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BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20240925T080000
DTEND;TZID=Asia/Karachi:20240928T203000
DTSTAMP:20260404T102950
CREATED:20240522T223719Z
LAST-MODIFIED:20240531T022742Z
UID:4141-1727251200-1727555400@canadianrdn.ca
SUMMARY:Week in RARE: RARE Advocacy Summit and Health Equity Forum
DESCRIPTION:Global Genes is on the move — Week in RARE is moving to Kansas City\, Missouri in 2024. Week in RARE combines the RARE Health Equity Forum and RARE Advocacy Summit\, in addition to the RARE Champions of Hope awards ceremony and annual membership meetings for Global Advocacy Alliance and RARE Corporate Alliance. This is a unique opportunity to gather and engage rare disease advocates and leaders in the same space for conversation. \nEach year\, Global Genes convenes one of the world’s largest gatherings of rare disease patients\, caregivers\, advocates\, healthcare professionals\, researchers\, partners\, and allies at the RARE Advocacy Summit to work together to build a path to hope. This is an unparalleled opportunity for advocates\, whether new or veteran\, to forge meaningful connections with others in the rare disease community for future collaboration. Sessions provide attendees\, with insights about the latest in rare disease innovations\, best practices for advocating on an individual and organizational level\, and actionable strategies they can take home and implement immediately to improve care and accelerate change. \nThe RARE Health Equity Forum is the first one-of-a-kind event focused on the intersection of rare disease and health equity with an agenda built around creating systemic and organizational change. The conference was developed to better understand the persistent gaps that exist in the rare disease community for underrepresented and/or marginalized patient populations\, including those who are still seeking a diagnosis or are unaffiliated with a disease-specific foundation. \nThis year\, the Summit will be held in Kansas City\, Missouri.
URL:https://canadianrdn.ca/event/week-in-rare-rare-advocacy-summit-and-health-equity-forum/
LOCATION:Kansas City\, Kansas City\, MO\, United States
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240925T150000
DTEND;TZID=America/Chicago:20240925T160000
DTSTAMP:20260404T102950
CREATED:20240819T213654Z
LAST-MODIFIED:20240819T213654Z
UID:5205-1727276400-1727280000@canadianrdn.ca
SUMMARY:Turner syndrome and fertility options
DESCRIPTION:Register now for a presentation by Professor Janielle van der Velden\, paediatric endocrinologist\, Radboudumc\, Amalia Children’s Hospital\, Nijmegen and expert in Turner syndrome. \nEvent chaired by MTG7 chair Hedi Claahsen\, paediatric endocrinologist\, Radboudumc\, Amalia Children’s Hospital\, Nijmegen
URL:https://canadianrdn.ca/event/turner-syndrome-and-fertility-options/
CATEGORIES:Events,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/video-conference-5167472_1280-768x461-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240926T080000
DTEND;TZID=America/New_York:20240928T170000
DTSTAMP:20260404T102950
CREATED:20240801T212559Z
LAST-MODIFIED:20240801T212706Z
UID:4914-1727337600-1727542800@canadianrdn.ca
SUMMARY:2024 Global CMT Research Convention
DESCRIPTION:The CMT Research Foundation unites the voices of patients\, researchers\, pharma companies\, and regulatory agencies to develop treatments for CMT. \nThis event takes place over three days. Thursday and Friday are scientific meetings meant for researchers and scientists working in CMT. Saturday is primarily for patients and their families and caregivers\, providing a chance to interact with the research community that is working so hard on their behalf and to better understand the latest in research progress.
URL:https://canadianrdn.ca/event/2024-global-cmt-research-convention/
LOCATION:Cambridge\, Cambridge\, MA\, United States
CATEGORIES:Conferences,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240926T090000
DTEND;TZID=America/Chicago:20240926T103000
DTSTAMP:20260404T102950
CREATED:20240812T211852Z
LAST-MODIFIED:20240812T211852Z
UID:5106-1727341200-1727346600@canadianrdn.ca
SUMMARY:Autoimmune Encephalitis and Immune-mediated Epilepsies
DESCRIPTION:
URL:https://canadianrdn.ca/event/autoimmune-encephalitis-and-immune-mediated-epilepsies/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/Epicare-1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240929T100000
DTEND;TZID=America/New_York:20240929T150000
DTSTAMP:20260404T102950
CREATED:20240716T204443Z
LAST-MODIFIED:20240823T210828Z
UID:4816-1727604000-1727622000@canadianrdn.ca
SUMMARY:4th Regional Meeting on ITP - PDSA Canada
DESCRIPTION:On September 29\, 2024\, the 4th annual Canadian Regional Meeting will take place in Burlington\, ON\, for patients and families affected by ITP. The event will be held at the Courtyard Marriot. This meeting is a chance to meet other Canadian ITP patients and learn from Canadian ITP experts. If you are interested in registering for the event\, be on the lookout for updates on pdsa.org/Canada or reach out to Jennifer DiRaimo at jdiraimo@pdsa.org. \n  \n 
URL:https://canadianrdn.ca/event/4th-regional-meeting-on-itp-pdsa-canada/
LOCATION:The Courtyard Marriott Burlington\, Burlington\, Ontario\, Canada
CATEGORIES:Events,In Person,National,Patient Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/07/PDSA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241008T080000
DTEND;TZID=America/Chicago:20241008T170000
DTSTAMP:20260404T102950
CREATED:20240917T220608Z
LAST-MODIFIED:20240917T220608Z
UID:5826-1728374400-1728406800@canadianrdn.ca
SUMMARY:PxP Webinar 3 2024: Different opportunities to engage as a patient partner
DESCRIPTION:The webinar series is all about patient engagement in health research\, also known as patient and public involvement (UK) or consumer involvement (Australia). It is worth mentioning that ‘patient engagement’ in health research is distinctly different from signing up to be a research participant. Taking part in a study as a participant (for example trying a new treatment or management program) can be a great way to help advance healthcare\, but the role would not generally include giving input into the research study itself.
URL:https://canadianrdn.ca/event/pxp-webinar-3-2024-different-opportunities-to-engage-as-a-patient-partner/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241008T080000
DTEND;TZID=Europe/Helsinki:20241011T170000
DTSTAMP:20260404T102950
CREATED:20241002T203156Z
LAST-MODIFIED:20241002T203156Z
UID:5961-1728374400-1728666000@canadianrdn.ca
SUMMARY:🔵26èmes Journées Françaises de l’Epilepsie
DESCRIPTION:
URL:https://canadianrdn.ca/event/%f0%9f%94%b526emes-journees-francaises-de-lepilepsie/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241008T120000
DTEND;TZID=America/Chicago:20241008T130000
DTSTAMP:20260404T102950
CREATED:20241001T220753Z
LAST-MODIFIED:20241001T220753Z
UID:5948-1728388800-1728392400@canadianrdn.ca
SUMMARY:Understanding the importance of the social determinants of health for children and youth with disabilities
DESCRIPTION:
URL:https://canadianrdn.ca/event/understanding-the-importance-of-the-social-determinants-of-health-for-children-and-youth-with-disabilities/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241016T150000
DTEND;TZID=America/Chicago:20241016T160000
DTSTAMP:20260404T102950
CREATED:20241001T220430Z
LAST-MODIFIED:20241001T220430Z
UID:5945-1729090800-1729094400@canadianrdn.ca
SUMMARY:Supporting the Mental Health Needs of Rare Disease Patients\, Families\, and Communities
DESCRIPTION:During this session\, Dr. Al Freedman will provide tools and resources for supporting the mental health needs of rare disease patients\, families and communities.
URL:https://canadianrdn.ca/event/supporting-the-mental-health-needs-of-rare-disease-patients-families-and-communities/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241017T080000
DTEND;TZID=Europe/Helsinki:20241018T170000
DTSTAMP:20260404T102950
CREATED:20241002T203337Z
LAST-MODIFIED:20241002T203337Z
UID:5964-1729152000-1729270800@canadianrdn.ca
SUMMARY:EPNS Research Meeting 2024
DESCRIPTION:The EPNS has been organising Research Meetings since 2008. With an aim to enhance research in Paediatric Neurology\, the meeting brings together leaders in the field\, active researchers and young fellows who are interested to join or to set up research projects. It is a forum for researchers in Paediatric Neurology\, where they present their work\, ideas\, results\, creating the possibility for good interaction between researchers and premises for networking\, future collaborative research in Europe and beyond. Experienced professionals and young researchers get together\, in an environment where interactive\, vivid discussions can take place around the presented topics.
URL:https://canadianrdn.ca/event/epns-research-meeting-2024/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/Slide1-3-1024x576-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241017T080000
DTEND;TZID=Europe/Helsinki:20241019T170000
DTSTAMP:20260404T102950
CREATED:20241002T203519Z
LAST-MODIFIED:20241002T203519Z
UID:5967-1729152000-1729357200@canadianrdn.ca
SUMMARY:DIFFERENT FACES OF RARE AND COMPLEX EPILEPSIES
DESCRIPTION:
URL:https://canadianrdn.ca/event/different-faces-of-rare-and-complex-epilepsies/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/hero.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241019T080000
DTEND;TZID=America/Halifax:20241019T170000
DTSTAMP:20260404T102950
CREATED:20240923T212950Z
LAST-MODIFIED:20240923T212950Z
UID:5915-1729324800-1729357200@canadianrdn.ca
SUMMARY:RQMO Educational Day 2024
DESCRIPTION:The 2024 RQMO educational day will focus on a theme that affects many families who have a child with a rare disease: \nThe transition to adulthood of children with differences.
URL:https://canadianrdn.ca/event/rqmo-educational-day-2024/
CATEGORIES:In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/St_Johns:20241020T080000
DTEND;TZID=America/St_Johns:20241022T210000
DTSTAMP:20260404T102950
CREATED:20240730T202537Z
LAST-MODIFIED:20240730T202537Z
UID:4890-1729411200-1729630800@canadianrdn.ca
SUMMARY:#ChildHealthCan2024
DESCRIPTION:Children’s Healthcare Canada and co-hosts\, the Janeway Children’s Hospital Foundation and NL Health Services\, invite you to join us in picturesque Newfoundland and Labrador from October 20-22\, at the St. John’s Convention Centre for their 2024 Annual Conference\, Right-Sizing Health Systems for Kids: Navigating to Brighter Futures. For those unable to attend in person\, a real-time virtual option will also be available. \nChildren’s Healthcare Canada is on a mission to Right-Size Child Healthcare Systems. In 2024\, they will explore how to pave the way for brighter futures for children\, youth\, and families within the healthcare systems. Through the collective efforts of their members\, strategic partners\, and sponsors\, they are dedicated to ensuring that all children and youth in Canada have access to the healthcare services they require in a timely manner. \nWe are thrilled to share that we will be hosting another conference in the Spring of 2025\, giving attendees the opportunity to engage in two conferences within a six-month period! \nJoin us at our upcoming conferences in October 2024 and 2025 as they delve into the concept of right-sizing health systems. Together\, they will discuss what it takes to establish a flexible and responsive system that meets the unique needs of children and youth\, ultimately leading to improved outcomes for all. \nDon’t miss the opportunity to contribute to the conversation on shaping a better future for the health and well-being of our youngest generation. They eagerly anticipate welcoming you to St. John’s\, Newfoundland and Labrador\, as we work towards a brighter tomorrow for our children and families.
URL:https://canadianrdn.ca/event/childhealthcan2024/
LOCATION:St.Johns\, Newfoundland\, 50 New Gower Street\, St.Johns\, Newfoundland\, A1C 1J3\, Canada
CATEGORIES:Caregiver,Conferences,Hybrid,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/07/1707853515557.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241022T100000
DTEND;TZID=Europe/Helsinki:20241025T180000
DTSTAMP:20260404T102950
CREATED:20240523T000415Z
LAST-MODIFIED:20240531T022124Z
UID:4150-1729591200-1729879200@canadianrdn.ca
SUMMARY:World Orphan Drug Congress 2024
DESCRIPTION:The World Orphan Drug Congress is the largest\, most established European meeting dedicated to orphan drugs. This year the conference will take place in Barcelona\, Spain. \nFrom cell & gene therapy\, genetic testing\, market access to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/world-orphan-drug-congress-2024/
LOCATION:Fira de Barcelona Montjuic\, Barcelona\, Spain
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/webp:https://canadianrdn.ca/wp-content/uploads/2024/05/World-Orphan-Drug-Congress-Europe-2024-Logo.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241022T190000
DTEND;TZID=America/Chicago:20241022T200000
DTSTAMP:20260404T102950
CREATED:20240819T213841Z
LAST-MODIFIED:20240819T213841Z
UID:5208-1729623600-1729627200@canadianrdn.ca
SUMMARY:'Neurogeriatric and neurological aspects in palliative care of MSA\, PSP and advanced PD' by Martin Klietz
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/neurogeriatric-and-neurological-aspects-in-palliative-care-of-msa-psp-and-advanced-pd-by-martin-klietz/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/8f22890e-e95f-4472-bce2-c61975661dd0.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241023T140000
DTEND;TZID=Europe/Paris:20241023T153000
DTSTAMP:20260404T102950
CREATED:20240819T214318Z
LAST-MODIFIED:20240819T214318Z
UID:5213-1729692000-1729697400@canadianrdn.ca
SUMMARY:EURORDIS Mental Health & Wellbeing Open Webinar
DESCRIPTION:
URL:https://canadianrdn.ca/event/eurordis-mental-health-wellbeing-open-webinar/
CATEGORIES:Caregiver,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241024T080000
DTEND;TZID=UTC:20241025T170000
DTSTAMP:20260404T102950
CREATED:20240809T212727Z
LAST-MODIFIED:20241004T014606Z
UID:5097-1729756800-1729875600@canadianrdn.ca
SUMMARY:The 4th Annual Canadian Children\, Youth and Communities (CCYC) Health In | Equity Conference
DESCRIPTION:The Canadian Children\, Youth and Communities (CCYC) In | Equity Conference is an interdisciplinary conference designed to bring together pediatric health and allied health care professionals to address health care inequities from birth to adolescence using a family-centred approach. \nThis conference explores health equity topics specific to marginalized communities in the Canadian health care system and offers approaches that can be implemented to address barriers in accessing healthcare for under serviced\, high-risk and economically disadvantaged children and youth.
URL:https://canadianrdn.ca/event/the-4th-annual-canadian-children-youth-and-communities-ccyc-health-in-equity-conference/
CATEGORIES:Caregiver,Conferences,National,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/Youth-Conference.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241024T130000
DTEND;TZID=America/Chicago:20241024T140000
DTSTAMP:20260404T102950
CREATED:20241004T221032Z
LAST-MODIFIED:20241004T221032Z
UID:6029-1729774800-1729778400@canadianrdn.ca
SUMMARY:Epilepsy Treatments in Rett Syndrome
DESCRIPTION:The International Rett Syndrome Foundation (IRSF) invites you to this live RettEd session with a goal of educating families on an approach to the treatment of epilepsy in Rett syndrome
URL:https://canadianrdn.ca/event/epilepsy-treatments-in-rett-syndrome/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241026T090000
DTEND;TZID=America/Chicago:20241026T100000
DTSTAMP:20260404T102950
CREATED:20240924T223454Z
LAST-MODIFIED:20240924T223454Z
UID:5924-1729933200-1729936800@canadianrdn.ca
SUMMARY:L4L Session: Sickle Cell Disease and Complications including Stroke
DESCRIPTION:The SCAGO is excited to announce the October Learning for Life session “Sickle Cell Disease and Complications including Stroke” slated for Sat. October 26th! Attendees will leave the session with a rich knowledge of how to prevent complications of Sickle Cell Disease and improve their health outcomes.
URL:https://canadianrdn.ca/event/l4l-session-sickle-cell-disease-and-complications-including-stroke/
CATEGORIES:Caregiver,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241031
DTEND;VALUE=DATE:20241101
DTSTAMP:20260404T102950
CREATED:20240809T211329Z
LAST-MODIFIED:20240809T211329Z
UID:5094-1730332800-1730419199@canadianrdn.ca
SUMMARY:Celebrating 15 Years of TACT: A Milestone Event in Boston
DESCRIPTION:This year marks the 15th anniversary of the TREAT-NMD Advisory committee for therapeutics (TACT). TACT was set up in 2009 by Prof. Volker Straub and Kate Bushby to provide the neuromuscular community with a unique drug development resource.  The aim is to give transparent and consistent guidance to the neuromuscular research community in order to advance the treatment of neuromuscular diseases more effectively.  Each year the committee meets in the spring and the autumn\, and a bespoke panel is assembled to review up to four applications for advice from organisations developing treatments in NMD.The symposium is designed for industry professionals involved in developing treatments for rare neuromuscular diseases and offers a unique opportunity to learn from past mistakes\, engage with leading experts\, and gain valuable insights into the challenges and opportunities within the field. Attendees can expect interactive sessions and ample opportunities to pose questions to the speakers\, fostering meaningful dialogue and knowledge exchange.
URL:https://canadianrdn.ca/event/celebrating-15-years-of-tact-a-milestone-event-in-boston/
CATEGORIES:Conferences,Healthcare,In Person,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/NMD-1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241031T120000
DTEND;TZID=America/Denver:20241031T130000
DTSTAMP:20260404T102950
CREATED:20240828T231253Z
LAST-MODIFIED:20240828T231253Z
UID:5502-1730376000-1730379600@canadianrdn.ca
SUMMARY:CRDN Townhall – An Update on the Co-Development of our Strategic Plan
DESCRIPTION:Join the Canadian Rare Disease Network (CRDN) – Réseau Canadien des Maladies Rares – for a dynamic townhall to engage with thought leaders\, experts\, and the rare disease community as we explore and shape the future of rare disease care and research in Canada. This townhall will provide an overview of the CRDN and its draft strategic plan. Following the presentation\, there will be an opportunity to ask questions and contribute to the co-development of CRDN’s strategic plan. Whether you are a patient\, caregiver\, researcher\, healthcare provider\, advocate\, or other member of the rare disease community\, your voice is vital in building a more integrated\, inclusive\, and compassionate approach to rare disease care and research in Canada. Register now to be part of this conversation!
URL:https://canadianrdn.ca/event/crdn-townhall-an-update-on-the-co-development-of-our-strategic-plan/
CATEGORIES:Caregiver,Events,National,Patient Focused,Policy,Provincial,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/Town-Hall-Eng.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241102T080000
DTEND;TZID=America/Chicago:20241102T170000
DTSTAMP:20260404T102950
CREATED:20241004T220842Z
LAST-MODIFIED:20241004T220842Z
UID:6025-1730534400-1730566800@canadianrdn.ca
SUMMARY:Virtual Event: Understanding EDS/HSD+ Symptomology\, Diagnoses and Treatment - A Guide for Primary Care Practitioners & Physician Specialists
DESCRIPTION:This Conference is for primary care practitioners and physician specialists who encounter patients with complex health issues and chronic pain in their clinical practice\, which may or may not be related to Ehlers-Danlos Syndromes or hypermobility Spectrum Disorders (EDS/HSD+).
URL:https://canadianrdn.ca/event/virtual-event-understanding-eds-hsd-symptomology-diagnoses-and-treatment-a-guide-for-primary-care-practitioners-physician-specialists/
CATEGORIES:Conferences,Healthcare,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/EDS-scaled.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241102T080000
DTEND;TZID=UTC:20241102T180000
DTSTAMP:20260404T102950
CREATED:20241017T225433Z
LAST-MODIFIED:20241017T225433Z
UID:6108-1730534400-1730570400@canadianrdn.ca
SUMMARY:The Association X Fragile Québec Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/the-association-x-fragile-quebec-conference/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/cropped-logo-axfq_coul_rgb.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241102T090000
DTEND;TZID=America/Chicago:20241102T180000
DTSTAMP:20260404T102950
CREATED:20241017T224822Z
LAST-MODIFIED:20241017T224822Z
UID:6102-1730538000-1730570400@canadianrdn.ca
SUMMARY:EDS ECHO Summit: Diet and Nutrition
DESCRIPTION:The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Diet and Nutrition\, a virtual event held on November 2\, 2024. This event is suitable for community members\, their friends\, families\, and caregivers\, as well as healthcare professionals.  
URL:https://canadianrdn.ca/event/eds-echo-summit-diet-and-nutrition/
CATEGORIES:Conferences,Healthcare,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/Web_banner-2048x634-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241105
DTEND;VALUE=DATE:20241106
DTSTAMP:20260404T102950
CREATED:20240730T020251Z
LAST-MODIFIED:20240730T020251Z
UID:4886-1730764800-1730851199@canadianrdn.ca
SUMMARY:2024 Annual Pain Centre Conference - Building Bridges to Reduce Disparities in Pediatric Pain
DESCRIPTION:
URL:https://canadianrdn.ca/event/2024-annual-pain-centre-conference-building-bridges-to-reduce-disparities-in-pediatric-pain/
LOCATION:toronto\, ontario\, 686 Bay Street\, Toronto\, Ontario\, M5G 0A4\, Canada
CATEGORIES:Healthcare,In Person,National,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241105T170000
DTEND;TZID=UTC:20241105T180000
DTSTAMP:20260404T102950
CREATED:20241031T202009Z
LAST-MODIFIED:20241031T202009Z
UID:6858-1730826000-1730829600@canadianrdn.ca
SUMMARY:FSHD Clinical Updates
DESCRIPTION:Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on FSHD clinical updates. This webinar is for Canadian clinicians\, academics\, researchers\, and trainees with an interest in neuromuscular disease. NMD4C and MDC are providing organizational and technical support. This is an independent clinical/academic webinar with no industry sponsorship or influence. AGENDA: Chair and Speaker: Dr. Lawrence Korngut Speakers: Dr. Patrick Horn: Results of a phase 3 study of losmapimod in the treatment of FSHD Dr. Eva Chin: Catalysing Innovation in FSHD Therapeutics Objectives: – Innovative new therapies on the horizon for FSHD – The role of patient foundations and patient-funded R&D for accelerating novel therapies – Understand the outcome to the REACH study of losmapimod in FSHD The NMD Rounds & Educational Webinars is a self-approved group learning activity (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada. If you have any questions\, please email <research@muscle.ca> If you would like to learn more about NMD4C and to become a member: https://neuromuscularnetwork.ca/become-a-member/
URL:https://canadianrdn.ca/event/fshd-clinical-updates/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241105T190000
DTEND;TZID=America/Chicago:20241105T200000
DTSTAMP:20260404T102950
CREATED:20240819T213202Z
LAST-MODIFIED:20240819T213202Z
UID:5200-1730833200-1730836800@canadianrdn.ca
SUMMARY:Diagnostic approach to childhood-onset chorea' by Juan Darío Ortigoza-Escobar
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/diagnostic-approach-to-childhood-onset-chorea-by-juan-dario-ortigoza-escobar/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/8f22890e-e95f-4472-bce2-c61975661dd0.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241106T123000
DTEND;TZID=America/Chicago:20241106T133000
DTSTAMP:20260404T102950
CREATED:20241031T212323Z
LAST-MODIFIED:20241031T212323Z
UID:6877-1730896200-1730899800@canadianrdn.ca
SUMMARY:CF Canada Community Townhall
DESCRIPTION:Register today! Join the Community Townhall Meeting on Wednesday\, November 6\, 12:30PM EST/ 9:30 AM PST. You will hear from CF Canada’s President and CEO Kelly Grover on the latest updates in CF research and care\, be inspired by stories of how Canadians CF community members are shaping a future without limits and learn how you can help.
URL:https://canadianrdn.ca/event/cf-canada-community-townhall/
CATEGORIES:Events,Healthcare,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/CFcan_bil_rgb_TM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241107T080000
DTEND;TZID=America/Denver:20241107T090000
DTSTAMP:20260404T102950
CREATED:20240830T231441Z
LAST-MODIFIED:20240830T231441Z
UID:5531-1730966400-1730970000@canadianrdn.ca
SUMMARY:IPNA Webinar: 2024 ISPD guidelines on peritonitis and exit site infection in children receiving peritoneal dialysis
DESCRIPTION:
URL:https://canadianrdn.ca/event/ipna-webinar-2024-ispd-guidelines-on-peritonitis-and-exit-site-infection-in-children-receiving-peritoneal-dialysis/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241107T190000
DTEND;TZID=America/New_York:20241107T200000
DTSTAMP:20260404T102950
CREATED:20241106T224244Z
LAST-MODIFIED:20241106T224244Z
UID:6955-1731006000-1731009600@canadianrdn.ca
SUMMARY:Nutrition for your Energy and Health
DESCRIPTION:
URL:https://canadianrdn.ca/event/nutrition-for-your-energy-and-health/
CATEGORIES:Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
END:VCALENDAR