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BEGIN:DAYLIGHT
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250401T080000
DTEND;TZID=UTC:20250401T170000
DTSTAMP:20260404T000014
CREATED:20250325T075821Z
LAST-MODIFIED:20250325T075821Z
UID:7823-1743494400-1743526800@canadianrdn.ca
SUMMARY:National Caregiver Day
DESCRIPTION:Carers Canada is proud to lead the National Caregiver Day 2025 campaign\, dedicated to honouring the dedication and resilience of caregivers. This year\, they’re  focused on providing meaningful support through innovative initiatives designed to make a real difference. \n 
URL:https://canadianrdn.ca/event/national-caregiver-day/
CATEGORIES:Events,National,Patient Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/NCD-2025-home-4-2048x600-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250401T123000
DTEND;TZID=America/New_York:20250401T133000
DTSTAMP:20260404T000014
CREATED:20250325T080251Z
LAST-MODIFIED:20250325T080251Z
UID:7826-1743510600-1743514200@canadianrdn.ca
SUMMARY:National Healthcare Provider Workshop
DESCRIPTION:In celebration of National Caregiving Day\, the Canadian Home Care Association (CHCA) is hosting the National Healthcare Provider Workshop on\, which will bridge insights from Hope for the Best\, Plan for the Rest (McMaster University) and the CHCA eiCOMPASS Project\, highlighting the transformative work of both initiatives.
URL:https://canadianrdn.ca/event/national-healthcare-provider-workshop/
CATEGORIES:Caregiver,Events,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/Gmv4QgOXQAAtSQS-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250402T130000
DTEND;TZID=America/Halifax:20250402T140000
DTSTAMP:20260404T000014
CREATED:20250326T034907Z
LAST-MODIFIED:20250326T034907Z
UID:7835-1743598800-1743602400@canadianrdn.ca
SUMMARY:Information Session: 2025-2026 Funding Opportunity for Rare Disease Registry Improvement
DESCRIPTION:
URL:https://canadianrdn.ca/event/information-session-2025-2026-funding-opportunity-for-rare-disease-registry-improvement/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/8a892476-2fc8-476b-a4e2-b0950c425eb9.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T080000
DTEND;TZID=America/New_York:20250408T170000
DTSTAMP:20260404T000014
CREATED:20241118T223850Z
LAST-MODIFIED:20241118T223850Z
UID:7001-1744012800-1744131600@canadianrdn.ca
SUMMARY:Conscience Symposium on Open Drug Discovery
DESCRIPTION:
URL:https://canadianrdn.ca/event/conscience-symposium-on-open-drug-discovery/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T083000
DTEND;TZID=America/New_York:20250407T093000
DTSTAMP:20260404T000014
CREATED:20250326T033414Z
LAST-MODIFIED:20250326T033414Z
UID:7832-1744014600-1744018200@canadianrdn.ca
SUMMARY:Child Health and Wellness Seminar: Discovery Series: Understanding Mental Health and Neurodiversity Through Systems Neuroscience
DESCRIPTION:Understanding and supporting mental health and neurodiversity requires insight into the brain systems that regulate attention\, motivation\, mood and thought. Dr. Gruber’slab studies the brain’s role in these functions and how they are shaped by risk factors such as stress\, inflammation and abused drugs. \n 
URL:https://canadianrdn.ca/event/child-health-and-wellness-seminar-discovery-series-understanding-mental-health-and-neurodiversity-through-systems-neuroscience/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/13714_COLOURBOX31156818.rev_.1742924419.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250407T100000
DTEND;TZID=America/Halifax:20250407T110000
DTSTAMP:20260404T000014
CREATED:20250403T022042Z
LAST-MODIFIED:20250403T022042Z
UID:7888-1744020000-1744023600@canadianrdn.ca
SUMMARY:Caregiving Essentials Webinar: Mapping a Brighter Future for Canadian Caregivers
DESCRIPTION:
URL:https://canadianrdn.ca/event/caregiving-essentials-webinar-mapping-a-brighter-future-for-canadian-caregivers/
CATEGORIES:Caregiver,Healthcare,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/04/4e7ca4f1-e359-4c41-8508-73bf39a078d4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250408T080000
DTEND;TZID=Europe/Helsinki:20250410T170000
DTSTAMP:20260404T000014
CREATED:20240823T210044Z
LAST-MODIFIED:20240823T210044Z
UID:5357-1744099200-1744304400@canadianrdn.ca
SUMMARY:13th ISSAID Meeting
DESCRIPTION:13th Meeting of the International Society of Systemic Autoinflammatory Diseases (ISSAID)\, which will take place in Paris from April 8th to 10th\, 2025\, at the “Cité Internationale” – a magnificent haven of peace near many transport amenities where you will particularly enjoy the sumptuous Honorat lounge overlooking a lush green park. \nApril in Paris offers a delightful mix of mild weather\, budding greenery\, and a relaxed atmosphere\, perfect for strolling along the Seine after a day of work. \nThe ISSAID 2025 meeting will provide an opportunity for pediatric and adult rheumatologists\, immunologists\, general pediatricians and internists\, scientists\, and others interested in systemic autoinflammatory diseases to come together to share new findings related to autoinflammation and to learn about recent advances in this field. \nThe ISSAID 2025 meeting will highlight the topic of neurologic inflammation\, and we hope it will facilitate better assessment\, care\, and research on this particularly complex subject. We will  present current topics such as artificial intelligence\, mechanisms of inflammation\, and new diseases. \nThe ISSAID 2025 meeting will promote interactions between old and new generations so that the science of SAIDs can be transmitted and best adapted to societal transformations and the challenges of tomorrow’s medicine.
URL:https://canadianrdn.ca/event/13th-issaid-meeting/
LOCATION:paris\, Paris\, France
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/logo-left1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250409T110000
DTEND;TZID=America/New_York:20250409T120000
DTSTAMP:20260404T000014
CREATED:20250403T022159Z
LAST-MODIFIED:20250403T022159Z
UID:7891-1744196400-1744200000@canadianrdn.ca
SUMMARY:Five Good Ideas to support and benefit from working caregivers in your workplace
DESCRIPTION:
URL:https://canadianrdn.ca/event/five-good-ideas-to-support-and-benefit-from-working-caregivers-in-your-workplace/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250410T080000
DTEND;TZID=America/New_York:20250411T170000
DTSTAMP:20260404T000014
CREATED:20250326T035750Z
LAST-MODIFIED:20250326T035750Z
UID:7838-1744272000-1744390800@canadianrdn.ca
SUMMARY:RareKids-CAN Annual Conference
DESCRIPTION:The mission of the RareKids-CAN: Pediatric Rare Disease Clinical Trials and Treatment Network Strategic Planning Conference is to collaboratively shape the future of pediatric rare disease research and clinical trial capacity in Canada. By bringing together over 100 patient and family partners\, researchers\, sub-platform leaders\, and key stakeholders\, they aim to co-develop a shared vision that accelerates pediatric drug development and progress in clinical trials\, improves treatment access\, and strengthens national and international partnerships.
URL:https://canadianrdn.ca/event/rarekids-can-annual-conference/
CATEGORIES:Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/RareKidsCAN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250410T140000
DTEND;TZID=UTC:20250410T150000
DTSTAMP:20260404T000014
CREATED:20250403T023036Z
LAST-MODIFIED:20250403T023036Z
UID:7900-1744293600-1744297200@canadianrdn.ca
SUMMARY:RDI: Leveraging the EML for Access to Rare Disease Treatments
DESCRIPTION:The WHO Essential Medicines List (EML) is a critical instrument for advancing Universal Health Coverage (UHC) by ensuring equitable access to essential medicines. However\, its role in rare disease treatment remains under-recognized. This webinar will explore how the EML can serve as a powerful tool to improve access to treatments for persons living with a rare disease (PLWRD) at both global and national levels. \nWebinar Objectives: \n\nGain a deeper understanding of the WHO Essential Medicines List and its significance for rare diseases\nLearn about the findings from RDI’s Essential Medicine Working Group on challenges\, best practices\, and opportunities for regarding the application process of EML\nHear about call-to-action to enhance global and national access to essential medicines
URL:https://canadianrdn.ca/event/rdi-leveraging-the-eml-for-access-to-rare-disease-treatments/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250410T143000
DTEND;TZID=America/New_York:20250410T160000
DTSTAMP:20260404T000014
CREATED:20250325T074400Z
LAST-MODIFIED:20250325T074400Z
UID:7811-1744295400-1744300800@canadianrdn.ca
SUMMARY:Thinking Outside of Your In Box: Innovative Fundraising Opportunities
DESCRIPTION:Leadership in rare disease advocacy requires creativity and resourcefulness. This session highlights unconventional fundraising strategies and case studies of successful campaigns. Participants will discover how to secure funding through innovative approaches\, such as partnering with non-traditional sponsors\, and receive actionable tips to implement these ideas in their own organizations.
URL:https://canadianrdn.ca/event/thinking-outside-of-your-in-box-innovative-fundraising-opportunities/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Global-Genes.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250424T080000
DTEND;TZID=UTC:20250425T170000
DTSTAMP:20260404T000015
CREATED:20240926T202547Z
LAST-MODIFIED:20240926T202547Z
UID:5930-1745481600-1745600400@canadianrdn.ca
SUMMARY:Neuropsychiatry & Mental Health 2025
DESCRIPTION:Theme: Innovations in Neuropsychiatry and Evolution in Medicines of Neurological Disorders for Better Mental Health.
URL:https://canadianrdn.ca/event/neuropsychiatry-mental-health-2025/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/09/66f4642b83f88.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250424T080000
DTEND;TZID=America/New_York:20250425T170000
DTSTAMP:20260404T000015
CREATED:20250118T001616Z
LAST-MODIFIED:20250118T001616Z
UID:7374-1745481600-1745600400@canadianrdn.ca
SUMMARY:Limb-Girdle Muscular Dystrophy Masterclass
DESCRIPTION:Are you involved in diagnosing or managing Limb-Girdle muscular dystrophy (LGMD)? This April 2025\, join TREAT-NMD™ in Montreal\, Canada\, for an in-person educational event designed for healthcare professionals in the neuromuscular field.
URL:https://canadianrdn.ca/event/limb-girdle-muscular-dystrophy-masterclass/
CATEGORIES:In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250424T120000
DTEND;TZID=America/Toronto:20250424T133000
DTSTAMP:20260404T000015
CREATED:20250422T184202Z
LAST-MODIFIED:20250422T184202Z
UID:8034-1745496000-1745501400@canadianrdn.ca
SUMMARY:Lunch N’ Learn: Talking Research with Patient Partners
DESCRIPTION:Join this virtual workshop on Zoom on April 24\, 2025\, at 12:00 p.m. (EST) to develop communication skills for engaging with patient partners in research. \nHosted by the HBHL EDI Trainee Committee\, the session features medical librarians and a patient advocate sharing insights on plain language and patient-oriented research. \nPresenters: \n\nSabrina Burr\, MISt – Librarian of the Neuro-Patient Resource Centre at The Neuro-MNI\nPaule Kelly-Rhéaume – Medical librarian at the McGill University Health Centre\nJoAnne Mosel\, CPA – Advocate in the Rare Disease space with over 30 years of experience
URL:https://canadianrdn.ca/event/lunch-n-learn-talking-research-with-patient-partners/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/Gn8WHWIXEAA9Uoh.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250425T113000
DTEND;TZID=America/Toronto:20250425T123000
DTSTAMP:20260404T000015
CREATED:20250421T215541Z
LAST-MODIFIED:20250421T215541Z
UID:8007-1745580600-1745584200@canadianrdn.ca
SUMMARY:Navigating Conflict with Care: Building Stronger Patient Engagement Teams in Research
DESCRIPTION:​Conflict is a natural part of teamwork—but in family engagement in research\, how we navigate it matters. Join them for a compassionate conversation on resolving conflicts in family engagement teams\, fostering trust\, and strengthening collaboration.
URL:https://canadianrdn.ca/event/navigating-conflict-with-care-building-stronger-patient-engagement-teams-in-research/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1742246725097.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250427T080000
DTEND;TZID=America/Halifax:20250429T170000
DTSTAMP:20260404T000015
CREATED:20250325T075121Z
LAST-MODIFIED:20250325T075121Z
UID:7817-1745740800-1745946000@canadianrdn.ca
SUMMARY:Mitochondrial Transplantation and Next Generation Therapeutics Conference
DESCRIPTION:Join Northwell Health on April 27-29\, 2025\, at Hofstra University on Long Island (NY) for a unique forum for the presentation and discussion of new research developments in mitochondrial transfer and transplantation.
URL:https://canadianrdn.ca/event/mitochondrial-transplantation-and-next-generation-therapeutics-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/Drupal-web_Odranoel-Tirol-Sep-10-026-1024x768-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250428T080000
DTEND;TZID=UTC:20250430T170000
DTSTAMP:20260404T000015
CREATED:20240819T212139Z
LAST-MODIFIED:20240828T213717Z
UID:5187-1745827200-1746032400@canadianrdn.ca
SUMMARY:Summit 2025: Ending The Diagnostic Odyssey
DESCRIPTION:A first-of-its kind collaborative event for Undiagnosed\, Ultra-Rare & Rare disease industry\, clinical and community leaders. \nThe diagnostic odyssey for rare diseases is a significant challenge\, often leaving patients and families lost in a maze of tests\, misdiagnoses\, missed opportunities to participate in clinical trials\, and delayed treatment. Summit 2025 brings together a diverse group of stakeholders – patient advocates\, industry leaders\, policymakers\, clinicians\, researchers and payers – to chart a collaborative path towards a future where timely and accurate diagnoses are a reality for all with rare diseases.
URL:https://canadianrdn.ca/event/summit-2025-ending-the-diagnostic-odyssey/
LOCATION:washington\, WA\, United States
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250428T160000
DTEND;TZID=America/Chicago:20250428T201500
DTSTAMP:20260404T000015
CREATED:20250321T030351Z
LAST-MODIFIED:20250404T150819Z
UID:7796-1745856000-1745871300@canadianrdn.ca
SUMMARY:Canadian Rare Disease Innovation Showcase 2025
DESCRIPTION:Join us on Monday\, April 28\, 2025\, at The Westin Hotel in downtown Calgary (or virtually) for an inspiring afternoon dedicated to innovation\, collaboration\, and progress in rare disease research and care. \nThis event will spotlight innovative advancements and inspiring stories from Canada’s rare disease community. Through engaging lightning talks and networking opportunities\, you’ll connect with experts\, exchange ideas\, and be part of the movement driving meaningful change. \nEvery discovery has the power to change lives. Be part of the conversation and help shape the future of rare disease care in Canada.
URL:https://canadianrdn.ca/event/canadian-rare-disease-innovation-showcase-2025/
CATEGORIES:Caregiver,Events,Healthcare,Hybrid,Industry,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Rare-Disease-Showcase-Poster-Eng.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20250429T080000
DTEND;TZID=Asia/Karachi:20250429T160000
DTSTAMP:20260404T000015
CREATED:20250318T022412Z
LAST-MODIFIED:20250318T022412Z
UID:7708-1745913600-1745942400@canadianrdn.ca
SUMMARY:Health Data for All of Us: A Public Dialogue on AI in Health
DESCRIPTION:Join the conversation about key ethical\, equity and privacy challenges related to AI and health!
URL:https://canadianrdn.ca/event/health-data-for-all-of-us-a-public-dialogue-on-ai-in-health/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1741651558022.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250429T080000
DTEND;TZID=America/New_York:20250429T160000
DTSTAMP:20260404T000015
CREATED:20250325T074724Z
LAST-MODIFIED:20250325T074724Z
UID:7814-1745913600-1745942400@canadianrdn.ca
SUMMARY:Health Data for All of Us: A Public Dialogue on AI in Health
DESCRIPTION:Join HRDN conversation about key ethical\, equity and privacy challenges related to AI and health!
URL:https://canadianrdn.ca/event/health-data-for-all-of-us-a-public-dialogue-on-ai-in-health-2/
CATEGORIES:Events,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1741049866628.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250429T080000
DTEND;TZID=America/Denver:20250501T170000
DTSTAMP:20260404T000015
CREATED:20250123T225518Z
LAST-MODIFIED:20250123T225535Z
UID:7417-1745913600-1746118800@canadianrdn.ca
SUMMARY:Save the Date: Rare Disease Day 2025 Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-day-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/Gh11VK5WcAAg2ym.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250429T100000
DTEND;TZID=America/Edmonton:20250429T110000
DTSTAMP:20260404T000015
CREATED:20250421T215244Z
LAST-MODIFIED:20250421T215244Z
UID:8004-1745920800-1745924400@canadianrdn.ca
SUMMARY:Neurodiversity in the Workplace: 6 Principles for Inclusion
DESCRIPTION:Learn how to create a more inclusive workplace for neurodivergent employees with our 6 principles! \n 
URL:https://canadianrdn.ca/event/neurodiversity-in-the-workplace-6-principles-for-inclusion/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1744204038937.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250430T080000
DTEND;TZID=America/Vancouver:20250430T170000
DTSTAMP:20260404T000015
CREATED:20250501T161223Z
LAST-MODIFIED:20250501T161223Z
UID:8091-1746000000-1746032400@canadianrdn.ca
SUMMARY:Genome BC’s Genomics Forum 2025
DESCRIPTION:
URL:https://canadianrdn.ca/event/genome-bcs-genomics-forum-2025/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745442042991.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250501T080000
DTEND;TZID=America/New_York:20250504T170000
DTSTAMP:20260404T000015
CREATED:20241128T232045Z
LAST-MODIFIED:20241128T232045Z
UID:7081-1746086400-1746378000@canadianrdn.ca
SUMMARY:Myotonic Dystrophy Foundation Conference 2025
DESCRIPTION:MDF invites you to attend the Professional Track at the 2025 MDF Conference in Indianapolis\, Indiana from May 1st to May 4th! Sometimes called the “DM family reunion” – the MDF Conference is an event to unite the DM community in our journey towards treatments and a cure for myotonic dystrophy (DM). This year’s program includes educational sessions exploring research\, drug development\, symptom management\, and other critical topics for DM families\, plus opportunities for formal and informal networking\, wellness\, and fun!
URL:https://canadianrdn.ca/event/myotonic-dystrophy-foundation-conference-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250501T183000
DTEND;TZID=America/Edmonton:20250501T203000
DTSTAMP:20260404T000015
CREATED:20250501T161720Z
LAST-MODIFIED:20250501T161720Z
UID:8103-1746124200-1746131400@canadianrdn.ca
SUMMARY:Managing Anxiety in Children and Adolescents with Neurodevelopmental Disorders (NDDs)
DESCRIPTION:Presenters: Thomas Qiao\, MSc\, Research Coordinator\, Department of Psychiatry\, University of Calgary Noah Furlani\, MSc\, Research Coordinator\, Department of Psychiatry\, University of Calgary Dr. Kara Murias\, MD PhD FRCPC\, Pediatric Neurologist\, Alberta Children’s Hospital; Assistant Professor\, Department of Pediatrics and Clinical Neuroscience\, University of Calgary
URL:https://canadianrdn.ca/event/managing-anxiety-in-children-and-adolescents-with-neurodevelopmental-disorders-ndds/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745532032179.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250503T080000
DTEND;TZID=America/Toronto:20250503T170000
DTSTAMP:20260404T000015
CREATED:20250421T222047Z
LAST-MODIFIED:20250421T222047Z
UID:8020-1746259200-1746291600@canadianrdn.ca
SUMMARY:FSHS 360 Conference
DESCRIPTION:Patients and family members affected by FSHD are invited to attend an event hosted by the FSHD Canada Foundation and the FSHD Society! The FSHD 360 Conference Ontario is an event where patients and family can meet leaders in FSHD research and hear the latest updates\, including presentations from NMD4C investigators Dr Lawrence Korngut and Dr Hanns Lochmuller.
URL:https://canadianrdn.ca/event/fshs-360-conference/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1743602806527.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250503T080000
DTEND;TZID=America/Toronto:20250503T170000
DTSTAMP:20260404T000015
CREATED:20250501T161048Z
LAST-MODIFIED:20250501T161048Z
UID:8088-1746259200-1746291600@canadianrdn.ca
SUMMARY:FSHD 360 Conference
DESCRIPTION:FSHD research and drug development is in a new era. Do you know what’s happening and how this might impact your life? Here’s your chance to hear from the research and advocacy leaders in Ontario as well as from biopharmaceutical companies that are working on FSHD therapies. Get answers to your questions about your health\, maintaining optimal function through physical therapy\, exercise\, assistive devices\, and more. Don’t miss out on the opportunity to meet patients and families and network with FSHD Society leaders and activists in the community!
URL:https://canadianrdn.ca/event/fshd-360-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,Industry,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1743602806527.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250505T150000
DTEND;TZID=America/New_York:20250505T170000
DTSTAMP:20260404T000015
CREATED:20250403T022441Z
LAST-MODIFIED:20250403T022441Z
UID:7894-1746457200-1746464400@canadianrdn.ca
SUMMARY:Applying Principles of Equity\, Diversity\, Inclusion\, and Accessibility in Patient Engagement with Equity Seeking Groups
DESCRIPTION:
URL:https://canadianrdn.ca/event/applying-principles-of-equity-diversity-inclusion-and-accessibility-in-patient-engagement-with-equity-seeking-groups/
CATEGORIES:Caregiver,Events,Healthcare,National,Patient Focused,Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250506T190000
DTEND;TZID=America/Edmonton:20250506T200000
DTSTAMP:20260404T000015
CREATED:20250501T163054Z
LAST-MODIFIED:20250501T163054Z
UID:8120-1746558000-1746561600@canadianrdn.ca
SUMMARY:Palliative Care in Chorea and Huntington's Disease
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/palliative-care-in-chorea-and-huntingtons-disease/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1743598476117.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250507T080000
DTEND;TZID=Europe/Helsinki:20250508T170000
DTSTAMP:20260404T000015
CREATED:20241021T213932Z
LAST-MODIFIED:20241021T213932Z
UID:6186-1746604800-1746723600@canadianrdn.ca
SUMMARY:Medicines Reimagined: Unlocking the Potential of Existing Drugs for Patient Benefit
DESCRIPTION:Join iDR25 – the international drug repurposing conference – to unlock the full potential of medicines by driving innovation for patient benefit. From cutting-edge AI approaches transforming drug discovery to exploring innovative business models and regulatory pathways for market access
URL:https://canadianrdn.ca/event/medicines-reimagined-unlocking-the-potential-of-existing-drugs-for-patient-benefit/
CATEGORIES:Clinical Trials,Conferences,Industry,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/IDR25_webcard-1024x576-1.png
END:VEVENT
END:VCALENDAR