BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Canadian Rare Disease Network - ECPv6.15.18//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Toronto
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/Edmonton
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20250309T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20251102T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20260308T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20261101T080000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
TZNAME:MDT
DTSTART:20270314T090000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0600
TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20271107T080000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251213T110000
DTEND;TZID=America/Toronto:20251213T140000
DTSTAMP:20260403T125149
CREATED:20251126T191558Z
LAST-MODIFIED:20251126T191558Z
UID:9192-1765623600-1765634400@canadianrdn.ca
SUMMARY:SMA Together: Learn. Share. Connect. A Mini-Regional Conference - Toronto
DESCRIPTION:The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them\, in-person on December 13 to learn about the latest updates in spinal muscular atrophy\, including:
URL:https://canadianrdn.ca/event/sma-together-learn-share-connect-a-mini-regional-conference-toronto/
CATEGORIES:Caregiver,Conferences,Events,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/1764174313486.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260114T190000
DTEND;TZID=America/Edmonton:20260114T200000
DTSTAMP:20260403T125149
CREATED:20260113T165855Z
LAST-MODIFIED:20260113T165855Z
UID:9617-1768417200-1768420800@canadianrdn.ca
SUMMARY:CanPKU+:  Advocacy in Action Update Sessions
DESCRIPTION:Join the Advocacy in Action Update Sessions with John Adams in order to hear updates on various campaigns and what needs to be done to move things forward for the PKU community.
URL:https://canadianrdn.ca/event/canpku-advocacy-in-action-update-sessions/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767738677475.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260119T190000
DTEND;TZID=America/Toronto:20260119T200000
DTSTAMP:20260403T125149
CREATED:20260101T231935Z
LAST-MODIFIED:20260101T231935Z
UID:9500-1768849200-1768852800@canadianrdn.ca
SUMMARY:Knowledge Sharing Sessions – Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy.
DESCRIPTION:Dr. Geoff Frost will be leading NMD4C’s first Physiatrist Community of Practice (CoP) Knowledge Sharing Session. He will present a recent article authored by Iraqi et al. on a work conducted in Canada by  fellow NMD4C members: “Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy.”\nThe session will take place on January 19th\, 2026 at 7:00 PM EST. To register\, please contact CoP manager Maria Masnata. Once registered\, Maria will send a calendar invite so you can easily save the date. We are looking forward to seeing you there!
URL:https://canadianrdn.ca/event/knowledge-sharing-sessions-feasibility-of-a-home-based-exergaming-intervention-for-youth-with-spinal-muscular-atrophy/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/NMD4c.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260122T190000
DTEND;TZID=America/Toronto:20260122T200000
DTSTAMP:20260403T125149
CREATED:20260113T164000Z
LAST-MODIFIED:20260113T164000Z
UID:9605-1769108400-1769112000@canadianrdn.ca
SUMMARY:Healthy Living and Aortopathy
DESCRIPTION:Save the date for your upcoming webinar with Dr. Nathaniel Moulson\, focused on exercise. This webinar will take place on January 22\, 2026 at 7:00pm\, registration details to be released in the coming weeks.
URL:https://canadianrdn.ca/event/healthy-living-and-aortopathy/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767998210155.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T120000
DTEND;TZID=America/Toronto:20260128T130000
DTSTAMP:20260403T125149
CREATED:20260113T164735Z
LAST-MODIFIED:20260113T164735Z
UID:9611-1769601600-1769605200@canadianrdn.ca
SUMMARY:PiPER Community of Practice for 2026
DESCRIPTION:Save the date on *January 28th 2026* from 12-1 pm for a dynamic session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials ”.
URL:https://canadianrdn.ca/event/piper-community-of-practice-for-2026/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767798374027.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T140000
DTEND;TZID=America/Toronto:20260128T153000
DTSTAMP:20260403T125149
CREATED:20260113T164448Z
LAST-MODIFIED:20260113T164448Z
UID:9608-1769608800-1769614200@canadianrdn.ca
SUMMARY:Canada's Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
DESCRIPTION:Join CDA’s preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. \nYou will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews.
URL:https://canadianrdn.ca/event/canadas-drug-agency-preconsultation-webinar-improvements-to-the-drug-reimbursement-review-process/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/CDA-Drug.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260129T180000
DTEND;TZID=America/Toronto:20260129T193000
DTSTAMP:20260403T125149
CREATED:20260105T194852Z
LAST-MODIFIED:20260105T194852Z
UID:9575-1769709600-1769715000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada-Research Grant Announcement 2026
DESCRIPTION:Mark your calendar for Thursday\, January 29\, 2026\, from 6:00–7:30 p.m. ET\, and join Defeat Duchenne Canada online for an evening celebrating the incredible progress of their  community and the promise of the future.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-research-grant-announcement-2026/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Research-grant-cycle-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260131T110000
DTEND;TZID=America/Edmonton:20260131T123000
DTSTAMP:20260403T125149
CREATED:20260105T200351Z
LAST-MODIFIED:20260105T200351Z
UID:9591-1769857200-1769862600@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life - Clinical Trials 101 What Every Patient Should Know Before Enrolling
DESCRIPTION:Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process\, benefits\, and important considerations before enrolling.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-scago-learning-for-life-clinical-trials-101-what-every-patient-should-know-before-enrolling/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767591298846.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260203T100000
DTEND;TZID=America/Edmonton:20260203T110000
DTSTAMP:20260403T125149
CREATED:20260126T212803Z
LAST-MODIFIED:20260128T191051Z
UID:9674-1770112800-1770116400@canadianrdn.ca
SUMMARY:RQMO: 1st Zebinary of the Month of Zebra 2026
DESCRIPTION:1st Zebra of the Month of Zebrier 2026 of the RQMO \nSpeakers:\n– Dr. Roberta\, La Piana\, Assistant Professor\, Department of Neurology and Neurosurgery\, McGill University\n– Dr. Thomas Durcan\, Associate Professor\, Department of Neurology and Neurosurgery\, McGill University
URL:https://canadianrdn.ca/event/rqmo-1st-zebra-of-the-month-of-zebrier-2026/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260204T120000
DTEND;TZID=America/Edmonton:20260204T130000
DTSTAMP:20260403T125149
CREATED:20260126T210631Z
LAST-MODIFIED:20260126T210631Z
UID:9653-1770206400-1770210000@canadianrdn.ca
SUMMARY:D2R-Webinar | Anti-Black Racism in Health Research
DESCRIPTION:In honour of Black History Month\, D2R invites you to an interactive webinar on “Anti-Black Racism in Health Research.” This session will explore the history of slavery in Canada\, trace the evolution of anti-Black racism within Canadian health research\, and highlight practices and strategies to address and counter these challenges.
URL:https://canadianrdn.ca/event/d2r-webinar-anti-black-racism-in-health-research/
CATEGORIES:Healthcare,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/EDI-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260204T150000
DTEND;TZID=America/Edmonton:20260204T160000
DTSTAMP:20260403T125149
CREATED:20260126T210046Z
LAST-MODIFIED:20260126T210046Z
UID:9647-1770217200-1770220800@canadianrdn.ca
SUMMARY:RareKids-CAN- From Evidence to Access: Advancing Pediatric Rare Disease Drug Availability in Canada
DESCRIPTION:Join RareKids-CAN for an in-depth discussion on the evolving role of health technology assessment and reimbursement policy in improving access to pediatric rare disease care.
URL:https://canadianrdn.ca/event/rarekids-can-from-evidence-to-access-advancing-pediatric-rare-disease-drug-availability-in-canada/
CATEGORIES:Clinical Trials,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768928212783.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260205T100000
DTEND;TZID=America/Edmonton:20260205T120000
DTSTAMP:20260403T125149
CREATED:20260126T213014Z
LAST-MODIFIED:20260126T213014Z
UID:9677-1770285600-1770292800@canadianrdn.ca
SUMMARY:RQMO: 2nd Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: Dr. André Megarbane\, Professor\, Department of Human Genetics\, lebanese American University\, Beirut\, Lebanon
URL:https://canadianrdn.ca/event/rqmo-2nd-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260206T100000
DTEND;TZID=America/Edmonton:20260206T120000
DTSTAMP:20260403T125149
CREATED:20260126T211405Z
LAST-MODIFIED:20260126T211405Z
UID:9659-1770372000-1770379200@canadianrdn.ca
SUMMARY:OSSU World Café Conversations Series:"Find and Seek: Conversations on Matching Researchers and Lived Experience Partners"
DESCRIPTION:OSSU World Café Conversations series with Maureen Smith🇨🇦\, Aleisha F. and supported by Ontario SPOR SUPPORT Unit (OSSU): \n“Find and Seek: Conversations on Matching Researchers and Lived Experience Partners”
URL:https://canadianrdn.ca/event/ossu-world-cafe-conversations-seriesfind-and-seek-conversations-on-matching-researchers-and-lived-experience-partners/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768404542117.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260209T100000
DTEND;TZID=America/Edmonton:20260209T120000
DTSTAMP:20260403T125149
CREATED:20260126T213141Z
LAST-MODIFIED:20260128T191059Z
UID:9680-1770631200-1770638400@canadianrdn.ca
SUMMARY:RQMO: 3rd Zebinary of the Month of Zebra 2026
DESCRIPTION:3rd Zebinary of the Month of Zebrier 2026 \nSpeaker: – David Cohen\, Professor\, Faculty of Health\, Sorbonne University\, Paris\, France
URL:https://canadianrdn.ca/event/rqmo-3rd-zebinary-of-the-month-of-zebrier-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260210T100000
DTEND;TZID=America/Edmonton:20260210T120000
DTSTAMP:20260403T125149
CREATED:20260126T210326Z
LAST-MODIFIED:20260126T210326Z
UID:9650-1770717600-1770724800@canadianrdn.ca
SUMMARY:Community Engagement Series Event: From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network
DESCRIPTION:Join the upcoming Community Engagement Series event: From Intent to Impact: Evaluating Patient Engagement Within a Rare Disease Pediatric Network. Hear from Maureen Smith🇨🇦 and Beth Potter about how to evaluate engagement beyond process metrics\, and what this means for future patient engagement practice and evaluation.
URL:https://canadianrdn.ca/event/community-engagement-series-event-from-intent-to-impact-evaluating-patient-engagement-within-a-rare-disease-pediatric-network/
CATEGORIES:Caregiver,Events,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768575949974.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260211T100000
DTEND;TZID=America/Edmonton:20260211T120000
DTSTAMP:20260403T125149
CREATED:20260126T213301Z
LAST-MODIFIED:20260128T191032Z
UID:9683-1770804000-1770811200@canadianrdn.ca
SUMMARY:RQMO: 4th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: – Jacques P. Tremblay\, Ph.D\, Full Professor\, Department of Molecular Medicine\, Faculty of Medicine\, Université Laval
URL:https://canadianrdn.ca/event/rqmo-4th-zebra-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260211T123000
DTEND;TZID=America/Toronto:20260211T133000
DTSTAMP:20260403T125149
CREATED:20260126T211858Z
LAST-MODIFIED:20260126T211858Z
UID:9665-1770813000-1770816600@canadianrdn.ca
SUMMARY:Ataxia Canada Webinar- Income Tax Reduction and Estate Tax Elimination
DESCRIPTION:You will learn:\n➡️ To minimize or even Eliminate Taxes on your estate.\n➡️ How to Change your Estate Plans in this virtual environment.\n➡️ To Avoid Double Taxation on your “Red” retirement accounts.\n➡️ To Bypass paying upfront Capital Gains Taxes when selling your investments.\n➡️ To convert assets into an Income You Can’t Outlive and leave a Lasting Legacy.\n➡️ How our government wants you to Save Taxes and Leave More To Charity.
URL:https://canadianrdn.ca/event/ataxia-canada-webinar-income-tax-reduction-and-estate-tax-elimination/
CATEGORIES:Caregiver,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768331807491.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260216T100000
DTEND;TZID=America/Edmonton:20260216T120000
DTSTAMP:20260403T125149
CREATED:20260126T213452Z
LAST-MODIFIED:20260126T213452Z
UID:9686-1771236000-1771243200@canadianrdn.ca
SUMMARY:RQMO: 5th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speakers: – Christine Yergeau\, Msc\, RARE Network Manager. QC\n– Lilit Antonyan\, Research Pillars Coordinator at RARe.qc
URL:https://canadianrdn.ca/event/rqmo-5th-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260217T170000
DTEND;TZID=America/Edmonton:20260217T183000
DTSTAMP:20260403T125149
CREATED:20260204T173625Z
LAST-MODIFIED:20260204T173625Z
UID:9754-1771347600-1771353000@canadianrdn.ca
SUMMARY:Cassie&Friends: Rare Talks-When Answers Take Time: Real Lives\, Rare Disease\, and Support That Matters
DESCRIPTION:Held during Rare Disease Month\, this annual virtual event brings together families\, youth\, and the broader childhood rheumatic disease community to make rare experiences visible—and to remind families that they are not alone. Through shared stories\, trusted information\, and meaningful connection\, RareTalks offers support for every stage of the journey\, from first symptoms to long-term care.
URL:https://canadianrdn.ca/event/cassiefriends-rare-talks-when-answers-take-time-real-lives-rare-disease-and-support-that-matters/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770054142899.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260219T100000
DTEND;TZID=America/Edmonton:20260219T120000
DTSTAMP:20260403T125149
CREATED:20260126T213630Z
LAST-MODIFIED:20260128T191004Z
UID:9689-1771495200-1771502400@canadianrdn.ca
SUMMARY:RQMO: 6th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: – Josée Chénard\, TS\, PH.d\, Professor\, Department of Social Work\, Université du Québec en Outaouais
URL:https://canadianrdn.ca/event/rqmo-6th-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z6.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260219T130000
DTEND;TZID=America/Edmonton:20260219T143000
DTSTAMP:20260403T125149
CREATED:20260212T210210Z
LAST-MODIFIED:20260212T210210Z
UID:9794-1771506000-1771511400@canadianrdn.ca
SUMMARY:Canada's Drug Agency: How Global Policy Changes Are Reshaping HTA for Rare Diseases
DESCRIPTION:HTAi’s Rare Disease Interest Group will celebrate 2026 Rare Disease Day with a conversation on how global policy changes are reshaping HTA processes for rare disease technologies. The webinar aims to update the global HTA community on recent advances in rare disease policy\, particularly following the adoption of the World Health Assembly (WHA) Resolution on Rare Diseases\, and to explore its implications for HTA systems globally. The multi-stakeholder expert panel will discuss how global policy commitments can translate into meaningful regional\, national\, and local action within HTA. This event is the inaugural webinar in a year-long webinar series\, catalyzing discussions on how legislative changes in health systems are reshaping HTA for rare diseases through regional real-world case studies and examples.
URL:https://canadianrdn.ca/event/canadas-drug-agency-how-global-policy-changes-are-reshaping-hta-for-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/02/CDA-HTI.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260224T100000
DTEND;TZID=America/Edmonton:20260224T120000
DTSTAMP:20260403T125149
CREATED:20260126T213821Z
LAST-MODIFIED:20260128T190951Z
UID:9692-1771927200-1771934400@canadianrdn.ca
SUMMARY:RQMO: 7th Zebinary of the Month of Zebra 2026
DESCRIPTION:Speakers: – Kim Auclair\, consultant\, speaker and blogger\n– Elsie Côté\, Founder and President of Sirote-moi
URL:https://canadianrdn.ca/event/rqmo-7th-zebinary-of-the-month-of-zebrier-2026/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260225T100000
DTEND;TZID=America/Edmonton:20260225T110000
DTSTAMP:20260403T125149
CREATED:20260204T173332Z
LAST-MODIFIED:20260204T173332Z
UID:9751-1772013600-1772017200@canadianrdn.ca
SUMMARY:PhenoTips: Matchmaking for Rare Disease Diagnosis
DESCRIPTION:Matchmaking for Rare Disease Diagnosis is a panel discussion and interactive Q&A with patient matchmaking pioneers\, Dr. Nara Sobreira\, Matthew Osmond\, CGC\, and Dr. Orion Buske.
URL:https://canadianrdn.ca/event/phenotips-matchmaking-for-rare-disease-diagnosis/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1769808186313.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260226T100000
DTEND;TZID=America/Edmonton:20260226T120000
DTSTAMP:20260403T125149
CREATED:20260126T213956Z
LAST-MODIFIED:20260126T213956Z
UID:9695-1772100000-1772107200@canadianrdn.ca
SUMMARY:RQMO: Last Zebinary of the Month of Zebra 2026
DESCRIPTION:Speaker: – François Bernier\, entrepreneur\, strategist\, co-founder of Horizon b2b
URL:https://canadianrdn.ca/event/rqmo-last-zebinary-of-the-month-of-zebra-2026/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Z8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260227T100000
DTEND;TZID=America/Edmonton:20260227T110000
DTSTAMP:20260403T125149
CREATED:20260212T205931Z
LAST-MODIFIED:20260212T205931Z
UID:9791-1772186400-1772190000@canadianrdn.ca
SUMMARY:CORD Rare Disease Day 2026 Webinar
DESCRIPTION:ACCELERATED ACCESS TODAY\, DEMONSTRATING VALUE FOR 2026 AND BEYOND \nThis Rare Disease Day\, join CORD for a 1-hour webinar marking the first 1.5 years of Canada’s Rare Disease Drug Strategy (RDDS). The session celebrates progress in accelerated access while focusing on what comes next: demonstrating value.
URL:https://canadianrdn.ca/event/cord-rare-disease-day-2026-webinar/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770744153270.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260228T100000
DTEND;TZID=America/Toronto:20260228T160000
DTSTAMP:20260403T125149
CREATED:20251204T203609Z
LAST-MODIFIED:20251204T203609Z
UID:9257-1772272800-1772294400@canadianrdn.ca
SUMMARY:RQMO 2026 International Rare Disease Day
DESCRIPTION:On February 28th\, from 10 a.m. to 4 p.m.\, we invite you to participate in the RQMO 2026 International Rare Disease Day. The event will be held in hybrid mode\, meaning that it will be possible to attend in person or virtually.
URL:https://canadianrdn.ca/event/rqmo-2026-international-rare-disease-day/
CATEGORIES:Caregiver,Events,Healthcare,Hybrid,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/12/1764607278340.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260304T110000
DTEND;TZID=America/Edmonton:20260304T123000
DTSTAMP:20260403T125149
CREATED:20260126T210847Z
LAST-MODIFIED:20260126T210847Z
UID:9656-1772622000-1772627400@canadianrdn.ca
SUMMARY:Stem Cell Network: Clinical Translation in Cell and Gene Therapy
DESCRIPTION:Stem Cell Network and BioCanRx are pleased to present this webinar on clinical translation\, offering trainees\, early-career investigators\, and researchers a high-level introduction to how cell and gene therapies (including regenerative medicine and cancer biotherapeutics) move from the lab to clinical trials.
URL:https://canadianrdn.ca/event/stem-cell-network-clinical-translation-in-cell-and-gene-therapy/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768827404847.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260306T090000
DTEND;TZID=America/Toronto:20260306T160000
DTSTAMP:20260403T125149
CREATED:20260126T211704Z
LAST-MODIFIED:20260225T183444Z
UID:9662-1772787600-1772812800@canadianrdn.ca
SUMMARY:McMaster University Workshop-Measuring the Impacts of Engaging People with Lived and Living Experience
DESCRIPTION:Join this in-person workshop focused on how to measure and evaluate the impacts of engaging people with lived and living experience in health research\, systems\, and policy. \nThe session will share practical approaches\, real-world case examples\, and lessons learned from engagement evaluation. Participants will learn how to select and apply evaluation tools to measure impact and address common challenges.
URL:https://canadianrdn.ca/event/workshop-measuring-the-impacts-of-engaging-people-with-lived-and-living-experience/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/20231027-11372350-WEB-REZ.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260311T130000
DTEND;TZID=America/Toronto:20260311T140000
DTSTAMP:20260403T125149
CREATED:20260212T210726Z
LAST-MODIFIED:20260212T210726Z
UID:9800-1773234000-1773237600@canadianrdn.ca
SUMMARY:RareKids-CAN: Rare Methods Workshop Series: Eliciting prior distributions for rare disease clinical trials
DESCRIPTION:Are you a rare disease methodologist\, investigator or trainee? Join RareKids-CAN and speaker Arlene Jiang for a Rare Methods Workshop on expert elicitation in rare disease research on March 11. \nLearn what expert elicitation is\, how it can support rare disease clinical design and how expert input can be used to construct a prior distribution.
URL:https://canadianrdn.ca/event/rarekids-can-rare-methods-workshop-series-eliciting-prior-distributions-for-rare-disease-clinical-trials/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770730225814.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260312T100000
DTEND;TZID=America/Edmonton:20260312T130000
DTSTAMP:20260403T125149
CREATED:20260311T225507Z
LAST-MODIFIED:20260311T225507Z
UID:9931-1773309600-1773320400@canadianrdn.ca
SUMMARY:CAN-Child: F-words Foundations Workshop
DESCRIPTION:Join CAN-Child’s interactive 3-hour F-words Foundations Workshop and explore how to bring the F-words for Child Development—Functioning\, Family\, Fitness\, Fun\, Friends\, and Future—into everyday practice and life!
URL:https://canadianrdn.ca/event/can-child-f-words-foundations-workshop/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/03/1773068481975.jpg
END:VEVENT
END:VCALENDAR