BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Canadian Rare Disease Network - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Toronto
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Edmonton
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20240310T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20241103T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20250309T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20251102T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20260308T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20261101T080000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Denver
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20240310T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20241103T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20250309T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20251102T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20260308T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20261101T080000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250708T170000
DTEND;TZID=America/Toronto:20250708T180000
DTSTAMP:20260424T021005
CREATED:20250625T030048Z
LAST-MODIFIED:20250625T030100Z
UID:8481-1751994000-1751997600@canadianrdn.ca
SUMMARY:NMD Rounds & Educational Webinars-Bulbar impact of SMA: approach to assessment and treatment
DESCRIPTION:NMD4C and MDC are pleased to invite you to a CPD-accredited webinar Bulbar impact of SMA: approach to assessment and treatment. NMD4C and MDC are providing organizational and technical support. This webinar is supported by Novartis through a restricted educational sponsorship with no involvement or influence on program content.
URL:https://canadianrdn.ca/event/nmd-rounds-educational-webinars-bulbar-impact-of-sma-approach-to-assessment-and-treatment/
CATEGORIES:Healthcare,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250719T100000
DTEND;TZID=America/Toronto:20250719T140000
DTSTAMP:20260424T021005
CREATED:20250625T024315Z
LAST-MODIFIED:20250625T024315Z
UID:8472-1752919200-1752933600@canadianrdn.ca
SUMMARY:CANAIRI Co-Design Workshop
DESCRIPTION:This workshop will co-design resources to support patients and families navigating the era of AI in medicine! The workshop is open to all and we welcome youth\, adults\, and families!
URL:https://canadianrdn.ca/event/canairi-co-design-workshop/
CATEGORIES:Caregiver,Healthcare,Hybrid,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250721T070000
DTEND;TZID=America/Edmonton:20250721T080000
DTSTAMP:20260424T021005
CREATED:20250625T032740Z
LAST-MODIFIED:20250625T032740Z
UID:8487-1753081200-1753084800@canadianrdn.ca
SUMMARY:Rare Disease Day 2026 - Concept Introduction
DESCRIPTION:Company representatives and Rare Disease Day National Partners are warmly invited to this introductory session unveiling the vision for the 2026 campaign.
URL:https://canadianrdn.ca/event/rare-disease-day-2026-concept-introduction/
CATEGORIES:International,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/Zoom-Events-RDD-Feature-Image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250724T080000
DTEND;TZID=America/Denver:20250727T170000
DTSTAMP:20260424T021005
CREATED:20250321T031237Z
LAST-MODIFIED:20250321T031237Z
UID:7805-1753344000-1753635600@canadianrdn.ca
SUMMARY:The 16th International CHARGE Syndrome Conference\, “The Grand Adventure\,”
DESCRIPTION:
URL:https://canadianrdn.ca/event/the-16th-international-charge-syndrome-conference-the-grand-adventure/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250725T080000
DTEND;TZID=America/Edmonton:20250727T170000
DTSTAMP:20260424T021005
CREATED:20250625T033108Z
LAST-MODIFIED:20250625T033108Z
UID:8490-1753430400-1753635600@canadianrdn.ca
SUMMARY:Platelet Disorder Support Association (PDSA)-Immune Thrombocytopenia Conference 2025
DESCRIPTION:This year\, PDSA will host its 25th annual update on immune thrombocytopenia (ITP) for patients\, caregivers and the medical community in Philadelphia\, PA July 25-27. This year’s patient conference will take place at The Logan\, Philadelphia\, in the Center City District.
URL:https://canadianrdn.ca/event/platelet-disorder-support-association-pdsa-immune-thrombocytopenia-conference-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,International,Patient Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250730T120000
DTEND;TZID=America/Edmonton:20250730T130000
DTSTAMP:20260424T021005
CREATED:20250722T203941Z
LAST-MODIFIED:20250722T203941Z
UID:8584-1753876800-1753880400@canadianrdn.ca
SUMMARY:Community of Practice- Beyond Inclusion: Co-Designing with Lived Experience to Build Meaningful Partnerships in Stroke Research
DESCRIPTION:📢 On July 30th from 12:00 – 1:00 pm EST Emine Kocabas\, Ashley Berger\, & Vishma Sookdeo will be speaking about “Beyond Inclusion: Co-Designing with Lived Experience to Build Meaningful Partnerships in Stroke Research”.
URL:https://canadianrdn.ca/event/community-of-practice-beyond-inclusion-co-designing-with-lived-experience-to-build-meaningful-partnerships-in-stroke-research/
CATEGORIES:Healthcare,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
END:VCALENDAR