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BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
TZOFFSETTO:-0300
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DTSTART:20240310T060000
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DTSTART:20241103T050000
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BEGIN:DAYLIGHT
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TZOFFSETTO:-0300
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DTSTART:20250309T060000
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TZOFFSETTO:-0400
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DTSTART:20251102T050000
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TZOFFSETTO:-0300
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DTSTART:20260308T060000
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DTSTART:20261101T050000
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BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20250207T080000
DTEND;TZID=America/Sao_Paulo:20250208T170000
DTSTAMP:20260404T123919
CREATED:20250111T002118Z
LAST-MODIFIED:20250111T002118Z
UID:7358-1738915200-1739034000@canadianrdn.ca
SUMMARY:Update on NMOSD and MOGAD' Meeting\, 7-8 Feb 2025
DESCRIPTION:The Update on NMOSD and MOGAD meeting\, organized by the European Charcot Foundation in partnership with the European Network of NMOSD and MOGAD\, will take place in São Paulo\, Brazil\, on February 7-8\, 2025.
URL:https://canadianrdn.ca/event/update-on-nmosd-and-mogad-meeting-7-8-feb-2025/
CATEGORIES:Conferences,In Person,Industry,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250212T140000
DTEND;TZID=Europe/Paris:20250212T150000
DTSTAMP:20260404T123919
CREATED:20250109T232855Z
LAST-MODIFIED:20250109T232855Z
UID:7346-1739368800-1739372400@canadianrdn.ca
SUMMARY:Rare Disease Expertise\, Centers & Networks: Results of the Public Survey
DESCRIPTION:This is a Public Webinar presenting the results of RDI Survey on rare disease expertise\, care-providing centers and networks. This survey aimed to map the global landscape of rare disease expertise\, identifying centers\, networks\, and collaborations dedicated to improving care for people living with rare diseases. \nDuring the webinar\, they will share key findings and insights from the survey\, providing an overview of the current landscape in rare disease care across different regions and countries.
URL:https://canadianrdn.ca/event/rare-disease-expertise-centers-networks-results-of-the-public-survey/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250213T160000
DTEND;TZID=Europe/Paris:20250213T170000
DTSTAMP:20260404T123919
CREATED:20250121T233751Z
LAST-MODIFIED:20250121T233751Z
UID:7386-1739462400-1739466000@canadianrdn.ca
SUMMARY:Multifocal motor neuropathy (MMN): diagnosis\, treatment and update on biomarkers
DESCRIPTION:
URL:https://canadianrdn.ca/event/multifocal-motor-neuropathy-mmn-diagnosis-treatment-and-update-on-biomarkers/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250214T080000
DTEND;TZID=Europe/Helsinki:20250215T170000
DTSTAMP:20260404T123919
CREATED:20240731T210032Z
LAST-MODIFIED:20240731T210032Z
UID:4897-1739520000-1739638800@canadianrdn.ca
SUMMARY:PKU CON 2025
DESCRIPTION:PKU CON aims to bring together all stakeholders from around the globe currently involved in the management of patients affected by this inborn error of metabolism with an unique and same\, single goal: optimize the care and assistance for patients affected by Phenylketonuria. \nMany topics will be discussed during this first edition\, starting from a renewed vision of the pathology\, with possible identification of new biomarkers and metabolic control indices\, to updates in the field of dietary and pharmacological interventions\, and addressing relevant assistance-related issues such as burden of illness and unmet needs.
URL:https://canadianrdn.ca/event/pku-con-2025/
LOCATION:milan\, italy\, Milan\, Italy
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/07/pkucon25-banner.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250217T080000
DTEND;TZID=Europe/Helsinki:20250218T170000
DTSTAMP:20260404T123919
CREATED:20241022T210809Z
LAST-MODIFIED:20241022T210809Z
UID:6189-1739779200-1739898000@canadianrdn.ca
SUMMARY:3rd European Congress of Neurology and Neuropsychiatry
DESCRIPTION:
URL:https://canadianrdn.ca/event/3rd-european-congress-of-neurology-and-neuropsychiatry/
CATEGORIES:Conferences,Hybrid,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/67109d162e2c9.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250220T160000
DTEND;TZID=UTC:20250220T170000
DTSTAMP:20260404T123919
CREATED:20250121T233934Z
LAST-MODIFIED:20250121T233934Z
UID:7388-1740067200-1740070800@canadianrdn.ca
SUMMARY:Electrodiagnostic Patterns in Immune-Mediated Neuropathies
DESCRIPTION:
URL:https://canadianrdn.ca/event/electrodiagnostic-patterns-in-immune-mediated-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250222T160000
DTEND;TZID=America/New_York:20250222T170000
DTSTAMP:20260404T123919
CREATED:20250207T041158Z
LAST-MODIFIED:20250207T041158Z
UID:7474-1740240000-1740243600@canadianrdn.ca
SUMMARY:CAPA Webinar Physical Activity in Arthritis
DESCRIPTION:
URL:https://canadianrdn.ca/event/capa-webinar-physical-activity-in-arthritis/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/02/GjHp9taXIAAP9iQ.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250224T080000
DTEND;TZID=America/Chicago:20250226T170000
DTSTAMP:20260404T123919
CREATED:20250219T015946Z
LAST-MODIFIED:20250219T015946Z
UID:7504-1740384000-1740589200@canadianrdn.ca
SUMMARY:2025 Clinical Trials Training Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2025-clinical-trials-training-summit/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250226T110000
DTEND;TZID=America/New_York:20250226T123000
DTSTAMP:20260404T123919
CREATED:20250207T040108Z
LAST-MODIFIED:20250207T040108Z
UID:7465-1740567600-1740573000@canadianrdn.ca
SUMMARY:The Undiagnosed Hackathon: Driving Diagnosis Through Global Collaboration
DESCRIPTION:
URL:https://canadianrdn.ca/event/the-undiagnosed-hackathon-driving-diagnosis-through-global-collaboration/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250227T080000
DTEND;TZID=Europe/Paris:20250227T170000
DTSTAMP:20260404T123919
CREATED:20250130T024725Z
LAST-MODIFIED:20250130T024725Z
UID:7444-1740643200-1740675600@canadianrdn.ca
SUMMARY:From Grassroots to Global: Growing Momentum Towards a WHA Resolution on Rare Diseases
DESCRIPTION:Join RDI for a webinar on the global movement behind the efforts to advocate for a WHA Resolution on Rare Diseases
URL:https://canadianrdn.ca/event/from-grassroots-to-global-growing-momentum-towards-a-wha-resolution-on-rare-diseases/
CATEGORIES:International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/1737547764811-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250227T190000
DTEND;TZID=America/New_York:20250227T210000
DTSTAMP:20260404T123919
CREATED:20250219T015721Z
LAST-MODIFIED:20250219T015721Z
UID:7501-1740682800-1740690000@canadianrdn.ca
SUMMARY:Rare Moments: Virtual Storytelling Evening
DESCRIPTION:Don’t miss Rare Moments: Virtual Storytelling Evening\n📅 February 27 @ 7:00 p.m. ET\nRegister: https://bit.ly/4ht5Ox9 \nIt will be an inspiring evening of storytelling as families from across #Canada come together to share their experiences living with Duchenne #musculardystrophy.
URL:https://canadianrdn.ca/event/rare-moments-virtual-storytelling-evening/
CATEGORIES:Caregiver,Events,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/02/1739560561624.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250301
DTSTAMP:20260404T123919
CREATED:20240529T010500Z
LAST-MODIFIED:20240529T010500Z
UID:4255-1740700800-1740787199@canadianrdn.ca
SUMMARY:Rare Disease Day
DESCRIPTION:Rare Disease Day is the globally coordinated movement on rare diseases\, initiated in 2008 and led by EURORDIS and its 70+ national alliance patient organization partners working towards\nequity in social opportunity\, healthcare\, and access to therapies for people living with a rare disease. \nRare Disease Day is held on the last day of February\, the rarest day of the year\, to highlight the challenges faced by 300 million people worldwide living with a rare disease. Over the last 17 years\,\nRare Disease Day has played a critical part in building an international rare disease community that is multi-disease\, multicultural\, and multi-lingual\, but united in purpose. Rare Disease Day speaks for 300 million people worldwide living with a rare disease\, as well as their families and carers. Events and activities take place in over 100 countries\, banging the drum and\nbuilding momentum for the rare disease community. The campaign works in partnership with individuals and patient groups\, policymakers\, governments\, foundations\, NGOs\, pharmaceutical and biotech companies around the world to raise awareness of rare diseases. It uses innovative approaches to build community\, create empathy and advocacy for those with rare diseases.
URL:https://canadianrdn.ca/event/rare-disease-day/
CATEGORIES:Caregiver,Events,International,Patient Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/05/Rare_Disease_Day.svg_.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250228T080000
DTEND;TZID=America/Denver:20250228T160000
DTSTAMP:20260404T123919
CREATED:20250219T015433Z
LAST-MODIFIED:20250219T015433Z
UID:7498-1740729600-1740758400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 University of Alberta
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-day-2025-university-of-alberta/
CATEGORIES:Events,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/02/Rare-Disease-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250228T090000
DTEND;TZID=America/New_York:20250228T130000
DTSTAMP:20260404T123919
CREATED:20250225T041117Z
LAST-MODIFIED:20250225T041117Z
UID:7560-1740733200-1740747600@canadianrdn.ca
SUMMARY:Rare Disease Day and World Birth Defects Symposium
DESCRIPTION:Join on February 28\, 2025\, for the Rare Disease Day and World Birth Deficit Symposium\, an event dedicated to raising awareness and fostering meaningful discussions on the challenges faced by individuals and families affected by rare diseases. This symposium will bring together patients\, caregivers\, healthcare professionals\, and community advocates to share experiences\, promote equity\, and drive change.
URL:https://canadianrdn.ca/event/rare-disease-day-and-world-birth-defects-symposium/
CATEGORIES:Events,Hybrid,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/02/RDD.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250228T120000
DTEND;TZID=America/New_York:20250228T130000
DTSTAMP:20260404T123919
CREATED:20250207T035521Z
LAST-MODIFIED:20250207T043313Z
UID:7459-1740744000-1740747600@canadianrdn.ca
SUMMARY:CORD Rare Disease Day 2025 Webinar
DESCRIPTION:CORD is hosting a special webinar on Friday\, Feb 28 from 12-1pm EST so that everyone from across Canada can tune in and help put that funding to work. Here’s what they’ll discuss: – Ending the diagnostic odyssey with CHEO’s ThinkRare – Treating and tracking rare diseases at BC Cancer – Caring for complex kids and adults at BC Children’s Hospital – The challenge of treating adults with SMA in Manitoba – Measuring the socioeconomic impact of rare diseases on families and health systems
URL:https://canadianrdn.ca/event/cord-rare-disease-day-2025-webinar/
CATEGORIES:Caregiver,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250228T120000
DTEND;TZID=Europe/Paris:20250228T133000
DTSTAMP:20260404T123919
CREATED:20250219T020155Z
LAST-MODIFIED:20250219T020155Z
UID:7507-1740744000-1740749400@canadianrdn.ca
SUMMARY:Celebrate Rare Disease Day: Advancing Clinical Trials Together
DESCRIPTION:On February 28th\, in recognition of Rare Disease Day\, the European project DREAMS (www.dreamshorizon.eu) invites you to a thought-provoking online webinar: “Clinical Trials in Focus: Innovations and Patient Perspectives in Rare Diseases”. Join leading experts as they explore advancements in clinical trial methodologies\, outcome measures\, and lessons learned from research in muscular disorders.
URL:https://canadianrdn.ca/event/celebrate-rare-disease-day-advancing-clinical-trials-together/
CATEGORIES:Clinical Trials,Events,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250301T090000
DTEND;TZID=America/Denver:20250301T130000
DTSTAMP:20260404T123919
CREATED:20250207T040820Z
LAST-MODIFIED:20250207T040820Z
UID:7471-1740819600-1740834000@canadianrdn.ca
SUMMARY:Rare Disease Day 2025: Unlocking Hope for Rare Diseases
DESCRIPTION:On Saturday March 1st\, the Rare Disease Network of Alberta (rDNA) will be hosting Rare Disease Day 2025: Unlocking Hope for Rare Diseases in Edmonton. Members from their team will be attending!
URL:https://canadianrdn.ca/event/rare-disease-day-2025-unlocking-hope-for-rare-diseases/
CATEGORIES:Events,Hybrid,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250301T100000
DTEND;TZID=America/New_York:20250301T170000
DTSTAMP:20260404T123919
CREATED:20250123T224546Z
LAST-MODIFIED:20250123T224546Z
UID:7414-1740823200-1740848400@canadianrdn.ca
SUMMARY:RQMO 2025 International Rare Disease Day
DESCRIPTION:To celebrate International Rare Disease Day\, the RQMO is organizing an activity on March 1\, 2025 at the Sandman Hotel located at 999\, rue de Sérigny in Longueuil. \nThe event will take place from 10 a.m. to 3 p.m. and will be followed by a networking cocktail from 3 p.m. to 5 p.m. \nThe activity will be presented in hybrid\, you will have the possibility to attend in person or by zoom. \n 
URL:https://canadianrdn.ca/event/rqmo-2025-international-rare-disease-day/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/01/20250115072955_ajax_uploadsd346b8468cbf43158b5d3e676c6fc33a-formulaire_inscription.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250305T120000
DTEND;TZID=America/New_York:20250305T130000
DTSTAMP:20260404T123919
CREATED:20241218T230623Z
LAST-MODIFIED:20241218T230623Z
UID:7280-1741176000-1741179600@canadianrdn.ca
SUMMARY:Webinar - Initiating Clinical Trials in Canada
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-initiating-clinical-trials-in-canada/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250306T130000
DTEND;TZID=America/Denver:20250306T140000
DTSTAMP:20260404T123919
CREATED:20250225T041503Z
LAST-MODIFIED:20250225T041853Z
UID:7563-1741266000-1741269600@canadianrdn.ca
SUMMARY:ALS Clinical Trials Unboxed
DESCRIPTION:Join ALS Canada\, on March 6 at 1:00 pm ET\, for ALS Clinical Trials Unboxed. In this webinar\, Dr. Lauren Kett\, Medical Director of Clinical Development at Amylyx Pharmaceuticals will present on the Phase 1 LUMINA study\, an investigational antisense oligonucleotide (ASO) targeting calpain-2 for the potential treatment of ALS.
URL:https://canadianrdn.ca/event/als-clinical-trials-unboxed-2/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250306T140000
DTEND;TZID=America/New_York:20250306T150000
DTSTAMP:20260404T123919
CREATED:20250304T033811Z
LAST-MODIFIED:20250304T033811Z
UID:7617-1741269600-1741273200@canadianrdn.ca
SUMMARY:Navigating the Transition from Pediatric to Adult Neuroimmunology Care
DESCRIPTION:This webinar will provide an overview of the transition from pediatric to adult medical care\, featuring insights from a pediatric neurologist\, social worker\, and a neuropsychologist. \nTopics will include maintaining continuity of care\, managing complex medical conditions\, self-advocacy in healthcare settings\, and addressing social and emotional considerations. The discussion aims to support patients\, families\, and caregivers in navigating this important transition effectively.
URL:https://canadianrdn.ca/event/navigating-the-transition-from-pediatric-to-adult-neuroimmunology-care/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/Childrens-National.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250312T080000
DTEND;TZID=America/Denver:20250313T170000
DTSTAMP:20260404T123919
CREATED:20250219T020408Z
LAST-MODIFIED:20250219T020408Z
UID:7510-1741766400-1741885200@canadianrdn.ca
SUMMARY:Empowering Patients 2025: A Cell and Gene Therapies Summit
DESCRIPTION:This free\, virtual event in two half-day sessions offers educational discussions for foundation leaders\, patients\, and caregivers to better understand #GeneTherapy and #CellTherapy.
URL:https://canadianrdn.ca/event/empowering-patients-2025-a-cell-and-gene-therapies-summit/
CATEGORIES:Conferences,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250316T080000
DTEND;TZID=America/Chicago:20250319T170000
DTSTAMP:20260404T123919
CREATED:20241118T224806Z
LAST-MODIFIED:20241118T224806Z
UID:7007-1742112000-1742403600@canadianrdn.ca
SUMMARY:MDA Clinical and Scientific Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/mda-clinical-and-scientific-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250317T180000
DTEND;TZID=Europe/Paris:20250317T193000
DTSTAMP:20260404T123919
CREATED:20250304T034103Z
LAST-MODIFIED:20250304T034103Z
UID:7620-1742234400-1742239800@canadianrdn.ca
SUMMARY:NMOSD in sub-Saharan Africa
DESCRIPTION:The experts will provide insights and answer questions about the prevalence and incidence of NMOSD\, diagnostics\, available treatments\, immunizations\, clinical trials\, and more. Patients\, caregivers\, clinicians\, researchers\, and advocates from around the world are invited to attend. \nLive participants will have the opportunity to ask questions directly to the experts. The webinar will be recorded and made available for replay on TSF’s YouTube channel.
URL:https://canadianrdn.ca/event/nmosd-in-sub-saharan-africa/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/NMOSD-in-Sub-Saharan-Africa-1280-x-720-px.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250318T150000
DTEND;TZID=America/Chicago:20250318T160000
DTSTAMP:20260404T123919
CREATED:20250318T022101Z
LAST-MODIFIED:20250318T022101Z
UID:7704-1742310000-1742313600@canadianrdn.ca
SUMMARY:Webinar on “Neurogeriatric Aspects of Huntington’s Disease and Chorea”
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/webinar-on-neurogeriatric-aspects-of-huntingtons-disease-and-chorea/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/GlskZSvWkAADp6T.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250318T183000
DTEND;TZID=America/Halifax:20250318T213000
DTSTAMP:20260404T123919
CREATED:20250307T042503Z
LAST-MODIFIED:20250307T042503Z
UID:7694-1742322600-1742333400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 by McGill’s RareDIG
DESCRIPTION:McGill’s RareDIG is excited to welcome you to their seventh edition of Rare Disease Day! Students\, researchers\, physicians\, patients\, and community members\, including the RQMO\, will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) in Montreal on March 18th at 6:30 pm to discuss the challenges faced by people with rare diseases\, research and advocacy efforts. Poster presentations will also be prepared by student researchers with a keen interest in making a difference in the rare disease field. \nPresentations are open to all and free of charge. Presentations will be in English only\, and the event will be held in person only\, with no online broadcast.
URL:https://canadianrdn.ca/event/rare-disease-day-2025-by-mcgills-raredig/
CATEGORIES:Events,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1741092167625.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250320T160000
DTEND;TZID=Europe/Paris:20250320T170000
DTSTAMP:20260404T123919
CREATED:20250121T234252Z
LAST-MODIFIED:20250121T234252Z
UID:7390-1742486400-1742490000@canadianrdn.ca
SUMMARY:Peripheral Nerve Imaging with Focus on Inflammatory Neuropathies
DESCRIPTION:
URL:https://canadianrdn.ca/event/peripheral-nerve-imaging-with-focus-on-inflammatory-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250323T080000
DTEND;TZID=Europe/Paris:20250326T170000
DTSTAMP:20260404T123919
CREATED:20241203T023809Z
LAST-MODIFIED:20241203T023809Z
UID:7113-1742716800-1743008400@canadianrdn.ca
SUMMARY:13th ISNS European Regional Meeting Luxembourg
DESCRIPTION:Newborn Screening LIVE from the Heart of Europe
URL:https://canadianrdn.ca/event/13th-isns-european-regional-meeting-luxembourg/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/12/GSQ18btWkAANoQE.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250325T070000
DTEND;TZID=America/New_York:20250325T150000
DTSTAMP:20260404T123919
CREATED:20250321T031551Z
LAST-MODIFIED:20250321T031551Z
UID:7808-1742886000-1742914800@canadianrdn.ca
SUMMARY:AIHA Awareness Day 2025
DESCRIPTION:AIHA Awareness Day 2025 brings together patients\, care partners\, physicians\, researchers\, industry leaders\, and legislators for virtual presentations that honor and support the journeys of those affected by Autoimmune Hemolytic Anemia and other Acquired Hemolytic Anemias. This day is a powerful call to action to inspire us all to champion hope\, understanding\, and awareness.
URL:https://canadianrdn.ca/event/aiha-awareness-day-2025/
CATEGORIES:Events,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/AIHA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250327T100000
DTEND;TZID=UTC:20250327T110000
DTSTAMP:20260404T123919
CREATED:20250318T022619Z
LAST-MODIFIED:20250318T022619Z
UID:7711-1743069600-1743073200@canadianrdn.ca
SUMMARY:Dragon Claw Friends Webinar - Breaking Down Barriers – Are Patients Aware of Their Autoimmune Disease Treatment Options?
DESCRIPTION:Despite significant advancements in the treatment of autoimmune diseases\, many patients remain unaware of their options. Social media platforms are filled with stories of people struggling with uncontrolled symptoms—so why aren’t these breakthroughs reaching those who need them most? To explore this issue\, Dragon Claw Charity Australia\, in collaboration with CaPPRe\, has conducted research into the awareness gap among patients with rheumatology\, dermatology\, and gastroenterology-related autoimmune diseases.
URL:https://canadianrdn.ca/event/dragon-claw-friends-webinar-breaking-down-barriers-are-patients-aware-of-their-autoimmune-disease-treatment-options/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/1742149835460.jpg
END:VEVENT
END:VCALENDAR