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X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261018T080000
DTEND;TZID=America/Edmonton:20261020T170000
DTSTAMP:20260929T165740Z
CREATED:20251113T224713Z
LAST-MODIFIED:20260929T165740Z
UID:9153-1792310400-1792515600@canadianrdn.ca
SUMMARY:Kids Brain Health Network (KBHN) Annual Conference
DESCRIPTION:Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference\, happening October 18–20\, 2026\, in Calgary\, Alberta!
URL:https://canadianrdn.ca/event/kids-brain-health-network-kbhn-annual-conference/
CATEGORIES:Caregiver,Conferences,In Person,Industry,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/6346391-6978e2ae9c849.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261019T080000
DTEND;TZID=America/Toronto:20261020T170000
DTSTAMP:20260929T163637Z
CREATED:20260929T163637Z
LAST-MODIFIED:20260929T163637Z
UID:11686-1792396800-1792515600@canadianrdn.ca
SUMMARY:Advancing Equity in Genetics and Genomics in Canada (AEG2C) and Beyond
DESCRIPTION:Join in Montréal (or online) on October 19–20\, 2026 for the second AEG2C Symposium. This event will bring together researchers\, trainees\, community partners\, and patients to advance equity in genetics and genomics research across Canada and beyond. \nThis symposium is organized and hosted by the McGill Canada Excellence Research Chair (CERC) in Genomic Medicine\, CIHR Institute of Genetics (CIHR-IG)\, Genome Canada\, and the Pan-Canadian Genome Library (PCGL).
URL:https://canadianrdn.ca/event/advancing-equity-in-genetics-and-genomics-in-canada-aeg2c-and-beyond/
CATEGORIES:Clinical Trials,Conferences,Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789484288760.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261022T190000
DTEND;TZID=America/Toronto:20261022T200000
DTSTAMP:20260929T165608Z
CREATED:20260929T165420Z
LAST-MODIFIED:20260929T165608Z
UID:11698-1792695600-1792699200@canadianrdn.ca
SUMMARY:RQMO: Handicap et finances: tout le monde peut avoir un plan
DESCRIPTION:Join RQMO for a webinar with Lucy Rivera who will discuss the different strategies and resources that can help people living with disabilities and their loved ones better plan for their financial future.
URL:https://canadianrdn.ca/event/rqmo-disability-and-finances-everyone-can-have-a-plan/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1790090258307.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261027T080000
DTEND;TZID=America/Toronto:20261029T170000
DTSTAMP:20261001T190812Z
CREATED:20261001T190812Z
LAST-MODIFIED:20261001T190812Z
UID:11738-1793088000-1793293200@canadianrdn.ca
SUMMARY:Stronger Together: IMPaCT & RareKids-CAN Joint National Conference 2026
DESCRIPTION:IMPaCT and RareKids-CAN are bringing Canada’s maternal\, pediatric\, and rare disease research communities together for a three-day national conference in Montréal.
URL:https://canadianrdn.ca/event/stronger-together-impact-rarekids-can-joint-national-conference-2026/
CATEGORIES:Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Codex-Image-Sep-17-2026-12_14_11-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20261109T080000
DTEND;TZID=America/Vancouver:20261111T170000
DTSTAMP:20261027T165228Z
CREATED:20261027T165228Z
LAST-MODIFIED:20261027T165228Z
UID:11879-1794211200-1794416400@canadianrdn.ca
SUMMARY:Stem Cell Network 2026 Till & McCulloch Meeting
DESCRIPTION:The Till & McCulloch Meetings (TMM)\, hosted by the Stem Cell Network\, is Canada’s premier stem cell and regenerative medicine research event\, bringing together stem cell and regenerative medicine scientists\, clinicians\, bioengineers\, and ethicists\, as well as representatives from industry\, government\, health\, and non-profit sectors from Canada and abroad.
URL:https://canadianrdn.ca/event/stem-cell-network-2026-till-mcculloch-meeting/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/TMM-logo-300x300-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20261112T080000
DTEND;TZID=America/Halifax:20261113T170000
DTSTAMP:20261001T190948Z
CREATED:20261001T190948Z
LAST-MODIFIED:20261001T190948Z
UID:11741-1794470400-1794589200@canadianrdn.ca
SUMMARY:CORD Fall Conference 2026
DESCRIPTION:From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey\, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans.
URL:https://canadianrdn.ca/event/cord-fall-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/lg_SavetheDateFallConference2026-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261113T080000
DTEND;TZID=America/Toronto:20261114T170000
DTSTAMP:20261027T164655Z
CREATED:20261027T164655Z
LAST-MODIFIED:20261027T164655Z
UID:11869-1794556800-1794675600@canadianrdn.ca
SUMMARY:Canadian Symposium on Lysosomal Diseases
DESCRIPTION:The fourth Canadian Symposium on Lysosomal Diseases focuses on advances in disease mechanisms\, diagnosis\, and management of lysosomal storage disorders\, including Gaucher disease\, Fabry disease\, Pompe disease\, and Niemann-Pick disease.
URL:https://canadianrdn.ca/event/canadian-symposium-on-lysosomal-diseases/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/dYVqsImvNDqMz-4DMcw6vNQLacrQ1C9Vu-KelswRLoe1dOTozDLsQPyV8d2CpiZr10l_iNECJhl6lzvfyjmXqre61gRGFfLH3m7vKq-QLlEEMrazVvGXqFHk_wCSN_LznDTKxGLFLJRVr7GZKuY2IrQzD6WWaxri9t44sqC9S1M.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261118T120000
DTEND;TZID=America/Toronto:20261118T140000
DTSTAMP:20261027T162658Z
CREATED:20261027T162658Z
LAST-MODIFIED:20261027T162658Z
UID:11848-1795003200-1795010400@canadianrdn.ca
SUMMARY:HDRN Canada Discussion Session: From IDEA to Action: Three New Tools for Health Data Research
DESCRIPTION:The session will introduce three practical tools developed From HDRN Canada’s IDEA Strategy & Action Plan:\n🔹 Unlearning Club Curriculum — to build foundational IDEA knowledge and connecting it to administrative health data research.\n🔹 IDEA Benchmarking Tool — to help organizations assess current IDEA initiatives and identify opportunities for future action.\n🔹 Core Questions Reflection Tool — to prompt researchers and data administrators to consider IDEA from the earliest stages of project design. \nHear the thinking behind each tool\, how they were developed and how they can be put to work in real-world settings.
URL:https://canadianrdn.ca/event/hdrn-canada-discussion-session-from-idea-to-action-three-new-tools-for-health-data-research/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1792701356267.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261118T190000
DTEND;TZID=America/Toronto:20261118T200000
DTSTAMP:20261027T164427Z
CREATED:20261027T164427Z
LAST-MODIFIED:20261027T164427Z
UID:11866-1795028400-1795032000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada: Gene Therapy Education Night
DESCRIPTION:Join Defeat Duchenne Canada for a 60-minute virtual session bringing together leading voices in gene therapy for Duchenne\, sponsored by REGENXBIO\, Roche Canada\, and Solid Biosciences. Together with patient voices and clinical expertise\, they’ll help translate complex science into clear\, practical information you can use. \n 
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-gene-therapy-education-night/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1792075442229.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261125T190000
DTEND;TZID=America/Toronto:20261125T203000
DTSTAMP:20261027T164901Z
CREATED:20261027T164901Z
LAST-MODIFIED:20261027T164901Z
UID:11872-1795633200-1795638600@canadianrdn.ca
SUMMARY:CASL-CaNAL Autoimmune Liver Disease Case Spotlight Series Third Edition
DESCRIPTION:The Canadian Association for the Study of the Liver (CASL)\, in partnership with the Canadian Network for Autoimmune Liver Disease (CaNAL)\, is hosting a national webinar focused on autoimmune and rare liver diseases. The session features Dr. Aldo Montano-Loza of the University of Alberta and Dr. Gideon M. Hirschfield of Toronto General Hospital’s Autoimmune and Rare Liver Disease Program. The activity is accredited for continuing medical education.
URL:https://canadianrdn.ca/event/casl-canal-autoimmune-liver-disease-case-spotlight-series-third-edition/
CATEGORIES:Caregiver,Events,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/CASL-CaNAL-AILD-Pan-Canadian-Webinar-Series-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261130T080000
DTEND;TZID=America/Toronto:20261201T170000
DTSTAMP:20261027T165053Z
CREATED:20261027T165053Z
LAST-MODIFIED:20261027T165053Z
UID:11876-1796025600-1796144400@canadianrdn.ca
SUMMARY:MITO2026 International Conference
DESCRIPTION:The MITO2026 International Conference\, organized by MITO2i and MitoCanada\, brings together people working across the mitochondrial disease research community. Mitochondrial disorders can affect multiple organs and systems and include many rare genetic conditions. \n 
URL:https://canadianrdn.ca/event/mito2026-international-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Mito2026-Conference-Banner-main-page-1200x533-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261214T120000
DTEND;TZID=America/Edmonton:20261214T123000
DTSTAMP:20261027T163918Z
CREATED:20261027T163918Z
LAST-MODIFIED:20261027T163918Z
UID:11860-1797249600-1797251400@canadianrdn.ca
SUMMARY:CFRD in 30 Minutes
DESCRIPTION:Cystic fibrosis-related diabetes (CFRD) isn’t quite the same as other forms of diabetes and understanding the differences matters. \nJoin Dr. Adèle Coriati and Dr. Rémi Rabasa-Lhoret on December 14 for CFRD in 30 Minutes\, a short\, practical webinar for people with CF\, families and caregivers.
URL:https://canadianrdn.ca/event/cfrd-in-30-minutes/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1792610398406.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20270125T080000
DTEND;TZID=America/Toronto:20270126T170000
DTSTAMP:20260817T162431Z
CREATED:20260817T162431Z
LAST-MODIFIED:20260817T162431Z
UID:11430-1800864000-1800982800@canadianrdn.ca
SUMMARY:Inaugural Canadian Gene & Cell Therapy Conference
DESCRIPTION:Convened by RareKids-CAN in partnership with the Conference Organizing Committee\, the conference will bring together researchers\, clinicians\, manufacturers\, industry leaders\, regulators\, trainees\, and patient and family partners from across the full translational pipeline.
URL:https://canadianrdn.ca/event/inaugural-canadian-gene-cell-therapy-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1784829020316.jpg
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