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BEGIN:DAYLIGHT
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250827T000000
DTEND;TZID=America/Edmonton:20250827T000000
DTSTAMP:20260403T154432
CREATED:20250827T165451Z
LAST-MODIFIED:20250827T165535Z
UID:8777-1756252800-1756252800@canadianrdn.ca
SUMMARY:Webinar: Patient Partnership 2025 – The Lupus100 Project
DESCRIPTION:Co-developed by ERN ReCONNET and LUPUS EUROPE\, The Lupus100 Project is a multilingual resource based on real patient questions about lupus\, turning a national patient booklet into a Europe-wide\, medically validated information tool. Speakers Eric Hachulla (clinician\, ERN ReCONNET)\, Jeanette Andersen (patient representative\, ERN ReCONNET)\, and Zoe Karakikla-Mitsakou (General Secretary\, Lupus Europe) will share how meaningful collaboration between patients and clinicians shaped this impactful communication initiative!
URL:https://canadianrdn.ca/event/webinar-patient-partnership-2025-the-lupus100-project/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Lupus100-Webinar-FT-2048x640-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250828T060000
DTEND;TZID=America/Edmonton:20250828T073000
DTSTAMP:20260403T154432
CREATED:20250728T213522Z
LAST-MODIFIED:20250728T213535Z
UID:8595-1756360800-1756366200@canadianrdn.ca
SUMMARY:WHA Resolution Coalition Webinar: Turning the WHA Resolution on Rare Diseases into Action
DESCRIPTION:This Coalition webinar will further discuss the formalization of the Coalition as well as the updates and next steps in the implementation of the WHA Resolution on Rare Diseases and the development of the Global Action Plan.
URL:https://canadianrdn.ca/event/wha-resolution-coalition-webinar-turning-the-wha-resolution-on-rare-diseases-into-action/
CATEGORIES:Hybrid,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/1753701477773.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250903T080000
DTEND;TZID=America/Denver:20250904T170000
DTSTAMP:20260403T154432
CREATED:20250618T151109Z
LAST-MODIFIED:20250618T151109Z
UID:8463-1756886400-1757005200@canadianrdn.ca
SUMMARY:2025 RARE Drug Development Symposium
DESCRIPTION:Rare disease patient advocates are taking the lead in research like never before\, driven by the urgent need for new treatments. The RARE Drug Development Symposium hosted by Global Genes in partnership with Boston Children’s Hospital is designed to equip advocates with the knowledge\, skills\, and connections to navigate early-stage research with confidence. During this 1.5 day event\, attendees will have a mix of main stage sessions\, targeted breakouts\, group presentations\, and hands-on workshopping. Whether you’re initiating research efforts or looking to refine your strategy\, this symposium offers practical insights to accelerate progress in research strategies and activities.
URL:https://canadianrdn.ca/event/2025-rare-drug-development-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/Screenshot-2024-04-08-at-17.15.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Belize:20250904T080000
DTEND;TZID=America/Belize:20250905T170000
DTSTAMP:20260403T154432
CREATED:20250827T170339Z
LAST-MODIFIED:20250827T170339Z
UID:8787-1756972800-1757091600@canadianrdn.ca
SUMMARY:6th International Hypothalamic Hamartoma Symposium
DESCRIPTION:Presented by Hope for HH and Hospital Sant Joan de Déu Barcelona\, this symposium will gather leading experts\, patients\, and caregivers from around the world to share the latest research\, clinical advances\, and treatment strategies for Hypothalamic Hamartoma (HH)! Alexis Arzimanoglou and Helen Cross are part of the Symposium Committee.
URL:https://canadianrdn.ca/event/6th-international-hypothalamic-hamartoma-symposium/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1756288209490.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250904T110000
DTEND;TZID=America/Edmonton:20250904T120000
DTSTAMP:20260403T154432
CREATED:20250902T192015Z
LAST-MODIFIED:20250902T192015Z
UID:8836-1756983600-1756987200@canadianrdn.ca
SUMMARY:Back-to-School with PH: Q&A Session
DESCRIPTION:Getting ready for a new school year can be exciting—but also challenging when pulmonary hypertension (PH) is part of the picture. \nJoin in on Thursday\, Sept 4 at 11:00 AM EST for a virtual round table with Janette Reyes\, PH Pediatric Nurse at SickKids Hospital.
URL:https://canadianrdn.ca/event/back-to-school-with-ph-qa-session/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1756317681290.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250909T080000
DTEND;TZID=America/Edmonton:20250910T170000
DTSTAMP:20260403T154432
CREATED:20250723T141417Z
LAST-MODIFIED:20250723T141417Z
UID:8591-1757404800-1757523600@canadianrdn.ca
SUMMARY:Rare Trials Summit
DESCRIPTION:Bringing together key stakeholders in the clinical research community to accelerate the development of new rare disease therapies from average 10-12 years to under 3 years.
URL:https://canadianrdn.ca/event/rare-trials-summit/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/registration-card-image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250909T080000
DTEND;TZID=America/Vancouver:20250911T170000
DTSTAMP:20260403T154432
CREATED:20250501T162813Z
LAST-MODIFIED:20250501T162813Z
UID:8117-1757404800-1757610000@canadianrdn.ca
SUMMARY:2025 C-Path Global Impact Conference
DESCRIPTION:As C-Path celebrates its 20th anniversary\, CGIC 2025 stands out as a milestone event—bringing together a global community dedicated to advancing medical innovation and improving patient outcomes. \nWhether you’re joining us from industry\, regulatory agencies\, academia\, patient organizations\, or as someone with lived experience\, you’ll find valuable insights\, thought-provoking discussions\, and meaningful opportunities to collaborate.
URL:https://canadianrdn.ca/event/2025-c-path-global-impact-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745860975996.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250909T080000
DTEND;TZID=America/Edmonton:20250912T170000
DTSTAMP:20260403T154432
CREATED:20250902T192157Z
LAST-MODIFIED:20250902T192157Z
UID:8839-1757404800-1757696400@canadianrdn.ca
SUMMARY:PxP2025
DESCRIPTION:The PxP (For Patients\, By Patients) conference will be September 9-11 (for those in Europe\, Africa or North and South America)\, or 10-12 (Asia and Oceania). This free\, virtual event aims to bring you a wealth of knowledge\, skills and resources on Patient Engagement in health research.
URL:https://canadianrdn.ca/event/pxp2025/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/09/17-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250910T080000
DTEND;TZID=America/Toronto:20250912T170000
DTSTAMP:20260403T154432
CREATED:20250902T192340Z
LAST-MODIFIED:20250902T192340Z
UID:8842-1757491200-1757696400@canadianrdn.ca
SUMMARY:PCSI 2025
DESCRIPTION:From September 10 to 12\, 2025\, the 37th PSCI conference will be held at the Quebec City Convention Centre under the theme: “Patient Grouping as a Driver of Value in Health: The Patient at the Heart of Our Decisions.” The topics will be: \n\nInnovations in case-mix\, data and technology.\nAdvancements in coding\, classification systems\, and data quality.\nCase-mix and costing beyond funding.\nFrom case-mix to policy: the patient at the center.\nConnecting funding with patient outcomes and quality of care\nUsing costing and funding to create value and demonstrate productivity.\nArtificial intelligence & case-mix: in service of patient-centered care.\n\nOn September 9th\, there will be a day of pre-conference workshops.
URL:https://canadianrdn.ca/event/pcsi-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/events-pg-logo-pcsi2025-en.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250911T170000
DTSTAMP:20260403T154432
CREATED:20250812T195526Z
LAST-MODIFIED:20250812T195526Z
UID:8727-1757577600-1757610000@canadianrdn.ca
SUMMARY:2025 NMD4C Annual Meeting
DESCRIPTION:Registration is now open for the 2025 NMD4C Annual Meeting!\nJoin NMD4C in Ottawa on Thursday\, September 11\, for a full day of dynamic discussions\, research updates\, and networking opportunities—just ahead of the 7th Ottawa International Conference on Neuromuscular Disease & Biology.
URL:https://canadianrdn.ca/event/2025-nmd4c-annual-meeting/
CATEGORIES:Clinical Trials,Events,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Annual-NMD4C-Meeting-email-header-Presentation.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250913T170000
DTSTAMP:20260403T154432
CREATED:20250625T024827Z
LAST-MODIFIED:20250625T024827Z
UID:8475-1757577600-1757782800@canadianrdn.ca
SUMMARY:2025 Pulmonary Hypertension Community Conference
DESCRIPTION:​Join PHA Canada’s 2025 PH Community Conference to explore how they can drive meaningful change and inspire hope across the PH community. This year’s event will feature powerful keynote speakers\, interactive workshops\, and engaging panel discussions—all designed to empower you with new strategies\, the latest research\, and stories of resilience and innovation.
URL:https://canadianrdn.ca/event/2025-pulmonary-hypertension-community-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/PHA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250913T170000
DTSTAMP:20260403T154432
CREATED:20250812T194724Z
LAST-MODIFIED:20250812T194724Z
UID:8717-1757577600-1757782800@canadianrdn.ca
SUMMARY:Ottawa NMD 2025 Conference
DESCRIPTION:7th Ottawa International Conference on Neuromuscular Disease and Biology will take place at the Fairmont Château Laurier in Ottawa\, Canada on September 11-13\, 2025. \nThe Ottawa NMD 2025 conference will offer an outstanding program emphasizing recent breakthroughs in basic and translational research and clinical discoveries in neuromuscular disease.
URL:https://canadianrdn.ca/event/ottawa-nmd-2025-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/OttawaNMD2025-Poster-3-pdf-768x1024-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250912T080000
DTEND;TZID=America/Toronto:20250912T170000
DTSTAMP:20260403T154432
CREATED:20250729T165741Z
LAST-MODIFIED:20250729T165741Z
UID:8616-1757664000-1757696400@canadianrdn.ca
SUMMARY:2nd Edition of the Symposium on Genetic Medicine
DESCRIPTION:This year\, the symposium will be dedicated to rare diseases\, a major topic in genetics. \n 
URL:https://canadianrdn.ca/event/2nd-edition-of-the-symposium-on-genetic-medicine/
CATEGORIES:Conferences,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/https___cdn.evbuc_.com_images_1016706683_2336538443583_1_original.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250912T110000
DTEND;TZID=America/Toronto:20250912T233000
DTSTAMP:20260403T154432
CREATED:20250421T221821Z
LAST-MODIFIED:20250618T143732Z
UID:8017-1757674800-1757719800@canadianrdn.ca
SUMMARY:OTCD-Gala for a Cure
DESCRIPTION:
URL:https://canadianrdn.ca/event/otcd-gala-for-a-cure/
CATEGORIES:Caregiver,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/IMG_3577-1536x1097-1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250916T080000
DTEND;TZID=Europe/London:20250919T170000
DTSTAMP:20260403T154432
CREATED:20250520T192354Z
LAST-MODIFIED:20250520T192354Z
UID:8304-1758009600-1758301200@canadianrdn.ca
SUMMARY:Manchester Dysmorphology and Developmental Disorders Conference
DESCRIPTION:The Manchester Dysmorphology Conference (MDC) is a biennial event that has brought together global experts in genomic syndromology since 1984. Established by Professor Dian Donnai\, MDC promotes the exchange of knowledge and ideas to advance the understanding of developmental disorders and congenital malformations. Each conference offers leading-edge content and a supportive setting\, encouraging discussions\, building collaborations\, and inspiring innovative strategies to improve the lives of individuals living with rare conditions.
URL:https://canadianrdn.ca/event/manchester-dysmorphology-and-developmental-disorders-conference/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/05/images.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250917T080000
DTEND;TZID=America/Edmonton:20250919T170000
DTSTAMP:20260403T154432
CREATED:20250722T211003Z
LAST-MODIFIED:20250722T211003Z
UID:8587-1758096000-1758301200@canadianrdn.ca
SUMMARY:Canadian Cystic Fibrosis Conference
DESCRIPTION:Join CFC September 17 –19\, 2025 for Cystic Fibrosis Canada’s first Canadian Cystic Fibrosis Conference\, hosted in Calgary\, Alberta.  \nThe conference will spotlight the development of Canadian consensus and national standards for CF care\, explore early implementation strategies\, and highlight hot topics in healthcare and research and knowledge gaps that future research and clinical trials can address.
URL:https://canadianrdn.ca/event/canadian-cystic-fibrosis-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/images.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250917T140000
DTEND;TZID=America/Toronto:20250917T150000
DTSTAMP:20260403T154432
CREATED:20250916T185523Z
LAST-MODIFIED:20250916T185523Z
UID:8906-1758117600-1758121200@canadianrdn.ca
SUMMARY:RareKids-CAN-Education Session: Family Engagement in Research Fundamentals
DESCRIPTION:Join RareKids-CAN on September 17\, 2025\, from 2-3pm ET for their next education session\, led by their Patient and Family Engagement Facilitators. This session is open to everyone interested in strengthening engagement practices. Don’t miss out!
URL:https://canadianrdn.ca/event/rarekids-can-education-session-family-engagement-in-research-fundamentals/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1758037684535.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250918T180000
DTEND;TZID=America/Edmonton:20250918T190000
DTSTAMP:20260403T154432
CREATED:20250916T184602Z
LAST-MODIFIED:20250916T184602Z
UID:8894-1758218400-1758222000@canadianrdn.ca
SUMMARY:EURORDIS Webinar: Patient Partnership 2025 – The Lupus100 Project
DESCRIPTION:The Lupus100 Project\, recognized as a winner of the 2025 Patient Partnership Good Practice Challenge\, highlights the crucial role of patient partnership in improving communication about rare diseases such as lupus.
URL:https://canadianrdn.ca/event/eurordis-webinar-patient-partnership-2025-the-lupus100-project/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757432391221.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250919T080000
DTEND;TZID=America/Toronto:20250919T170000
DTSTAMP:20260403T154432
CREATED:20250827T170011Z
LAST-MODIFIED:20250827T170011Z
UID:8784-1758268800-1758301200@canadianrdn.ca
SUMMARY:2e Journée québécoise sur les sarcomes
DESCRIPTION:La 2e édition de la Journée québécoise sur les sarcomes rassemble la communauté médicale et scientifique québécoise œuvrant dans le domaine des sarcomes. Il offre une occasion unique pour : \n\nAssister à des conférences et présentations de pointe\nFavoriser des collaborations interinstitutionnelles porteuses\nRenforcer les liens entre chercheuses\, chercheurs\, cliniciennes et cliniciens pour maximiser notre impact collectif.
URL:https://canadianrdn.ca/event/2e-journee-quebecoise-sur-les-sarcomes/
CATEGORIES:Events,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1756218682215.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250919T150000
DTEND;TZID=America/Edmonton:20250919T170000
DTSTAMP:20260403T154432
CREATED:20250916T184302Z
LAST-MODIFIED:20250916T184302Z
UID:8891-1758294000-1758301200@canadianrdn.ca
SUMMARY:LHON Awareness Day 2025 Webinar: "Exploring the Power of Nutrition in Mitochondrial Diseases"
DESCRIPTION:This year’s theme focuses on how nutrition can support mitochondrial health. You’ll hear from experts across Australia\, Italy\, and Brazil\, sharing practical strategies and the latest research relevant to LHON and other types of mito.
URL:https://canadianrdn.ca/event/lhon-awareness-day-2025-webinar-exploring-the-power-of-nutrition-in-mitochondrial-diseases/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1756391764881.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250921T080000
DTEND;TZID=America/Chicago:20250924T170000
DTSTAMP:20260403T154432
CREATED:20250827T161756Z
LAST-MODIFIED:20250827T161756Z
UID:8771-1758441600-1758733200@canadianrdn.ca
SUMMARY:Undiagnosed Hackathon 2025
DESCRIPTION:350 million people live with an undiagnosed disease worldwide. Genome sequencing can provide answers for 40% of the People Living With Undiagnosed Disease (PLWUD) but around 60% still don’t receive a diagnosis. The purpose of the Undiagnosed Hackathon is trying to find new ways and collaborations to solve the undiagnosed diseases\, that can’t be solved today. In this unique event multidisciplinary teams of clinicians\, bioinformaticians/molecular biologists\, scientists\, developers\, AI specialists and brilliant minds will work together to tackle the most difficult diseases.
URL:https://canadianrdn.ca/event/undiagnosed-hackathon-2025/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Undiagnosed-Hackathon-logo-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250923T093000
DTEND;TZID=America/Edmonton:20250923T113000
DTSTAMP:20260403T154432
CREATED:20250916T184831Z
LAST-MODIFIED:20250916T184831Z
UID:8897-1758619800-1758627000@canadianrdn.ca
SUMMARY:Advancing Rare Disease Healthcare: Spotlighting the Economic and Health System Burden of Disease
DESCRIPTION:Please join this 1.5-hour live virtual meeting to hear esteemed faculty describe the global economic impact of rare diseases on patients and healthcare systems. Expert community advocates will also share their practical experience of advancing patients’ needs with key stakeholders. Panel discussion and audience questions will consider how to have meaningful impact in your country or region with patient healthcare experience data and insights to drive change in practice and better health outcomes for people living with rare disease. The live virtual meeting is further supplemented with published studies and content.
URL:https://canadianrdn.ca/event/advancing-rare-disease-healthcare-spotlighting-the-economic-and-health-system-burden-of-disease/
CATEGORIES:Caregiver,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757616693554.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250924T080000
DTEND;TZID=America/Toronto:20250926T170000
DTSTAMP:20260403T154432
CREATED:20250728T214440Z
LAST-MODIFIED:20250728T214440Z
UID:8601-1758700800-1758906000@canadianrdn.ca
SUMMARY:Connected in Care Conference
DESCRIPTION:As part of Pregnancy and Infant Loss Network’s long-term vision\, Connected in Care are hosting their second biennial educational conference at the Sheraton Parkway Toronto North Hotel & Suites in Richmond Hill on Wednesday\, September 24 – Friday\, September 26\, 2025.
URL:https://canadianrdn.ca/event/connected-in-care-conference/
CATEGORIES:Conferences,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/1753454113187.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250925T080000
DTEND;TZID=America/Edmonton:20250927T170000
DTSTAMP:20260403T154432
CREATED:20250812T195243Z
LAST-MODIFIED:20250812T195243Z
UID:8724-1758787200-1758992400@canadianrdn.ca
SUMMARY:6th Western Canadian Neuromuscular Conference
DESCRIPTION:The 6th Western Canadian Neuromuscular\nConference is confirmed for 2026! Don’t miss\nthe opportunity to network with leading experts\nand stay at the forefront of medical\nadvancements in the field of neuromuscular\ndiseases.
URL:https://canadianrdn.ca/event/6th-western-canadian-neuromuscular-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1709814041logo-jpg1709814041.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250926T080000
DTEND;TZID=America/Edmonton:20250928T170000
DTSTAMP:20260403T154432
CREATED:20250520T191324Z
LAST-MODIFIED:20250520T191324Z
UID:8291-1758873600-1759078800@canadianrdn.ca
SUMMARY:Biennial National Conference
DESCRIPTION:Registration information coming soon.
URL:https://canadianrdn.ca/event/biennial-national-conference/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1747242004308.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251001T130000
DTEND;TZID=America/Toronto:20251001T160000
DTSTAMP:20260403T154432
CREATED:20250916T185043Z
LAST-MODIFIED:20250916T185043Z
UID:8900-1759323600-1759334400@canadianrdn.ca
SUMMARY:Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing capabilities in Canada
DESCRIPTION:The Stem Cell Network (SCN) and the National Research Council Canada (NRC) are excited to contribute to the national conversation on cell and gene therapy for rare diseases. Building on the 2024 event titled “Canadian Rare Disease Ecosystem Symposium: Genetic Therapies for Rare Disease”\, SCN and NRC are pleased to invite you to the Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing Capabilities in Canada–a focused half-day event dedicated to advancing gene and cell therapy development in Canada through regulatory alignment and manufacturing readiness. \nThis virtual symposium will convene international regulatory authorities\, Canadian manufacturing experts\, and rare disease developers to explore two critical enablers of translational success: clinical trial readiness and cGMP manufacturing capacity.
URL:https://canadianrdn.ca/event/canadian-rare-disease-symposium-preparing-for-clinical-trials-international-regulatory-insights-and-cgmp-gene-therapy-manufacturing-capabilities-in-canada/
CATEGORIES:Caregiver,Clinical Trials,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757349450505.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251005T080000
DTEND;TZID=America/Edmonton:20251008T170000
DTSTAMP:20260403T154432
CREATED:20250520T192119Z
LAST-MODIFIED:20250520T192119Z
UID:8301-1759651200-1759942800@canadianrdn.ca
SUMMARY:CAGC & CCMG Joint Conference
DESCRIPTION:The CAGC & CCMG Joint Conference will be a unique gathering of medical and laboratory geneticists and genetic counsellors with diverse expertise\, all sharing a common interest in education and advocating for best practices in clinical and laboratory genetics. Through presentations\, workshops\, breakout sessions\, abstract sessions\, and engagement with industry partners\, the event propels forward clinical practice\, scientific advancements\, and excellence across all aspects of genetics in Canada.
URL:https://canadianrdn.ca/event/cagc-ccmg-joint-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1741708837070.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251006T080000
DTEND;TZID=Europe/Paris:20251010T170000
DTSTAMP:20260403T154432
CREATED:20241118T223610Z
LAST-MODIFIED:20241118T223610Z
UID:6998-1759737600-1760115600@canadianrdn.ca
SUMMARY:Global Alliance for Genomics and Health (GA4GH) 13th Plenary
DESCRIPTION:GA4GH 13th Plenary will bring together the global genomics and health community for workshops\, presentations\, and keynote talks that uncover opportunities to scale genomic and clinical data sharing.
URL:https://canadianrdn.ca/event/global-alliance-for-genomics-and-health-ga4gh-13th-plenary/
CATEGORIES:Conferences,In Person,Industry,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/11/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251007T080000
DTEND;TZID=Europe/Vienna:20251011T170000
DTSTAMP:20260403T154432
CREATED:20250812T195000Z
LAST-MODIFIED:20250812T195000Z
UID:8721-1759824000-1760202000@canadianrdn.ca
SUMMARY:30th Annual International Congress of the World Muscle Society
DESCRIPTION:The World Muscle Society is a dynamic community that aims to promote\, disseminate\, and share all aspects of neuromuscular physiology and diseases\, from basic science to patient care. It encompasses a broad range of scientists and healthcare professionals who share the common interest for neuromuscular disorders.
URL:https://canadianrdn.ca/event/30th-annual-international-congress-of-the-world-muscle-society/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/wms2025-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251010T070000
DTEND;TZID=America/Edmonton:20251010T080000
DTSTAMP:20260403T154432
CREATED:20251006T202336Z
LAST-MODIFIED:20251006T202336Z
UID:8952-1760079600-1760083200@canadianrdn.ca
SUMMARY:Rare Diseases International-Community Conversations on Mental Health
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-diseases-international-community-conversations-on-mental-health/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1759479484624.jpg
END:VEVENT
END:VCALENDAR