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X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:DAYLIGHT
TZOFFSETFROM:-0400
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260919T090000
DTEND;TZID=America/Toronto:20260919T140000
DTSTAMP:20260817T155910Z
CREATED:20260817T155910Z
LAST-MODIFIED:20260817T155910Z
UID:11420-1789808400-1789826400@canadianrdn.ca
SUMMARY:SickKids: Neurovascular Family Education Day 2026
DESCRIPTION:Please join SickKids for an educational event for patients\, families\, and care-givers featuring expert speakers on Moyamoya Disease.
URL:https://canadianrdn.ca/event/sickkids-neurovascular-family-education-day-2026/
CATEGORIES:Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/images.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260924T110000
DTEND;TZID=America/Edmonton:20260924T120000
DTSTAMP:20260910T155541Z
CREATED:20260910T155541Z
LAST-MODIFIED:20260910T155541Z
UID:11621-1790247600-1790251200@canadianrdn.ca
SUMMARY:Health Data Research Network Canada: Quantifiable Indigenous Concepts: Increasing Precision of Population Analysis by Including “Indian Act” Legislation
DESCRIPTION:Drawing on Canada’s 2021 Census of Population\, Kienan will discuss Quantifiable Indigenous Concepts\, which were developed to strengthen how Indigenous populations are identified and analyzed in quantitative data. He’ll also draw on his lived experience as an Indigenous person represented in population datasets and examine the importance of appropriately representing the approximately 0.9 million people in the Status Indian population.
URL:https://canadianrdn.ca/event/health-data-research-network-canada-quantifiable-indigenous-concepts-increasing-precision-of-population-analysis-by-including-indian-act-legislation/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1787602896646.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T080000
DTEND;TZID=America/Edmonton:20260925T170000
DTSTAMP:20260831T190905Z
CREATED:20260831T190559Z
LAST-MODIFIED:20260831T190905Z
UID:11562-1790323200-1790355600@canadianrdn.ca
SUMMARY:2026 NMD4C Annual Meeting
DESCRIPTION:Join NMD4C for a full day of dynamic discussions\, research updates\, and networking opportunities—just ahead of the 6th Western Canadian Neuromuscular Conference (WCNMC 2026). The agenda will feature a brief network update\, trainee and early‑career recognitions\, flash talks\, a health economics research showcase\, and the following cross‑disciplinary and parallel clinical / pre‑clinical discussion sessions
URL:https://canadianrdn.ca/event/2026-nmd4c-annual-meeting/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/08/2026-NMD4C-AM-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T080000
DTEND;TZID=America/Edmonton:20260927T170000
DTSTAMP:20260831T190839Z
CREATED:20260831T190826Z
LAST-MODIFIED:20260831T190839Z
UID:11565-1790323200-1790528400@canadianrdn.ca
SUMMARY:6th Western Canadian Neuromuscular Conference (WCNMC 2026)
DESCRIPTION:WCNMC 2026 will continue with its proud collaboration with Muscular Dystrophy Canada and the Neuromuscular Disease Network for Canada (NMD4C) to broaden reach and amplify impact. The WCNMC brings together clinicians\, researchers\, trainees\, nurses\, and allied health professionals for three days of learning\, featuring parallel basic/translational science and clinical sessions\, alongside case discussions and neuromuscular research presentations.
URL:https://canadianrdn.ca/event/6th-western-canadian-neuromuscular-conference-wcnmc-2026/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/wcnmc.ca_.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T100000
DTEND;TZID=America/Edmonton:20260929T120000
DTSTAMP:20260922T164330Z
CREATED:20260922T164330Z
LAST-MODIFIED:20260922T164330Z
UID:11631-1790676000-1790683200@canadianrdn.ca
SUMMARY:CORD: Webinar 1 : How Readiness Is Built: Lessons from Canadian Rare Disease Pathways
DESCRIPTION:Beyond Drug Access: Building End-to-End Readiness for Phase 2 of Canada’s Rare Disease Drug Strategy As Canada moves toward Phase 2 of the Rare Disease Drug Strategy\, what can we learn from Phase 1\, and what needs to be strengthened? This webinar will explore end-to-end readiness through Canadian experiences with hemophilia\, thalassemia and sickle cell disease\, examining diagnosis\, specialist care\, access to therapies\, disease management and patient support. We will consider what these experiences can teach us about the capabilities Canada needs to build and sustain as new rare disease therapies emerge.
URL:https://canadianrdn.ca/event/cord-webinar-1-how-readiness-is-built-lessons-from-canadian-rare-disease-pathways/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789739264388.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T110000
DTEND;TZID=America/Edmonton:20260929T123000
DTSTAMP:20260910T155159Z
CREATED:20260910T155159Z
LAST-MODIFIED:20260910T155159Z
UID:11615-1790679600-1790685000@canadianrdn.ca
SUMMARY:Indigenous Caregivers Collective (ICC): Virtual Panel Indigenous Values in Care
DESCRIPTION:In acknowledgement of the National Day for Truth and Reconciliation\, this virtual panel will centre the voices\, experiences\, and knowledge of Indigenous caregivers from across Canada. Members of the National Indigenous Caregiver Advisory will share their lived experiences and perspectives on caregiving\, culture\, community\, and reconciliation.
URL:https://canadianrdn.ca/event/indigenous-caregivers-collective-icc-virtual-panel-indigenous-values-in-care/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788281843629.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T123000
DTEND;TZID=America/Edmonton:20260929T133000
DTSTAMP:20260910T154339Z
CREATED:20260910T154339Z
LAST-MODIFIED:20260910T154339Z
UID:11608-1790685000-1790688600@canadianrdn.ca
SUMMARY:National Day for Truth and Reconciliation: Anti-Indigenous Racism in the Emergency Department
DESCRIPTION:The Indigenous Health Office invites you to attend “Anti-Indigenous Racism in the Emergency Department”\, a conversation with Dr. Tailfeathers (MD) and Dr. Patrick McLane (PhD).
URL:https://canadianrdn.ca/event/national-day-for-truth-and-reconciliation-anti-indigenous-racism-in-the-emergency-department/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788891496595.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261003T080000
DTEND;TZID=America/Toronto:20261004T170000
DTSTAMP:20260817T160153Z
CREATED:20260817T160131Z
LAST-MODIFIED:20260817T160153Z
UID:11423-1791014400-1791133200@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada: Family Forum 2026
DESCRIPTION:Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation\, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada will come together to learn from leading experts\, share experiences\, and build lasting friendships with others who understand the journey.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-family-forum-2026/
CATEGORIES:Caregiver,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/08/Event-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261006T110000
DTEND;TZID=America/Edmonton:20261006T120000
DTSTAMP:20261001T185808Z
CREATED:20261001T185808Z
LAST-MODIFIED:20261001T185808Z
UID:11726-1791284400-1791288000@canadianrdn.ca
SUMMARY:RareKids-CAN: Logistics of ATMP Workflows for Pharmacy Teams
DESCRIPTION:This webinar will provide a practical\, high-level overview of how pharmacies handle Advanced Therapeutics Medicinal Products (ATMPs). ATMPs\, such as gene therapy products\, significantly differ from the traditional therapies (i.e.\, small molecule drugs\, biologics\, etc.). Therefore\, pharmacies require tailored workflows from the initial storage\, documentation and handling\, \, as well as chain-of-custody consideration.
URL:https://canadianrdn.ca/event/rarekids-can-logistics-of-atmp-workflows-for-pharmacy-teams/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9a37b757-49b5-4c82-bf34-f3a1e20eba1c.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261006T170000
DTEND;TZID=America/Toronto:20261006T180000
DTSTAMP:20260929T163857Z
CREATED:20260929T163857Z
LAST-MODIFIED:20260929T163857Z
UID:11689-1791306000-1791309600@canadianrdn.ca
SUMMARY:NMD4C and MDC: CPD-Accredited Webinar | DM1 Clinical and Translational Research Updates
DESCRIPTION:NMD4C and MDC Canada are pleased to invite you to a CPD-accredited webinar on DM1 Clinical and Translational Research Updates. This webinar is primarily targeted at Canadian clinicians\, academics and trainees with an interest in neuromuscular diseases. NMD4C and MDC are providing organizational and technical support. This webinar is supported by Novartis through a restricted educational sponsorship with no involvement or influence on program content.
URL:https://canadianrdn.ca/event/nmd4c-and-mdc-cpd-accredited-webinar-dm1-clinical-and-translational-research-updates/
CATEGORIES:Clinical Trials,Healthcare,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/10-2026-NMD-Mystery-Case-Rounds.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261014T110000
DTEND;TZID=America/Edmonton:20261014T120000
DTSTAMP:20261001T185943Z
CREATED:20261001T185943Z
LAST-MODIFIED:20261001T185943Z
UID:11729-1791975600-1791979200@canadianrdn.ca
SUMMARY:RareKids-CAN: Navigating Advanced Therapies in Paediatric Rare Disease: An Introduction for Patients and Caregivers
DESCRIPTION:This webinar is the first in the series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority\, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness’. It provides a practical introduction to Advanced Therapy Medicinal Products (ATMPs) for patients and caregivers. The session will explain what ATMPs are\, how they work\, how they differ from traditional medicines\, and the types of advanced therapies currently available or being studied. Participants will also learn how to assess what developments may be relevant to their condition\, find clinical trials and other credible information\, and start conversations with their healthcare team about emerging therapies
URL:https://canadianrdn.ca/event/rarekids-can-navigating-advanced-therapies-in-paediatric-rare-disease-an-introduction-for-patients-and-caregivers/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9382e8ed-421c-4576-b08e-76cee8289461.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261014T120000
DTEND;TZID=America/Toronto:20261014T133000
DTSTAMP:20260929T163503Z
CREATED:20260929T163503Z
LAST-MODIFIED:20260929T163503Z
UID:11683-1791979200-1791984600@canadianrdn.ca
SUMMARY:Stem Cell Network: Careers Beyond Academia: Journal Editing and Scientific Writing
DESCRIPTION:The Stem Cell Network and Medicine by Design\, the academic division of CCRM\, have partnered to host Careers Beyond Academia\, a virtual career seminar series that will profile a wide variety of different careers available to trainees who hold a degree in the life sciences. The goal of this series is to help trainees understand the different careers available outside of academia\, the skills required for certain positions\, and some of the daily functions of those positions.
URL:https://canadianrdn.ca/event/stem-cell-network-careers-beyond-academia-journal-editing-and-scientific-writing/
CATEGORIES:Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788870329361.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261016T120000
DTEND;TZID=America/Toronto:20261016T133000
DTSTAMP:20261001T190544Z
CREATED:20261001T190544Z
LAST-MODIFIED:20261001T190544Z
UID:11735-1792152000-1792157400@canadianrdn.ca
SUMMARY:CORD: Webinar 2: When Innovation Rewrites the Pathway
DESCRIPTION:From Canadian Experience to Phase 2 Readiness How can Phase 2 RDDS help Canada anticipate the pathway consequences of new rare and precision therapies – so that screening\, diagnosis\, eligibility\, expertise\, delivery\, patient choice\, monitoring and learning do not have to be rebuilt after each access decision?
URL:https://canadianrdn.ca/event/cord-webinar-2-when-innovation-rewrites-the-pathway/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/1790866766307.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261018T080000
DTEND;TZID=America/Edmonton:20261020T170000
DTSTAMP:20260929T165740Z
CREATED:20251113T224713Z
LAST-MODIFIED:20260929T165740Z
UID:9153-1792310400-1792515600@canadianrdn.ca
SUMMARY:Kids Brain Health Network (KBHN) Annual Conference
DESCRIPTION:Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference\, happening October 18–20\, 2026\, in Calgary\, Alberta!
URL:https://canadianrdn.ca/event/kids-brain-health-network-kbhn-annual-conference/
CATEGORIES:Caregiver,Conferences,In Person,Industry,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/6346391-6978e2ae9c849.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261019T080000
DTEND;TZID=America/Toronto:20261020T170000
DTSTAMP:20260929T163637Z
CREATED:20260929T163637Z
LAST-MODIFIED:20260929T163637Z
UID:11686-1792396800-1792515600@canadianrdn.ca
SUMMARY:Advancing Equity in Genetics and Genomics in Canada (AEG2C) and Beyond
DESCRIPTION:Join in Montréal (or online) on October 19–20\, 2026 for the second AEG2C Symposium. This event will bring together researchers\, trainees\, community partners\, and patients to advance equity in genetics and genomics research across Canada and beyond. \nThis symposium is organized and hosted by the McGill Canada Excellence Research Chair (CERC) in Genomic Medicine\, CIHR Institute of Genetics (CIHR-IG)\, Genome Canada\, and the Pan-Canadian Genome Library (PCGL).
URL:https://canadianrdn.ca/event/advancing-equity-in-genetics-and-genomics-in-canada-aeg2c-and-beyond/
CATEGORIES:Clinical Trials,Conferences,Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789484288760.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261022T190000
DTEND;TZID=America/Toronto:20261022T200000
DTSTAMP:20260929T165608Z
CREATED:20260929T165420Z
LAST-MODIFIED:20260929T165608Z
UID:11698-1792695600-1792699200@canadianrdn.ca
SUMMARY:RQMO: Handicap et finances: tout le monde peut avoir un plan
DESCRIPTION:Join RQMO for a webinar with Lucy Rivera who will discuss the different strategies and resources that can help people living with disabilities and their loved ones better plan for their financial future.
URL:https://canadianrdn.ca/event/rqmo-disability-and-finances-everyone-can-have-a-plan/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1790090258307.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261027T080000
DTEND;TZID=America/Toronto:20261029T170000
DTSTAMP:20261001T190812Z
CREATED:20261001T190812Z
LAST-MODIFIED:20261001T190812Z
UID:11738-1793088000-1793293200@canadianrdn.ca
SUMMARY:Stronger Together: IMPaCT & RareKids-CAN Joint National Conference 2026
DESCRIPTION:IMPaCT and RareKids-CAN are bringing Canada’s maternal\, pediatric\, and rare disease research communities together for a three-day national conference in Montréal.
URL:https://canadianrdn.ca/event/stronger-together-impact-rarekids-can-joint-national-conference-2026/
CATEGORIES:Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Codex-Image-Sep-17-2026-12_14_11-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20261112T080000
DTEND;TZID=America/Halifax:20261113T170000
DTSTAMP:20261001T190948Z
CREATED:20261001T190948Z
LAST-MODIFIED:20261001T190948Z
UID:11741-1794470400-1794589200@canadianrdn.ca
SUMMARY:CORD Fall Conference 2026
DESCRIPTION:From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey\, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans.
URL:https://canadianrdn.ca/event/cord-fall-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/lg_SavetheDateFallConference2026-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20270125T080000
DTEND;TZID=America/Toronto:20270126T170000
DTSTAMP:20260817T162431Z
CREATED:20260817T162431Z
LAST-MODIFIED:20260817T162431Z
UID:11430-1800864000-1800982800@canadianrdn.ca
SUMMARY:Inaugural Canadian Gene & Cell Therapy Conference
DESCRIPTION:Convened by RareKids-CAN in partnership with the Conference Organizing Committee\, the conference will bring together researchers\, clinicians\, manufacturers\, industry leaders\, regulators\, trainees\, and patient and family partners from across the full translational pipeline.
URL:https://canadianrdn.ca/event/inaugural-canadian-gene-cell-therapy-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1784829020316.jpg
END:VEVENT
END:VCALENDAR