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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260224T100000
DTEND;TZID=America/Edmonton:20260224T120000
DTSTAMP:20260403T125040
CREATED:20260126T213821Z
LAST-MODIFIED:20260128T190951Z
UID:9692-1771927200-1771934400@canadianrdn.ca
SUMMARY:RQMO: 7th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speakers: – Kim Auclair\, consultant\, speaker and blogger\n– Elsie Côté\, Founder and President of Sirote-moi
URL:https://canadianrdn.ca/event/rqmo-7th-zebinary-of-the-month-of-zebrier-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z7.png
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260225T100000
DTEND;TZID=America/Edmonton:20260225T110000
DTSTAMP:20260403T125040
CREATED:20260204T173332Z
LAST-MODIFIED:20260204T173332Z
UID:9751-1772013600-1772017200@canadianrdn.ca
SUMMARY:PhenoTips: Matchmaking for Rare Disease Diagnosis
DESCRIPTION:Matchmaking for Rare Disease Diagnosis is a panel discussion and interactive Q&A with patient matchmaking pioneers\, Dr. Nara Sobreira\, Matthew Osmond\, CGC\, and Dr. Orion Buske.
URL:https://canadianrdn.ca/event/phenotips-matchmaking-for-rare-disease-diagnosis/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1769808186313.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260226T100000
DTEND;TZID=America/Edmonton:20260226T120000
DTSTAMP:20260403T125040
CREATED:20260126T213956Z
LAST-MODIFIED:20260126T213956Z
UID:9695-1772100000-1772107200@canadianrdn.ca
SUMMARY:RQMO: Last Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: – François Bernier\, entrepreneur\, strategist\, co-founder of Horizon b2b
URL:https://canadianrdn.ca/event/rqmo-last-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z8.png
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260227T100000
DTEND;TZID=America/Edmonton:20260227T110000
DTSTAMP:20260403T125040
CREATED:20260212T205931Z
LAST-MODIFIED:20260212T205931Z
UID:9791-1772186400-1772190000@canadianrdn.ca
SUMMARY:CORD Rare Disease Day 2026 Webinar
DESCRIPTION:ACCELERATED ACCESS TODAY\, DEMONSTRATING VALUE FOR 2026 AND BEYOND \nThis Rare Disease Day\, join CORD for a 1-hour webinar marking the first 1.5 years of Canada’s Rare Disease Drug Strategy (RDDS). The session celebrates progress in accelerated access while focusing on what comes next: demonstrating value.
URL:https://canadianrdn.ca/event/cord-rare-disease-day-2026-webinar/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770744153270.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260228T100000
DTEND;TZID=America/Toronto:20260228T160000
DTSTAMP:20260403T125040
CREATED:20251204T203609Z
LAST-MODIFIED:20251204T203609Z
UID:9257-1772272800-1772294400@canadianrdn.ca
SUMMARY:RQMO 2026 International Rare Disease Day
DESCRIPTION:On February 28th\, from 10 a.m. to 4 p.m.\, we invite you to participate in the RQMO 2026 International Rare Disease Day. The event will be held in hybrid mode\, meaning that it will be possible to attend in person or virtually.
URL:https://canadianrdn.ca/event/rqmo-2026-international-rare-disease-day/
CATEGORIES:Caregiver,Events,Healthcare,Hybrid,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/12/1764607278340.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260304T110000
DTEND;TZID=America/Edmonton:20260304T123000
DTSTAMP:20260403T125040
CREATED:20260126T210847Z
LAST-MODIFIED:20260126T210847Z
UID:9656-1772622000-1772627400@canadianrdn.ca
SUMMARY:Stem Cell Network: Clinical Translation in Cell and Gene Therapy
DESCRIPTION:Stem Cell Network and BioCanRx are pleased to present this webinar on clinical translation\, offering trainees\, early-career investigators\, and researchers a high-level introduction to how cell and gene therapies (including regenerative medicine and cancer biotherapeutics) move from the lab to clinical trials.
URL:https://canadianrdn.ca/event/stem-cell-network-clinical-translation-in-cell-and-gene-therapy/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768827404847.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260306T090000
DTEND;TZID=America/Toronto:20260306T160000
DTSTAMP:20260403T125040
CREATED:20260126T211704Z
LAST-MODIFIED:20260225T183444Z
UID:9662-1772787600-1772812800@canadianrdn.ca
SUMMARY:McMaster University Workshop-Measuring the Impacts of Engaging People with Lived and Living Experience
DESCRIPTION:Join this in-person workshop focused on how to measure and evaluate the impacts of engaging people with lived and living experience in health research\, systems\, and policy. \nThe session will share practical approaches\, real-world case examples\, and lessons learned from engagement evaluation. Participants will learn how to select and apply evaluation tools to measure impact and address common challenges.
URL:https://canadianrdn.ca/event/workshop-measuring-the-impacts-of-engaging-people-with-lived-and-living-experience/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/20231027-11372350-WEB-REZ.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260311T130000
DTEND;TZID=America/Toronto:20260311T140000
DTSTAMP:20260403T125040
CREATED:20260212T210726Z
LAST-MODIFIED:20260212T210726Z
UID:9800-1773234000-1773237600@canadianrdn.ca
SUMMARY:RareKids-CAN: Rare Methods Workshop Series: Eliciting prior distributions for rare disease clinical trials
DESCRIPTION:Are you a rare disease methodologist\, investigator or trainee? Join RareKids-CAN and speaker Arlene Jiang for a Rare Methods Workshop on expert elicitation in rare disease research on March 11. \nLearn what expert elicitation is\, how it can support rare disease clinical design and how expert input can be used to construct a prior distribution.
URL:https://canadianrdn.ca/event/rarekids-can-rare-methods-workshop-series-eliciting-prior-distributions-for-rare-disease-clinical-trials/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770730225814.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260312T100000
DTEND;TZID=America/Edmonton:20260312T130000
DTSTAMP:20260403T125040
CREATED:20260311T225507Z
LAST-MODIFIED:20260311T225507Z
UID:9931-1773309600-1773320400@canadianrdn.ca
SUMMARY:CAN-Child: F-words Foundations Workshop
DESCRIPTION:Join CAN-Child’s interactive 3-hour F-words Foundations Workshop and explore how to bring the F-words for Child Development—Functioning\, Family\, Fitness\, Fun\, Friends\, and Future—into everyday practice and life!
URL:https://canadianrdn.ca/event/can-child-f-words-foundations-workshop/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1773068481975.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260325T100000
DTEND;TZID=America/Edmonton:20260325T110000
DTSTAMP:20260403T125040
CREATED:20260311T230004Z
LAST-MODIFIED:20260311T230004Z
UID:9937-1774432800-1774436400@canadianrdn.ca
SUMMARY:PiPER Community of Practice: Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience
DESCRIPTION:Save the date on *March 25th 2026*  for a dynamic session entitled “Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience”.
URL:https://canadianrdn.ca/event/piper-community-of-practice-patient-partners-in-learning-health-systems-the-centre-for-digital-health-evaluation-experience/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1772648035669.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260327T080000
DTEND;TZID=America/Toronto:20260327T170000
DTSTAMP:20260403T125040
CREATED:20260101T231010Z
LAST-MODIFIED:20260101T231010Z
UID:9494-1774598400-1774630800@canadianrdn.ca
SUMMARY:RARE.Qc's Scientific Day and Annual General Meeting
DESCRIPTION:The event will take place in the Cruess Amphitheatre and the Elspeth McConnell Atrium at the Research Institute of the McGill University Health Centre (RI-MUHC) in Montréal\, and will also be offered in a virtual format.
URL:https://canadianrdn.ca/event/rare-qcs-scientific-day-and-annual-general-meeting/
CATEGORIES:Conferences,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Affiche_JourneeScientifique_RARE-Qc_2026_EN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260407T150000
DTEND;TZID=America/Edmonton:20260407T170000
DTSTAMP:20260403T125040
CREATED:20260212T205259Z
LAST-MODIFIED:20260212T205259Z
UID:9784-1775574000-1775581200@canadianrdn.ca
SUMMARY:CPD-Accredited Webinar | Duchenne Muscular Dystrophy in the New Steroid Age: Practical Considerations
DESCRIPTION:NMD4C\, MDC\, and Defeat Duchenne Canada are pleased to invite you to a CPD-accredited webinar on Duchenne Muscular Dystrophy in the Evolving Steroid Era: Practical Neuromuscular and Endocrine Considerations. This CPD-accredited webinar is primarily targeted at Canadian clinicians\, academics and trainees with an interest in neuromuscular diseases.
URL:https://canadianrdn.ca/event/cpd-accredited-webinar-duchenne-muscular-dystrophy-in-the-new-steroid-age-practical-considerations/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770814888758.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260409T080000
DTEND;TZID=America/Toronto:20260409T170000
DTSTAMP:20260403T125040
CREATED:20260401T192410Z
LAST-MODIFIED:20260401T192410Z
UID:10067-1775721600-1775754000@canadianrdn.ca
SUMMARY:MitoRevolution Research Symposium and Innovation Day
DESCRIPTION:Researchers\, clinicians\, and trainees working in mitochondrial science are invited to attend the 6th Annual MitoRevolution Research Symposium and Innovation Day\, hosted by their partners Mito2i\, on Thursday\, April 9\, 2026\, at the MaRS Auditorium in Toronto.
URL:https://canadianrdn.ca/event/mitorevolution-research-symposium-and-innovation-day/
CATEGORIES:Caregiver,Clinical Trials,Events,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773856526059-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260410T130000
DTEND;TZID=America/Toronto:20260410T140000
DTSTAMP:20260403T125040
CREATED:20260401T191832Z
LAST-MODIFIED:20260401T191832Z
UID:10058-1775826000-1775829600@canadianrdn.ca
SUMMARY:ALS Clinical Trials Unboxed
DESCRIPTION:On Friday\, April 10\, at 1:00 p.m. ET\, tune into ALS Clinical Trials Unboxed to learn about ongoing ALS clinical trials in Canada and globally for people living with ALS. In this webinar\, Dr. Tyrell J. Simkins\, DO\, PhD\, Senior Director of Clinical Development at Coya Therapeutics\, will discuss the scientific rationale behind COYA 302 and the design of the ALSTARS trial.
URL:https://canadianrdn.ca/event/als-clinical-trials-unboxed-3/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774278028229-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260416T170000
DTEND;TZID=America/Toronto:20260416T180000
DTSTAMP:20260403T125040
CREATED:20260401T193421Z
LAST-MODIFIED:20260401T195449Z
UID:10082-1776358800-1776362400@canadianrdn.ca
SUMMARY:CHILD-BRIGHT Network EDI-DI Youth Empowerment Program Knowledge Mobilization Showcase
DESCRIPTION:Over the past few weeks\, youth from across Canada have come together to explore equity\, diversity\, inclusion\, decolonization\, and Indigenization in brain-based developmental disability research. Now\, they are ready to share what they have created!
URL:https://canadianrdn.ca/event/child-bright-network-edi-di-youth-empowerment-program-knowledge-mobilization-showcase/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774903947681.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260422T120000
DTEND;TZID=America/Toronto:20260422T130000
DTSTAMP:20260403T125040
CREATED:20260401T193543Z
LAST-MODIFIED:20260401T193543Z
UID:10086-1776859200-1776862800@canadianrdn.ca
SUMMARY:Building Business Cases for Genomics
DESCRIPTION:In this panel discussion and interactive Q & A with Dr. Colleen Campbell\, Andrea Spencer\, MBA\, CHE\, CMP (Prosci)\, Megan Trinkle-Knotts\, and host DNA Today‘s Kira Dineen\, MS\, LCGC\, CG(ASCP)CM\, genetic counselling directors\, hospital consultants\, and business case experts will address how to build compelling\, evidence-backed business cases.
URL:https://canadianrdn.ca/event/building-business-cases-for-genomics/
CATEGORIES:Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774993937888.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260425T080000
DTEND;TZID=America/Toronto:20260426T170000
DTSTAMP:20260403T125040
CREATED:20260401T192005Z
LAST-MODIFIED:20260401T192005Z
UID:10061-1777104000-1777222800@canadianrdn.ca
SUMMARY:ALS Disrupt
DESCRIPTION:A bold new meeting designed to bring together global leaders in #ALS for open\, timely\, and collaborative discussions that move the field forward.
URL:https://canadianrdn.ca/event/als-disrupt/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Provincial,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1773237619453-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260429T080000
DTEND;TZID=America/Toronto:20260430T170000
DTSTAMP:20260403T125040
CREATED:20260401T194917Z
LAST-MODIFIED:20260401T195134Z
UID:10092-1777449600-1777568400@canadianrdn.ca
SUMMARY:CORD: Rare Disease Day 2026 Conference
DESCRIPTION:Join CORD for their Annual Rare Disease Day Conference in Toronto!
URL:https://canadianrdn.ca/event/cord-rare-disease-day-2026-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/04/1774467258083.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20260522T080000
DTEND;TZID=America/Vancouver:20260523T170000
DTSTAMP:20260403T125040
CREATED:20260401T193919Z
LAST-MODIFIED:20260401T193919Z
UID:10089-1779436800-1779555600@canadianrdn.ca
SUMMARY:4th Heritable Aortic Disorders Symposium
DESCRIPTION:Join the Heritable Aortic Disorders community in Vancouver on May 22–23\, 2026 for an in-person event bringing together experts from across Canada and around the world to discuss the latest developments in the genetics\, diagnosis\, and management of hereditary thoracic aortic disorders. \nDay 1 is designed for healthcare professionals\, with updates on research\, diagnostic protocols\, and clinical management. \nDay 2 is dedicated to patients and families\, featuring presentations and small-group workshops led by local and international experts. \nUBC Robson Square\, Vancouver\, BC
URL:https://canadianrdn.ca/event/4th-heritable-aortic-disorders-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/04/HADLogo_SymposiumEF_4Web-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261018T080000
DTEND;TZID=America/Edmonton:20261020T170000
DTSTAMP:20260403T125040
CREATED:20251113T224713Z
LAST-MODIFIED:20251113T224713Z
UID:9153-1792310400-1792515600@canadianrdn.ca
SUMMARY:Kids Brain Health Network (KBHN) Annual Conference
DESCRIPTION:Save the Date! \nKids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference\, happening October 18–20\, 2026\, in Calgary\, Alberta!
URL:https://canadianrdn.ca/event/kids-brain-health-network-kbhn-annual-conference/
CATEGORIES:Caregiver,Conferences,In Person,Industry,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/11/subvention-recherche-2024-2025-copy-1-2.png
END:VEVENT
END:VCALENDAR