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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260618T083000
DTEND;TZID=America/Toronto:20260618T170000
DTSTAMP:20260526T020611Z
CREATED:20260526T020611Z
LAST-MODIFIED:20260526T020611Z
UID:10676-1781771400-1781802000@canadianrdn.ca
SUMMARY:4th Edition of the Sickle Cell Awareness Day Education Conference
DESCRIPTION:The Sickle Cell Disease Association of Canada (SCDAC)\, in partnership with the Interdisciplinary Centre for Black Health (ICBH)\, is bringing the sickle cell community together at the University of Ottawa for a one-day gathering of learning\, collaboration and action. \nThis conference brings together patients\, families\, healthcare professionals\, researchers\, advocates\, educators and caregivers.
URL:https://canadianrdn.ca/event/4th-edition-of-the-sickle-cell-awareness-day-education-conference/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779405047460.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260623T120000
DTEND;TZID=America/Toronto:20260623T130000
DTSTAMP:20260604T174200Z
CREATED:20260604T144221Z
LAST-MODIFIED:20260604T174200Z
UID:10842-1782216000-1782219600@canadianrdn.ca
SUMMARY:CORD Webinar: From Genomic Testing Readiness to Rare Disease System Readiness
DESCRIPTION:Join Durhane Wong-Rieger (CORD) and Don Husereau (University of Ottawa) for a discussion on moving from genomic testing readiness to rare disease system readiness and shaping the next phase of Canada’s Rare Disease Strategy
URL:https://canadianrdn.ca/event/cord-webinar-from-genomic-testing-readiness-to-rare-disease-system-readiness/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1780406794177-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260626T070000
DTEND;TZID=America/Edmonton:20260626T080000
DTSTAMP:20260624T182340Z
CREATED:20260624T182340Z
LAST-MODIFIED:20260624T182340Z
UID:11079-1782457200-1782460800@canadianrdn.ca
SUMMARY:RARE REV-inar episode 027 - Living with systemic mastocytosis
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-rev-inar-episode-027-living-with-systemic-mastocytosis/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1782115230643.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260627T130000
DTEND;TZID=America/Halifax:20260627T140000
DTSTAMP:20260624T183025Z
CREATED:20260624T183025Z
LAST-MODIFIED:20260624T183025Z
UID:11088-1782565200-1782568800@canadianrdn.ca
SUMMARY:RareKids-CAN-Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
DESCRIPTION:Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. \nThese free sessions are designed for families\, caregivers\, and community members interested in learning more about pediatric rare diseases\, the diagnostic journey\, available supports\, patient advocacy resources\, and opportunities to participate in research and clinical trials. \n📍 Multiple Halifax Public Library locations throughout June and August
URL:https://canadianrdn.ca/event/rarekids-can-kids-rare-disorders-awareness-supporting-early-recognition-families-in-nova-scotia/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781261330862.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260709T120000
DTEND;TZID=America/Toronto:20260709T130000
DTSTAMP:20260624T182155Z
CREATED:20260624T182155Z
LAST-MODIFIED:20260624T182155Z
UID:11076-1783598400-1783602000@canadianrdn.ca
SUMMARY:IMPaCT Webinar-Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials
DESCRIPTION:Register today for IMPaCT’s next webinar with Ami Baba\, PhD\, where she’ll discuss Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials. \n✅ Identify who needs trial reporting guidelines\n✅ Introduce pediatric-specific reporting guideline extensions for trials and systematic reviews\n✅ Describe how SPIRIT-C\, CONSORT-C\, TIDieR-C\, and PRISMA-C can impact both upstream and downstream research processes
URL:https://canadianrdn.ca/event/impact-webinar-responsible-research-practices-how-reporting-guidelines-can-improve-child-health-trials/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781796311513.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260714T080000
DTEND;TZID=America/Toronto:20260715T170000
DTSTAMP:20260624T183417Z
CREATED:20260624T183417Z
LAST-MODIFIED:20260624T183417Z
UID:11093-1784016000-1784134800@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario-Annual Summit 2026 Registration
DESCRIPTION:Join SCAGO for an educational two-day summit bringing together researchers\, clinicians\, advocates\, and community members all working to transform sickle cell care.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-annual-summit-2026-registration/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781618228846.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260716T100000
DTEND;TZID=America/Edmonton:20260716T120000
DTSTAMP:20260624T182800Z
CREATED:20260624T182800Z
LAST-MODIFIED:20260624T182800Z
UID:11085-1784196000-1784203200@canadianrdn.ca
SUMMARY:Kabuki Syndrome Foundation Live Webinar: Together for Progress
DESCRIPTION:Join the Kabuki Syndrome Foundation at their upcoming live webinar\, Together for Progress\, on July 16\, 2026. You can look forward to the latest updates on treatment development\, learn about new resources for families and clinicians\, and discover what’s next in their global efforts to improve the health of everyone with Kabuki syndrome.
URL:https://canadianrdn.ca/event/kabuki-syndrome-foundation-live-webinar-together-for-progress/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781198318313.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260624T182608Z
CREATED:20260624T182608Z
LAST-MODIFIED:20260624T182608Z
UID:11082-1784721600-1784725200@canadianrdn.ca
SUMMARY:RareKids-CAN-Delivering Gene Therapy Trials: Understanding Clinical Workflows\, Operations\, and the Patient Journey
DESCRIPTION:Join RareKid-CAN on July 22nd for their second webinar in our ATMP series for research coordinators\, nurses\, pharmacists\, investigators\, and other clinical research professionals. \nTheir speaker Ana Stosic will provide a practical overview of the clinical workflows involved in delivering gene therapy clinical trials for pediatric rare diseases.
URL:https://canadianrdn.ca/event/rarekids-can-delivering-gene-therapy-trials-understanding-clinical-workflows-operations-and-the-patient-journey/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1782308336701.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260829T100000
DTEND;TZID=America/Halifax:20260829T110000
DTSTAMP:20260624T183145Z
CREATED:20260624T183145Z
LAST-MODIFIED:20260624T183145Z
UID:11091-1787997600-1788001200@canadianrdn.ca
SUMMARY:RareKids-CAN-Kids Rare Disorders Awareness: Supporting Early Recognition & Families in Nova Scotia
DESCRIPTION:Join RareKids-CAN Clinical Trial Navigator Ameen Abdelmajid of the IWK Health for a series of community information sessions in partnership with Halifax Public Libraries. \nThese free sessions are designed for families\, caregivers\, and community members interested in learning more about pediatric rare diseases\, the diagnostic journey\, available supports\, patient advocacy resources\, and opportunities to participate in research and clinical trials. \n📍 Multiple Halifax Public Library locations throughout June and August
URL:https://canadianrdn.ca/event/rarekids-can-kids-rare-disorders-awareness-supporting-early-recognition-families-in-nova-scotia-2/
CATEGORIES:Caregiver,Healthcare,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781261330862.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260918T080000
DTEND;TZID=America/Toronto:20260919T160000
DTSTAMP:20260624T184340Z
CREATED:20260624T184340Z
LAST-MODIFIED:20260624T184340Z
UID:11099-1789718400-1789833600@canadianrdn.ca
SUMMARY:Cavernous Malformation Canada Clinical & Scientific Symposium
DESCRIPTION:Hosted by the driven team at Cavernous Malformation Canada (CMC) and their Clinical and Scientific Advisory Board\, the 2026 Cavernous Malformation Clinical and Scientific Symposium will be informative not only for the experienced but also those early in their understanding of this disease.
URL:https://canadianrdn.ca/event/cavernous-malformation-canada-clinical-scientific-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/06/4b14bd73-3e6c-41b0-9f2c-ac58e0add962.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260918T080000
DTEND;TZID=America/Toronto:20260919T170000
DTSTAMP:20260624T184512Z
CREATED:20260624T184512Z
LAST-MODIFIED:20260624T184512Z
UID:11102-1789718400-1789837200@canadianrdn.ca
SUMMARY:Cavernous Malformation Canada Patient & Family Conference
DESCRIPTION:Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers\, interactive opportunities between patients and clinicians\, and meaningful moments of connection and sharing with others impacted by cavernous malformation. 
URL:https://canadianrdn.ca/event/cavernous-malformation-canada-patient-family-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/06/ce2b7ab4-753a-41b5-80ce-de2f738e0aaf.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20260924T080000
DTEND;TZID=America/Vancouver:20260926T170000
DTSTAMP:20260624T183648Z
CREATED:20260624T183634Z
LAST-MODIFIED:20260624T183648Z
UID:11096-1790236800-1790442000@canadianrdn.ca
SUMMARY:Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
DESCRIPTION:🔬 Thursday\, September 24\nCPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals\, researchers\, and invited network members. \n🩺 Friday\, September 25\nScientific Sessions — a full day dedicated to the latest PH research\, clinical advancements\, and collaboration among healthcare professionals and researchers. The day concludes with the Patient & Family Symposium Welcome Reception\, where the entire PH community comes together. \n💜 Saturday\, September 26\nPatient & Family Symposium — designed specifically for PH patients\, caregivers\, family members\, and supporters. A day of education\, inspiration\, connection\, and community.
URL:https://canadianrdn.ca/event/pulmonary-hypertension-association-canadas-ph-community-conference-scientific-sessions/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1780531229165.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20250812T194434Z
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261018T080000
DTEND;TZID=America/Edmonton:20261020T170000
DTSTAMP:20251113T224713Z
CREATED:20251113T224713Z
LAST-MODIFIED:20251113T224713Z
UID:9153-1792310400-1792515600@canadianrdn.ca
SUMMARY:Kids Brain Health Network (KBHN) Annual Conference
DESCRIPTION:Save the Date! \nKids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference\, happening October 18–20\, 2026\, in Calgary\, Alberta!
URL:https://canadianrdn.ca/event/kids-brain-health-network-kbhn-annual-conference/
CATEGORIES:Caregiver,Conferences,In Person,Industry,National,Patient Focused,Provincial,Research Focused
END:VEVENT
END:VCALENDAR