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DTSTART:20250330T010000
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20250625T080000
DTEND;TZID=America/Detroit:20250628T170000
DTSTAMP:20260403T172416
CREATED:20250618T145641Z
LAST-MODIFIED:20250618T145641Z
UID:8448-1750838400-1751130000@canadianrdn.ca
SUMMARY:The 2025 CRF International Conference
DESCRIPTION:The Choroideremia Research Foundation (CRF) cordially invites you to join them June 25 – 28\, 2025\, for their International Conference at the Radisson Blu Mall of America in Bloomington\, MN. This event seeks to improve the quality of life for all those impacted by choroideremia (CHM) through educational programming\, interactive engagement and networking.
URL:https://canadianrdn.ca/event/the-2025-crf-international-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Atlantic/South_Georgia:20250627T080000
DTEND;TZID=Atlantic/South_Georgia:20250627T170000
DTSTAMP:20260403T172416
CREATED:20250501T163500Z
LAST-MODIFIED:20250501T163500Z
UID:8126-1751011200-1751043600@canadianrdn.ca
SUMMARY:Living Rare\, Living Stronger
DESCRIPTION:
URL:https://canadianrdn.ca/event/living-rare-living-stronger/
CATEGORIES:Events,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1746046621484.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250708T170000
DTEND;TZID=America/Toronto:20250708T180000
DTSTAMP:20260403T172416
CREATED:20250625T030048Z
LAST-MODIFIED:20250625T030100Z
UID:8481-1751994000-1751997600@canadianrdn.ca
SUMMARY:NMD Rounds & Educational Webinars-Bulbar impact of SMA: approach to assessment and treatment
DESCRIPTION:NMD4C and MDC are pleased to invite you to a CPD-accredited webinar Bulbar impact of SMA: approach to assessment and treatment. NMD4C and MDC are providing organizational and technical support. This webinar is supported by Novartis through a restricted educational sponsorship with no involvement or influence on program content.
URL:https://canadianrdn.ca/event/nmd-rounds-educational-webinars-bulbar-impact-of-sma-approach-to-assessment-and-treatment/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/July8NMD4C_BulbarImpactSMA-scaled-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250719T100000
DTEND;TZID=America/Toronto:20250719T140000
DTSTAMP:20260403T172416
CREATED:20250625T024315Z
LAST-MODIFIED:20250625T024315Z
UID:8472-1752919200-1752933600@canadianrdn.ca
SUMMARY:CANAIRI Co-Design Workshop
DESCRIPTION:This workshop will co-design resources to support patients and families navigating the era of AI in medicine! The workshop is open to all and we welcome youth\, adults\, and families!
URL:https://canadianrdn.ca/event/canairi-co-design-workshop/
CATEGORIES:Caregiver,Healthcare,Hybrid,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/1750802485465.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250721T070000
DTEND;TZID=America/Edmonton:20250721T080000
DTSTAMP:20260403T172416
CREATED:20250625T032740Z
LAST-MODIFIED:20250625T032740Z
UID:8487-1753081200-1753084800@canadianrdn.ca
SUMMARY:Rare Disease Day 2026 - Concept Introduction
DESCRIPTION:Company representatives and Rare Disease Day National Partners are warmly invited to this introductory session unveiling the vision for the 2026 campaign.
URL:https://canadianrdn.ca/event/rare-disease-day-2026-concept-introduction/
CATEGORIES:International,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/Zoom-Events-RDD-Feature-Image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250724T080000
DTEND;TZID=America/Denver:20250727T170000
DTSTAMP:20260403T172416
CREATED:20250321T031237Z
LAST-MODIFIED:20250321T031237Z
UID:7805-1753344000-1753635600@canadianrdn.ca
SUMMARY:The 16th International CHARGE Syndrome Conference\, “The Grand Adventure\,”
DESCRIPTION:
URL:https://canadianrdn.ca/event/the-16th-international-charge-syndrome-conference-the-grand-adventure/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/2025-Charge-Syndrome-Logo-Colored-Horizontal-1-2048x661-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250725T080000
DTEND;TZID=America/Edmonton:20250727T170000
DTSTAMP:20260403T172416
CREATED:20250625T033108Z
LAST-MODIFIED:20250625T033108Z
UID:8490-1753430400-1753635600@canadianrdn.ca
SUMMARY:Platelet Disorder Support Association (PDSA)-Immune Thrombocytopenia Conference 2025
DESCRIPTION:This year\, PDSA will host its 25th annual update on immune thrombocytopenia (ITP) for patients\, caregivers and the medical community in Philadelphia\, PA July 25-27. This year’s patient conference will take place at The Logan\, Philadelphia\, in the Center City District.
URL:https://canadianrdn.ca/event/platelet-disorder-support-association-pdsa-immune-thrombocytopenia-conference-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,International,Patient Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/images-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250730T120000
DTEND;TZID=America/Edmonton:20250730T130000
DTSTAMP:20260403T172416
CREATED:20250722T203941Z
LAST-MODIFIED:20250722T203941Z
UID:8584-1753876800-1753880400@canadianrdn.ca
SUMMARY:Community of Practice- Beyond Inclusion: Co-Designing with Lived Experience to Build Meaningful Partnerships in Stroke Research
DESCRIPTION:📢 On July 30th from 12:00 – 1:00 pm EST Emine Kocabas\, Ashley Berger\, & Vishma Sookdeo will be speaking about “Beyond Inclusion: Co-Designing with Lived Experience to Build Meaningful Partnerships in Stroke Research”.
URL:https://canadianrdn.ca/event/community-of-practice-beyond-inclusion-co-designing-with-lived-experience-to-build-meaningful-partnerships-in-stroke-research/
CATEGORIES:Healthcare,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/1753191975283.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250812T080000
DTEND;TZID=America/Edmonton:20250815T170000
DTSTAMP:20260403T172416
CREATED:20250703T195305Z
LAST-MODIFIED:20250703T195305Z
UID:8517-1754985600-1755277200@canadianrdn.ca
SUMMARY:7th International Indigenous Voices in Social Work Conference 2025 One Child Every Child:  Indigenous Ways of Knowing\, Doing\, Connecting\, and Being  for Advancing the Well-Being of Our Future Generations
DESCRIPTION:Situated between the Rocky Mountains and prairielands of Treaty 7 Territory in what we now call Southern Alberta\, Canada\, the 7th International Indigenous Voices in Social Work (IIVSW) Conference is a vital forum for sharing Indigenous perspectives and experiences in the field of social work. \nThis global gathering brings together a diverse and inspiring community of individuals dedicated to Indigenous social work\, healing\, and systemic change. IIVSW will provide a powerful space to connect\, learn\, and share knowledge across borders and cultures. \nHosted by UCalgary’s One Child Every Child\, the Office of Indigenous Engagement and the Faculty of Social Work\, the 7th IIVSW gathering welcomes all people from communities\, practice\, and research to gather for cultural exchange\, shared learning and shared wisdom. From August 12 – 15\, attendees will strengthen their spirits while walking parallel paths and sharing ethical space to advance the well-being of children\, future generations and communities. Participants will meet\, feast\, and travel for experiential learning.
URL:https://canadianrdn.ca/event/7th-international-indigenous-voices-in-social-work-conference-2025-one-child-every-child-indigenous-ways-of-knowing-doing-connecting-and-being-for-advancing-the-well-being-of-our-future-generati/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/IIVSW-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250813T130000
DTEND;TZID=America/Edmonton:20250813T150000
DTSTAMP:20260403T172416
CREATED:20250729T162316Z
LAST-MODIFIED:20250729T162316Z
UID:8607-1755090000-1755097200@canadianrdn.ca
SUMMARY:ALS Canada: Driving & ALS Webinar
DESCRIPTION:Join ALS Canada and Sunnybrook Health Sciences Centre to learn about the impact of ALS on driving ability\, adaptive driving equipment\, how an ALS diagnosis may affect insurance\, and available alternative options.
URL:https://canadianrdn.ca/event/als-canada-driving-als-webinar/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/GxB7vNBW0AI1BWE.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250813T180000
DTEND;TZID=America/Edmonton:20250813T200000
DTSTAMP:20260403T172416
CREATED:20250728T214152Z
LAST-MODIFIED:20250728T214152Z
UID:8598-1755108000-1755115200@canadianrdn.ca
SUMMARY:PxP Africa 2025: Virtual Meeting August 13\, 2025 From Research Participants to Patient Partners in Research: Centering African Patients Voices
DESCRIPTION:PxP Africa is the first regional PxP meeting\, led by Joab Wako and Kwanele Asante who are members of the 2025 steering committee for the global PxP conference taking place in September. PxP Africa will spotlight the critical role of patient partners—especially African patients—as active contributors in research\, not just research participants. The session will challenge the traditional top-down model of research and explore how lived experience can inform\, shape\, and lead meaningful\, inclusive studies.
URL:https://canadianrdn.ca/event/pxp-africa-2025-virtual-meeting-august-13-2025-from-research-participants-to-patient-partners-in-research-centering-african-patients-voices/
CATEGORIES:International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/GwjyWBlbQAEkCpf.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250819T080000
DTEND;TZID=America/Edmonton:20250819T090000
DTSTAMP:20260403T172416
CREATED:20250729T164703Z
LAST-MODIFIED:20250729T164703Z
UID:8610-1755590400-1755594000@canadianrdn.ca
SUMMARY:PxP Australia 2025
DESCRIPTION:PxP Australia is a regional webinar\, led by Letisha Living and Janelle Bowden who are members of the 2025 steering committee for the global PxP conference taking place in September. The theme of PxP Australia is “working well together” and Dr. Joan Carlini will be joining the session as a speaker.
URL:https://canadianrdn.ca/event/pxp-australia-2025/
CATEGORIES:International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/GxCMjC_bUAIXkYa.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250821T080000
DTEND;TZID=America/Edmonton:20250824T170000
DTSTAMP:20260403T172416
CREATED:20250526T204722Z
LAST-MODIFIED:20250526T204722Z
UID:8328-1755763200-1756054800@canadianrdn.ca
SUMMARY:Building Bridges "Bridging" Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/building-bridges-bridging-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1748280301575.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250826T080000
DTEND;TZID=America/Edmonton:20250826T170000
DTSTAMP:20260403T172416
CREATED:20250730T205148Z
LAST-MODIFIED:20250730T205148Z
UID:8632-1756195200-1756227600@canadianrdn.ca
SUMMARY:2025 Transdisciplinary Child & Maternal Health Trainee Research Day
DESCRIPTION:Led by the Alberta Children’s Hospital Research Institute Trainee Association (ACHRITA) in partnership with the Owerko Centre and ACHRI\, the graduate portion of this symposium is funded by UCalgary’s Graduate Students’ Association.
URL:https://canadianrdn.ca/event/2025-transdisciplinary-child-maternal-health-trainee-research-day/
CATEGORIES:Conferences,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/Capture.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250827T000000
DTEND;TZID=America/Edmonton:20250827T000000
DTSTAMP:20260403T172416
CREATED:20250827T165451Z
LAST-MODIFIED:20250827T165535Z
UID:8777-1756252800-1756252800@canadianrdn.ca
SUMMARY:Webinar: Patient Partnership 2025 – The Lupus100 Project
DESCRIPTION:Co-developed by ERN ReCONNET and LUPUS EUROPE\, The Lupus100 Project is a multilingual resource based on real patient questions about lupus\, turning a national patient booklet into a Europe-wide\, medically validated information tool. Speakers Eric Hachulla (clinician\, ERN ReCONNET)\, Jeanette Andersen (patient representative\, ERN ReCONNET)\, and Zoe Karakikla-Mitsakou (General Secretary\, Lupus Europe) will share how meaningful collaboration between patients and clinicians shaped this impactful communication initiative!
URL:https://canadianrdn.ca/event/webinar-patient-partnership-2025-the-lupus100-project/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Lupus100-Webinar-FT-2048x640-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250828T060000
DTEND;TZID=America/Edmonton:20250828T073000
DTSTAMP:20260403T172416
CREATED:20250728T213522Z
LAST-MODIFIED:20250728T213535Z
UID:8595-1756360800-1756366200@canadianrdn.ca
SUMMARY:WHA Resolution Coalition Webinar: Turning the WHA Resolution on Rare Diseases into Action
DESCRIPTION:This Coalition webinar will further discuss the formalization of the Coalition as well as the updates and next steps in the implementation of the WHA Resolution on Rare Diseases and the development of the Global Action Plan.
URL:https://canadianrdn.ca/event/wha-resolution-coalition-webinar-turning-the-wha-resolution-on-rare-diseases-into-action/
CATEGORIES:Hybrid,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/1753701477773.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250903T080000
DTEND;TZID=America/Denver:20250904T170000
DTSTAMP:20260403T172416
CREATED:20250618T151109Z
LAST-MODIFIED:20250618T151109Z
UID:8463-1756886400-1757005200@canadianrdn.ca
SUMMARY:2025 RARE Drug Development Symposium
DESCRIPTION:Rare disease patient advocates are taking the lead in research like never before\, driven by the urgent need for new treatments. The RARE Drug Development Symposium hosted by Global Genes in partnership with Boston Children’s Hospital is designed to equip advocates with the knowledge\, skills\, and connections to navigate early-stage research with confidence. During this 1.5 day event\, attendees will have a mix of main stage sessions\, targeted breakouts\, group presentations\, and hands-on workshopping. Whether you’re initiating research efforts or looking to refine your strategy\, this symposium offers practical insights to accelerate progress in research strategies and activities.
URL:https://canadianrdn.ca/event/2025-rare-drug-development-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/Screenshot-2024-04-08-at-17.15.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Belize:20250904T080000
DTEND;TZID=America/Belize:20250905T170000
DTSTAMP:20260403T172416
CREATED:20250827T170339Z
LAST-MODIFIED:20250827T170339Z
UID:8787-1756972800-1757091600@canadianrdn.ca
SUMMARY:6th International Hypothalamic Hamartoma Symposium
DESCRIPTION:Presented by Hope for HH and Hospital Sant Joan de Déu Barcelona\, this symposium will gather leading experts\, patients\, and caregivers from around the world to share the latest research\, clinical advances\, and treatment strategies for Hypothalamic Hamartoma (HH)! Alexis Arzimanoglou and Helen Cross are part of the Symposium Committee.
URL:https://canadianrdn.ca/event/6th-international-hypothalamic-hamartoma-symposium/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1756288209490.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250904T110000
DTEND;TZID=America/Edmonton:20250904T120000
DTSTAMP:20260403T172416
CREATED:20250902T192015Z
LAST-MODIFIED:20250902T192015Z
UID:8836-1756983600-1756987200@canadianrdn.ca
SUMMARY:Back-to-School with PH: Q&A Session
DESCRIPTION:Getting ready for a new school year can be exciting—but also challenging when pulmonary hypertension (PH) is part of the picture. \nJoin in on Thursday\, Sept 4 at 11:00 AM EST for a virtual round table with Janette Reyes\, PH Pediatric Nurse at SickKids Hospital.
URL:https://canadianrdn.ca/event/back-to-school-with-ph-qa-session/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1756317681290.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250909T080000
DTEND;TZID=America/Edmonton:20250910T170000
DTSTAMP:20260403T172416
CREATED:20250723T141417Z
LAST-MODIFIED:20250723T141417Z
UID:8591-1757404800-1757523600@canadianrdn.ca
SUMMARY:Rare Trials Summit
DESCRIPTION:Bringing together key stakeholders in the clinical research community to accelerate the development of new rare disease therapies from average 10-12 years to under 3 years.
URL:https://canadianrdn.ca/event/rare-trials-summit/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/registration-card-image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250909T080000
DTEND;TZID=America/Vancouver:20250911T170000
DTSTAMP:20260403T172416
CREATED:20250501T162813Z
LAST-MODIFIED:20250501T162813Z
UID:8117-1757404800-1757610000@canadianrdn.ca
SUMMARY:2025 C-Path Global Impact Conference
DESCRIPTION:As C-Path celebrates its 20th anniversary\, CGIC 2025 stands out as a milestone event—bringing together a global community dedicated to advancing medical innovation and improving patient outcomes. \nWhether you’re joining us from industry\, regulatory agencies\, academia\, patient organizations\, or as someone with lived experience\, you’ll find valuable insights\, thought-provoking discussions\, and meaningful opportunities to collaborate.
URL:https://canadianrdn.ca/event/2025-c-path-global-impact-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745860975996.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250909T080000
DTEND;TZID=America/Edmonton:20250912T170000
DTSTAMP:20260403T172416
CREATED:20250902T192157Z
LAST-MODIFIED:20250902T192157Z
UID:8839-1757404800-1757696400@canadianrdn.ca
SUMMARY:PxP2025
DESCRIPTION:The PxP (For Patients\, By Patients) conference will be September 9-11 (for those in Europe\, Africa or North and South America)\, or 10-12 (Asia and Oceania). This free\, virtual event aims to bring you a wealth of knowledge\, skills and resources on Patient Engagement in health research.
URL:https://canadianrdn.ca/event/pxp2025/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/09/17-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250910T080000
DTEND;TZID=America/Toronto:20250912T170000
DTSTAMP:20260403T172416
CREATED:20250902T192340Z
LAST-MODIFIED:20250902T192340Z
UID:8842-1757491200-1757696400@canadianrdn.ca
SUMMARY:PCSI 2025
DESCRIPTION:From September 10 to 12\, 2025\, the 37th PSCI conference will be held at the Quebec City Convention Centre under the theme: “Patient Grouping as a Driver of Value in Health: The Patient at the Heart of Our Decisions.” The topics will be: \n\nInnovations in case-mix\, data and technology.\nAdvancements in coding\, classification systems\, and data quality.\nCase-mix and costing beyond funding.\nFrom case-mix to policy: the patient at the center.\nConnecting funding with patient outcomes and quality of care\nUsing costing and funding to create value and demonstrate productivity.\nArtificial intelligence & case-mix: in service of patient-centered care.\n\nOn September 9th\, there will be a day of pre-conference workshops.
URL:https://canadianrdn.ca/event/pcsi-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/events-pg-logo-pcsi2025-en.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250911T170000
DTSTAMP:20260403T172416
CREATED:20250812T195526Z
LAST-MODIFIED:20250812T195526Z
UID:8727-1757577600-1757610000@canadianrdn.ca
SUMMARY:2025 NMD4C Annual Meeting
DESCRIPTION:Registration is now open for the 2025 NMD4C Annual Meeting!\nJoin NMD4C in Ottawa on Thursday\, September 11\, for a full day of dynamic discussions\, research updates\, and networking opportunities—just ahead of the 7th Ottawa International Conference on Neuromuscular Disease & Biology.
URL:https://canadianrdn.ca/event/2025-nmd4c-annual-meeting/
CATEGORIES:Clinical Trials,Events,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Annual-NMD4C-Meeting-email-header-Presentation.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250913T170000
DTSTAMP:20260403T172416
CREATED:20250625T024827Z
LAST-MODIFIED:20250625T024827Z
UID:8475-1757577600-1757782800@canadianrdn.ca
SUMMARY:2025 Pulmonary Hypertension Community Conference
DESCRIPTION:​Join PHA Canada’s 2025 PH Community Conference to explore how they can drive meaningful change and inspire hope across the PH community. This year’s event will feature powerful keynote speakers\, interactive workshops\, and engaging panel discussions—all designed to empower you with new strategies\, the latest research\, and stories of resilience and innovation.
URL:https://canadianrdn.ca/event/2025-pulmonary-hypertension-community-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/PHA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250913T170000
DTSTAMP:20260403T172416
CREATED:20250812T194724Z
LAST-MODIFIED:20250812T194724Z
UID:8717-1757577600-1757782800@canadianrdn.ca
SUMMARY:Ottawa NMD 2025 Conference
DESCRIPTION:7th Ottawa International Conference on Neuromuscular Disease and Biology will take place at the Fairmont Château Laurier in Ottawa\, Canada on September 11-13\, 2025. \nThe Ottawa NMD 2025 conference will offer an outstanding program emphasizing recent breakthroughs in basic and translational research and clinical discoveries in neuromuscular disease.
URL:https://canadianrdn.ca/event/ottawa-nmd-2025-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/OttawaNMD2025-Poster-3-pdf-768x1024-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250912T080000
DTEND;TZID=America/Toronto:20250912T170000
DTSTAMP:20260403T172416
CREATED:20250729T165741Z
LAST-MODIFIED:20250729T165741Z
UID:8616-1757664000-1757696400@canadianrdn.ca
SUMMARY:2nd Edition of the Symposium on Genetic Medicine
DESCRIPTION:This year\, the symposium will be dedicated to rare diseases\, a major topic in genetics. \n 
URL:https://canadianrdn.ca/event/2nd-edition-of-the-symposium-on-genetic-medicine/
CATEGORIES:Conferences,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/https___cdn.evbuc_.com_images_1016706683_2336538443583_1_original.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250912T110000
DTEND;TZID=America/Toronto:20250912T233000
DTSTAMP:20260403T172416
CREATED:20250421T221821Z
LAST-MODIFIED:20250618T143732Z
UID:8017-1757674800-1757719800@canadianrdn.ca
SUMMARY:OTCD-Gala for a Cure
DESCRIPTION:
URL:https://canadianrdn.ca/event/otcd-gala-for-a-cure/
CATEGORIES:Caregiver,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/IMG_3577-1536x1097-1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250916T080000
DTEND;TZID=Europe/London:20250919T170000
DTSTAMP:20260403T172416
CREATED:20250520T192354Z
LAST-MODIFIED:20250520T192354Z
UID:8304-1758009600-1758301200@canadianrdn.ca
SUMMARY:Manchester Dysmorphology and Developmental Disorders Conference
DESCRIPTION:The Manchester Dysmorphology Conference (MDC) is a biennial event that has brought together global experts in genomic syndromology since 1984. Established by Professor Dian Donnai\, MDC promotes the exchange of knowledge and ideas to advance the understanding of developmental disorders and congenital malformations. Each conference offers leading-edge content and a supportive setting\, encouraging discussions\, building collaborations\, and inspiring innovative strategies to improve the lives of individuals living with rare conditions.
URL:https://canadianrdn.ca/event/manchester-dysmorphology-and-developmental-disorders-conference/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/05/images.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250917T080000
DTEND;TZID=America/Edmonton:20250919T170000
DTSTAMP:20260403T172416
CREATED:20250722T211003Z
LAST-MODIFIED:20250722T211003Z
UID:8587-1758096000-1758301200@canadianrdn.ca
SUMMARY:Canadian Cystic Fibrosis Conference
DESCRIPTION:Join CFC September 17 –19\, 2025 for Cystic Fibrosis Canada’s first Canadian Cystic Fibrosis Conference\, hosted in Calgary\, Alberta.  \nThe conference will spotlight the development of Canadian consensus and national standards for CF care\, explore early implementation strategies\, and highlight hot topics in healthcare and research and knowledge gaps that future research and clinical trials can address.
URL:https://canadianrdn.ca/event/canadian-cystic-fibrosis-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/images.png
END:VEVENT
END:VCALENDAR