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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART:20261101T060000
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BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
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TZOFFSETTO:-0700
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DTSTART:20250309T100000
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TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20251102T090000
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BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
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DTSTART:20260308T100000
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DTSTART:20261101T090000
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250522T130000
DTEND;TZID=America/Edmonton:20250522T140000
DTSTAMP:20260404T021443
CREATED:20250520T191925Z
LAST-MODIFIED:20250520T191925Z
UID:8298-1747918800-1747922400@canadianrdn.ca
SUMMARY:Indigenous Data Governance Principles & New Approaches to Race-Related Data
DESCRIPTION:Working closely with First Nations\, Inuit and Métis partners as well as urban Indigenous health service providers\, ICES has developed unique partnerships that include data governance and data sharing agreements. This work\, supported by the Indigenous Partnerships\, Data and Analytics department at ICES\, enables Indigenous-driven analyses using ICES data. In this session\, Dominique Legacy and Laura Ferreira-Legere will discuss becoming a trusted partner and forming partnerships with Indigenous communities and organizations. They’ll explore current processes for using Indigenous data\, and share how this work has informed planning for community governance of immigration data at ICES
URL:https://canadianrdn.ca/event/indigenous-data-governance-principles-new-approaches-to-race-related-data/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1747427539341.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250531T080000
DTEND;TZID=America/Edmonton:20250531T163000
DTSTAMP:20260404T021443
CREATED:20250526T204245Z
LAST-MODIFIED:20250526T204245Z
UID:8325-1748678400-1748709000@canadianrdn.ca
SUMMARY:XLID98 1st Annual Conference 2025
DESCRIPTION:
URL:https://canadianrdn.ca/event/xlid98-1st-annual-conference-2025/
CATEGORIES:Events,National,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1747841039325.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250531T080000
DTEND;TZID=America/New_York:20250531T170000
DTSTAMP:20260404T021443
CREATED:20250304T033141Z
LAST-MODIFIED:20250304T033141Z
UID:7614-1748678400-1748710800@canadianrdn.ca
SUMMARY:Unity Through Rheumatic Diseases: In-Person Event
DESCRIPTION:
URL:https://canadianrdn.ca/event/unity-through-rheumatic-diseases-in-person-event/
CATEGORIES:Caregiver,Conferences,Industry,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250531T080000
DTEND;TZID=America/New_York:20250531T170000
DTSTAMP:20260404T021443
CREATED:20250403T023343Z
LAST-MODIFIED:20250403T023343Z
UID:7903-1748678400-1748710800@canadianrdn.ca
SUMMARY:Unity Through Rheumatic Diseases: In-Person Event
DESCRIPTION:Take a Pain Check Foundation is thrilled to invite you to Unity Through Rheumatic Diseases\, an in-person event dedicated to promoting collaboration and driving change in rheumatology. Join us on Saturday\, May 31\, 2025\, from 8:00 AM to 5:00 PM EST at the InterContinental Toronto Centre (225 Front St W\, Toronto\, ON M5V 2X3) for a day of insightful discussions\, networking\, and empowerment.
URL:https://canadianrdn.ca/event/unity-through-rheumatic-diseases-in-person-event-2/
CATEGORIES:Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250604T180000
DTEND;TZID=America/Toronto:20250604T200000
DTSTAMP:20260404T021443
CREATED:20250529T205430Z
LAST-MODIFIED:20250529T205450Z
UID:8391-1749060000-1749067200@canadianrdn.ca
SUMMARY:BHI Cafe Scientific-Where the brain and heart meet
DESCRIPTION:This event will highlight innovative\, patient-oriented strategies designed to address fragmented care for brain and heart conditions. Although brain and heart health are closely linked\, the heath care system often treats them in isolation. This Café Scientific will showcase how research is driving real-world solutions that enhance patient care.
URL:https://canadianrdn.ca/event/bhi-cafe-scientific-where-the-brain-and-heart-meet/
CATEGORIES:Caregiver,Healthcare,Hybrid,National,Patient Focused,Research Focused,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/05/Event-Page-Heros-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250607T080000
DTEND;TZID=America/New_York:20250607T170000
DTSTAMP:20260404T021443
CREATED:20250122T001108Z
LAST-MODIFIED:20250122T001108Z
UID:7394-1749283200-1749315600@canadianrdn.ca
SUMMARY:Wilson Disease Event for patients\, families\, and caregivers
DESCRIPTION:The newly formed Canadian chapter of Wilson Disease Association is hosting a one day conference for WD patients\, caregivers\, friends\, medical students\, physicians and supporters. \nThey are bringing together the top Canadian doctors who treat Wilson disease. \nGreat opportunity to network and learn more about treatment options for Wilson disease. \nMore details and registration link coming soon. \nOpen to everyone interested in learning more about this rare genetic disorder. \nFor more information\, visit alice.williams@wilsonsdisease.org.
URL:https://canadianrdn.ca/event/wilson-disease-event-for-patients-families-and-caregivers/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250618T120000
DTEND;TZID=America/Edmonton:20250618T130000
DTSTAMP:20260404T021443
CREATED:20250526T204049Z
LAST-MODIFIED:20250526T204049Z
UID:8322-1750248000-1750251600@canadianrdn.ca
SUMMARY:Webinar - Key Considerations for Including Pediatric Populations with Neurodevelopmental Conditions in Clinical Trials
DESCRIPTION:Speakers: Evdokia Anagnostou and Mayada Elsabbagh Title: Key considerations for including pediatric populations with neurodevelopmental conditions in clinical trials
URL:https://canadianrdn.ca/event/webinar-key-considerations-for-including-pediatric-populations-with-neurodevelopmental-conditions-in-clinical-trials/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1748012679658.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250623T160000
DTEND;TZID=America/Edmonton:20250623T170000
DTSTAMP:20260404T021443
CREATED:20250618T145940Z
LAST-MODIFIED:20250618T145940Z
UID:8451-1750694400-1750698000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada-Industry Partner Update: REGENXBIO
DESCRIPTION:Join Defeat Duchenne Canada for an educational webinar featuring Dr. Jahannaz Dastgir\, Executive Director of Clinical Development at REGENXBIO\, as she shares the latest updates on RGX-202\, an investigational gene therapy for the treatment of Duchenne muscular dystrophy\, and their Phase 1/2/3 AFFINITY DUCHENNE® trial. \nThis session will provide valuable insights into the science behind RGX-202\, trial progress\, and what this potential investigational treatment could mean for the Duchenne community. Whether you are a parent\, caregiver\, clinician\, or advocate\, this webinar is an opportunity to stay informed and ask questions directly to the team leading this important research.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-industry-partner-update-regenxbio/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/Gs8jXy9WYAA0ZX1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250719T100000
DTEND;TZID=America/Toronto:20250719T140000
DTSTAMP:20260404T021443
CREATED:20250625T024315Z
LAST-MODIFIED:20250625T024315Z
UID:8472-1752919200-1752933600@canadianrdn.ca
SUMMARY:CANAIRI Co-Design Workshop
DESCRIPTION:This workshop will co-design resources to support patients and families navigating the era of AI in medicine! The workshop is open to all and we welcome youth\, adults\, and families!
URL:https://canadianrdn.ca/event/canairi-co-design-workshop/
CATEGORIES:Caregiver,Healthcare,Hybrid,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/1750802485465.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250813T130000
DTEND;TZID=America/Edmonton:20250813T150000
DTSTAMP:20260404T021443
CREATED:20250729T162316Z
LAST-MODIFIED:20250729T162316Z
UID:8607-1755090000-1755097200@canadianrdn.ca
SUMMARY:ALS Canada: Driving & ALS Webinar
DESCRIPTION:Join ALS Canada and Sunnybrook Health Sciences Centre to learn about the impact of ALS on driving ability\, adaptive driving equipment\, how an ALS diagnosis may affect insurance\, and available alternative options.
URL:https://canadianrdn.ca/event/als-canada-driving-als-webinar/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/GxB7vNBW0AI1BWE.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250819T120000
DTEND;TZID=America/Edmonton:20250819T133000
DTSTAMP:20260404T021443
CREATED:20250812T200201Z
LAST-MODIFIED:20250812T200201Z
UID:8741-1755604800-1755610200@canadianrdn.ca
SUMMARY:Genome Editing in Stem Cells and Regenerative Medicine
DESCRIPTION:CRISPR-based genome editing has revolutionized biomedical research\, offering powerful tools to investigate gene function\, model diseases\, and develop novel therapies. This focused workshop will provide participants with both theoretical grounding and practical insights into current genome editing technologies. \nThe Stem Cell Network (SCN) is pleased to offer the online workshop “Genome Editing in Stem Cells and Regenerative Medicine”. This workshop will equip participants with both a theoretical grounding and practical insights into current genome editing technologies. It will also explore key concepts in experimental design\, delivery\, and selection methods.
URL:https://canadianrdn.ca/event/genome-editing-in-stem-cells-and-regenerative-medicine/
CATEGORIES:National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1752150318229.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250821T080000
DTEND;TZID=America/Edmonton:20250824T170000
DTSTAMP:20260404T021443
CREATED:20250526T204722Z
LAST-MODIFIED:20250526T204722Z
UID:8328-1755763200-1756054800@canadianrdn.ca
SUMMARY:Building Bridges "Bridging" Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/building-bridges-bridging-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1748280301575.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250909T080000
DTEND;TZID=America/Vancouver:20250911T170000
DTSTAMP:20260404T021443
CREATED:20250501T162813Z
LAST-MODIFIED:20250501T162813Z
UID:8117-1757404800-1757610000@canadianrdn.ca
SUMMARY:2025 C-Path Global Impact Conference
DESCRIPTION:As C-Path celebrates its 20th anniversary\, CGIC 2025 stands out as a milestone event—bringing together a global community dedicated to advancing medical innovation and improving patient outcomes. \nWhether you’re joining us from industry\, regulatory agencies\, academia\, patient organizations\, or as someone with lived experience\, you’ll find valuable insights\, thought-provoking discussions\, and meaningful opportunities to collaborate.
URL:https://canadianrdn.ca/event/2025-c-path-global-impact-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745860975996.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250909T080000
DTEND;TZID=America/Edmonton:20250912T170000
DTSTAMP:20260404T021443
CREATED:20250902T192157Z
LAST-MODIFIED:20250902T192157Z
UID:8839-1757404800-1757696400@canadianrdn.ca
SUMMARY:PxP2025
DESCRIPTION:The PxP (For Patients\, By Patients) conference will be September 9-11 (for those in Europe\, Africa or North and South America)\, or 10-12 (Asia and Oceania). This free\, virtual event aims to bring you a wealth of knowledge\, skills and resources on Patient Engagement in health research.
URL:https://canadianrdn.ca/event/pxp2025/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/09/17-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250910T080000
DTEND;TZID=America/Toronto:20250912T170000
DTSTAMP:20260404T021443
CREATED:20250902T192340Z
LAST-MODIFIED:20250902T192340Z
UID:8842-1757491200-1757696400@canadianrdn.ca
SUMMARY:PCSI 2025
DESCRIPTION:From September 10 to 12\, 2025\, the 37th PSCI conference will be held at the Quebec City Convention Centre under the theme: “Patient Grouping as a Driver of Value in Health: The Patient at the Heart of Our Decisions.” The topics will be: \n\nInnovations in case-mix\, data and technology.\nAdvancements in coding\, classification systems\, and data quality.\nCase-mix and costing beyond funding.\nFrom case-mix to policy: the patient at the center.\nConnecting funding with patient outcomes and quality of care\nUsing costing and funding to create value and demonstrate productivity.\nArtificial intelligence & case-mix: in service of patient-centered care.\n\nOn September 9th\, there will be a day of pre-conference workshops.
URL:https://canadianrdn.ca/event/pcsi-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/events-pg-logo-pcsi2025-en.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250910T100000
DTEND;TZID=America/Edmonton:20250910T110000
DTSTAMP:20260404T021443
CREATED:20250722T203504Z
LAST-MODIFIED:20250722T203504Z
UID:8581-1757498400-1757502000@canadianrdn.ca
SUMMARY:IMPaCT Webinar: Lessons Learned from the Innovative Pediatric Clinical Trials (iPCT) Network
DESCRIPTION:Speakers: Tannis Erickson & Naveen Poonai Title: Lessons Learned from the Innovative Pediatric Clinical Trials (iPCT) Network
URL:https://canadianrdn.ca/event/impact-webinar-lessons-learned-from-the-innovative-pediatric-clinical-trials-ipct-network/
CATEGORIES:Clinical Trials,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/Septemberwebinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250912T170000
DTSTAMP:20260404T021443
CREATED:20250625T025647Z
LAST-MODIFIED:20250625T025659Z
UID:8478-1757577600-1757696400@canadianrdn.ca
SUMMARY:PHA-Medical Think Tank
DESCRIPTION:Join Canada’s premier CPD event on pulmonary hypertension\, co-developed by PHA Canada and the Canadian Thoracic Society\, including: \n· Keynote presentations by Dr. Steven Kawut (University of Pennsylvania) and Athénaïs Boucly (University of Paris-Saclay) \n· Presentations on pulmonary hypertension topics from diagnosis through treatment \n· Updates on pulmonary hypertension research. \nSeptember 11 & 12 in Toronto or via Zoom. For more information and to register: https://www.phacanada.ca/thinktank
URL:https://canadianrdn.ca/event/pha-medical-think-tank/
CATEGORIES:Conferences,Healthcare,Hybrid,National,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/MTT-socialmedia-square-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250913T170000
DTSTAMP:20260404T021443
CREATED:20250625T024827Z
LAST-MODIFIED:20250625T024827Z
UID:8475-1757577600-1757782800@canadianrdn.ca
SUMMARY:2025 Pulmonary Hypertension Community Conference
DESCRIPTION:​Join PHA Canada’s 2025 PH Community Conference to explore how they can drive meaningful change and inspire hope across the PH community. This year’s event will feature powerful keynote speakers\, interactive workshops\, and engaging panel discussions—all designed to empower you with new strategies\, the latest research\, and stories of resilience and innovation.
URL:https://canadianrdn.ca/event/2025-pulmonary-hypertension-community-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/06/PHA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250911T080000
DTEND;TZID=America/Toronto:20250913T170000
DTSTAMP:20260404T021443
CREATED:20250812T194724Z
LAST-MODIFIED:20250812T194724Z
UID:8717-1757577600-1757782800@canadianrdn.ca
SUMMARY:Ottawa NMD 2025 Conference
DESCRIPTION:7th Ottawa International Conference on Neuromuscular Disease and Biology will take place at the Fairmont Château Laurier in Ottawa\, Canada on September 11-13\, 2025. \nThe Ottawa NMD 2025 conference will offer an outstanding program emphasizing recent breakthroughs in basic and translational research and clinical discoveries in neuromuscular disease.
URL:https://canadianrdn.ca/event/ottawa-nmd-2025-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/OttawaNMD2025-Poster-3-pdf-768x1024-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250912T110000
DTEND;TZID=America/Toronto:20250912T233000
DTSTAMP:20260404T021443
CREATED:20250421T221821Z
LAST-MODIFIED:20250618T143732Z
UID:8017-1757674800-1757719800@canadianrdn.ca
SUMMARY:OTCD-Gala for a Cure
DESCRIPTION:
URL:https://canadianrdn.ca/event/otcd-gala-for-a-cure/
CATEGORIES:Caregiver,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/IMG_3577-1536x1097-1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250917T080000
DTEND;TZID=America/Edmonton:20250919T170000
DTSTAMP:20260404T021443
CREATED:20250722T211003Z
LAST-MODIFIED:20250722T211003Z
UID:8587-1758096000-1758301200@canadianrdn.ca
SUMMARY:Canadian Cystic Fibrosis Conference
DESCRIPTION:Join CFC September 17 –19\, 2025 for Cystic Fibrosis Canada’s first Canadian Cystic Fibrosis Conference\, hosted in Calgary\, Alberta.  \nThe conference will spotlight the development of Canadian consensus and national standards for CF care\, explore early implementation strategies\, and highlight hot topics in healthcare and research and knowledge gaps that future research and clinical trials can address.
URL:https://canadianrdn.ca/event/canadian-cystic-fibrosis-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/images.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250924T080000
DTEND;TZID=America/Toronto:20250926T170000
DTSTAMP:20260404T021443
CREATED:20250728T214440Z
LAST-MODIFIED:20250728T214440Z
UID:8601-1758700800-1758906000@canadianrdn.ca
SUMMARY:Connected in Care Conference
DESCRIPTION:As part of Pregnancy and Infant Loss Network’s long-term vision\, Connected in Care are hosting their second biennial educational conference at the Sheraton Parkway Toronto North Hotel & Suites in Richmond Hill on Wednesday\, September 24 – Friday\, September 26\, 2025.
URL:https://canadianrdn.ca/event/connected-in-care-conference/
CATEGORIES:Conferences,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/1753454113187.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250924T100000
DTEND;TZID=America/Edmonton:20250924T120000
DTSTAMP:20260404T021443
CREATED:20250814T153021Z
LAST-MODIFIED:20250814T153021Z
UID:8751-1758708000-1758715200@canadianrdn.ca
SUMMARY:La dysferlinopathie: Une dystrophie musculaire affectant le muscle strié
DESCRIPTION:1st episode of the RQMO – RARE webinar series. QC presented by Camille Bouchard\, PhD student in molecular medicine in the laboratory of Professor Jacques P. Tremblay\, Université Laval \nModerator: Jonathan Pratt\, Executive Director of the RQMO
URL:https://canadianrdn.ca/event/la-dysferlinopathie-une-dystrophie-musculaire-affectant-le-muscle-strie/
CATEGORIES:National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1755177496772.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250926T080000
DTEND;TZID=America/Edmonton:20250928T170000
DTSTAMP:20260404T021443
CREATED:20250520T191324Z
LAST-MODIFIED:20250520T191324Z
UID:8291-1758873600-1759078800@canadianrdn.ca
SUMMARY:Biennial National Conference
DESCRIPTION:Registration information coming soon.
URL:https://canadianrdn.ca/event/biennial-national-conference/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1747242004308.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251001T130000
DTEND;TZID=America/Toronto:20251001T160000
DTSTAMP:20260404T021443
CREATED:20250916T185043Z
LAST-MODIFIED:20250916T185043Z
UID:8900-1759323600-1759334400@canadianrdn.ca
SUMMARY:Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing capabilities in Canada
DESCRIPTION:The Stem Cell Network (SCN) and the National Research Council Canada (NRC) are excited to contribute to the national conversation on cell and gene therapy for rare diseases. Building on the 2024 event titled “Canadian Rare Disease Ecosystem Symposium: Genetic Therapies for Rare Disease”\, SCN and NRC are pleased to invite you to the Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing Capabilities in Canada–a focused half-day event dedicated to advancing gene and cell therapy development in Canada through regulatory alignment and manufacturing readiness. \nThis virtual symposium will convene international regulatory authorities\, Canadian manufacturing experts\, and rare disease developers to explore two critical enablers of translational success: clinical trial readiness and cGMP manufacturing capacity.
URL:https://canadianrdn.ca/event/canadian-rare-disease-symposium-preparing-for-clinical-trials-international-regulatory-insights-and-cgmp-gene-therapy-manufacturing-capabilities-in-canada/
CATEGORIES:Caregiver,Clinical Trials,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757349450505.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251006T080000
DTEND;TZID=America/Toronto:20251008T170000
DTSTAMP:20260404T021443
CREATED:20250812T195947Z
LAST-MODIFIED:20250812T195947Z
UID:8734-1759737600-1759942800@canadianrdn.ca
SUMMARY:Connected Minds: Exploring the Intersection of Brains\, Machines & Society
DESCRIPTION:Explore the future of tech\, health & society at the Connected Minds Conference 2025\, where ideas ignite and innovation thrives! \n 
URL:https://canadianrdn.ca/event/connected-minds-exploring-the-intersection-of-brains-machines-society/
CATEGORIES:Conferences,Healthcare,In Person,National,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/1754489268362.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251015T100000
DTEND;TZID=America/Edmonton:20251015T113000
DTSTAMP:20260404T021443
CREATED:20251006T201940Z
LAST-MODIFIED:20251006T201940Z
UID:8949-1760522400-1760527800@canadianrdn.ca
SUMMARY:A Conversation About Patient Partner Outsider Syndrome
DESCRIPTION:Patient/caregiver partnership in health research has evolved substantially since the launch of Canada’s Strategy for Patient-Oriented Research (SPOR) over a decade ago. However\, findings from the Patient Advisors Network (PAN) “Reimagining the Research Landscape” report\, commissioned by CIHR in 2024 for the SPOR Refresh\, revealed that patient/caregiver partners often feel like outsiders in the research ecosystem. This webinar will take a deeper dive into the OSSU Research Day presentation “Why do patient/caregiver partners feel like outsiders?” \nMs. Maureen Smith will moderate a frank discussion between two of the report authors\, Mses. Alies Maybee and Annette McKinnon\, and PAN Board member Ms. Sandra Holdsworth\, and leading patient-oriented researchers Drs. Manoj Lalu\, Ambreen Sayani and Stuart Nicholls\, on the barriers uncovered by the report and showcasing best practices to mitigate these barriers.
URL:https://canadianrdn.ca/event/a-conversation-about-patient-partner-outsider-syndrome/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1758888477388.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251016T080000
DTEND;TZID=America/Edmonton:20251017T170000
DTSTAMP:20260404T021443
CREATED:20250729T164926Z
LAST-MODIFIED:20250729T164926Z
UID:8613-1760601600-1760720400@canadianrdn.ca
SUMMARY:2nd Canadian Symposium on Neurofibromatosis
DESCRIPTION:This Symposium is aimed at the patients and families\, as well as clinicians and health professionals (doctors\, nurses\, researchers).
URL:https://canadianrdn.ca/event/2nd-canadian-symposium-on-neurofibromatosis/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/07/2nd-canadian.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251016T123000
DTEND;TZID=America/Toronto:20251016T133000
DTSTAMP:20260404T021443
CREATED:20251015T212343Z
LAST-MODIFIED:20251015T212343Z
UID:9023-1760617800-1760621400@canadianrdn.ca
SUMMARY:Aging Out: Transition of care for children with rare neurodevelopmental disorders
DESCRIPTION:Approximately one in 12 Canadians are affected by a rare disorder and two thirds of them are children\, according to the Canadian Organization for Rare Disorders (CORD). Due to the low number of individual cases\, qualified specialists are hard to find. After years of assembling a trusted pediatric care team\, parents are often faced with the challenge of finding a new adult care team once their child turns 18. The challenge is even more complex for rare neurodevelopmental disorders requiring multi-disciplinary care. \nWhat strategies would ease the pediatric to adult care transition? This webcast will bring health care providers\, medical experts and patient advocates together to share ideas and solutions to bridge the gap between pediatric to adult care for those living with neurodevelopmental disorders.
URL:https://canadianrdn.ca/event/aging-out-transition-of-care-for-children-with-rare-neurodevelopmental-disorders/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/download.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251016T200000
DTEND;TZID=America/Toronto:20251016T210000
DTSTAMP:20260404T021443
CREATED:20251014T180518Z
LAST-MODIFIED:20251014T180518Z
UID:9017-1760644800-1760648400@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat: Digital Storytelling with Krystle Schofield
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by rare diagnosis and rare disease on October 16 at 8 P.M. EST. and learn about digital storytelling. Learn from Krystle Schofield\, a RareKids-CAN parent partner\, B.C. mom\, digital storytelling facilitator + photographer.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-digital-storytelling-with-krystle-schofield/
CATEGORIES:Caregiver,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1760118853512.jpg
END:VEVENT
END:VCALENDAR