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BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
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DTSTART:20240310T100000
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DTSTART:20241103T090000
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DTSTART:20250309T100000
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DTSTART:20251102T090000
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DTSTART:20261101T090000
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251108T110000
DTEND;TZID=America/Toronto:20251108T170000
DTSTAMP:20260403T140211
CREATED:20251014T175716Z
LAST-MODIFIED:20251014T175716Z
UID:9014-1762599600-1762621200@canadianrdn.ca
SUMMARY:TSF's Toronto Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Canada to join us!
URL:https://canadianrdn.ca/event/tsfs-toronto-patient-day-for-rare-neuroinflammatory-disorders/
CATEGORIES:Conferences,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1759953087870.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Dubai:20251110T080000
DTEND;TZID=Asia/Dubai:20251111T170000
DTSTAMP:20260403T140211
CREATED:20250403T024050Z
LAST-MODIFIED:20250403T024050Z
UID:7909-1762761600-1762880400@canadianrdn.ca
SUMMARY:42nd International Conference on Advances in Psychiatry and Mental Health
DESCRIPTION:This premier event will bring together leading experts\, researchers\, and mental health professionals to explore innovative approaches and emerging trends in the field of psychiatry. Psychiatry Conference 2025 cordially invites all psychiatrists\, psychologists\, researchers\, clinicians\, mental health professionals\, neuroscientists\, healthcare practitioners\, academicians\, and industry experts to join us on November 10-11\, 2025\, in Dubai\, UAE.
URL:https://canadianrdn.ca/event/42nd-international-conference-on-advances-in-psychiatry-and-mental-health/
CATEGORIES:Conferences,Hybrid,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251110T120000
DTEND;TZID=America/Toronto:20251110T140000
DTSTAMP:20260403T140211
CREATED:20251024T183314Z
LAST-MODIFIED:20251024T183314Z
UID:9084-1762776000-1762783200@canadianrdn.ca
SUMMARY:ISCT North America Regional Virtual Town Hall
DESCRIPTION:Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. Hemalatha Rangarajan\, leader of the gene therapy program for non-malignant disorders\, who has also launched multiple clinical trials in transplant for SCD at Nationwide Children’s Hospital (NCH).
URL:https://canadianrdn.ca/event/isct-north-america-regional-virtual-town-hall/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1761051641857.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251113T100000
DTEND;TZID=America/Edmonton:20251113T113000
DTSTAMP:20260403T140211
CREATED:20250924T182037Z
LAST-MODIFIED:20250924T182037Z
UID:8916-1763028000-1763033400@canadianrdn.ca
SUMMARY:Le poisson-zèbre pour accélérer la recherche sur les maladies rares.
DESCRIPTION:Episode 2 of the RQMO – RARE webinar series. QC presented by Éric Samarut\, Assistant Professor and regular researcher at the CHUM Research Centre\, Université de Montréal \nModerator: Jonathan Pratt\, Executive Director of the RQMO
URL:https://canadianrdn.ca/event/le-poisson-zebre-pour-accelerer-la-recherche-sur-les-maladies-rares/
CATEGORIES:Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1758293765715.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251115T080000
DTEND;TZID=America/New_York:20251116T170000
DTSTAMP:20260403T140211
CREATED:20250109T232455Z
LAST-MODIFIED:20250109T232455Z
UID:7343-1763193600-1763312400@canadianrdn.ca
SUMMARY:3rd Edition on International Neurology Conference 2025 in USA
DESCRIPTION:
URL:https://canadianrdn.ca/event/3rd-edition-on-international-neurology-conference-2025-in-usa/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Zurich:20251118T080000
DTEND;TZID=Europe/Zurich:20251118T170000
DTSTAMP:20260403T140211
CREATED:20250812T193902Z
LAST-MODIFIED:20250812T193902Z
UID:8708-1763452800-1763485200@canadianrdn.ca
SUMMARY:ITINERARE Symposium 2025
DESCRIPTION:The programme features experts from a variety of fields\, ranging from basic and translational research to clinical application and the ethical\, social and legal aspects of rare disease research.
URL:https://canadianrdn.ca/event/itinerare-symposium-2025/
CATEGORIES:Clinical Trials,Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/Pic-webpage.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T080000
DTEND;TZID=America/New_York:20251119T170000
DTSTAMP:20260403T140211
CREATED:20241218T230757Z
LAST-MODIFIED:20251027T201716Z
UID:7283-1763452800-1763571600@canadianrdn.ca
SUMMARY:2025 IMPaCT Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2025-impact-summit-save-the-date/
CATEGORIES:Clinical Trials,Conferences,Industry,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/12/Screenshot-2025-02-13-at-9.57.59-AM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251122T110000
DTEND;TZID=America/Toronto:20251122T160000
DTSTAMP:20260403T140211
CREATED:20251103T203915Z
LAST-MODIFIED:20251103T203915Z
UID:9119-1763809200-1763827200@canadianrdn.ca
SUMMARY:Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
DESCRIPTION:Bringing together neuroscience researchers\, patients\, advocates and caregivers to highlight brain health research in an accessible format.
URL:https://canadianrdn.ca/event/bridging-gaps-a-patient-oriented-neuroscience-research-symposium/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/https___cdn.evbuc_.com_images_1131808373_245876360330_1_original.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251125T080000
DTEND;TZID=America/Toronto:20251126T170000
DTSTAMP:20260403T140211
CREATED:20250703T162704Z
LAST-MODIFIED:20250703T162809Z
UID:8507-1764057600-1764176400@canadianrdn.ca
SUMMARY:CORD: Rare Disease Conference Fall 2025
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-conference-fall-2025/
CATEGORIES:Conferences,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/Gu8CYGUXgAAK6aR.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251126T180000
DTEND;TZID=America/Toronto:20251128T190000
DTSTAMP:20260403T140211
CREATED:20251113T225719Z
LAST-MODIFIED:20251113T225719Z
UID:9156-1764180000-1764356400@canadianrdn.ca
SUMMARY:Hope on the Horizon: Trials\, Treatments and Therapies for DMD\, DM1 & MG
DESCRIPTION:Muscular Dystrophy Canada in partnership with the Neuromuscular Disease Network for Canada (NMD4C)’s Clinical Trial Network is excited to host three Hope on the Horizon events! \nThese webinars are geared towards family members and people living with NMDs.\nJoin us from November 26th – 29th to learn more about the treatment and clinical trial landscape for Duchenne Muscular Dystrophy\, Myotonic Dystrophy Type 1 and Myasthenia Gravis from key experts in the field!
URL:https://canadianrdn.ca/event/hope-on-the-horizon-trials-treatments-and-therapies-for-dmd-dm1-mg/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/HopeOnTheHorizon-Trials-Treatments-and-Therapies-for-DMD-DM1-MG-768x960-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251201T083000
DTEND;TZID=America/Edmonton:20251201T093000
DTSTAMP:20260403T140211
CREATED:20251126T194515Z
LAST-MODIFIED:20251126T194515Z
UID:9210-1764577800-1764581400@canadianrdn.ca
SUMMARY:Child Health and Wellness Seminar: The Evolution of Medical AI: Progress\, Potential\, and Responsibility
DESCRIPTION:The Evolution of Medical AI: Progress\, Potential\, and Responsibility Speaker: Dr. Eman Rezk\, PhD NSERC Postdoctoral Fellow Department of Electrical and Computer Engineering\, University of Waterloo Host: Dr. Mohamed Eltorki\, MD\, FRCPC Associate Professor\, University of Calgary
URL:https://canadianrdn.ca/event/child-health-and-wellness-seminar-the-evolution-of-medical-ai-progress-potential-and-responsibility/
CATEGORIES:Healthcare,Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/webp:https://canadianrdn.ca/wp-content/uploads/2025/11/15010_COLOURBOX67677576.rev_.1762978757.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251202T123000
DTEND;TZID=America/Toronto:20251202T133000
DTSTAMP:20260403T140211
CREATED:20251129T212525Z
LAST-MODIFIED:20251129T212525Z
UID:9213-1764678600-1764682200@canadianrdn.ca
SUMMARY:Introduction to the Disability Tax Credit
DESCRIPTION:A presentation about the gateway tax credit and the benefits it unlocks: \n\nLearn how the credit works and who qualifies\nLearn how the credit unlocks other federal benefits\nDiscover practical tips for your application
URL:https://canadianrdn.ca/event/introduction-to-the-disability-tax-credit/
CATEGORIES:Caregiver,Patient Focused,Policy,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/1764248122913.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251204T093000
DTEND;TZID=America/Toronto:20251204T123000
DTSTAMP:20260403T140211
CREATED:20251202T164402Z
LAST-MODIFIED:20251202T164402Z
UID:9220-1764840600-1764851400@canadianrdn.ca
SUMMARY:Can-Child Webinar: F-words Foundations Workshop
DESCRIPTION:Interactive 3-hour F-words Foundations Workshop to explore how to bring the F-words for Child Development—Functioning\, Family\, Fitness\, Fun\, Friends\, and Future—into everyday practice and life!
URL:https://canadianrdn.ca/event/can-child-webinar-f-words-foundations-workshop/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/12/1764608508943.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251205T080000
DTEND;TZID=America/Toronto:20251205T170000
DTSTAMP:20260403T140211
CREATED:20251027T200957Z
LAST-MODIFIED:20251027T201013Z
UID:9097-1764921600-1764954000@canadianrdn.ca
SUMMARY:CARELeuko Symposium 2025
DESCRIPTION:The Canadian Association for Research Excellence in Leukodystrophy (CARELeuko) is excited to welcome you to the 2025 CARELeuko Symposium: Uniting Canada’s Leukodystrophy Community to Drive Collaboration and Accelerate Research and Care! \nThe 2025 CARELeuko Symposium is taking place on Friday\, December 5\, 2025\, at the Research Institute of the McGill University Health Centre in Montreal\, Quebec\, Canada.
URL:https://canadianrdn.ca/event/careleuko-symposium-2025/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1761570214888.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251205T080000
DTEND;TZID=America/Los_Angeles:20251207T170000
DTSTAMP:20260403T140211
CREATED:20250728T214728Z
LAST-MODIFIED:20250728T214728Z
UID:8604-1764921600-1765126800@canadianrdn.ca
SUMMARY:36th International Symposium on ALS/MND
DESCRIPTION:The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year they bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease.
URL:https://canadianrdn.ca/event/36th-international-symposium-on-als-mnd/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/36th-Symposium-Logo-1-300x130-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251205T123000
DTEND;TZID=America/Edmonton:20251205T133000
DTSTAMP:20260403T140211
CREATED:20251204T203358Z
LAST-MODIFIED:20251204T203358Z
UID:9253-1764937800-1764941400@canadianrdn.ca
SUMMARY:STAGE International Speaker Seminar Series (ISSS)-Laura Arbour
DESCRIPTION:Reducing Genetic and Genomic Health Disparities for Indigenous People of Canada: Insights from the Silent Genomes Project \n 
URL:https://canadianrdn.ca/event/stage-international-speaker-seminar-series-isss-laura-arbour/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/12/dr_laura_arbour_doctors_making_a_difference_custom_photo_id_233643.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251208T170000
DTEND;TZID=America/Edmonton:20251208T190000
DTSTAMP:20260403T140211
CREATED:20251126T191844Z
LAST-MODIFIED:20251126T191844Z
UID:9195-1765213200-1765220400@canadianrdn.ca
SUMMARY:FA Together: Learn. Share. Connect. mini-regional conference in Calgary
DESCRIPTION:
URL:https://canadianrdn.ca/event/fa-together-learn-share-connect-mini-regional-conference-in-calgary/
CATEGORIES:Events,Healthcare,In Person,Industry,National,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/1763568120995.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251209T070000
DTEND;TZID=America/Edmonton:20251209T090000
DTSTAMP:20260403T140211
CREATED:20251202T164751Z
LAST-MODIFIED:20251202T164803Z
UID:9223-1765263600-1765270800@canadianrdn.ca
SUMMARY:Webinar: 'The importance of genetic counselling in the diagnostic of rare neurological disorders' by Maria Judit Molnar
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/webinar-the-importance-of-genetic-counselling-in-the-diagnostic-of-rare-neurological-disorders-by-maria-judit-molnar/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/12/1762876515531.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251209T080000
DTEND;TZID=America/Edmonton:20251210T170000
DTSTAMP:20260403T140211
CREATED:20250902T192732Z
LAST-MODIFIED:20250902T192732Z
UID:8848-1765267200-1765386000@canadianrdn.ca
SUMMARY:2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases
DESCRIPTION:This second edition will convene a wide range of international experts\, including researchers\, clinicians\, patient advocates\, industry representatives\, policymakers\, and funders to strengthen the collaborative ecosystem that underpins clinical research in rare diseases worldwide.
URL:https://canadianrdn.ca/event/2nd-international-conference-on-clinical-research-networks-crns-for-rare-diseases/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1756804302825.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251210T100000
DTEND;TZID=America/Edmonton:20251210T120000
DTSTAMP:20260403T140211
CREATED:20251129T212732Z
LAST-MODIFIED:20251129T212732Z
UID:9217-1765360800-1765368000@canadianrdn.ca
SUMMARY:Modeling the disease to better fight it: a new approach to heart enlargement associated with RASopathies
DESCRIPTION:Full title: Modeling the disease to better fight it: a new approach to heart enlargement associated with RASopathies \nEpisode 3 of the RQMO – RARE webinar series. QC presented by Anais Medouni\, PhD student in Anatomy and Cell Biology in the laboratory of Dr. Gregor Andelfinger\, CHU Sainte Justine Research Center\, Université de Montréal \nModerator: Jonathan Pratt\, Executive Director of the RQMO
URL:https://canadianrdn.ca/event/modeling-the-disease-to-better-fight-it-a-new-approach-to-heart-enlargement-associated-with-rasopathies/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/1764189772787.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251211T173000
DTEND;TZID=America/Edmonton:20251211T183000
DTSTAMP:20260403T140211
CREATED:20251126T193637Z
LAST-MODIFIED:20251126T193637Z
UID:9207-1765474200-1765477800@canadianrdn.ca
SUMMARY:Every Relapse Matters: The Evolving NMOSD & MOGAD Treatment Landscape in Canada
DESCRIPTION:The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday\, December 11th at 7:30 PM EST. This session will explore the evolving treatment options for individuals living with AQP4+ NMOSD\, seronegative NMOSD\, and MOGAD in Canada.
URL:https://canadianrdn.ca/event/every-relapse-matters-the-evolving-nmosd-mogad-treatment-landscape-in-canada/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/G6m2Vf-XIAAW3Qj.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251212T120000
DTEND;TZID=America/Edmonton:20251212T140000
DTSTAMP:20260403T140211
CREATED:20251014T175031Z
LAST-MODIFIED:20251014T175031Z
UID:9005-1765540800-1765548000@canadianrdn.ca
SUMMARY:Canadian Fragile X Research Rounds: Protein Replacement Therapy for Fragile X Syndrome
DESCRIPTION:
URL:https://canadianrdn.ca/event/canadian-fragile-x-research-rounds-protein-replacement-therapy-for-fragile-x-syndrome-2/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/Canadian-FX-Research-Rounds-7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251213T080000
DTEND;TZID=America/Edmonton:20251214T170000
DTSTAMP:20260403T140211
CREATED:20251126T192929Z
LAST-MODIFIED:20251126T192929Z
UID:9201-1765612800-1765731600@canadianrdn.ca
SUMMARY:Duchenne Patient Academy 2025
DESCRIPTION:
URL:https://canadianrdn.ca/event/duchenne-patient-academy-2025/
CATEGORIES:Caregiver,Events,Healthcare,National,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/duchenne-patient-academy-2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251213T110000
DTEND;TZID=America/Toronto:20251213T140000
DTSTAMP:20260403T140211
CREATED:20251126T191558Z
LAST-MODIFIED:20251126T191558Z
UID:9192-1765623600-1765634400@canadianrdn.ca
SUMMARY:SMA Together: Learn. Share. Connect. A Mini-Regional Conference - Toronto
DESCRIPTION:The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them\, in-person on December 13 to learn about the latest updates in spinal muscular atrophy\, including:
URL:https://canadianrdn.ca/event/sma-together-learn-share-connect-a-mini-regional-conference-toronto/
CATEGORIES:Caregiver,Conferences,Events,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/1764174313486.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260108T080000
DTEND;TZID=America/Edmonton:20260108T090000
DTSTAMP:20260403T140211
CREATED:20260101T225056Z
LAST-MODIFIED:20260101T225056Z
UID:9473-1767859200-1767862800@canadianrdn.ca
SUMMARY:CMT episode 1: Challenges in the diagnosis and treatment of inherited neuropathies
DESCRIPTION:Delivered by Dr. Davide Pareyson (Fondazione IRCCS Istituto Neurologico C.Besta (FINCB)\, Milan\, Italy) & Dr. Filippo Genovese (The European Charcot-Marie-Tooth Federation & ACMT-Rete per la malattia di Charcot-Marie-Tooth OdV)\, Thu 08 Jan 2026 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.
URL:https://canadianrdn.ca/event/cmt-episode-1-challenges-in-the-diagnosis-and-treatment-of-inherited-neuropathies/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Challenges-in-the-diagnosis-and-treatment-of-inherited-neuropathies_0801.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260113T170000
DTEND;TZID=America/Edmonton:20260113T183000
DTSTAMP:20260403T140211
CREATED:20260105T195201Z
LAST-MODIFIED:20260105T200439Z
UID:9578-1768323600-1768329000@canadianrdn.ca
SUMMARY:RealiseD Webinar 1: Realising Clinical trials in Ultra-Rare diseases
DESCRIPTION:Join RealiseD’s first webinar to learn how RealiseD is pioneering a collaborative and comprehensive approach to clinical trials in ultra-rare diseases. During the webinar\, they’ll walk you through the project’s objectives\, structure\, and methodologies—and show how you can be part of this transformative journey.
URL:https://canadianrdn.ca/event/realised-realising-clinical-trials-in-ultra-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1765887061354.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260114T190000
DTEND;TZID=America/Edmonton:20260114T200000
DTSTAMP:20260403T140211
CREATED:20260113T165855Z
LAST-MODIFIED:20260113T165855Z
UID:9617-1768417200-1768420800@canadianrdn.ca
SUMMARY:CanPKU+:  Advocacy in Action Update Sessions
DESCRIPTION:Join the Advocacy in Action Update Sessions with John Adams in order to hear updates on various campaigns and what needs to be done to move things forward for the PKU community.
URL:https://canadianrdn.ca/event/canpku-advocacy-in-action-update-sessions/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767738677475.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260115T053000
DTEND;TZID=America/Edmonton:20260115T063000
DTSTAMP:20260403T140211
CREATED:20260111T210920Z
LAST-MODIFIED:20260111T210920Z
UID:9596-1768455000-1768458600@canadianrdn.ca
SUMMARY:Rare Disease Internation-Moving the WHA Resolution on Rare Diseases Forward: From Promise to Action
DESCRIPTION:Join RDI for this public webinar where they will discuss the current status of the WHA Resolution implementation\, as they approach the World Health Organization Executive Board meeting taking place in February 2026. This webinar will engage in a multistakeholder dialogue focusing on the necessary path forward to accelerate the implementation of the Resolution and importantly the development of the GAPRD. \n 
URL:https://canadianrdn.ca/event/rare-disease-internation-moving-the-wha-resolution-on-rare-diseases-forward-from-promise-to-action/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767795977515.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260115T080000
DTEND;TZID=America/Edmonton:20260115T090000
DTSTAMP:20260403T140211
CREATED:20260101T225316Z
LAST-MODIFIED:20260101T225316Z
UID:9476-1768464000-1768467600@canadianrdn.ca
SUMMARY:CMT episode 2: Progress in genetic diagnosis for neuropathies
DESCRIPTION:Delivered by Dr. Andrea Cortese (University College London\, Department of Neuromuscular Diseases\, UK)\, Thu 15 Jan 2026 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.
URL:https://canadianrdn.ca/event/cmt-episode-2-progress-in-genetic-diagnosis-for-neuropathies/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/03c6e293-c06f-4597-a551-ca4e516f7312.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260115T100000
DTEND;TZID=America/Edmonton:20260115T110000
DTSTAMP:20260403T140211
CREATED:20260101T230631Z
LAST-MODIFIED:20260101T230631Z
UID:9491-1768471200-1768474800@canadianrdn.ca
SUMMARY:When Nutrient Sensing Goes Wrong: How Metabolic Signals Can Drive Epilepsy and Autism
DESCRIPTION:4e épisode de la série de webinaires en collaboration avec Rare.qc et le RQMO. \nTitre complet : When Nutrient Sensing Goes Wrong: How Metabolic Signals Can Drive Epilepsy and Autism \nPaul A. Dutchak\, Ph.D is an Associate Professor at Université Laval and Principal Investigator at the CERVO Brain Research Centre (Québec\, Canada). His laboratory studies how genetic mutations in the GATOR1 amino acid–sensing complex drive epilepsy and autism spectrum disorders through disruptions in cellular signaling\, neurometabolism\, and brain excitability. His group has developed a first-in-class antisense oligonucleotide therapeutic targeting this pathway\, with strong preclinical efficacy in genetic epilepsies. His research program is currently supported by the Canadian Institute of Health Research. \nModerator : Jonathan Pratt\, Executive director of the RQMO
URL:https://canadianrdn.ca/event/when-nutrient-sensing-goes-wrong-how-metabolic-signals-can-drive-epilepsy-and-autism/
CATEGORIES:Patient Focused,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1766431845099.jpg
END:VEVENT
END:VCALENDAR