Rare Disease Day
2025-02-28
Rare Disease Day is the globally coordinated movement on rare diseases, initiated in 2008 and led by EURORDIS and its 70+ national alliance patient organization partners working towards
equity in social opportunity, healthcare, and access to therapies for people living with a rare disease.
Rare Disease Day is held on the last day of February, the rarest day of the year, to highlight the challenges faced by 300 million people worldwide living with a rare disease. Over the last 17 years,
Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, multicultural, and multi-lingual, but united in purpose. Rare Disease Day speaks for 300 million people worldwide living with a rare disease, as well as their families and carers. Events and activities take place in over 100 countries, banging the drum and
building momentum for the rare disease community. The campaign works in partnership with individuals and patient groups, policymakers, governments, foundations, NGOs, pharmaceutical and biotech companies around the world to raise awareness of rare diseases. It uses innovative approaches to build community, create empathy and advocacy for those with rare diseases.

Rare Disease Day 2025 University of Alberta
2025-02-28 08:00 - 16:00 (America/Denver)

Rare Disease Day and World Birth Defects Symposium
2025-02-28 09:00 - 13:00 (America/New_York)
Join on February 28, 2025, for the Rare Disease Day and World Birth Deficit Symposium, an event dedicated to raising awareness and fostering meaningful discussions on the challenges faced by individuals and families affected by rare diseases. This symposium will bring together patients, caregivers, healthcare professionals, and community advocates to share experiences, promote equity, and drive change.

CORD Rare Disease Day 2025 Webinar
2025-02-28 12:00 - 13:00 (America/New_York)
CORD is hosting a special webinar on Friday, Feb 28 from 12-1pm EST so that everyone from across Canada can tune in and help put that funding to work. Here’s what they’ll discuss: – Ending the diagnostic odyssey with CHEO’s ThinkRare – Treating and tracking rare diseases at BC Cancer – Caring for complex kids and adults at BC Children’s Hospital – The challenge of treating adults with SMA in Manitoba – Measuring the socioeconomic impact of rare diseases on families and health systems

Celebrate Rare Disease Day: Advancing Clinical Trials Together
2025-02-28 12:00 - 13:30 (Europe/Paris)
On February 28th, in recognition of Rare Disease Day, the European project DREAMS (www.dreamshorizon.eu) invites you to a thought-provoking online webinar: “Clinical Trials in Focus: Innovations and Patient Perspectives in Rare Diseases”. Join leading experts as they explore advancements in clinical trial methodologies, outcome measures, and lessons learned from research in muscular disorders.
