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BEGIN:DAYLIGHT
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DTSTART:20261025T010000
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TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
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DTSTART:20241103T060000
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DTSTART:20250309T070000
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DTSTART:20251102T060000
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250919T080000
DTEND;TZID=America/Toronto:20250919T170000
DTSTAMP:20260403T155422
CREATED:20250827T170011Z
LAST-MODIFIED:20250827T170011Z
UID:8784-1758268800-1758301200@canadianrdn.ca
SUMMARY:2e Journée québécoise sur les sarcomes
DESCRIPTION:La 2e édition de la Journée québécoise sur les sarcomes rassemble la communauté médicale et scientifique québécoise œuvrant dans le domaine des sarcomes. Il offre une occasion unique pour : \n\nAssister à des conférences et présentations de pointe\nFavoriser des collaborations interinstitutionnelles porteuses\nRenforcer les liens entre chercheuses\, chercheurs\, cliniciennes et cliniciens pour maximiser notre impact collectif.
URL:https://canadianrdn.ca/event/2e-journee-quebecoise-sur-les-sarcomes/
CATEGORIES:Events,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1756218682215.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250919T150000
DTEND;TZID=America/Edmonton:20250919T170000
DTSTAMP:20260403T155422
CREATED:20250916T184302Z
LAST-MODIFIED:20250916T184302Z
UID:8891-1758294000-1758301200@canadianrdn.ca
SUMMARY:LHON Awareness Day 2025 Webinar: "Exploring the Power of Nutrition in Mitochondrial Diseases"
DESCRIPTION:This year’s theme focuses on how nutrition can support mitochondrial health. You’ll hear from experts across Australia\, Italy\, and Brazil\, sharing practical strategies and the latest research relevant to LHON and other types of mito.
URL:https://canadianrdn.ca/event/lhon-awareness-day-2025-webinar-exploring-the-power-of-nutrition-in-mitochondrial-diseases/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1756391764881.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250921T080000
DTEND;TZID=America/Chicago:20250924T170000
DTSTAMP:20260403T155422
CREATED:20250827T161756Z
LAST-MODIFIED:20250827T161756Z
UID:8771-1758441600-1758733200@canadianrdn.ca
SUMMARY:Undiagnosed Hackathon 2025
DESCRIPTION:350 million people live with an undiagnosed disease worldwide. Genome sequencing can provide answers for 40% of the People Living With Undiagnosed Disease (PLWUD) but around 60% still don’t receive a diagnosis. The purpose of the Undiagnosed Hackathon is trying to find new ways and collaborations to solve the undiagnosed diseases\, that can’t be solved today. In this unique event multidisciplinary teams of clinicians\, bioinformaticians/molecular biologists\, scientists\, developers\, AI specialists and brilliant minds will work together to tackle the most difficult diseases.
URL:https://canadianrdn.ca/event/undiagnosed-hackathon-2025/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Undiagnosed-Hackathon-logo-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250923T093000
DTEND;TZID=America/Edmonton:20250923T113000
DTSTAMP:20260403T155422
CREATED:20250916T184831Z
LAST-MODIFIED:20250916T184831Z
UID:8897-1758619800-1758627000@canadianrdn.ca
SUMMARY:Advancing Rare Disease Healthcare: Spotlighting the Economic and Health System Burden of Disease
DESCRIPTION:Please join this 1.5-hour live virtual meeting to hear esteemed faculty describe the global economic impact of rare diseases on patients and healthcare systems. Expert community advocates will also share their practical experience of advancing patients’ needs with key stakeholders. Panel discussion and audience questions will consider how to have meaningful impact in your country or region with patient healthcare experience data and insights to drive change in practice and better health outcomes for people living with rare disease. The live virtual meeting is further supplemented with published studies and content.
URL:https://canadianrdn.ca/event/advancing-rare-disease-healthcare-spotlighting-the-economic-and-health-system-burden-of-disease/
CATEGORIES:Caregiver,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757616693554.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250924T080000
DTEND;TZID=America/Toronto:20250926T170000
DTSTAMP:20260403T155422
CREATED:20250728T214440Z
LAST-MODIFIED:20250728T214440Z
UID:8601-1758700800-1758906000@canadianrdn.ca
SUMMARY:Connected in Care Conference
DESCRIPTION:As part of Pregnancy and Infant Loss Network’s long-term vision\, Connected in Care are hosting their second biennial educational conference at the Sheraton Parkway Toronto North Hotel & Suites in Richmond Hill on Wednesday\, September 24 – Friday\, September 26\, 2025.
URL:https://canadianrdn.ca/event/connected-in-care-conference/
CATEGORIES:Conferences,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/1753454113187.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250925T080000
DTEND;TZID=America/Edmonton:20250927T170000
DTSTAMP:20260403T155422
CREATED:20250812T195243Z
LAST-MODIFIED:20250812T195243Z
UID:8724-1758787200-1758992400@canadianrdn.ca
SUMMARY:6th Western Canadian Neuromuscular Conference
DESCRIPTION:The 6th Western Canadian Neuromuscular\nConference is confirmed for 2026! Don’t miss\nthe opportunity to network with leading experts\nand stay at the forefront of medical\nadvancements in the field of neuromuscular\ndiseases.
URL:https://canadianrdn.ca/event/6th-western-canadian-neuromuscular-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1709814041logo-jpg1709814041.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250926T080000
DTEND;TZID=America/Edmonton:20250928T170000
DTSTAMP:20260403T155422
CREATED:20250520T191324Z
LAST-MODIFIED:20250520T191324Z
UID:8291-1758873600-1759078800@canadianrdn.ca
SUMMARY:Biennial National Conference
DESCRIPTION:Registration information coming soon.
URL:https://canadianrdn.ca/event/biennial-national-conference/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1747242004308.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251001T130000
DTEND;TZID=America/Toronto:20251001T160000
DTSTAMP:20260403T155422
CREATED:20250916T185043Z
LAST-MODIFIED:20250916T185043Z
UID:8900-1759323600-1759334400@canadianrdn.ca
SUMMARY:Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing capabilities in Canada
DESCRIPTION:The Stem Cell Network (SCN) and the National Research Council Canada (NRC) are excited to contribute to the national conversation on cell and gene therapy for rare diseases. Building on the 2024 event titled “Canadian Rare Disease Ecosystem Symposium: Genetic Therapies for Rare Disease”\, SCN and NRC are pleased to invite you to the Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing Capabilities in Canada–a focused half-day event dedicated to advancing gene and cell therapy development in Canada through regulatory alignment and manufacturing readiness. \nThis virtual symposium will convene international regulatory authorities\, Canadian manufacturing experts\, and rare disease developers to explore two critical enablers of translational success: clinical trial readiness and cGMP manufacturing capacity.
URL:https://canadianrdn.ca/event/canadian-rare-disease-symposium-preparing-for-clinical-trials-international-regulatory-insights-and-cgmp-gene-therapy-manufacturing-capabilities-in-canada/
CATEGORIES:Caregiver,Clinical Trials,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757349450505.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251005T080000
DTEND;TZID=America/Edmonton:20251008T170000
DTSTAMP:20260403T155422
CREATED:20250520T192119Z
LAST-MODIFIED:20250520T192119Z
UID:8301-1759651200-1759942800@canadianrdn.ca
SUMMARY:CAGC & CCMG Joint Conference
DESCRIPTION:The CAGC & CCMG Joint Conference will be a unique gathering of medical and laboratory geneticists and genetic counsellors with diverse expertise\, all sharing a common interest in education and advocating for best practices in clinical and laboratory genetics. Through presentations\, workshops\, breakout sessions\, abstract sessions\, and engagement with industry partners\, the event propels forward clinical practice\, scientific advancements\, and excellence across all aspects of genetics in Canada.
URL:https://canadianrdn.ca/event/cagc-ccmg-joint-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1741708837070.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251006T080000
DTEND;TZID=Europe/Paris:20251010T170000
DTSTAMP:20260403T155422
CREATED:20241118T223610Z
LAST-MODIFIED:20241118T223610Z
UID:6998-1759737600-1760115600@canadianrdn.ca
SUMMARY:Global Alliance for Genomics and Health (GA4GH) 13th Plenary
DESCRIPTION:GA4GH 13th Plenary will bring together the global genomics and health community for workshops\, presentations\, and keynote talks that uncover opportunities to scale genomic and clinical data sharing.
URL:https://canadianrdn.ca/event/global-alliance-for-genomics-and-health-ga4gh-13th-plenary/
CATEGORIES:Conferences,In Person,Industry,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/11/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251007T080000
DTEND;TZID=Europe/Vienna:20251011T170000
DTSTAMP:20260403T155422
CREATED:20250812T195000Z
LAST-MODIFIED:20250812T195000Z
UID:8721-1759824000-1760202000@canadianrdn.ca
SUMMARY:30th Annual International Congress of the World Muscle Society
DESCRIPTION:The World Muscle Society is a dynamic community that aims to promote\, disseminate\, and share all aspects of neuromuscular physiology and diseases\, from basic science to patient care. It encompasses a broad range of scientists and healthcare professionals who share the common interest for neuromuscular disorders.
URL:https://canadianrdn.ca/event/30th-annual-international-congress-of-the-world-muscle-society/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/wms2025-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251010T070000
DTEND;TZID=America/Edmonton:20251010T080000
DTSTAMP:20260403T155422
CREATED:20251006T202336Z
LAST-MODIFIED:20251006T202336Z
UID:8952-1760079600-1760083200@canadianrdn.ca
SUMMARY:Rare Diseases International-Community Conversations on Mental Health
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-diseases-international-community-conversations-on-mental-health/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1759479484624.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251015T100000
DTEND;TZID=America/Edmonton:20251015T113000
DTSTAMP:20260403T155422
CREATED:20251006T201940Z
LAST-MODIFIED:20251006T201940Z
UID:8949-1760522400-1760527800@canadianrdn.ca
SUMMARY:A Conversation About Patient Partner Outsider Syndrome
DESCRIPTION:Patient/caregiver partnership in health research has evolved substantially since the launch of Canada’s Strategy for Patient-Oriented Research (SPOR) over a decade ago. However\, findings from the Patient Advisors Network (PAN) “Reimagining the Research Landscape” report\, commissioned by CIHR in 2024 for the SPOR Refresh\, revealed that patient/caregiver partners often feel like outsiders in the research ecosystem. This webinar will take a deeper dive into the OSSU Research Day presentation “Why do patient/caregiver partners feel like outsiders?” \nMs. Maureen Smith will moderate a frank discussion between two of the report authors\, Mses. Alies Maybee and Annette McKinnon\, and PAN Board member Ms. Sandra Holdsworth\, and leading patient-oriented researchers Drs. Manoj Lalu\, Ambreen Sayani and Stuart Nicholls\, on the barriers uncovered by the report and showcasing best practices to mitigate these barriers.
URL:https://canadianrdn.ca/event/a-conversation-about-patient-partner-outsider-syndrome/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1758888477388.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251016T080000
DTEND;TZID=America/Edmonton:20251017T170000
DTSTAMP:20260403T155422
CREATED:20250729T164926Z
LAST-MODIFIED:20250729T164926Z
UID:8613-1760601600-1760720400@canadianrdn.ca
SUMMARY:2nd Canadian Symposium on Neurofibromatosis
DESCRIPTION:This Symposium is aimed at the patients and families\, as well as clinicians and health professionals (doctors\, nurses\, researchers).
URL:https://canadianrdn.ca/event/2nd-canadian-symposium-on-neurofibromatosis/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/2nd-canadian.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251016T123000
DTEND;TZID=America/Toronto:20251016T133000
DTSTAMP:20260403T155422
CREATED:20251015T212343Z
LAST-MODIFIED:20251015T212343Z
UID:9023-1760617800-1760621400@canadianrdn.ca
SUMMARY:Aging Out: Transition of care for children with rare neurodevelopmental disorders
DESCRIPTION:Approximately one in 12 Canadians are affected by a rare disorder and two thirds of them are children\, according to the Canadian Organization for Rare Disorders (CORD). Due to the low number of individual cases\, qualified specialists are hard to find. After years of assembling a trusted pediatric care team\, parents are often faced with the challenge of finding a new adult care team once their child turns 18. The challenge is even more complex for rare neurodevelopmental disorders requiring multi-disciplinary care. \nWhat strategies would ease the pediatric to adult care transition? This webcast will bring health care providers\, medical experts and patient advocates together to share ideas and solutions to bridge the gap between pediatric to adult care for those living with neurodevelopmental disorders.
URL:https://canadianrdn.ca/event/aging-out-transition-of-care-for-children-with-rare-neurodevelopmental-disorders/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/download.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251016T200000
DTEND;TZID=America/Toronto:20251016T210000
DTSTAMP:20260403T155422
CREATED:20251014T180518Z
LAST-MODIFIED:20251014T180518Z
UID:9017-1760644800-1760648400@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat: Digital Storytelling with Krystle Schofield
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by rare diagnosis and rare disease on October 16 at 8 P.M. EST. and learn about digital storytelling. Learn from Krystle Schofield\, a RareKids-CAN parent partner\, B.C. mom\, digital storytelling facilitator + photographer.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-digital-storytelling-with-krystle-schofield/
CATEGORIES:Caregiver,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1760118853512.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251018T080000
DTEND;TZID=America/Toronto:20251018T170000
DTSTAMP:20260403T155422
CREATED:20250618T150152Z
LAST-MODIFIED:20250618T150152Z
UID:8454-1760774400-1760806800@canadianrdn.ca
SUMMARY:RQMO 2025 Education Day
DESCRIPTION:Under the theme “Rare Diseases: Let’s Break Isolation Together!”\, this event aims to build bridges between those who live the daily reality of rare diseases and those who accompany and care for them.
URL:https://canadianrdn.ca/event/rqmo-2025-education-day/
CATEGORIES:Caregiver,Healthcare,In Person,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/1749563415888.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Krasnoyarsk:20251018T080000
DTEND;TZID=Asia/Krasnoyarsk:20251019T170000
DTSTAMP:20260403T155422
CREATED:20241218T230242Z
LAST-MODIFIED:20241218T230242Z
UID:7274-1760774400-1760893200@canadianrdn.ca
SUMMARY:International Neurology Conference 2025 |  Mental Health Conference\, Thailand
DESCRIPTION:Neurology & Mental Health conference 2025 is set to be held on the 18th and 19th of October 2025\, in Bangkok\, Thailand in hybrid mode\, allowing everyone to gain knowledge and providing a platform for discussing the latest advancements in treatments and techniques\, future and present challenges\, and sharing invaluable experiences in Neurology and allied disciplines. The event will feature plenary lectures\, speeches\, research & technical presentations\, and hands-on experience workshops to help shape the future of neurology & psychiatry.
URL:https://canadianrdn.ca/event/international-neurology-conference-2025-mental-health-conference-thailand/
CATEGORIES:Conferences,Healthcare,Hybrid,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251020T130000
DTEND;TZID=America/Toronto:20251023T160000
DTSTAMP:20260403T155422
CREATED:20250916T185259Z
LAST-MODIFIED:20250916T185259Z
UID:8903-1760965200-1761235200@canadianrdn.ca
SUMMARY:KTDRR’s 2025 Virtual Knowledge Translation Conference
DESCRIPTION:This conference will look at different ways to make knowledge translation (KT) more effective and impactful. They seek presentations that will discuss how to measure the success of KT efforts\, including involving users early on\, working with people with disabilities\, and customizing products and outreach to meet user needs. They’ll also look for presentations that talk about sharing KT content online\, ensuring it’s credible\, teaching digital literacy\, spotting false information\, and making sure disability is represented accurately. In addition\, they encourage presentations that explore how technology can boost KT projects\, such as using digital tools to build online communities\, check text readability\, and summarize research. They also welcome presentations that highlight the role of artificial intelligence (AI) in creating easy-to-understand summaries\, organizing research\, addressing AI bias\, and writing effective prompts. Join them to discover new strategies and tools to enhance your KT efforts.
URL:https://canadianrdn.ca/event/ktdrrs-2025-virtual-knowledge-translation-conference/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1756924002853.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251022T080000
DTEND;TZID=America/Toronto:20251022T170000
DTSTAMP:20260403T155422
CREATED:20250812T195732Z
LAST-MODIFIED:20250812T195732Z
UID:8730-1761120000-1761152400@canadianrdn.ca
SUMMARY:Building Bridges: Advancing Collaborative Pediatric Palliative Care
DESCRIPTION:This pediatric palliative care symposium is for health care professionals interested in increasing their knowledge and skill in working with children with serious illness and their families. \nThe goal is to share research and clinical experiences that broaden the perspectives and collaborative efforts to enhance the care delivery in hospital\, home and hospice. \nPediatric-focused clinician’s and adult palliative care clinicians most welcome
URL:https://canadianrdn.ca/event/building-bridges-advancing-collaborative-pediatric-palliative-care/
CATEGORIES:Caregiver,Events,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1754334611589.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20251027T080000
DTEND;TZID=Europe/Amsterdam:20251029T170000
DTSTAMP:20260403T155422
CREATED:20250618T150752Z
LAST-MODIFIED:20250618T150752Z
UID:8460-1761552000-1761757200@canadianrdn.ca
SUMMARY:The World Orphan Drug Congress
DESCRIPTION:The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/the-world-orphan-drug-congress/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/GtQ4ZTfW8AAuIya.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251029T080000
DTEND;TZID=America/Toronto:20251030T170000
DTSTAMP:20260403T155422
CREATED:20250529T204853Z
LAST-MODIFIED:20250529T204853Z
UID:8388-1761724800-1761843600@canadianrdn.ca
SUMMARY:The 5th Annual Canadian Children\, Youth and Communities (CCYC) In | Equity Conference
DESCRIPTION:This conference reaches a national\, interdisciplinary audience and is a collaborative space where ideas are put into practice. Together\, you’ll explore how sustainable solutions and community partnerships can improve child and youth health equity.
URL:https://canadianrdn.ca/event/the-5th-annual-canadian-children-youth-and-communities-ccyc-in-equity-conference/
CATEGORIES:Conferences,National,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1746795705282.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251029T080000
DTEND;TZID=America/Toronto:20251031T170000
DTSTAMP:20260403T155422
CREATED:20250902T192527Z
LAST-MODIFIED:20250902T192527Z
UID:8845-1761724800-1761930000@canadianrdn.ca
SUMMARY:Cardiac Precision Medicine in the 21st Century
DESCRIPTION:The 10th International Cardiovascular Genomic Medicine & SickKids Cardiac Precision Medicine Conference is making its debut in North America! This year’s theme\, “Cardiac Precision Medicine in the 21st Century\,” delves into cardiovascular genomics and precision medicine in the era of ‘Omics’\, AI and digital medicine. Join us as we bring together international experts and innovators to explore transformative research and collaborative opportunities that can shape the future of cardiovascular medicine. \nThis event will feature the 4th William Harvey Oration delivered by Dr. Sharlene Day and the Dr. Michael Braudo Lectureship delivered by Dr. Ma’n H. Zawati.
URL:https://canadianrdn.ca/event/cardiac-precision-medicine-in-the-21st-century/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/GnjPkAnXQAAPhlQ.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251029T090000
DTEND;TZID=America/Edmonton:20251029T100000
DTSTAMP:20260403T155422
CREATED:20251024T184502Z
LAST-MODIFIED:20251024T184502Z
UID:9090-1761728400-1761732000@canadianrdn.ca
SUMMARY:Easing Pain\, Advancing Care: A New Pathway for Children with Severe Neurological Impairments
DESCRIPTION:This webinar will provide an overview of the multi-phased project\, from clinical trial to implementation. It will highlight the clinical complexity of assessing pain and irritability; the project’s relevance and impact for clinicians\, children with health complexity\, and their families; as well as key lessons for patient-oriented research and implementation science.
URL:https://canadianrdn.ca/event/easing-pain-advancing-care-a-new-pathway-for-children-with-severe-neurological-impairments/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/Child-health-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251029T100000
DTEND;TZID=America/Edmonton:20251029T120000
DTSTAMP:20260403T155422
CREATED:20251015T184026Z
LAST-MODIFIED:20251015T184026Z
UID:9020-1761732000-1761739200@canadianrdn.ca
SUMMARY:Taking multiple medications? 5 questions to ask
DESCRIPTION:In recognition of Canadian Patient Safety Week 2025 (October 27-31)\, join Dr. Emily McDonald — a physician specializing in patient safety and Director of the Canadian Medication Appropriateness and Deprescribing Network — for a live\, interactive webinar. \nLearn essential questions to ask to ensure all your medications are still necessary and helping you.
URL:https://canadianrdn.ca/event/taking-multiple-medications-5-questions-to-ask/
CATEGORIES:Caregiver,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/5Qs-Webinar-Banner_2025-08-25-FINAL2-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251030T080000
DTEND;TZID=America/Toronto:20251101T170000
DTSTAMP:20260403T155422
CREATED:20250501T162537Z
LAST-MODIFIED:20250501T162537Z
UID:8114-1761811200-1762016400@canadianrdn.ca
SUMMARY:YPAHD Day + National Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/ypahd-day-national-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745529050074.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251030T110000
DTEND;TZID=America/Edmonton:20251030T120000
DTSTAMP:20260403T155422
CREATED:20250924T182926Z
LAST-MODIFIED:20250924T182926Z
UID:8919-1761822000-1761825600@canadianrdn.ca
SUMMARY:They are sacred: First Nations' Journey in Autistic Care and Advocacy
DESCRIPTION:UPCOMING RESEARCH FORUM | Grant Bruno\, Mariam Ahmad and Tierney Littlechild offer insights on how First Nations families\, Elders\, autistic individuals\, and community leaders are reshaping autism support through Indigenous knowledge\, ceremony\, and relational approaches.
URL:https://canadianrdn.ca/event/they-are-sacred-first-nations-journey-in-autistic-care-and-advocacy/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757089804796.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251101T080000
DTEND;TZID=America/Edmonton:20251101T180000
DTSTAMP:20260403T155422
CREATED:20251024T182943Z
LAST-MODIFIED:20251024T182943Z
UID:9081-1761984000-1762020000@canadianrdn.ca
SUMMARY:Ehlers-Danlos Society ECHO Summit: Mental Health
DESCRIPTION:The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Mental Health\, a virtual event held on November 1\, 2025. This event is suitable for community members\, their friends\, families\, and caregivers\, as well as healthcare professionals. \nThis event will feature presentations\, case studies\, and panel discussions around the latest management and care strategies\, featuring presentations on the following topics: \n\nThe Mind/Body Connection\nCoping with a Diagnosis\nIntersectionality\nNeurodivergence\nPractical Management Strategies
URL:https://canadianrdn.ca/event/ehlers-danlos-society-echo-summit-mental-health/
CATEGORIES:Caregiver,Events,National,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/Web_banner_EDSECHO_MH-scaled-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251103T080000
DTEND;TZID=America/New_York:20251104T170000
DTSTAMP:20260403T155422
CREATED:20250403T023652Z
LAST-MODIFIED:20250403T023652Z
UID:7906-1762156800-1762275600@canadianrdn.ca
SUMMARY:Canadian Caregiving Summit 2025
DESCRIPTION:A brighter future of care is possible. Following the release of A National Caregiving Strategy for Canada\, the Canadian Caregiving Summit\, hosted by the Azrieli Foundation’s Canadian Centre for Caregiving Excellence\, will mobilize caregivers\, care providers\, systems leaders\, policy makers and researchers across the aging\, disability and healthcare communities to work together to make caregiving a national priority.
URL:https://canadianrdn.ca/event/canadian-caregiving-summit-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251104T053000
DTEND;TZID=America/Edmonton:20251104T073000
DTSTAMP:20260403T155422
CREATED:20251027T200736Z
LAST-MODIFIED:20251027T200736Z
UID:9094-1762234200-1762241400@canadianrdn.ca
SUMMARY:Screen4Rare: Making AI Diagnosis Understandable
DESCRIPTION:A co-creation workshop  inviting non-AI experts to help design communication tools such as videos and brochures that make AI-supported diagnosis more understandable\, trustworthy and human.
URL:https://canadianrdn.ca/event/screen4rare-making-ai-diagnosis-understandable/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1761554907608.jpg
END:VEVENT
END:VCALENDAR