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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250227T190000
DTEND;TZID=America/New_York:20250227T210000
DTSTAMP:20260404T082622
CREATED:20250219T015721Z
LAST-MODIFIED:20250219T015721Z
UID:7501-1740682800-1740690000@canadianrdn.ca
SUMMARY:Rare Moments: Virtual Storytelling Evening
DESCRIPTION:Don’t miss Rare Moments: Virtual Storytelling Evening\n📅 February 27 @ 7:00 p.m. ET\nRegister: https://bit.ly/4ht5Ox9 \nIt will be an inspiring evening of storytelling as families from across #Canada come together to share their experiences living with Duchenne #musculardystrophy.
URL:https://canadianrdn.ca/event/rare-moments-virtual-storytelling-evening/
CATEGORIES:Caregiver,Events,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/02/1739560561624.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250301
DTSTAMP:20260404T082622
CREATED:20240529T010500Z
LAST-MODIFIED:20240529T010500Z
UID:4255-1740700800-1740787199@canadianrdn.ca
SUMMARY:Rare Disease Day
DESCRIPTION:Rare Disease Day is the globally coordinated movement on rare diseases\, initiated in 2008 and led by EURORDIS and its 70+ national alliance patient organization partners working towards\nequity in social opportunity\, healthcare\, and access to therapies for people living with a rare disease. \nRare Disease Day is held on the last day of February\, the rarest day of the year\, to highlight the challenges faced by 300 million people worldwide living with a rare disease. Over the last 17 years\,\nRare Disease Day has played a critical part in building an international rare disease community that is multi-disease\, multicultural\, and multi-lingual\, but united in purpose. Rare Disease Day speaks for 300 million people worldwide living with a rare disease\, as well as their families and carers. Events and activities take place in over 100 countries\, banging the drum and\nbuilding momentum for the rare disease community. The campaign works in partnership with individuals and patient groups\, policymakers\, governments\, foundations\, NGOs\, pharmaceutical and biotech companies around the world to raise awareness of rare diseases. It uses innovative approaches to build community\, create empathy and advocacy for those with rare diseases.
URL:https://canadianrdn.ca/event/rare-disease-day/
CATEGORIES:Caregiver,Events,International,Patient Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/05/Rare_Disease_Day.svg_.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250228T080000
DTEND;TZID=America/Denver:20250228T160000
DTSTAMP:20260404T082622
CREATED:20250219T015433Z
LAST-MODIFIED:20250219T015433Z
UID:7498-1740729600-1740758400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 University of Alberta
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-day-2025-university-of-alberta/
CATEGORIES:Events,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/02/Rare-Disease-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250228T090000
DTEND;TZID=America/New_York:20250228T130000
DTSTAMP:20260404T082622
CREATED:20250225T041117Z
LAST-MODIFIED:20250225T041117Z
UID:7560-1740733200-1740747600@canadianrdn.ca
SUMMARY:Rare Disease Day and World Birth Defects Symposium
DESCRIPTION:Join on February 28\, 2025\, for the Rare Disease Day and World Birth Deficit Symposium\, an event dedicated to raising awareness and fostering meaningful discussions on the challenges faced by individuals and families affected by rare diseases. This symposium will bring together patients\, caregivers\, healthcare professionals\, and community advocates to share experiences\, promote equity\, and drive change.
URL:https://canadianrdn.ca/event/rare-disease-day-and-world-birth-defects-symposium/
CATEGORIES:Events,Hybrid,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/02/RDD.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250228T120000
DTEND;TZID=America/New_York:20250228T130000
DTSTAMP:20260404T082622
CREATED:20250207T035521Z
LAST-MODIFIED:20250207T043313Z
UID:7459-1740744000-1740747600@canadianrdn.ca
SUMMARY:CORD Rare Disease Day 2025 Webinar
DESCRIPTION:CORD is hosting a special webinar on Friday\, Feb 28 from 12-1pm EST so that everyone from across Canada can tune in and help put that funding to work. Here’s what they’ll discuss: – Ending the diagnostic odyssey with CHEO’s ThinkRare – Treating and tracking rare diseases at BC Cancer – Caring for complex kids and adults at BC Children’s Hospital – The challenge of treating adults with SMA in Manitoba – Measuring the socioeconomic impact of rare diseases on families and health systems
URL:https://canadianrdn.ca/event/cord-rare-disease-day-2025-webinar/
CATEGORIES:Caregiver,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250228T120000
DTEND;TZID=Europe/Paris:20250228T133000
DTSTAMP:20260404T082622
CREATED:20250219T020155Z
LAST-MODIFIED:20250219T020155Z
UID:7507-1740744000-1740749400@canadianrdn.ca
SUMMARY:Celebrate Rare Disease Day: Advancing Clinical Trials Together
DESCRIPTION:On February 28th\, in recognition of Rare Disease Day\, the European project DREAMS (www.dreamshorizon.eu) invites you to a thought-provoking online webinar: “Clinical Trials in Focus: Innovations and Patient Perspectives in Rare Diseases”. Join leading experts as they explore advancements in clinical trial methodologies\, outcome measures\, and lessons learned from research in muscular disorders.
URL:https://canadianrdn.ca/event/celebrate-rare-disease-day-advancing-clinical-trials-together/
CATEGORIES:Clinical Trials,Events,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250301T090000
DTEND;TZID=America/Denver:20250301T130000
DTSTAMP:20260404T082622
CREATED:20250207T040820Z
LAST-MODIFIED:20250207T040820Z
UID:7471-1740819600-1740834000@canadianrdn.ca
SUMMARY:Rare Disease Day 2025: Unlocking Hope for Rare Diseases
DESCRIPTION:On Saturday March 1st\, the Rare Disease Network of Alberta (rDNA) will be hosting Rare Disease Day 2025: Unlocking Hope for Rare Diseases in Edmonton. Members from their team will be attending!
URL:https://canadianrdn.ca/event/rare-disease-day-2025-unlocking-hope-for-rare-diseases/
CATEGORIES:Events,Hybrid,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250301T100000
DTEND;TZID=America/New_York:20250301T170000
DTSTAMP:20260404T082622
CREATED:20250123T224546Z
LAST-MODIFIED:20250123T224546Z
UID:7414-1740823200-1740848400@canadianrdn.ca
SUMMARY:RQMO 2025 International Rare Disease Day
DESCRIPTION:To celebrate International Rare Disease Day\, the RQMO is organizing an activity on March 1\, 2025 at the Sandman Hotel located at 999\, rue de Sérigny in Longueuil. \nThe event will take place from 10 a.m. to 3 p.m. and will be followed by a networking cocktail from 3 p.m. to 5 p.m. \nThe activity will be presented in hybrid\, you will have the possibility to attend in person or by zoom. \n 
URL:https://canadianrdn.ca/event/rqmo-2025-international-rare-disease-day/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/01/20250115072955_ajax_uploadsd346b8468cbf43158b5d3e676c6fc33a-formulaire_inscription.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250305T120000
DTEND;TZID=America/New_York:20250305T130000
DTSTAMP:20260404T082622
CREATED:20241218T230623Z
LAST-MODIFIED:20241218T230623Z
UID:7280-1741176000-1741179600@canadianrdn.ca
SUMMARY:Webinar - Initiating Clinical Trials in Canada
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-initiating-clinical-trials-in-canada/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250306T130000
DTEND;TZID=America/Denver:20250306T140000
DTSTAMP:20260404T082622
CREATED:20250225T041503Z
LAST-MODIFIED:20250225T041853Z
UID:7563-1741266000-1741269600@canadianrdn.ca
SUMMARY:ALS Clinical Trials Unboxed
DESCRIPTION:Join ALS Canada\, on March 6 at 1:00 pm ET\, for ALS Clinical Trials Unboxed. In this webinar\, Dr. Lauren Kett\, Medical Director of Clinical Development at Amylyx Pharmaceuticals will present on the Phase 1 LUMINA study\, an investigational antisense oligonucleotide (ASO) targeting calpain-2 for the potential treatment of ALS.
URL:https://canadianrdn.ca/event/als-clinical-trials-unboxed-2/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250306T140000
DTEND;TZID=America/New_York:20250306T150000
DTSTAMP:20260404T082622
CREATED:20250304T033811Z
LAST-MODIFIED:20250304T033811Z
UID:7617-1741269600-1741273200@canadianrdn.ca
SUMMARY:Navigating the Transition from Pediatric to Adult Neuroimmunology Care
DESCRIPTION:This webinar will provide an overview of the transition from pediatric to adult medical care\, featuring insights from a pediatric neurologist\, social worker\, and a neuropsychologist. \nTopics will include maintaining continuity of care\, managing complex medical conditions\, self-advocacy in healthcare settings\, and addressing social and emotional considerations. The discussion aims to support patients\, families\, and caregivers in navigating this important transition effectively.
URL:https://canadianrdn.ca/event/navigating-the-transition-from-pediatric-to-adult-neuroimmunology-care/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Childrens-National.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250312T080000
DTEND;TZID=America/Denver:20250313T170000
DTSTAMP:20260404T082622
CREATED:20250219T020408Z
LAST-MODIFIED:20250219T020408Z
UID:7510-1741766400-1741885200@canadianrdn.ca
SUMMARY:Empowering Patients 2025: A Cell and Gene Therapies Summit
DESCRIPTION:This free\, virtual event in two half-day sessions offers educational discussions for foundation leaders\, patients\, and caregivers to better understand #GeneTherapy and #CellTherapy.
URL:https://canadianrdn.ca/event/empowering-patients-2025-a-cell-and-gene-therapies-summit/
CATEGORIES:Conferences,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250316T080000
DTEND;TZID=America/Chicago:20250319T170000
DTSTAMP:20260404T082622
CREATED:20241118T224806Z
LAST-MODIFIED:20241118T224806Z
UID:7007-1742112000-1742403600@canadianrdn.ca
SUMMARY:MDA Clinical and Scientific Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/mda-clinical-and-scientific-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250317T180000
DTEND;TZID=Europe/Paris:20250317T193000
DTSTAMP:20260404T082622
CREATED:20250304T034103Z
LAST-MODIFIED:20250304T034103Z
UID:7620-1742234400-1742239800@canadianrdn.ca
SUMMARY:NMOSD in sub-Saharan Africa
DESCRIPTION:The experts will provide insights and answer questions about the prevalence and incidence of NMOSD\, diagnostics\, available treatments\, immunizations\, clinical trials\, and more. Patients\, caregivers\, clinicians\, researchers\, and advocates from around the world are invited to attend. \nLive participants will have the opportunity to ask questions directly to the experts. The webinar will be recorded and made available for replay on TSF’s YouTube channel.
URL:https://canadianrdn.ca/event/nmosd-in-sub-saharan-africa/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/NMOSD-in-Sub-Saharan-Africa-1280-x-720-px.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250318T150000
DTEND;TZID=America/Chicago:20250318T160000
DTSTAMP:20260404T082622
CREATED:20250318T022101Z
LAST-MODIFIED:20250318T022101Z
UID:7704-1742310000-1742313600@canadianrdn.ca
SUMMARY:Webinar on “Neurogeriatric Aspects of Huntington’s Disease and Chorea”
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/webinar-on-neurogeriatric-aspects-of-huntingtons-disease-and-chorea/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/GlskZSvWkAADp6T.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250318T183000
DTEND;TZID=America/Halifax:20250318T213000
DTSTAMP:20260404T082622
CREATED:20250307T042503Z
LAST-MODIFIED:20250307T042503Z
UID:7694-1742322600-1742333400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 by McGill’s RareDIG
DESCRIPTION:McGill’s RareDIG is excited to welcome you to their seventh edition of Rare Disease Day! Students\, researchers\, physicians\, patients\, and community members\, including the RQMO\, will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) in Montreal on March 18th at 6:30 pm to discuss the challenges faced by people with rare diseases\, research and advocacy efforts. Poster presentations will also be prepared by student researchers with a keen interest in making a difference in the rare disease field. \nPresentations are open to all and free of charge. Presentations will be in English only\, and the event will be held in person only\, with no online broadcast.
URL:https://canadianrdn.ca/event/rare-disease-day-2025-by-mcgills-raredig/
CATEGORIES:Events,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1741092167625.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250320T160000
DTEND;TZID=Europe/Paris:20250320T170000
DTSTAMP:20260404T082622
CREATED:20250121T234252Z
LAST-MODIFIED:20250121T234252Z
UID:7390-1742486400-1742490000@canadianrdn.ca
SUMMARY:Peripheral Nerve Imaging with Focus on Inflammatory Neuropathies
DESCRIPTION:
URL:https://canadianrdn.ca/event/peripheral-nerve-imaging-with-focus-on-inflammatory-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250323T080000
DTEND;TZID=Europe/Paris:20250326T170000
DTSTAMP:20260404T082622
CREATED:20241203T023809Z
LAST-MODIFIED:20241203T023809Z
UID:7113-1742716800-1743008400@canadianrdn.ca
SUMMARY:13th ISNS European Regional Meeting Luxembourg
DESCRIPTION:Newborn Screening LIVE from the Heart of Europe
URL:https://canadianrdn.ca/event/13th-isns-european-regional-meeting-luxembourg/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/12/GSQ18btWkAANoQE.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250325T070000
DTEND;TZID=America/New_York:20250325T150000
DTSTAMP:20260404T082622
CREATED:20250321T031551Z
LAST-MODIFIED:20250321T031551Z
UID:7808-1742886000-1742914800@canadianrdn.ca
SUMMARY:AIHA Awareness Day 2025
DESCRIPTION:AIHA Awareness Day 2025 brings together patients\, care partners\, physicians\, researchers\, industry leaders\, and legislators for virtual presentations that honor and support the journeys of those affected by Autoimmune Hemolytic Anemia and other Acquired Hemolytic Anemias. This day is a powerful call to action to inspire us all to champion hope\, understanding\, and awareness.
URL:https://canadianrdn.ca/event/aiha-awareness-day-2025/
CATEGORIES:Events,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/AIHA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250327T100000
DTEND;TZID=UTC:20250327T110000
DTSTAMP:20260404T082622
CREATED:20250318T022619Z
LAST-MODIFIED:20250318T022619Z
UID:7711-1743069600-1743073200@canadianrdn.ca
SUMMARY:Dragon Claw Friends Webinar - Breaking Down Barriers – Are Patients Aware of Their Autoimmune Disease Treatment Options?
DESCRIPTION:Despite significant advancements in the treatment of autoimmune diseases\, many patients remain unaware of their options. Social media platforms are filled with stories of people struggling with uncontrolled symptoms—so why aren’t these breakthroughs reaching those who need them most? To explore this issue\, Dragon Claw Charity Australia\, in collaboration with CaPPRe\, has conducted research into the awareness gap among patients with rheumatology\, dermatology\, and gastroenterology-related autoimmune diseases.
URL:https://canadianrdn.ca/event/dragon-claw-friends-webinar-breaking-down-barriers-are-patients-aware-of-their-autoimmune-disease-treatment-options/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1742149835460.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250327T160000
DTEND;TZID=Europe/Paris:20250327T170000
DTSTAMP:20260404T082622
CREATED:20250121T234423Z
LAST-MODIFIED:20250121T234423Z
UID:7392-1743091200-1743094800@canadianrdn.ca
SUMMARY:Navigating Life with Dysimmune and Inflammatory Neuropathies: Q&A Session on Quality of Life and Management
DESCRIPTION:
URL:https://canadianrdn.ca/event/navigating-life-with-dysimmune-and-inflammatory-neuropathies-qa-session-on-quality-of-life-and-management/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250329T080000
DTEND;TZID=America/Los_Angeles:20250329T133000
DTSTAMP:20260404T082622
CREATED:20250123T230329Z
LAST-MODIFIED:20250123T230329Z
UID:7423-1743235200-1743255000@canadianrdn.ca
SUMMARY:Vancouver Patient Education Meeting – IN-PERSON
DESCRIPTION:
URL:https://canadianrdn.ca/event/vancouver-patient-education-meeting-in-person/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/GgvaNu0XkAAbu94.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250331T083000
DTEND;TZID=America/New_York:20250331T093000
DTSTAMP:20260404T082622
CREATED:20250326T033117Z
LAST-MODIFIED:20250326T033117Z
UID:7829-1743409800-1743413400@canadianrdn.ca
SUMMARY:Understanding what matters to children and families: The socioeconomic impact of childhood arthritis
DESCRIPTION:This presentation will share findings from the Health Economics research lead by\nDr. Marshall as part of the international UCAN CAN-DU and CURE research program\non childhood arthritis.
URL:https://canadianrdn.ca/event/understanding-what-matters-to-children-and-families-the-socioeconomic-impact-of-childhood-arthritis/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Socioeconomic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250401T080000
DTEND;TZID=UTC:20250401T170000
DTSTAMP:20260404T082622
CREATED:20250325T075821Z
LAST-MODIFIED:20250325T075821Z
UID:7823-1743494400-1743526800@canadianrdn.ca
SUMMARY:National Caregiver Day
DESCRIPTION:Carers Canada is proud to lead the National Caregiver Day 2025 campaign\, dedicated to honouring the dedication and resilience of caregivers. This year\, they’re  focused on providing meaningful support through innovative initiatives designed to make a real difference. \n 
URL:https://canadianrdn.ca/event/national-caregiver-day/
CATEGORIES:Events,National,Patient Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/NCD-2025-home-4-2048x600-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250401T123000
DTEND;TZID=America/New_York:20250401T133000
DTSTAMP:20260404T082622
CREATED:20250325T080251Z
LAST-MODIFIED:20250325T080251Z
UID:7826-1743510600-1743514200@canadianrdn.ca
SUMMARY:National Healthcare Provider Workshop
DESCRIPTION:In celebration of National Caregiving Day\, the Canadian Home Care Association (CHCA) is hosting the National Healthcare Provider Workshop on\, which will bridge insights from Hope for the Best\, Plan for the Rest (McMaster University) and the CHCA eiCOMPASS Project\, highlighting the transformative work of both initiatives.
URL:https://canadianrdn.ca/event/national-healthcare-provider-workshop/
CATEGORIES:Caregiver,Events,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/Gmv4QgOXQAAtSQS-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250402T130000
DTEND;TZID=America/Halifax:20250402T140000
DTSTAMP:20260404T082622
CREATED:20250326T034907Z
LAST-MODIFIED:20250326T034907Z
UID:7835-1743598800-1743602400@canadianrdn.ca
SUMMARY:Information Session: 2025-2026 Funding Opportunity for Rare Disease Registry Improvement
DESCRIPTION:
URL:https://canadianrdn.ca/event/information-session-2025-2026-funding-opportunity-for-rare-disease-registry-improvement/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/8a892476-2fc8-476b-a4e2-b0950c425eb9.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T080000
DTEND;TZID=America/New_York:20250408T170000
DTSTAMP:20260404T082622
CREATED:20241118T223850Z
LAST-MODIFIED:20241118T223850Z
UID:7001-1744012800-1744131600@canadianrdn.ca
SUMMARY:Conscience Symposium on Open Drug Discovery
DESCRIPTION:
URL:https://canadianrdn.ca/event/conscience-symposium-on-open-drug-discovery/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T083000
DTEND;TZID=America/New_York:20250407T093000
DTSTAMP:20260404T082622
CREATED:20250326T033414Z
LAST-MODIFIED:20250326T033414Z
UID:7832-1744014600-1744018200@canadianrdn.ca
SUMMARY:Child Health and Wellness Seminar: Discovery Series: Understanding Mental Health and Neurodiversity Through Systems Neuroscience
DESCRIPTION:Understanding and supporting mental health and neurodiversity requires insight into the brain systems that regulate attention\, motivation\, mood and thought. Dr. Gruber’slab studies the brain’s role in these functions and how they are shaped by risk factors such as stress\, inflammation and abused drugs. \n 
URL:https://canadianrdn.ca/event/child-health-and-wellness-seminar-discovery-series-understanding-mental-health-and-neurodiversity-through-systems-neuroscience/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/13714_COLOURBOX31156818.rev_.1742924419.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250407T100000
DTEND;TZID=America/Halifax:20250407T110000
DTSTAMP:20260404T082622
CREATED:20250403T022042Z
LAST-MODIFIED:20250403T022042Z
UID:7888-1744020000-1744023600@canadianrdn.ca
SUMMARY:Caregiving Essentials Webinar: Mapping a Brighter Future for Canadian Caregivers
DESCRIPTION:
URL:https://canadianrdn.ca/event/caregiving-essentials-webinar-mapping-a-brighter-future-for-canadian-caregivers/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/04/4e7ca4f1-e359-4c41-8508-73bf39a078d4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250408T080000
DTEND;TZID=Europe/Helsinki:20250410T170000
DTSTAMP:20260404T082622
CREATED:20240823T210044Z
LAST-MODIFIED:20240823T210044Z
UID:5357-1744099200-1744304400@canadianrdn.ca
SUMMARY:13th ISSAID Meeting
DESCRIPTION:13th Meeting of the International Society of Systemic Autoinflammatory Diseases (ISSAID)\, which will take place in Paris from April 8th to 10th\, 2025\, at the “Cité Internationale” – a magnificent haven of peace near many transport amenities where you will particularly enjoy the sumptuous Honorat lounge overlooking a lush green park. \nApril in Paris offers a delightful mix of mild weather\, budding greenery\, and a relaxed atmosphere\, perfect for strolling along the Seine after a day of work. \nThe ISSAID 2025 meeting will provide an opportunity for pediatric and adult rheumatologists\, immunologists\, general pediatricians and internists\, scientists\, and others interested in systemic autoinflammatory diseases to come together to share new findings related to autoinflammation and to learn about recent advances in this field. \nThe ISSAID 2025 meeting will highlight the topic of neurologic inflammation\, and we hope it will facilitate better assessment\, care\, and research on this particularly complex subject. We will  present current topics such as artificial intelligence\, mechanisms of inflammation\, and new diseases. \nThe ISSAID 2025 meeting will promote interactions between old and new generations so that the science of SAIDs can be transmitted and best adapted to societal transformations and the challenges of tomorrow’s medicine.
URL:https://canadianrdn.ca/event/13th-issaid-meeting/
LOCATION:paris\, Paris\, France
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
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END:VEVENT
END:VCALENDAR