CG(ASCP)CM\, genetic counselling directors\, hospital consultants\, and business case experts will address how to build compelling\, evidence-backed business cases.
URL:https://canadianrdn.ca/event/building-business-cases-for-genomics/
CATEGORIES:Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774993937888.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260423T050000
DTEND;TZID=America/Edmonton:20260423T060000
DTSTAMP:20260403T161502
CREATED:20260401T192204Z
LAST-MODIFIED:20260401T192204Z
UID:10064-1776920400-1776924000@canadianrdn.ca
SUMMARY:Innovative Financing for Rare Diseases
DESCRIPTION:How can innovative financing approaches improve equitable access to diagnosis\, treatment\, and care for people living with rare diseases? \nJoin RDI-International for a new webinar series bringing together health economists\, policymakers\, patient advocates\, and payers. Through a multistakeholder dialogue\, this series will examine key financing gaps and barriers to access\, map these challenges to relevant innovative financing mechanisms\, discuss enabling conditions for implementation\, and inform policy and advocacy actions.
URL:https://canadianrdn.ca/event/innovative-financing-for-rare-diseases/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773674001238.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260425T080000
DTEND;TZID=America/Toronto:20260426T170000
DTSTAMP:20260403T161502
CREATED:20260401T192005Z
LAST-MODIFIED:20260401T192005Z
UID:10061-1777104000-1777222800@canadianrdn.ca
SUMMARY:ALS Disrupt
DESCRIPTION:A bold new meeting designed to bring together global leaders in #ALS for open\, timely\, and collaborative discussions that move the field forward.
URL:https://canadianrdn.ca/event/als-disrupt/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773237619453-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260429T080000
DTEND;TZID=America/Toronto:20260430T170000
DTSTAMP:20260403T161502
CREATED:20260401T194917Z
LAST-MODIFIED:20260401T195134Z
UID:10092-1777449600-1777568400@canadianrdn.ca
SUMMARY:CORD: Rare Disease Day 2026 Conference
DESCRIPTION:Join CORD for their Annual Rare Disease Day Conference in Toronto!
URL:https://canadianrdn.ca/event/cord-rare-disease-day-2026-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774467258083.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20260512T080000
DTEND;TZID=Europe/Brussels:20260513T170000
DTSTAMP:20260403T161502
CREATED:20260126T212140Z
LAST-MODIFIED:20260126T212140Z
UID:9668-1778572800-1778691600@canadianrdn.ca
SUMMARY:International Drug Repurposing Conference 2026
DESCRIPTION:Join the leading international drug repurposing conference to explore the future of patient-centric medicines repurposing.\nFrom rare diseases and AI-driven drug discovery\, to policy\, funding and community-led success stories\, iDR26 brings together the global drug repurposing community to navigate the next chapter in maximising patient benefit.
URL:https://canadianrdn.ca/event/international-drug-repurposing-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/idr2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260513T073000
DTEND;TZID=America/Toronto:20260513T093000
DTSTAMP:20260403T161502
CREATED:20260401T192911Z
LAST-MODIFIED:20260401T192911Z
UID:10076-1778657400-1778664600@canadianrdn.ca
SUMMARY:Voices for Rare Advocacy Day
DESCRIPTION:A day dedicated to bringing the voices of Ontario’s rare disease community directly to policymakers.
URL:https://canadianrdn.ca/event/voices-for-rare-advocacy-day/
CATEGORIES:Caregiver,Events,Healthcare,In Person,Patient Focused,Policy,Provincial
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1775052370537.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20260522T080000
DTEND;TZID=America/Vancouver:20260523T170000
DTSTAMP:20260403T161502
CREATED:20260401T193919Z
LAST-MODIFIED:20260401T193919Z
UID:10089-1779436800-1779555600@canadianrdn.ca
SUMMARY:4th Heritable Aortic Disorders Symposium
DESCRIPTION:Join the Heritable Aortic Disorders community in Vancouver on May 22–23\, 2026 for an in-person event bringing together experts from across Canada and around the world to discuss the latest developments in the genetics\, diagnosis\, and management of hereditary thoracic aortic disorders. \nDay 1 is designed for healthcare professionals\, with updates on research\, diagnostic protocols\, and clinical management. \nDay 2 is dedicated to patients and families\, featuring presentations and small-group workshops led by local and international experts. \nUBC Robson Square\, Vancouver\, BC
URL:https://canadianrdn.ca/event/4th-heritable-aortic-disorders-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/04/HADLogo_SymposiumEF_4Web-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20260524T080000
DTEND;TZID=Asia/Karachi:20260529T170000
DTSTAMP:20260403T161502
CREATED:20241215T024241Z
LAST-MODIFIED:20241215T024241Z
UID:7226-1779609600-1780074000@canadianrdn.ca
SUMMARY:15th edition of the International Myotonic Dystrophy Consortium (IDMC-15)
DESCRIPTION:The event will now make a stop in Canada\, in the picturesque and warm Saguenay—Lac-Saint-Jean region of the province of Quebec. \nA unique opportunity to network and share advances and initiatives in myotonic dystrophy research! Take advantage of this not-to-be-missed event!
URL:https://canadianrdn.ca/event/15th-edition-of-the-international-myotonic-dystrophy-consortium-idmc-15/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/12/1734027557266.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260531T080000
DTEND;TZID=America/Edmonton:20260602T170000
DTSTAMP:20260403T161502
CREATED:20250827T162014Z
LAST-MODIFIED:20250827T162014Z
UID:8774-1780214400-1780419600@canadianrdn.ca
SUMMARY:2026 Children’s Healthcare Canada Annual Conference\, “Tomorrow’s Promise\, Today’s Plan: Transforming Children’s Healthcare in Canada”
DESCRIPTION:📆Save the date: May 31-June 2
URL:https://canadianrdn.ca/event/2026-childrens-healthcare-canada-annual-conference-tomorrows-promise-todays-plan-transforming-childrens-healthcare-in-canada/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1755522066902.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Prague:20260602T080000
DTEND;TZID=Europe/Prague:20260604T170000
DTSTAMP:20260403T161502
CREATED:20250812T194154Z
LAST-MODIFIED:20250812T194154Z
UID:8711-1780387200-1780592400@canadianrdn.ca
SUMMARY:ECRD: Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases
DESCRIPTION:The ECRD is the largest\, patient-led\, rare disease policy-shaping event held in Europe. \nBy bringing together people with rare diseases and patient advocates\, policy makers\, healthcare industry representatives\, clinicians\, regulators and Member State representatives\, EURORDIS harnesses the power of this extensive network to shape goal-driven rare disease policies of the future.
URL:https://canadianrdn.ca/event/ecrd-rare-diseases-in-a-changing-competitive-europe-shaping-policies-to-address-the-unmet-needs-of-people-living-with-rare-diseases/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20260403T161502
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/images-1.jpg
END:VEVENT
END:VCALENDAR