Healthy Living and Aortopathy
2026-01-22 19:00 - 20:00 (America/Toronto)
Save the date for your upcoming webinar with Dr. Nathaniel Moulson, focused on exercise. This webinar will take place on January 22, 2026 at 7:00pm, registration details to be released in the coming weeks.

PiPER Community of Practice for 2026
2026-01-28 12:00 - 13:00 (America/Toronto)
Save the date on *January 28th 2026* from 12-1 pm for a dynamic session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials ”.

Canada's Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
2026-01-28 14:00 - 15:30 (America/Toronto)
Join CDA’s preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process.
You will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews.

Defeat Duchenne Canada-Research Grant Announcement 2026
2026-01-29 18:00 - 19:30 (America/Toronto)
Mark your calendar for Thursday, January 29, 2026, from 6:00–7:30 p.m. ET, and join Defeat Duchenne Canada online for an evening celebrating the incredible progress of their community and the promise of the future.

Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life - Clinical Trials 101 What Every Patient Should Know Before Enrolling
2026-01-31 11:00 - 12:30 (America/Edmonton)
Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process, benefits, and important considerations before enrolling.

RQMO: 1st Zebinary of the Month of Zebra 2026
2026-02-03 10:00 - 11:00 (America/Edmonton)
1st Zebra of the Month of Zebrier 2026 of the RQMO
Speakers:
– Dr. Roberta, La Piana, Assistant Professor, Department of Neurology and Neurosurgery, McGill University
– Dr. Thomas Durcan, Associate Professor, Department of Neurology and Neurosurgery, McGill University

D2R-Webinar | Anti-Black Racism in Health Research
2026-02-04 12:00 - 13:00 (America/Edmonton)
In honour of Black History Month, D2R invites you to an interactive webinar on “Anti-Black Racism in Health Research.” This session will explore the history of slavery in Canada, trace the evolution of anti-Black racism within Canadian health research, and highlight practices and strategies to address and counter these challenges.

RareKids-CAN- From Evidence to Access: Advancing Pediatric Rare Disease Drug Availability in Canada
2026-02-04 15:00 - 16:00 (America/Edmonton)
Join RareKids-CAN for an in-depth discussion on the evolving role of health technology assessment and reimbursement policy in improving access to pediatric rare disease care.

RQMO: 2nd Zebinary of the Month of Zebra 2026
2026-02-05 10:00 - 12:00 (America/Edmonton)
Speaker: Dr. André Megarbane, Professor, Department of Human Genetics, lebanese American University, Beirut, Lebanon

OSSU World Café Conversations Series:"Find and Seek: Conversations on Matching Researchers and Lived Experience Partners"
2026-02-06 10:00 - 12:00 (America/Edmonton)
OSSU World Café Conversations series with Maureen Smith🇨🇦, Aleisha F. and supported by Ontario SPOR SUPPORT Unit (OSSU):
“Find and Seek: Conversations on Matching Researchers and Lived Experience Partners”

RQMO: 3rd Zebinary of the Month of Zebra 2026
2026-02-09 10:00 - 12:00 (America/Edmonton)
3rd Zebinary of the Month of Zebrier 2026
Speaker: – David Cohen, Professor, Faculty of Health, Sorbonne University, Paris, France

Community Engagement Series Event: From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network
2026-02-10 10:00 - 12:00 (America/Edmonton)
Join the upcoming Community Engagement Series event: From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network. Hear from Maureen Smith🇨🇦 and Beth Potter about how to evaluate engagement beyond process metrics, and what this means for future patient engagement practice and evaluation.

RQMO: 4th Zebinary of the Month of Zebra 2026
2026-02-11 10:00 - 12:00 (America/Edmonton)
Speaker: – Jacques P. Tremblay, Ph.D, Full Professor, Department of Molecular Medicine, Faculty of Medicine, Université Laval

Ataxia Canada Webinar- Income Tax Reduction and Estate Tax Elimination
2026-02-11 12:30 - 13:30 (America/Toronto)
You will learn:
➡️ To minimize or even Eliminate Taxes on your estate.
➡️ How to Change your Estate Plans in this virtual environment.
➡️ To Avoid Double Taxation on your “Red” retirement accounts.
➡️ To Bypass paying upfront Capital Gains Taxes when selling your investments.
➡️ To convert assets into an Income You Can’t Outlive and leave a Lasting Legacy.
➡️ How our government wants you to Save Taxes and Leave More To Charity.

RQMO: 5th Zebinary of the Month of Zebra 2026
2026-02-16 10:00 - 12:00 (America/Edmonton)
Speakers: – Christine Yergeau, Msc, RARE Network Manager. QC
– Lilit Antonyan, Research Pillars Coordinator at RARe.qc

Cassie&Friends: Rare Talks-When Answers Take Time: Real Lives, Rare Disease, and Support That Matters
2026-02-17 17:00 - 18:30 (America/Edmonton)
Held during Rare Disease Month, this annual virtual event brings together families, youth, and the broader childhood rheumatic disease community to make rare experiences visible—and to remind families that they are not alone. Through shared stories, trusted information, and meaningful connection, RareTalks offers support for every stage of the journey, from first symptoms to long-term care.

RQMO: 6th Zebinary of the Month of Zebra 2026
2026-02-19 10:00 - 12:00 (America/Edmonton)
Speaker: – Josée Chénard, TS, PH.d, Professor, Department of Social Work, Université du Québec en Outaouais

Canada's Drug Agency: How Global Policy Changes Are Reshaping HTA for Rare Diseases
2026-02-19 13:00 - 14:30 (America/Edmonton)
HTAi’s Rare Disease Interest Group will celebrate 2026 Rare Disease Day with a conversation on how global policy changes are reshaping HTA processes for rare disease technologies. The webinar aims to update the global HTA community on recent advances in rare disease policy, particularly following the adoption of the World Health Assembly (WHA) Resolution on Rare Diseases, and to explore its implications for HTA systems globally. The multi-stakeholder expert panel will discuss how global policy commitments can translate into meaningful regional, national, and local action within HTA. This event is the inaugural webinar in a year-long webinar series, catalyzing discussions on how legislative changes in health systems are reshaping HTA for rare diseases through regional real-world case studies and examples.

RQMO: 7th Zebinary of the Month of Zebra 2026
2026-02-24 10:00 - 12:00 (America/Edmonton)
Speakers: – Kim Auclair, consultant, speaker and blogger
– Elsie Côté, Founder and President of Sirote-moi

PhenoTips: Matchmaking for Rare Disease Diagnosis
2026-02-25 10:00 - 11:00 (America/Edmonton)
Matchmaking for Rare Disease Diagnosis is a panel discussion and interactive Q&A with patient matchmaking pioneers, Dr. Nara Sobreira, Matthew Osmond, CGC, and Dr. Orion Buske.

RQMO: Last Zebinary of the Month of Zebra 2026
2026-02-26 10:00 - 12:00 (America/Edmonton)
Speaker: – François Bernier, entrepreneur, strategist, co-founder of Horizon b2b

CORD Rare Disease Day 2026 Webinar
2026-02-27 10:00 - 11:00 (America/Edmonton)
ACCELERATED ACCESS TODAY, DEMONSTRATING VALUE FOR 2026 AND BEYOND
This Rare Disease Day, join CORD for a 1-hour webinar marking the first 1.5 years of Canada’s Rare Disease Drug Strategy (RDDS). The session celebrates progress in accelerated access while focusing on what comes next: demonstrating value.

RQMO 2026 International Rare Disease Day
2026-02-28 10:00 - 16:00 (America/Toronto)
On February 28th, from 10 a.m. to 4 p.m., we invite you to participate in the RQMO 2026 International Rare Disease Day. The event will be held in hybrid mode, meaning that it will be possible to attend in person or virtually.

Stem Cell Network: Clinical Translation in Cell and Gene Therapy
2026-03-04 11:00 - 12:30 (America/Edmonton)
Stem Cell Network and BioCanRx are pleased to present this webinar on clinical translation, offering trainees, early-career investigators, and researchers a high-level introduction to how cell and gene therapies (including regenerative medicine and cancer biotherapeutics) move from the lab to clinical trials.

McMaster University Workshop-Measuring the Impacts of Engaging People with Lived and Living Experience
2026-03-06 09:00 - 16:00 (America/Toronto)
Join this in-person workshop focused on how to measure and evaluate the impacts of engaging people with lived and living experience in health research, systems, and policy.
The session will share practical approaches, real-world case examples, and lessons learned from engagement evaluation. Participants will learn how to select and apply evaluation tools to measure impact and address common challenges.

RareKids-CAN: Rare Methods Workshop Series: Eliciting prior distributions for rare disease clinical trials
2026-03-11 13:00 - 14:00 (America/Toronto)
Are you a rare disease methodologist, investigator or trainee? Join RareKids-CAN and speaker Arlene Jiang for a Rare Methods Workshop on expert elicitation in rare disease research on March 11.
Learn what expert elicitation is, how it can support rare disease clinical design and how expert input can be used to construct a prior distribution.

CAN-Child: F-words Foundations Workshop
2026-03-12 10:00 - 13:00 (America/Edmonton)
Join CAN-Child’s interactive 3-hour F-words Foundations Workshop and explore how to bring the F-words for Child Development—Functioning, Family, Fitness, Fun, Friends, and Future—into everyday practice and life!

PiPER Community of Practice: Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience
2026-03-25 10:00 - 11:00 (America/Edmonton)
Save the date on *March 25th 2026* for a dynamic session entitled “Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience”.

RARE.Qc's Scientific Day and Annual General Meeting
2026-03-27 08:00 - 17:00 (America/Toronto)
The event will take place in the Cruess Amphitheatre and the Elspeth McConnell Atrium at the Research Institute of the McGill University Health Centre (RI-MUHC) in Montréal, and will also be offered in a virtual format.

CPD-Accredited Webinar | Duchenne Muscular Dystrophy in the New Steroid Age: Practical Considerations
2026-04-07 15:00 - 17:00 (America/Edmonton)
NMD4C, MDC, and Defeat Duchenne Canada are pleased to invite you to a CPD-accredited webinar on Duchenne Muscular Dystrophy in the Evolving Steroid Era: Practical Neuromuscular and Endocrine Considerations. This CPD-accredited webinar is primarily targeted at Canadian clinicians, academics and trainees with an interest in neuromuscular diseases.
