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DTSTART:20251102T060000
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DTSTART:20261101T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240930
DTEND;VALUE=DATE:20241001
DTSTAMP:20260405T095401
CREATED:20240925T213853Z
LAST-MODIFIED:20240925T213853Z
UID:5927-1727654400-1727740799@canadianrdn.ca
SUMMARY:National Day for Truth and Reconciliation
DESCRIPTION:Each year\, September 30 marks the National Day for Truth and Reconciliation. \nThe day honours the children who never returned home and Survivors of residential schools\, as well as their families and communities. Public commemoration of the tragic and painful history and ongoing impacts of residential schools is a vital component of the reconciliation process. \nThis federal statutory holiday was created through legislative amendments made by Parliament.
URL:https://canadianrdn.ca/event/national-day-for-truth-and-reconciliation/
CATEGORIES:National
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/09/ndtr_sm_banner_1631541000973_eng.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241015T120000
DTEND;TZID=America/Chicago:20241015T130000
DTSTAMP:20260405T095401
CREATED:20241004T013111Z
LAST-MODIFIED:20241004T013111Z
UID:6004-1728993600-1728997200@canadianrdn.ca
SUMMARY:Stem Cell Therapies for Neuromuscular Disorders
DESCRIPTION:
URL:https://canadianrdn.ca/event/stem-cell-therapies-for-neuromuscular-disorders/
CATEGORIES:Healthcare,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/Muscular.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241022T150000
DTEND;TZID=America/Chicago:20241022T160000
DTSTAMP:20260405T095401
CREATED:20240924T223058Z
LAST-MODIFIED:20240924T223058Z
UID:5921-1729609200-1729612800@canadianrdn.ca
SUMMARY:Update on treatment in Pompe disease
DESCRIPTION:Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on treatment updates in Pompe disease. This case-based rounds webinar is for Canadian clinicians\, academics\, and trainees with an interest in neuromuscular disease.
URL:https://canadianrdn.ca/event/update-on-treatment-in-pompe-disease/
CATEGORIES:National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241024T080000
DTEND;TZID=UTC:20241025T170000
DTSTAMP:20260405T095401
CREATED:20240809T212727Z
LAST-MODIFIED:20241004T014606Z
UID:5097-1729756800-1729875600@canadianrdn.ca
SUMMARY:The 4th Annual Canadian Children\, Youth and Communities (CCYC) Health In | Equity Conference
DESCRIPTION:The Canadian Children\, Youth and Communities (CCYC) In | Equity Conference is an interdisciplinary conference designed to bring together pediatric health and allied health care professionals to address health care inequities from birth to adolescence using a family-centred approach. \nThis conference explores health equity topics specific to marginalized communities in the Canadian health care system and offers approaches that can be implemented to address barriers in accessing healthcare for under serviced\, high-risk and economically disadvantaged children and youth.
URL:https://canadianrdn.ca/event/the-4th-annual-canadian-children-youth-and-communities-ccyc-health-in-equity-conference/
CATEGORIES:Caregiver,Conferences,National,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/Youth-Conference.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241031T120000
DTEND;TZID=America/Denver:20241031T130000
DTSTAMP:20260405T095401
CREATED:20240828T231253Z
LAST-MODIFIED:20240828T231253Z
UID:5502-1730376000-1730379600@canadianrdn.ca
SUMMARY:CRDN Townhall – An Update on the Co-Development of our Strategic Plan
DESCRIPTION:Join the Canadian Rare Disease Network (CRDN) – Réseau Canadien des Maladies Rares – for a dynamic townhall to engage with thought leaders\, experts\, and the rare disease community as we explore and shape the future of rare disease care and research in Canada. This townhall will provide an overview of the CRDN and its draft strategic plan. Following the presentation\, there will be an opportunity to ask questions and contribute to the co-development of CRDN’s strategic plan. Whether you are a patient\, caregiver\, researcher\, healthcare provider\, advocate\, or other member of the rare disease community\, your voice is vital in building a more integrated\, inclusive\, and compassionate approach to rare disease care and research in Canada. Register now to be part of this conversation!
URL:https://canadianrdn.ca/event/crdn-townhall-an-update-on-the-co-development-of-our-strategic-plan/
CATEGORIES:Caregiver,Events,National,Patient Focused,Policy,Provincial,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/Town-Hall-Eng.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241105
DTEND;VALUE=DATE:20241106
DTSTAMP:20260405T095401
CREATED:20240730T020251Z
LAST-MODIFIED:20240730T020251Z
UID:4886-1730764800-1730851199@canadianrdn.ca
SUMMARY:2024 Annual Pain Centre Conference - Building Bridges to Reduce Disparities in Pediatric Pain
DESCRIPTION:
URL:https://canadianrdn.ca/event/2024-annual-pain-centre-conference-building-bridges-to-reduce-disparities-in-pediatric-pain/
LOCATION:toronto\, ontario\, 686 Bay Street\, Toronto\, Ontario\, M5G 0A4\, Canada
CATEGORIES:Healthcare,In Person,National,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241105T170000
DTEND;TZID=UTC:20241105T180000
DTSTAMP:20260405T095401
CREATED:20241031T202009Z
LAST-MODIFIED:20241031T202009Z
UID:6858-1730826000-1730829600@canadianrdn.ca
SUMMARY:FSHD Clinical Updates
DESCRIPTION:Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to a webinar on FSHD clinical updates. This webinar is for Canadian clinicians\, academics\, researchers\, and trainees with an interest in neuromuscular disease. NMD4C and MDC are providing organizational and technical support. This is an independent clinical/academic webinar with no industry sponsorship or influence. AGENDA: Chair and Speaker: Dr. Lawrence Korngut Speakers: Dr. Patrick Horn: Results of a phase 3 study of losmapimod in the treatment of FSHD Dr. Eva Chin: Catalysing Innovation in FSHD Therapeutics Objectives: – Innovative new therapies on the horizon for FSHD – The role of patient foundations and patient-funded R&D for accelerating novel therapies – Understand the outcome to the REACH study of losmapimod in FSHD The NMD Rounds & Educational Webinars is a self-approved group learning activity (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada. If you have any questions\, please email <research@muscle.ca> If you would like to learn more about NMD4C and to become a member: https://neuromuscularnetwork.ca/become-a-member/
URL:https://canadianrdn.ca/event/fshd-clinical-updates/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241106T080000
DTEND;TZID=America/Halifax:20241107T170000
DTSTAMP:20260405T095401
CREATED:20240522T235647Z
LAST-MODIFIED:20240531T021705Z
UID:4147-1730880000-1730998800@canadianrdn.ca
SUMMARY:Clinical Trials Ontario Conference
DESCRIPTION:The CTO Clinical Trials Conference is a leading Canadian forum to drive innovation in clinical trials\, including leaders from the pharmaceutical and medical device industries\, academic and healthcare leaders\, representatives from patient groups\, health charities and research institutions. This annual event provides a unique opportunity for members of our multi-stakeholder sector to collaborate\, exchange knowledge and advance clinical trials.
URL:https://canadianrdn.ca/event/clinical-trials-ontario-conference/
LOCATION:Hilton\, Toronto\, Toronto\, Ontario\, Canada
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/05/ClinicalTrials-logo-2024-05.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241121T190000
DTEND;TZID=America/Chicago:20241121T200000
DTSTAMP:20260405T095401
CREATED:20241118T224118Z
LAST-MODIFIED:20241118T224118Z
UID:7004-1732215600-1732219200@canadianrdn.ca
SUMMARY:National Advocacy Update
DESCRIPTION:Join Cystic Fibrosis Canada’s National Advocacy Update on Thursday\, November 21\, from 7-8 PM ET. This virtual event is open to volunteer advocates\, and anyone wanting to advocate for individuals living with cystic fibrosis.
URL:https://canadianrdn.ca/event/national-advocacy-update/
CATEGORIES:Events,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241126T080000
DTEND;TZID=America/Halifax:20241127T170000
DTSTAMP:20260405T095401
CREATED:20240917T220323Z
LAST-MODIFIED:20240917T220323Z
UID:5823-1732608000-1732726800@canadianrdn.ca
SUMMARY:Fall 2024 Rare Disease Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/fall-2024-rare-disease-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20241204T110000
DTEND;TZID=America/Denver:20241204T120000
DTSTAMP:20260405T095401
CREATED:20241130T022325Z
LAST-MODIFIED:20241130T022325Z
UID:7098-1733310000-1733313600@canadianrdn.ca
SUMMARY:Accessing Data through DASH
DESCRIPTION:Learn how HDRN Canada’s Data Access Support Hub (DASH) can help health researchers access multi-regional data.
URL:https://canadianrdn.ca/event/accessing-data-through-dash/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241209T150000
DTEND;TZID=America/New_York:20241209T160000
DTSTAMP:20260405T095401
CREATED:20241204T223206Z
LAST-MODIFIED:20241204T223206Z
UID:7145-1733756400-1733760000@canadianrdn.ca
SUMMARY:ACT Canada Webinar Series: Health Policy Trials Unit: Closing the gap between evidence and policy with David Campbell\, Amity Quinn & Terry Saunders-Smith (Calgary AB)
DESCRIPTION:This webinar will provide an introduction to the Health Policy Trials Unit at the University of Calgary\, which was established with funding from ACT Canada. The presenters will define policy trials and illustrate key elements and challenges of policy trials through examples of past and current projects. Learning objectives: 1. Understand what health policy trials are 2. Recognize why and when to conduct policy trials 3. Identify key components and challenges of health policy trials
URL:https://canadianrdn.ca/event/act-canada-webinar-series-health-policy-trials-unit-closing-the-gap-between-evidence-and-policy-with-david-campbell-amity-quinn-terry-saunders-smith-calgary-ab/
CATEGORIES:Clinical Trials,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/12/Gd5WDEZXgAAQCzz.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241211T123000
DTEND;TZID=America/New_York:20241211T133000
DTSTAMP:20260405T095401
CREATED:20241204T225111Z
LAST-MODIFIED:20241204T225111Z
UID:7149-1733920200-1733923800@canadianrdn.ca
SUMMARY:Conférence sur les mesures et programmes financiers pour les personnes en situation de handicap
DESCRIPTION:
URL:https://canadianrdn.ca/event/conference-sur-les-mesures-et-programmes-financiers-pour-les-personnes-en-situation-de-handicap/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/12/Finautonome_logo_500_pixel_accueil.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241211T130000
DTEND;TZID=America/New_York:20241211T150000
DTSTAMP:20260405T095401
CREATED:20241127T022934Z
LAST-MODIFIED:20241127T022934Z
UID:7054-1733922000-1733929200@canadianrdn.ca
SUMMARY:ALS Canada Webinar: Exploring Holistic Therapies
DESCRIPTION:Join ALS Canada and a panel of presenters for the ALS Canada Webinar: Exploring Holistic Therapies to learn about various holistic therapies and techniques including Reiki\, deep breathing\, intuitive energy healing\, and wellness drumming. Each presenter will have a small presentation and demonstration.
URL:https://canadianrdn.ca/event/als-canada-webinar-exploring-holistic-therapies/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250116T120000
DTEND;TZID=America/New_York:20250116T130000
DTSTAMP:20260405T095401
CREATED:20241217T235100Z
LAST-MODIFIED:20241217T235100Z
UID:7271-1737028800-1737032400@canadianrdn.ca
SUMMARY:ACT Canada Webinar Series: Engaging patient partners in your CIHR grant application: Everything you ever wanted to know with Maureen Smith & Andrea Chow (Ontario)
DESCRIPTION:Learning Objectives: \n\nReview the ways in which patients can contribute as partners on your CHIR grant application\nIdentify the challenges and barriers to patients in fulfilling grant application requirements and how researchers can support patient partners\nDescribe the considerations specific to grant application requirements for researchers working with patient partners from groups who are frequently under-served by health research
URL:https://canadianrdn.ca/event/act-canada-webinar-series-engaging-patient-partners-in-your-cihr-grant-application-everything-you-ever-wanted-to-know-with-maureen-smith-andrea-chow-ontario/
CATEGORIES:Clinical Trials,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250204T190000
DTEND;TZID=America/New_York:20250204T200000
DTSTAMP:20260405T095401
CREATED:20250130T024529Z
LAST-MODIFIED:20250130T024529Z
UID:7441-1738695600-1738699200@canadianrdn.ca
SUMMARY:Neuromuscular Mystery Case Rounds
DESCRIPTION:Muscular Dystrophy Canada (MDC) and the Neuromuscular Disease Network for Canada (NMD4C) are pleased to invite you to Neuromuscular Mystery Case Rounds. This case-based rounds webinar is for Canadian clinicians\, academics\, and trainees with an interest in neuromuscular disease. NMD4C and MDC are providing organizational and technical support. This is an independent clinical/academic webinar with no industry sponsorship or influence.
URL:https://canadianrdn.ca/event/neuromuscular-mystery-case-rounds/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250224T080000
DTEND;TZID=America/Chicago:20250226T170000
DTSTAMP:20260405T095401
CREATED:20250219T015946Z
LAST-MODIFIED:20250219T015946Z
UID:7504-1740384000-1740589200@canadianrdn.ca
SUMMARY:2025 Clinical Trials Training Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2025-clinical-trials-training-summit/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250228T120000
DTEND;TZID=America/New_York:20250228T130000
DTSTAMP:20260405T095401
CREATED:20250207T035521Z
LAST-MODIFIED:20250207T043313Z
UID:7459-1740744000-1740747600@canadianrdn.ca
SUMMARY:CORD Rare Disease Day 2025 Webinar
DESCRIPTION:CORD is hosting a special webinar on Friday\, Feb 28 from 12-1pm EST so that everyone from across Canada can tune in and help put that funding to work. Here’s what they’ll discuss: – Ending the diagnostic odyssey with CHEO’s ThinkRare – Treating and tracking rare diseases at BC Cancer – Caring for complex kids and adults at BC Children’s Hospital – The challenge of treating adults with SMA in Manitoba – Measuring the socioeconomic impact of rare diseases on families and health systems
URL:https://canadianrdn.ca/event/cord-rare-disease-day-2025-webinar/
CATEGORIES:Caregiver,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250228T130000
DTEND;TZID=America/Denver:20250228T140000
DTSTAMP:20260405T095401
CREATED:20250219T020904Z
LAST-MODIFIED:20250219T020904Z
UID:7516-1740747600-1740751200@canadianrdn.ca
SUMMARY:Thriving with Duchenne
DESCRIPTION:
URL:https://canadianrdn.ca/event/thriving-with-duchenne/
CATEGORIES:Caregiver,Events,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250301T090000
DTEND;TZID=America/Denver:20250301T130000
DTSTAMP:20260405T095401
CREATED:20250207T040820Z
LAST-MODIFIED:20250207T040820Z
UID:7471-1740819600-1740834000@canadianrdn.ca
SUMMARY:Rare Disease Day 2025: Unlocking Hope for Rare Diseases
DESCRIPTION:On Saturday March 1st\, the Rare Disease Network of Alberta (rDNA) will be hosting Rare Disease Day 2025: Unlocking Hope for Rare Diseases in Edmonton. Members from their team will be attending!
URL:https://canadianrdn.ca/event/rare-disease-day-2025-unlocking-hope-for-rare-diseases/
CATEGORIES:Events,Hybrid,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250305T120000
DTEND;TZID=America/New_York:20250305T130000
DTSTAMP:20260405T095401
CREATED:20241218T230623Z
LAST-MODIFIED:20241218T230623Z
UID:7280-1741176000-1741179600@canadianrdn.ca
SUMMARY:Webinar - Initiating Clinical Trials in Canada
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-initiating-clinical-trials-in-canada/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250306T130000
DTEND;TZID=America/Denver:20250306T140000
DTSTAMP:20260405T095401
CREATED:20250225T041503Z
LAST-MODIFIED:20250225T041853Z
UID:7563-1741266000-1741269600@canadianrdn.ca
SUMMARY:ALS Clinical Trials Unboxed
DESCRIPTION:Join ALS Canada\, on March 6 at 1:00 pm ET\, for ALS Clinical Trials Unboxed. In this webinar\, Dr. Lauren Kett\, Medical Director of Clinical Development at Amylyx Pharmaceuticals will present on the Phase 1 LUMINA study\, an investigational antisense oligonucleotide (ASO) targeting calpain-2 for the potential treatment of ALS.
URL:https://canadianrdn.ca/event/als-clinical-trials-unboxed-2/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250324T080000
DTEND;TZID=America/New_York:20250324T110000
DTSTAMP:20260405T095401
CREATED:20250219T020555Z
LAST-MODIFIED:20250219T020555Z
UID:7513-1742803200-1742814000@canadianrdn.ca
SUMMARY:Save-The-Date: RareKids-CAN Virtual Information Session
DESCRIPTION:During this information session\, you will gain an overview of RareKids-CAN\, build connections within the community\, and more!
URL:https://canadianrdn.ca/event/save-the-date-rarekids-can-virtual-information-session/
CATEGORIES:National,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250401T080000
DTEND;TZID=UTC:20250401T170000
DTSTAMP:20260405T095401
CREATED:20250325T075821Z
LAST-MODIFIED:20250325T075821Z
UID:7823-1743494400-1743526800@canadianrdn.ca
SUMMARY:National Caregiver Day
DESCRIPTION:Carers Canada is proud to lead the National Caregiver Day 2025 campaign\, dedicated to honouring the dedication and resilience of caregivers. This year\, they’re  focused on providing meaningful support through innovative initiatives designed to make a real difference. \n 
URL:https://canadianrdn.ca/event/national-caregiver-day/
CATEGORIES:Events,National,Patient Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/NCD-2025-home-4-2048x600-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250401T123000
DTEND;TZID=America/New_York:20250401T133000
DTSTAMP:20260405T095401
CREATED:20250325T080251Z
LAST-MODIFIED:20250325T080251Z
UID:7826-1743510600-1743514200@canadianrdn.ca
SUMMARY:National Healthcare Provider Workshop
DESCRIPTION:In celebration of National Caregiving Day\, the Canadian Home Care Association (CHCA) is hosting the National Healthcare Provider Workshop on\, which will bridge insights from Hope for the Best\, Plan for the Rest (McMaster University) and the CHCA eiCOMPASS Project\, highlighting the transformative work of both initiatives.
URL:https://canadianrdn.ca/event/national-healthcare-provider-workshop/
CATEGORIES:Caregiver,Events,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/Gmv4QgOXQAAtSQS-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250402T130000
DTEND;TZID=America/Halifax:20250402T140000
DTSTAMP:20260405T095401
CREATED:20250326T034907Z
LAST-MODIFIED:20250326T034907Z
UID:7835-1743598800-1743602400@canadianrdn.ca
SUMMARY:Information Session: 2025-2026 Funding Opportunity for Rare Disease Registry Improvement
DESCRIPTION:
URL:https://canadianrdn.ca/event/information-session-2025-2026-funding-opportunity-for-rare-disease-registry-improvement/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/8a892476-2fc8-476b-a4e2-b0950c425eb9.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T080000
DTEND;TZID=America/New_York:20250408T170000
DTSTAMP:20260405T095401
CREATED:20241118T223850Z
LAST-MODIFIED:20241118T223850Z
UID:7001-1744012800-1744131600@canadianrdn.ca
SUMMARY:Conscience Symposium on Open Drug Discovery
DESCRIPTION:
URL:https://canadianrdn.ca/event/conscience-symposium-on-open-drug-discovery/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250409T110000
DTEND;TZID=America/New_York:20250409T120000
DTSTAMP:20260405T095401
CREATED:20250403T022159Z
LAST-MODIFIED:20250403T022159Z
UID:7891-1744196400-1744200000@canadianrdn.ca
SUMMARY:Five Good Ideas to support and benefit from working caregivers in your workplace
DESCRIPTION:
URL:https://canadianrdn.ca/event/five-good-ideas-to-support-and-benefit-from-working-caregivers-in-your-workplace/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250410T080000
DTEND;TZID=America/New_York:20250411T170000
DTSTAMP:20260405T095401
CREATED:20250326T035750Z
LAST-MODIFIED:20250326T035750Z
UID:7838-1744272000-1744390800@canadianrdn.ca
SUMMARY:RareKids-CAN Annual Conference
DESCRIPTION:The mission of the RareKids-CAN: Pediatric Rare Disease Clinical Trials and Treatment Network Strategic Planning Conference is to collaboratively shape the future of pediatric rare disease research and clinical trial capacity in Canada. By bringing together over 100 patient and family partners\, researchers\, sub-platform leaders\, and key stakeholders\, they aim to co-develop a shared vision that accelerates pediatric drug development and progress in clinical trials\, improves treatment access\, and strengthens national and international partnerships.
URL:https://canadianrdn.ca/event/rarekids-can-annual-conference/
CATEGORIES:Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/03/RareKidsCAN.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250417T100000
DTEND;TZID=America/Halifax:20250417T110000
DTSTAMP:20260405T095401
CREATED:20250403T022642Z
LAST-MODIFIED:20250403T022642Z
UID:7897-1744884000-1744887600@canadianrdn.ca
SUMMARY:ACE Inhibitors as a Cardioprotective Treatment in Dystrophinopathies.
DESCRIPTION:Join C-PATH on April 17\, noon ET\, for an insightful presentation by Dr. Karim Wahbi\, Professor of Cardiology at the University of Paris and head of the Reference Center for Neuromuscular Cardiomyopathies. Dr. Wahbi specializes in the clinical management of cardiomyopathies\, with a focus on neuromuscular diseases like Duchenne muscular dystrophy.
URL:https://canadianrdn.ca/event/ace-inhibitors-as-a-cardioprotective-treatment-in-dystrophinopathies/
CATEGORIES:Healthcare,National,Research Focused,Virtual,Webinars
END:VEVENT
END:VCALENDAR