Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
2025-11-22 11:00 - 16:00 (America/Toronto)
Bringing together neuroscience researchers, patients, advocates and caregivers to highlight brain health research in an accessible format.

CORD: Rare Disease Conference Fall 2025
2025-11-25 08:00 - 2025-11-26 17:00 (America/Toronto)

Hope on the Horizon: Trials, Treatments and Therapies for DMD, DM1 & MG
2025-11-26 18:00 - 2025-11-28 19:00 (America/Toronto)
Muscular Dystrophy Canada in partnership with the Neuromuscular Disease Network for Canada (NMD4C)’s Clinical Trial Network is excited to host three Hope on the Horizon events!
These webinars are geared towards family members and people living with NMDs.
Join us from November 26th – 29th to learn more about the treatment and clinical trial landscape for Duchenne Muscular Dystrophy, Myotonic Dystrophy Type 1 and Myasthenia Gravis from key experts in the field!

Can-Child Webinar: F-words Foundations Workshop
2025-12-04 09:30 - 12:30 (America/Toronto)
Interactive 3-hour F-words Foundations Workshop to explore how to bring the F-words for Child Development—Functioning, Family, Fitness, Fun, Friends, and Future—into everyday practice and life!

CARELeuko Symposium 2025
2025-12-05 08:00 - 17:00 (America/Toronto)
The Canadian Association for Research Excellence in Leukodystrophy (CARELeuko) is excited to welcome you to the 2025 CARELeuko Symposium: Uniting Canada’s Leukodystrophy Community to Drive Collaboration and Accelerate Research and Care!
The 2025 CARELeuko Symposium is taking place on Friday, December 5, 2025, at the Research Institute of the McGill University Health Centre in Montreal, Quebec, Canada.

STAGE International Speaker Seminar Series (ISSS)-Laura Arbour
2025-12-05 12:30 - 13:30 (America/Edmonton)
Reducing Genetic and Genomic Health Disparities for Indigenous People of Canada: Insights from the Silent Genomes Project

FA Together: Learn. Share. Connect. mini-regional conference in Calgary
2025-12-08 17:00 - 19:00 (America/Edmonton)

Every Relapse Matters: The Evolving NMOSD & MOGAD Treatment Landscape in Canada
2025-12-11 17:30 - 18:30 (America/Edmonton)
The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday, December 11th at 7:30 PM EST. This session will explore the evolving treatment options for individuals living with AQP4+ NMOSD, seronegative NMOSD, and MOGAD in Canada.

Canadian Fragile X Research Rounds: Protein Replacement Therapy for Fragile X Syndrome
2025-12-12 12:00 - 14:00 (America/Edmonton)

Duchenne Patient Academy 2025
2025-12-13 08:00 - 2025-12-14 17:00 (America/Edmonton)

SMA Together: Learn. Share. Connect. A Mini-Regional Conference - Toronto
2025-12-13 11:00 - 14:00 (America/Toronto)
The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them, in-person on December 13 to learn about the latest updates in spinal muscular atrophy, including:

CanPKU+: Advocacy in Action Update Sessions
2026-01-14 19:00 - 20:00 (America/Edmonton)
Join the Advocacy in Action Update Sessions with John Adams in order to hear updates on various campaigns and what needs to be done to move things forward for the PKU community.

Knowledge Sharing Sessions – Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy.
2026-01-19 19:00 - 20:00 (America/Toronto)
Dr. Geoff Frost will be leading NMD4C’s first Physiatrist Community of Practice (CoP) Knowledge Sharing Session. He will present a recent article authored by Iraqi et al. on a work conducted in Canada by fellow NMD4C members: “Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy.”
The session will take place on January 19th, 2026 at 7:00 PM EST. To register, please contact CoP manager Maria Masnata. Once registered, Maria will send a calendar invite so you can easily save the date. We are looking forward to seeing you there!

Healthy Living and Aortopathy
2026-01-22 19:00 - 20:00 (America/Toronto)
Save the date for your upcoming webinar with Dr. Nathaniel Moulson, focused on exercise. This webinar will take place on January 22, 2026 at 7:00pm, registration details to be released in the coming weeks.

PiPER Community of Practice for 2026
2026-01-28 12:00 - 13:00 (America/Toronto)
Save the date on *January 28th 2026* from 12-1 pm for a dynamic session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials ”.

Canada's Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
2026-01-28 14:00 - 15:30 (America/Toronto)
Join CDA’s preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process.
You will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews.

Defeat Duchenne Canada-Research Grant Announcement 2026
2026-01-29 18:00 - 19:30 (America/Toronto)
Mark your calendar for Thursday, January 29, 2026, from 6:00–7:30 p.m. ET, and join Defeat Duchenne Canada online for an evening celebrating the incredible progress of their community and the promise of the future.

Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life - Clinical Trials 101 What Every Patient Should Know Before Enrolling
2026-01-31 11:00 - 12:30 (America/Edmonton)
Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process, benefits, and important considerations before enrolling.

RQMO: 1st Zebinary of the Month of Zebra 2026
2026-02-03 10:00 - 11:00 (America/Edmonton)
1st Zebra of the Month of Zebrier 2026 of the RQMO
Speakers:
– Dr. Roberta, La Piana, Assistant Professor, Department of Neurology and Neurosurgery, McGill University
– Dr. Thomas Durcan, Associate Professor, Department of Neurology and Neurosurgery, McGill University

D2R-Webinar | Anti-Black Racism in Health Research
2026-02-04 12:00 - 13:00 (America/Edmonton)
In honour of Black History Month, D2R invites you to an interactive webinar on “Anti-Black Racism in Health Research.” This session will explore the history of slavery in Canada, trace the evolution of anti-Black racism within Canadian health research, and highlight practices and strategies to address and counter these challenges.

RareKids-CAN- From Evidence to Access: Advancing Pediatric Rare Disease Drug Availability in Canada
2026-02-04 15:00 - 16:00 (America/Edmonton)
Join RareKids-CAN for an in-depth discussion on the evolving role of health technology assessment and reimbursement policy in improving access to pediatric rare disease care.

RQMO: 2nd Zebinary of the Month of Zebra 2026
2026-02-05 10:00 - 12:00 (America/Edmonton)
Speaker: Dr. André Megarbane, Professor, Department of Human Genetics, lebanese American University, Beirut, Lebanon

OSSU World Café Conversations Series:"Find and Seek: Conversations on Matching Researchers and Lived Experience Partners"
2026-02-06 10:00 - 12:00 (America/Edmonton)
OSSU World Café Conversations series with Maureen Smith🇨🇦, Aleisha F. and supported by Ontario SPOR SUPPORT Unit (OSSU):
“Find and Seek: Conversations on Matching Researchers and Lived Experience Partners”

RQMO: 3rd Zebinary of the Month of Zebra 2026
2026-02-09 10:00 - 12:00 (America/Edmonton)
3rd Zebinary of the Month of Zebrier 2026
Speaker: – David Cohen, Professor, Faculty of Health, Sorbonne University, Paris, France

Community Engagement Series Event: From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network
2026-02-10 10:00 - 12:00 (America/Edmonton)
Join the upcoming Community Engagement Series event: From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network. Hear from Maureen Smith🇨🇦 and Beth Potter about how to evaluate engagement beyond process metrics, and what this means for future patient engagement practice and evaluation.

RQMO: 4th Zebinary of the Month of Zebra 2026
2026-02-11 10:00 - 12:00 (America/Edmonton)
Speaker: – Jacques P. Tremblay, Ph.D, Full Professor, Department of Molecular Medicine, Faculty of Medicine, Université Laval

Ataxia Canada Webinar- Income Tax Reduction and Estate Tax Elimination
2026-02-11 12:30 - 13:30 (America/Toronto)
You will learn:
➡️ To minimize or even Eliminate Taxes on your estate.
➡️ How to Change your Estate Plans in this virtual environment.
➡️ To Avoid Double Taxation on your “Red” retirement accounts.
➡️ To Bypass paying upfront Capital Gains Taxes when selling your investments.
➡️ To convert assets into an Income You Can’t Outlive and leave a Lasting Legacy.
➡️ How our government wants you to Save Taxes and Leave More To Charity.

RQMO: 5th Zebinary of the Month of Zebra 2026
2026-02-16 10:00 - 12:00 (America/Edmonton)
Speakers: – Christine Yergeau, Msc, RARE Network Manager. QC
– Lilit Antonyan, Research Pillars Coordinator at RARe.qc

Cassie&Friends: Rare Talks-When Answers Take Time: Real Lives, Rare Disease, and Support That Matters
2026-02-17 17:00 - 18:30 (America/Edmonton)
Held during Rare Disease Month, this annual virtual event brings together families, youth, and the broader childhood rheumatic disease community to make rare experiences visible—and to remind families that they are not alone. Through shared stories, trusted information, and meaningful connection, RareTalks offers support for every stage of the journey, from first symptoms to long-term care.

RQMO: 6th Zebinary of the Month of Zebra 2026
2026-02-19 10:00 - 12:00 (America/Edmonton)
Speaker: – Josée Chénard, TS, PH.d, Professor, Department of Social Work, Université du Québec en Outaouais
