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BEGIN:DAYLIGHT
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250306T140000
DTEND;TZID=America/New_York:20250306T150000
DTSTAMP:20260404T014647
CREATED:20250304T033811Z
LAST-MODIFIED:20250304T033811Z
UID:7617-1741269600-1741273200@canadianrdn.ca
SUMMARY:Navigating the Transition from Pediatric to Adult Neuroimmunology Care
DESCRIPTION:This webinar will provide an overview of the transition from pediatric to adult medical care\, featuring insights from a pediatric neurologist\, social worker\, and a neuropsychologist. \nTopics will include maintaining continuity of care\, managing complex medical conditions\, self-advocacy in healthcare settings\, and addressing social and emotional considerations. The discussion aims to support patients\, families\, and caregivers in navigating this important transition effectively.
URL:https://canadianrdn.ca/event/navigating-the-transition-from-pediatric-to-adult-neuroimmunology-care/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Childrens-National.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250312T080000
DTEND;TZID=America/Denver:20250313T170000
DTSTAMP:20260404T014647
CREATED:20250219T020408Z
LAST-MODIFIED:20250219T020408Z
UID:7510-1741766400-1741885200@canadianrdn.ca
SUMMARY:Empowering Patients 2025: A Cell and Gene Therapies Summit
DESCRIPTION:This free\, virtual event in two half-day sessions offers educational discussions for foundation leaders\, patients\, and caregivers to better understand #GeneTherapy and #CellTherapy.
URL:https://canadianrdn.ca/event/empowering-patients-2025-a-cell-and-gene-therapies-summit/
CATEGORIES:Conferences,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250316T080000
DTEND;TZID=America/Chicago:20250319T170000
DTSTAMP:20260404T014647
CREATED:20241118T224806Z
LAST-MODIFIED:20241118T224806Z
UID:7007-1742112000-1742403600@canadianrdn.ca
SUMMARY:MDA Clinical and Scientific Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/mda-clinical-and-scientific-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250317T180000
DTEND;TZID=Europe/Paris:20250317T193000
DTSTAMP:20260404T014647
CREATED:20250304T034103Z
LAST-MODIFIED:20250304T034103Z
UID:7620-1742234400-1742239800@canadianrdn.ca
SUMMARY:NMOSD in sub-Saharan Africa
DESCRIPTION:The experts will provide insights and answer questions about the prevalence and incidence of NMOSD\, diagnostics\, available treatments\, immunizations\, clinical trials\, and more. Patients\, caregivers\, clinicians\, researchers\, and advocates from around the world are invited to attend. \nLive participants will have the opportunity to ask questions directly to the experts. The webinar will be recorded and made available for replay on TSF’s YouTube channel.
URL:https://canadianrdn.ca/event/nmosd-in-sub-saharan-africa/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/NMOSD-in-Sub-Saharan-Africa-1280-x-720-px.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250318T150000
DTEND;TZID=America/Chicago:20250318T160000
DTSTAMP:20260404T014647
CREATED:20250318T022101Z
LAST-MODIFIED:20250318T022101Z
UID:7704-1742310000-1742313600@canadianrdn.ca
SUMMARY:Webinar on “Neurogeriatric Aspects of Huntington’s Disease and Chorea”
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/webinar-on-neurogeriatric-aspects-of-huntingtons-disease-and-chorea/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/GlskZSvWkAADp6T.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250318T183000
DTEND;TZID=America/Halifax:20250318T213000
DTSTAMP:20260404T014647
CREATED:20250307T042503Z
LAST-MODIFIED:20250307T042503Z
UID:7694-1742322600-1742333400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 by McGill’s RareDIG
DESCRIPTION:McGill’s RareDIG is excited to welcome you to their seventh edition of Rare Disease Day! Students\, researchers\, physicians\, patients\, and community members\, including the RQMO\, will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) in Montreal on March 18th at 6:30 pm to discuss the challenges faced by people with rare diseases\, research and advocacy efforts. Poster presentations will also be prepared by student researchers with a keen interest in making a difference in the rare disease field. \nPresentations are open to all and free of charge. Presentations will be in English only\, and the event will be held in person only\, with no online broadcast.
URL:https://canadianrdn.ca/event/rare-disease-day-2025-by-mcgills-raredig/
CATEGORIES:Events,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1741092167625.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250320T160000
DTEND;TZID=Europe/Paris:20250320T170000
DTSTAMP:20260404T014647
CREATED:20250121T234252Z
LAST-MODIFIED:20250121T234252Z
UID:7390-1742486400-1742490000@canadianrdn.ca
SUMMARY:Peripheral Nerve Imaging with Focus on Inflammatory Neuropathies
DESCRIPTION:
URL:https://canadianrdn.ca/event/peripheral-nerve-imaging-with-focus-on-inflammatory-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250323T080000
DTEND;TZID=Europe/Paris:20250326T170000
DTSTAMP:20260404T014647
CREATED:20241203T023809Z
LAST-MODIFIED:20241203T023809Z
UID:7113-1742716800-1743008400@canadianrdn.ca
SUMMARY:13th ISNS European Regional Meeting Luxembourg
DESCRIPTION:Newborn Screening LIVE from the Heart of Europe
URL:https://canadianrdn.ca/event/13th-isns-european-regional-meeting-luxembourg/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/12/GSQ18btWkAANoQE.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250325T070000
DTEND;TZID=America/New_York:20250325T150000
DTSTAMP:20260404T014647
CREATED:20250321T031551Z
LAST-MODIFIED:20250321T031551Z
UID:7808-1742886000-1742914800@canadianrdn.ca
SUMMARY:AIHA Awareness Day 2025
DESCRIPTION:AIHA Awareness Day 2025 brings together patients\, care partners\, physicians\, researchers\, industry leaders\, and legislators for virtual presentations that honor and support the journeys of those affected by Autoimmune Hemolytic Anemia and other Acquired Hemolytic Anemias. This day is a powerful call to action to inspire us all to champion hope\, understanding\, and awareness.
URL:https://canadianrdn.ca/event/aiha-awareness-day-2025/
CATEGORIES:Events,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/AIHA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250327T100000
DTEND;TZID=UTC:20250327T110000
DTSTAMP:20260404T014647
CREATED:20250318T022619Z
LAST-MODIFIED:20250318T022619Z
UID:7711-1743069600-1743073200@canadianrdn.ca
SUMMARY:Dragon Claw Friends Webinar - Breaking Down Barriers – Are Patients Aware of Their Autoimmune Disease Treatment Options?
DESCRIPTION:Despite significant advancements in the treatment of autoimmune diseases\, many patients remain unaware of their options. Social media platforms are filled with stories of people struggling with uncontrolled symptoms—so why aren’t these breakthroughs reaching those who need them most? To explore this issue\, Dragon Claw Charity Australia\, in collaboration with CaPPRe\, has conducted research into the awareness gap among patients with rheumatology\, dermatology\, and gastroenterology-related autoimmune diseases.
URL:https://canadianrdn.ca/event/dragon-claw-friends-webinar-breaking-down-barriers-are-patients-aware-of-their-autoimmune-disease-treatment-options/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1742149835460.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250327T160000
DTEND;TZID=Europe/Paris:20250327T170000
DTSTAMP:20260404T014647
CREATED:20250121T234423Z
LAST-MODIFIED:20250121T234423Z
UID:7392-1743091200-1743094800@canadianrdn.ca
SUMMARY:Navigating Life with Dysimmune and Inflammatory Neuropathies: Q&A Session on Quality of Life and Management
DESCRIPTION:
URL:https://canadianrdn.ca/event/navigating-life-with-dysimmune-and-inflammatory-neuropathies-qa-session-on-quality-of-life-and-management/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250329T080000
DTEND;TZID=America/Los_Angeles:20250329T133000
DTSTAMP:20260404T014647
CREATED:20250123T230329Z
LAST-MODIFIED:20250123T230329Z
UID:7423-1743235200-1743255000@canadianrdn.ca
SUMMARY:Vancouver Patient Education Meeting – IN-PERSON
DESCRIPTION:
URL:https://canadianrdn.ca/event/vancouver-patient-education-meeting-in-person/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/GgvaNu0XkAAbu94.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250331T083000
DTEND;TZID=America/New_York:20250331T093000
DTSTAMP:20260404T014647
CREATED:20250326T033117Z
LAST-MODIFIED:20250326T033117Z
UID:7829-1743409800-1743413400@canadianrdn.ca
SUMMARY:Understanding what matters to children and families: The socioeconomic impact of childhood arthritis
DESCRIPTION:This presentation will share findings from the Health Economics research lead by\nDr. Marshall as part of the international UCAN CAN-DU and CURE research program\non childhood arthritis.
URL:https://canadianrdn.ca/event/understanding-what-matters-to-children-and-families-the-socioeconomic-impact-of-childhood-arthritis/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Socioeconomic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250401T080000
DTEND;TZID=UTC:20250401T170000
DTSTAMP:20260404T014647
CREATED:20250325T075821Z
LAST-MODIFIED:20250325T075821Z
UID:7823-1743494400-1743526800@canadianrdn.ca
SUMMARY:National Caregiver Day
DESCRIPTION:Carers Canada is proud to lead the National Caregiver Day 2025 campaign\, dedicated to honouring the dedication and resilience of caregivers. This year\, they’re  focused on providing meaningful support through innovative initiatives designed to make a real difference. \n 
URL:https://canadianrdn.ca/event/national-caregiver-day/
CATEGORIES:Events,National,Patient Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/NCD-2025-home-4-2048x600-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250401T123000
DTEND;TZID=America/New_York:20250401T133000
DTSTAMP:20260404T014647
CREATED:20250325T080251Z
LAST-MODIFIED:20250325T080251Z
UID:7826-1743510600-1743514200@canadianrdn.ca
SUMMARY:National Healthcare Provider Workshop
DESCRIPTION:In celebration of National Caregiving Day\, the Canadian Home Care Association (CHCA) is hosting the National Healthcare Provider Workshop on\, which will bridge insights from Hope for the Best\, Plan for the Rest (McMaster University) and the CHCA eiCOMPASS Project\, highlighting the transformative work of both initiatives.
URL:https://canadianrdn.ca/event/national-healthcare-provider-workshop/
CATEGORIES:Caregiver,Events,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/Gmv4QgOXQAAtSQS-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250402T130000
DTEND;TZID=America/Halifax:20250402T140000
DTSTAMP:20260404T014647
CREATED:20250326T034907Z
LAST-MODIFIED:20250326T034907Z
UID:7835-1743598800-1743602400@canadianrdn.ca
SUMMARY:Information Session: 2025-2026 Funding Opportunity for Rare Disease Registry Improvement
DESCRIPTION:
URL:https://canadianrdn.ca/event/information-session-2025-2026-funding-opportunity-for-rare-disease-registry-improvement/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/8a892476-2fc8-476b-a4e2-b0950c425eb9.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T080000
DTEND;TZID=America/New_York:20250408T170000
DTSTAMP:20260404T014647
CREATED:20241118T223850Z
LAST-MODIFIED:20241118T223850Z
UID:7001-1744012800-1744131600@canadianrdn.ca
SUMMARY:Conscience Symposium on Open Drug Discovery
DESCRIPTION:
URL:https://canadianrdn.ca/event/conscience-symposium-on-open-drug-discovery/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T083000
DTEND;TZID=America/New_York:20250407T093000
DTSTAMP:20260404T014647
CREATED:20250326T033414Z
LAST-MODIFIED:20250326T033414Z
UID:7832-1744014600-1744018200@canadianrdn.ca
SUMMARY:Child Health and Wellness Seminar: Discovery Series: Understanding Mental Health and Neurodiversity Through Systems Neuroscience
DESCRIPTION:Understanding and supporting mental health and neurodiversity requires insight into the brain systems that regulate attention\, motivation\, mood and thought. Dr. Gruber’slab studies the brain’s role in these functions and how they are shaped by risk factors such as stress\, inflammation and abused drugs. \n 
URL:https://canadianrdn.ca/event/child-health-and-wellness-seminar-discovery-series-understanding-mental-health-and-neurodiversity-through-systems-neuroscience/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/13714_COLOURBOX31156818.rev_.1742924419.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250407T100000
DTEND;TZID=America/Halifax:20250407T110000
DTSTAMP:20260404T014647
CREATED:20250403T022042Z
LAST-MODIFIED:20250403T022042Z
UID:7888-1744020000-1744023600@canadianrdn.ca
SUMMARY:Caregiving Essentials Webinar: Mapping a Brighter Future for Canadian Caregivers
DESCRIPTION:
URL:https://canadianrdn.ca/event/caregiving-essentials-webinar-mapping-a-brighter-future-for-canadian-caregivers/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/04/4e7ca4f1-e359-4c41-8508-73bf39a078d4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250408T080000
DTEND;TZID=Europe/Helsinki:20250410T170000
DTSTAMP:20260404T014647
CREATED:20240823T210044Z
LAST-MODIFIED:20240823T210044Z
UID:5357-1744099200-1744304400@canadianrdn.ca
SUMMARY:13th ISSAID Meeting
DESCRIPTION:13th Meeting of the International Society of Systemic Autoinflammatory Diseases (ISSAID)\, which will take place in Paris from April 8th to 10th\, 2025\, at the “Cité Internationale” – a magnificent haven of peace near many transport amenities where you will particularly enjoy the sumptuous Honorat lounge overlooking a lush green park. \nApril in Paris offers a delightful mix of mild weather\, budding greenery\, and a relaxed atmosphere\, perfect for strolling along the Seine after a day of work. \nThe ISSAID 2025 meeting will provide an opportunity for pediatric and adult rheumatologists\, immunologists\, general pediatricians and internists\, scientists\, and others interested in systemic autoinflammatory diseases to come together to share new findings related to autoinflammation and to learn about recent advances in this field. \nThe ISSAID 2025 meeting will highlight the topic of neurologic inflammation\, and we hope it will facilitate better assessment\, care\, and research on this particularly complex subject. We will  present current topics such as artificial intelligence\, mechanisms of inflammation\, and new diseases. \nThe ISSAID 2025 meeting will promote interactions between old and new generations so that the science of SAIDs can be transmitted and best adapted to societal transformations and the challenges of tomorrow’s medicine.
URL:https://canadianrdn.ca/event/13th-issaid-meeting/
LOCATION:paris\, Paris\, France
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/logo-left1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250409T110000
DTEND;TZID=America/New_York:20250409T120000
DTSTAMP:20260404T014647
CREATED:20250403T022159Z
LAST-MODIFIED:20250403T022159Z
UID:7891-1744196400-1744200000@canadianrdn.ca
SUMMARY:Five Good Ideas to support and benefit from working caregivers in your workplace
DESCRIPTION:
URL:https://canadianrdn.ca/event/five-good-ideas-to-support-and-benefit-from-working-caregivers-in-your-workplace/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250410T080000
DTEND;TZID=America/New_York:20250411T170000
DTSTAMP:20260404T014647
CREATED:20250326T035750Z
LAST-MODIFIED:20250326T035750Z
UID:7838-1744272000-1744390800@canadianrdn.ca
SUMMARY:RareKids-CAN Annual Conference
DESCRIPTION:The mission of the RareKids-CAN: Pediatric Rare Disease Clinical Trials and Treatment Network Strategic Planning Conference is to collaboratively shape the future of pediatric rare disease research and clinical trial capacity in Canada. By bringing together over 100 patient and family partners\, researchers\, sub-platform leaders\, and key stakeholders\, they aim to co-develop a shared vision that accelerates pediatric drug development and progress in clinical trials\, improves treatment access\, and strengthens national and international partnerships.
URL:https://canadianrdn.ca/event/rarekids-can-annual-conference/
CATEGORIES:Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/RareKidsCAN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250410T140000
DTEND;TZID=UTC:20250410T150000
DTSTAMP:20260404T014647
CREATED:20250403T023036Z
LAST-MODIFIED:20250403T023036Z
UID:7900-1744293600-1744297200@canadianrdn.ca
SUMMARY:RDI: Leveraging the EML for Access to Rare Disease Treatments
DESCRIPTION:The WHO Essential Medicines List (EML) is a critical instrument for advancing Universal Health Coverage (UHC) by ensuring equitable access to essential medicines. However\, its role in rare disease treatment remains under-recognized. This webinar will explore how the EML can serve as a powerful tool to improve access to treatments for persons living with a rare disease (PLWRD) at both global and national levels. \nWebinar Objectives: \n\nGain a deeper understanding of the WHO Essential Medicines List and its significance for rare diseases\nLearn about the findings from RDI’s Essential Medicine Working Group on challenges\, best practices\, and opportunities for regarding the application process of EML\nHear about call-to-action to enhance global and national access to essential medicines
URL:https://canadianrdn.ca/event/rdi-leveraging-the-eml-for-access-to-rare-disease-treatments/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250410T143000
DTEND;TZID=America/New_York:20250410T160000
DTSTAMP:20260404T014647
CREATED:20250325T074400Z
LAST-MODIFIED:20250325T074400Z
UID:7811-1744295400-1744300800@canadianrdn.ca
SUMMARY:Thinking Outside of Your In Box: Innovative Fundraising Opportunities
DESCRIPTION:Leadership in rare disease advocacy requires creativity and resourcefulness. This session highlights unconventional fundraising strategies and case studies of successful campaigns. Participants will discover how to secure funding through innovative approaches\, such as partnering with non-traditional sponsors\, and receive actionable tips to implement these ideas in their own organizations.
URL:https://canadianrdn.ca/event/thinking-outside-of-your-in-box-innovative-fundraising-opportunities/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Global-Genes.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250424T080000
DTEND;TZID=UTC:20250425T170000
DTSTAMP:20260404T014647
CREATED:20240926T202547Z
LAST-MODIFIED:20240926T202547Z
UID:5930-1745481600-1745600400@canadianrdn.ca
SUMMARY:Neuropsychiatry & Mental Health 2025
DESCRIPTION:Theme: Innovations in Neuropsychiatry and Evolution in Medicines of Neurological Disorders for Better Mental Health.
URL:https://canadianrdn.ca/event/neuropsychiatry-mental-health-2025/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/09/66f4642b83f88.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250424T080000
DTEND;TZID=America/New_York:20250425T170000
DTSTAMP:20260404T014647
CREATED:20250118T001616Z
LAST-MODIFIED:20250118T001616Z
UID:7374-1745481600-1745600400@canadianrdn.ca
SUMMARY:Limb-Girdle Muscular Dystrophy Masterclass
DESCRIPTION:Are you involved in diagnosing or managing Limb-Girdle muscular dystrophy (LGMD)? This April 2025\, join TREAT-NMD™ in Montreal\, Canada\, for an in-person educational event designed for healthcare professionals in the neuromuscular field.
URL:https://canadianrdn.ca/event/limb-girdle-muscular-dystrophy-masterclass/
CATEGORIES:In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250424T120000
DTEND;TZID=America/Toronto:20250424T133000
DTSTAMP:20260404T014647
CREATED:20250422T184202Z
LAST-MODIFIED:20250422T184202Z
UID:8034-1745496000-1745501400@canadianrdn.ca
SUMMARY:Lunch N’ Learn: Talking Research with Patient Partners
DESCRIPTION:Join this virtual workshop on Zoom on April 24\, 2025\, at 12:00 p.m. (EST) to develop communication skills for engaging with patient partners in research. \nHosted by the HBHL EDI Trainee Committee\, the session features medical librarians and a patient advocate sharing insights on plain language and patient-oriented research. \nPresenters: \n\nSabrina Burr\, MISt – Librarian of the Neuro-Patient Resource Centre at The Neuro-MNI\nPaule Kelly-Rhéaume – Medical librarian at the McGill University Health Centre\nJoAnne Mosel\, CPA – Advocate in the Rare Disease space with over 30 years of experience
URL:https://canadianrdn.ca/event/lunch-n-learn-talking-research-with-patient-partners/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/Gn8WHWIXEAA9Uoh.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250425T113000
DTEND;TZID=America/Toronto:20250425T123000
DTSTAMP:20260404T014647
CREATED:20250421T215541Z
LAST-MODIFIED:20250421T215541Z
UID:8007-1745580600-1745584200@canadianrdn.ca
SUMMARY:Navigating Conflict with Care: Building Stronger Patient Engagement Teams in Research
DESCRIPTION:​Conflict is a natural part of teamwork—but in family engagement in research\, how we navigate it matters. Join them for a compassionate conversation on resolving conflicts in family engagement teams\, fostering trust\, and strengthening collaboration.
URL:https://canadianrdn.ca/event/navigating-conflict-with-care-building-stronger-patient-engagement-teams-in-research/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1742246725097.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250427T080000
DTEND;TZID=America/Halifax:20250429T170000
DTSTAMP:20260404T014647
CREATED:20250325T075121Z
LAST-MODIFIED:20250325T075121Z
UID:7817-1745740800-1745946000@canadianrdn.ca
SUMMARY:Mitochondrial Transplantation and Next Generation Therapeutics Conference
DESCRIPTION:Join Northwell Health on April 27-29\, 2025\, at Hofstra University on Long Island (NY) for a unique forum for the presentation and discussion of new research developments in mitochondrial transfer and transplantation.
URL:https://canadianrdn.ca/event/mitochondrial-transplantation-and-next-generation-therapeutics-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/Drupal-web_Odranoel-Tirol-Sep-10-026-1024x768-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250428T080000
DTEND;TZID=UTC:20250430T170000
DTSTAMP:20260404T014647
CREATED:20240819T212139Z
LAST-MODIFIED:20240828T213717Z
UID:5187-1745827200-1746032400@canadianrdn.ca
SUMMARY:Summit 2025: Ending The Diagnostic Odyssey
DESCRIPTION:A first-of-its kind collaborative event for Undiagnosed\, Ultra-Rare & Rare disease industry\, clinical and community leaders. \nThe diagnostic odyssey for rare diseases is a significant challenge\, often leaving patients and families lost in a maze of tests\, misdiagnoses\, missed opportunities to participate in clinical trials\, and delayed treatment. Summit 2025 brings together a diverse group of stakeholders – patient advocates\, industry leaders\, policymakers\, clinicians\, researchers and payers – to chart a collaborative path towards a future where timely and accurate diagnoses are a reality for all with rare diseases.
URL:https://canadianrdn.ca/event/summit-2025-ending-the-diagnostic-odyssey/
LOCATION:washington\, WA\, United States
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
END:VCALENDAR