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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Toronto:20261003T080000
DTEND;TZID=America/Toronto:20261004T170000
DTSTAMP:20260817T160153Z
CREATED:20260817T160131Z
LAST-MODIFIED:20260817T160153Z
UID:11423-1791014400-1791133200@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada: Family Forum 2026
DESCRIPTION:Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation\, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada will come together to learn from leading experts\, share experiences\, and build lasting friendships with others who understand the journey.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-family-forum-2026/
CATEGORIES:Caregiver,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/08/Event-Image.png
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261006T110000
DTEND;TZID=America/Edmonton:20261006T120000
DTSTAMP:20261001T185808Z
CREATED:20261001T185808Z
LAST-MODIFIED:20261001T185808Z
UID:11726-1791284400-1791288000@canadianrdn.ca
SUMMARY:RareKids-CAN: Logistics of ATMP Workflows for Pharmacy Teams
DESCRIPTION:This webinar will provide a practical\, high-level overview of how pharmacies handle Advanced Therapeutics Medicinal Products (ATMPs). ATMPs\, such as gene therapy products\, significantly differ from the traditional therapies (i.e.\, small molecule drugs\, biologics\, etc.). Therefore\, pharmacies require tailored workflows from the initial storage\, documentation and handling\, \, as well as chain-of-custody consideration.
URL:https://canadianrdn.ca/event/rarekids-can-logistics-of-atmp-workflows-for-pharmacy-teams/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9a37b757-49b5-4c82-bf34-f3a1e20eba1c.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261014T110000
DTEND;TZID=America/Edmonton:20261014T120000
DTSTAMP:20261001T185943Z
CREATED:20261001T185943Z
LAST-MODIFIED:20261001T185943Z
UID:11729-1791975600-1791979200@canadianrdn.ca
SUMMARY:RareKids-CAN: Navigating Advanced Therapies in Paediatric Rare Disease: An Introduction for Patients and Caregivers
DESCRIPTION:This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority\, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness’. It provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for patients and caregivers. The session will explain what ATMPs are\, how they work\, how they differ from traditional medicines\, and the types of advanced therapies currently available or being studied. Participants will also learn how to assess what developments may be relevant to their condition\, find clinical trials and other credible information\, and start conversations with their healthcare team about emerging therapies
URL:https://canadianrdn.ca/event/rarekids-can-navigating-advanced-therapies-in-paediatric-rare-disease-an-introduction-for-patients-and-caregivers/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9382e8ed-421c-4576-b08e-76cee8289461.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261015T110000
DTEND;TZID=America/Edmonton:20261015T120000
DTSTAMP:20260922T171018Z
CREATED:20260922T164806Z
LAST-MODIFIED:20260922T171018Z
UID:11637-1792062000-1792065600@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-2/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261016T120000
DTEND;TZID=America/Toronto:20261016T133000
DTSTAMP:20261001T190544Z
CREATED:20261001T190544Z
LAST-MODIFIED:20261001T190544Z
UID:11735-1792152000-1792157400@canadianrdn.ca
SUMMARY:CORD: Webinar 2: When Innovation Rewrites the Pathway
DESCRIPTION:From Canadian Experience to Phase 2 Readiness How can Phase 2 RDDS help Canada anticipate the pathway consequences of new rare and precision therapies – so that screening\, diagnosis\, eligibility\, expertise\, delivery\, patient choice\, monitoring and learning do not have to be rebuilt after each access decision?
URL:https://canadianrdn.ca/event/cord-webinar-2-when-innovation-rewrites-the-pathway/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1790866766307.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261018T080000
DTEND;TZID=America/Edmonton:20261020T170000
DTSTAMP:20260929T165740Z
CREATED:20251113T224713Z
LAST-MODIFIED:20260929T165740Z
UID:9153-1792310400-1792515600@canadianrdn.ca
SUMMARY:Kids Brain Health Network (KBHN) Annual Conference
DESCRIPTION:Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference\, happening October 18–20\, 2026\, in Calgary\, Alberta!
URL:https://canadianrdn.ca/event/kids-brain-health-network-kbhn-annual-conference/
CATEGORIES:Caregiver,Conferences,In Person,Industry,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/6346391-6978e2ae9c849.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261019T080000
DTEND;TZID=America/Edmonton:20261019T090000
DTSTAMP:20261001T190421Z
CREATED:20261001T190421Z
LAST-MODIFIED:20261001T190421Z
UID:11732-1792396800-1792400400@canadianrdn.ca
SUMMARY:Rare Disease Day 2027 Launch Webinar
DESCRIPTION:EURORDIS is excited to introduce their 2027 heroes and unveil their new campaign materials. These webinars will also provide practical guidance and inspiration to help you plan impactful campaign activities in your country or community. They are hosting two identical sessions on Monday 19 October 16:00 CEST and the next is Tuesday 20 October 09:00 CEST.
URL:https://canadianrdn.ca/event/rare-disease-day-2027-launch-webinar/
CATEGORIES:Healthcare,International,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/2026-Mailings-Resources-2-1024x284-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261022T190000
DTEND;TZID=America/Toronto:20261022T200000
DTSTAMP:20260929T165608Z
CREATED:20260929T165420Z
LAST-MODIFIED:20260929T165608Z
UID:11698-1792695600-1792699200@canadianrdn.ca
SUMMARY:RQMO: Handicap et finances: tout le monde peut avoir un plan
DESCRIPTION:Join RQMO for a webinar with Lucy Rivera who will discuss the different strategies and resources that can help people living with disabilities and their loved ones better plan for their financial future.
URL:https://canadianrdn.ca/event/rqmo-disability-and-finances-everyone-can-have-a-plan/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1790090258307.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20261025T080000
DTEND;TZID=America/Vancouver:20261027T170000
DTSTAMP:20260929T164955Z
CREATED:20260929T164955Z
LAST-MODIFIED:20260929T164955Z
UID:11695-1792915200-1793120400@canadianrdn.ca
SUMMARY:NORD Breakthrough Summit 2026
DESCRIPTION:Shape the future of rare disease treatments\, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
URL:https://canadianrdn.ca/event/nord-breakthrough-summit-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/NEW-Summit-Logo-FNL-01.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261026T080000
DTEND;TZID=Europe/Amsterdam:20261028T170000
DTSTAMP:20260929T164646Z
CREATED:20260929T164646Z
LAST-MODIFIED:20260929T164646Z
UID:11692-1793001600-1793206800@canadianrdn.ca
SUMMARY:World Orphan Drug Congress Europe 2026
DESCRIPTION:The World Orphan Drug Congress is Europe’s largest and most established orphan drug & rare disease meeting. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/world-orphan-drug-congress-europe-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261027T080000
DTEND;TZID=America/Toronto:20261029T170000
DTSTAMP:20261001T190812Z
CREATED:20261001T190812Z
LAST-MODIFIED:20261001T190812Z
UID:11738-1793088000-1793293200@canadianrdn.ca
SUMMARY:Stronger Together: IMPaCT & RareKids-CAN Joint National Conference 2026
DESCRIPTION:IMPaCT and RareKids-CAN are bringing Canada’s maternal\, pediatric\, and rare disease research communities together for a three-day national conference in Montréal.
URL:https://canadianrdn.ca/event/stronger-together-impact-rarekids-can-joint-national-conference-2026/
CATEGORIES:Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Codex-Image-Sep-17-2026-12_14_11-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20261112T080000
DTEND;TZID=America/Halifax:20261113T170000
DTSTAMP:20261001T190948Z
CREATED:20261001T190948Z
LAST-MODIFIED:20261001T190948Z
UID:11741-1794470400-1794589200@canadianrdn.ca
SUMMARY:CORD Fall Conference 2026
DESCRIPTION:From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey\, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans.
URL:https://canadianrdn.ca/event/cord-fall-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/lg_SavetheDateFallConference2026-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261126T110000
DTEND;TZID=America/Edmonton:20261126T120000
DTSTAMP:20260922T170955Z
CREATED:20260922T170955Z
LAST-MODIFIED:20260922T170955Z
UID:11641-1795690800-1795694400@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by paediatric rare diagnosis and rare disease on Zoom for casual conversation. Two different times are available to accommodate time zones and schedules. You’re welcome for all or some of our hour together. Reach out to Sara at rkengage@mcmaster.ca for any questions.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-3/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20270125T080000
DTEND;TZID=America/Toronto:20270126T170000
DTSTAMP:20260817T162431Z
CREATED:20260817T162431Z
LAST-MODIFIED:20260817T162431Z
UID:11430-1800864000-1800982800@canadianrdn.ca
SUMMARY:Inaugural Canadian Gene & Cell Therapy Conference
DESCRIPTION:Convened by RareKids-CAN in partnership with the Conference Organizing Committee\, the conference will bring together researchers\, clinicians\, manufacturers\, industry leaders\, regulators\, trainees\, and patient and family partners from across the full translational pipeline.
URL:https://canadianrdn.ca/event/inaugural-canadian-gene-cell-therapy-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1784829020316.jpg
END:VEVENT
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