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X-WR-CALDESC:Events for Canadian Rare Disease Network
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TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
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TZOFFSETTO:-0400
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TZOFFSETTO:-0500
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DTSTART:20251102T060000
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
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DTSTART:20260308T070000
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TZNAME:EST
DTSTART:20261101T060000
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251029T090000
DTEND;TZID=America/Edmonton:20251029T100000
DTSTAMP:20260403T125512
CREATED:20251024T184502Z
LAST-MODIFIED:20251024T184502Z
UID:9090-1761728400-1761732000@canadianrdn.ca
SUMMARY:Easing Pain\, Advancing Care: A New Pathway for Children with Severe Neurological Impairments
DESCRIPTION:This webinar will provide an overview of the multi-phased project\, from clinical trial to implementation. It will highlight the clinical complexity of assessing pain and irritability; the project’s relevance and impact for clinicians\, children with health complexity\, and their families; as well as key lessons for patient-oriented research and implementation science.
URL:https://canadianrdn.ca/event/easing-pain-advancing-care-a-new-pathway-for-children-with-severe-neurological-impairments/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/Child-health-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251029T100000
DTEND;TZID=America/Edmonton:20251029T120000
DTSTAMP:20260403T125512
CREATED:20251015T184026Z
LAST-MODIFIED:20251015T184026Z
UID:9020-1761732000-1761739200@canadianrdn.ca
SUMMARY:Taking multiple medications? 5 questions to ask
DESCRIPTION:In recognition of Canadian Patient Safety Week 2025 (October 27-31)\, join Dr. Emily McDonald — a physician specializing in patient safety and Director of the Canadian Medication Appropriateness and Deprescribing Network — for a live\, interactive webinar. \nLearn essential questions to ask to ensure all your medications are still necessary and helping you.
URL:https://canadianrdn.ca/event/taking-multiple-medications-5-questions-to-ask/
CATEGORIES:Caregiver,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/5Qs-Webinar-Banner_2025-08-25-FINAL2-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251030T080000
DTEND;TZID=America/Toronto:20251101T170000
DTSTAMP:20260403T125512
CREATED:20250501T162537Z
LAST-MODIFIED:20250501T162537Z
UID:8114-1761811200-1762016400@canadianrdn.ca
SUMMARY:YPAHD Day + National Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/ypahd-day-national-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745529050074.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251101T080000
DTEND;TZID=America/Edmonton:20251101T180000
DTSTAMP:20260403T125512
CREATED:20251024T182943Z
LAST-MODIFIED:20251024T182943Z
UID:9081-1761984000-1762020000@canadianrdn.ca
SUMMARY:Ehlers-Danlos Society ECHO Summit: Mental Health
DESCRIPTION:The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Mental Health\, a virtual event held on November 1\, 2025. This event is suitable for community members\, their friends\, families\, and caregivers\, as well as healthcare professionals. \nThis event will feature presentations\, case studies\, and panel discussions around the latest management and care strategies\, featuring presentations on the following topics: \n\nThe Mind/Body Connection\nCoping with a Diagnosis\nIntersectionality\nNeurodivergence\nPractical Management Strategies
URL:https://canadianrdn.ca/event/ehlers-danlos-society-echo-summit-mental-health/
CATEGORIES:Caregiver,Events,National,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/Web_banner_EDSECHO_MH-scaled-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251103T080000
DTEND;TZID=America/New_York:20251104T170000
DTSTAMP:20260403T125512
CREATED:20250403T023652Z
LAST-MODIFIED:20250403T023652Z
UID:7906-1762156800-1762275600@canadianrdn.ca
SUMMARY:Canadian Caregiving Summit 2025
DESCRIPTION:A brighter future of care is possible. Following the release of A National Caregiving Strategy for Canada\, the Canadian Caregiving Summit\, hosted by the Azrieli Foundation’s Canadian Centre for Caregiving Excellence\, will mobilize caregivers\, care providers\, systems leaders\, policy makers and researchers across the aging\, disability and healthcare communities to work together to make caregiving a national priority.
URL:https://canadianrdn.ca/event/canadian-caregiving-summit-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251104T130000
DTEND;TZID=America/Toronto:20251106T170000
DTSTAMP:20260403T125512
CREATED:20251014T175501Z
LAST-MODIFIED:20251014T175501Z
UID:9011-1762261200-1762448400@canadianrdn.ca
SUMMARY:Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME)
DESCRIPTION:This will include presentations and panel discussions focused on current scientific findings\, the opportunities to strengthen research design\, and the need to create more inclusive and accessible research spaces.
URL:https://canadianrdn.ca/event/canadian-collaborative-conference-on-myalgic-encephalomyelitis-me/
CATEGORIES:Conferences,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/ICanCME-Conference-Image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251107T080000
DTEND;TZID=America/Toronto:20251107T170000
DTSTAMP:20260403T125512
CREATED:20251014T175245Z
LAST-MODIFIED:20251014T175245Z
UID:9008-1762502400-1762534800@canadianrdn.ca
SUMMARY:The McMaster Immune Thrombocytopenia (ITP) Summit 2025
DESCRIPTION:By attending this activity\, participants will be able to: \n\nCompare the clinical and laboratory features of Immune Thrombocytopenia (ITP) and Warm Autoimmune Hemolytic Anemia (WAIHA).\nEvaluate current and emerging therapeutic strategies for ITP in the context of shared immune mechanisms with WAIHA.\nInterpret patient experiences to inform a more empathetic and holistic approach to managing autoimmune cytopenias.\nDiscuss the role of antibody\, complement\, and cellular immune mechanisms in the pathogenesis of ITP and WAIHA.
URL:https://canadianrdn.ca/event/the-mcmaster-immune-thrombocytopenia-itp-summit-2025/
CATEGORIES:National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/ITP25_website_card-1-768x432-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251107T080000
DTEND;TZID=America/Toronto:20251108T170000
DTSTAMP:20260403T125512
CREATED:20251014T174326Z
LAST-MODIFIED:20251014T174326Z
UID:9002-1762502400-1762621200@canadianrdn.ca
SUMMARY:2025 Canadian Fragile X Conference
DESCRIPTION:November 7–8\, 2025 | Toronto\, Ontario Canada’s first national Fragile X conference
URL:https://canadianrdn.ca/event/2025-canadian-fragile-x-conference/
CATEGORIES:Conferences,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/FXC-Conference-Poster-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251108T110000
DTEND;TZID=America/Toronto:20251108T170000
DTSTAMP:20260403T125512
CREATED:20251014T175716Z
LAST-MODIFIED:20251014T175716Z
UID:9014-1762599600-1762621200@canadianrdn.ca
SUMMARY:TSF's Toronto Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Canada to join us!
URL:https://canadianrdn.ca/event/tsfs-toronto-patient-day-for-rare-neuroinflammatory-disorders/
CATEGORIES:Conferences,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1759953087870.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251110T120000
DTEND;TZID=America/Toronto:20251110T140000
DTSTAMP:20260403T125512
CREATED:20251024T183314Z
LAST-MODIFIED:20251024T183314Z
UID:9084-1762776000-1762783200@canadianrdn.ca
SUMMARY:ISCT North America Regional Virtual Town Hall
DESCRIPTION:Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. Hemalatha Rangarajan\, leader of the gene therapy program for non-malignant disorders\, who has also launched multiple clinical trials in transplant for SCD at Nationwide Children’s Hospital (NCH).
URL:https://canadianrdn.ca/event/isct-north-america-regional-virtual-town-hall/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1761051641857.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T080000
DTEND;TZID=America/New_York:20251119T170000
DTSTAMP:20260403T125512
CREATED:20241218T230757Z
LAST-MODIFIED:20251027T201716Z
UID:7283-1763452800-1763571600@canadianrdn.ca
SUMMARY:2025 IMPaCT Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2025-impact-summit-save-the-date/
CATEGORIES:Clinical Trials,Conferences,Industry,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/12/Screenshot-2025-02-13-at-9.57.59-AM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251121T060000
DTEND;TZID=America/Edmonton:20251121T073000
DTSTAMP:20260403T125512
CREATED:20251024T183912Z
LAST-MODIFIED:20251024T183913Z
UID:9087-1763704800-1763710200@canadianrdn.ca
SUMMARY:IP Strategies for Repurposing
DESCRIPTION:Discover the value of having an intellectual property (IP) strategy in your repurposing project and how to use this to drive succes. \n 
URL:https://canadianrdn.ca/event/ip-strategies-for-repurposing/
CATEGORIES:Industry,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1761038081322.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251122T110000
DTEND;TZID=America/Toronto:20251122T160000
DTSTAMP:20260403T125512
CREATED:20251103T203915Z
LAST-MODIFIED:20251103T203915Z
UID:9119-1763809200-1763827200@canadianrdn.ca
SUMMARY:Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
DESCRIPTION:Bringing together neuroscience researchers\, patients\, advocates and caregivers to highlight brain health research in an accessible format.
URL:https://canadianrdn.ca/event/bridging-gaps-a-patient-oriented-neuroscience-research-symposium/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/https___cdn.evbuc_.com_images_1131808373_245876360330_1_original.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251125T080000
DTEND;TZID=America/Toronto:20251126T170000
DTSTAMP:20260403T125512
CREATED:20250703T162704Z
LAST-MODIFIED:20250703T162809Z
UID:8507-1764057600-1764176400@canadianrdn.ca
SUMMARY:CORD: Rare Disease Conference Fall 2025
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-conference-fall-2025/
CATEGORIES:Conferences,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/07/Gu8CYGUXgAAK6aR.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251126T180000
DTEND;TZID=America/Toronto:20251128T190000
DTSTAMP:20260403T125512
CREATED:20251113T225719Z
LAST-MODIFIED:20251113T225719Z
UID:9156-1764180000-1764356400@canadianrdn.ca
SUMMARY:Hope on the Horizon: Trials\, Treatments and Therapies for DMD\, DM1 & MG
DESCRIPTION:Muscular Dystrophy Canada in partnership with the Neuromuscular Disease Network for Canada (NMD4C)’s Clinical Trial Network is excited to host three Hope on the Horizon events! \nThese webinars are geared towards family members and people living with NMDs.\nJoin us from November 26th – 29th to learn more about the treatment and clinical trial landscape for Duchenne Muscular Dystrophy\, Myotonic Dystrophy Type 1 and Myasthenia Gravis from key experts in the field!
URL:https://canadianrdn.ca/event/hope-on-the-horizon-trials-treatments-and-therapies-for-dmd-dm1-mg/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/HopeOnTheHorizon-Trials-Treatments-and-Therapies-for-DMD-DM1-MG-768x960-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251204T093000
DTEND;TZID=America/Toronto:20251204T123000
DTSTAMP:20260403T125512
CREATED:20251202T164402Z
LAST-MODIFIED:20251202T164402Z
UID:9220-1764840600-1764851400@canadianrdn.ca
SUMMARY:Can-Child Webinar: F-words Foundations Workshop
DESCRIPTION:Interactive 3-hour F-words Foundations Workshop to explore how to bring the F-words for Child Development—Functioning\, Family\, Fitness\, Fun\, Friends\, and Future—into everyday practice and life!
URL:https://canadianrdn.ca/event/can-child-webinar-f-words-foundations-workshop/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/12/1764608508943.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251205T080000
DTEND;TZID=America/Toronto:20251205T170000
DTSTAMP:20260403T125512
CREATED:20251027T200957Z
LAST-MODIFIED:20251027T201013Z
UID:9097-1764921600-1764954000@canadianrdn.ca
SUMMARY:CARELeuko Symposium 2025
DESCRIPTION:The Canadian Association for Research Excellence in Leukodystrophy (CARELeuko) is excited to welcome you to the 2025 CARELeuko Symposium: Uniting Canada’s Leukodystrophy Community to Drive Collaboration and Accelerate Research and Care! \nThe 2025 CARELeuko Symposium is taking place on Friday\, December 5\, 2025\, at the Research Institute of the McGill University Health Centre in Montreal\, Quebec\, Canada.
URL:https://canadianrdn.ca/event/careleuko-symposium-2025/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1761570214888.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251205T123000
DTEND;TZID=America/Edmonton:20251205T133000
DTSTAMP:20260403T125512
CREATED:20251204T203358Z
LAST-MODIFIED:20251204T203358Z
UID:9253-1764937800-1764941400@canadianrdn.ca
SUMMARY:STAGE International Speaker Seminar Series (ISSS)-Laura Arbour
DESCRIPTION:Reducing Genetic and Genomic Health Disparities for Indigenous People of Canada: Insights from the Silent Genomes Project \n 
URL:https://canadianrdn.ca/event/stage-international-speaker-seminar-series-isss-laura-arbour/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/12/dr_laura_arbour_doctors_making_a_difference_custom_photo_id_233643.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251208T170000
DTEND;TZID=America/Edmonton:20251208T190000
DTSTAMP:20260403T125512
CREATED:20251126T191844Z
LAST-MODIFIED:20251126T191844Z
UID:9195-1765213200-1765220400@canadianrdn.ca
SUMMARY:FA Together: Learn. Share. Connect. mini-regional conference in Calgary
DESCRIPTION:
URL:https://canadianrdn.ca/event/fa-together-learn-share-connect-mini-regional-conference-in-calgary/
CATEGORIES:Events,Healthcare,In Person,Industry,National,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/1763568120995.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251211T173000
DTEND;TZID=America/Edmonton:20251211T183000
DTSTAMP:20260403T125512
CREATED:20251126T193637Z
LAST-MODIFIED:20251126T193637Z
UID:9207-1765474200-1765477800@canadianrdn.ca
SUMMARY:Every Relapse Matters: The Evolving NMOSD & MOGAD Treatment Landscape in Canada
DESCRIPTION:The Sumaira Foundation Canada is pleased to invite you to an important educational webinar on Thursday\, December 11th at 7:30 PM EST. This session will explore the evolving treatment options for individuals living with AQP4+ NMOSD\, seronegative NMOSD\, and MOGAD in Canada.
URL:https://canadianrdn.ca/event/every-relapse-matters-the-evolving-nmosd-mogad-treatment-landscape-in-canada/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/G6m2Vf-XIAAW3Qj.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251212T120000
DTEND;TZID=America/Edmonton:20251212T140000
DTSTAMP:20260403T125512
CREATED:20251014T175031Z
LAST-MODIFIED:20251014T175031Z
UID:9005-1765540800-1765548000@canadianrdn.ca
SUMMARY:Canadian Fragile X Research Rounds: Protein Replacement Therapy for Fragile X Syndrome
DESCRIPTION:
URL:https://canadianrdn.ca/event/canadian-fragile-x-research-rounds-protein-replacement-therapy-for-fragile-x-syndrome-2/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/Canadian-FX-Research-Rounds-7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251213T080000
DTEND;TZID=America/Edmonton:20251214T170000
DTSTAMP:20260403T125512
CREATED:20251126T192929Z
LAST-MODIFIED:20251126T192929Z
UID:9201-1765612800-1765731600@canadianrdn.ca
SUMMARY:Duchenne Patient Academy 2025
DESCRIPTION:
URL:https://canadianrdn.ca/event/duchenne-patient-academy-2025/
CATEGORIES:Caregiver,Events,Healthcare,National,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/duchenne-patient-academy-2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251213T110000
DTEND;TZID=America/Toronto:20251213T140000
DTSTAMP:20260403T125512
CREATED:20251126T191558Z
LAST-MODIFIED:20251126T191558Z
UID:9192-1765623600-1765634400@canadianrdn.ca
SUMMARY:SMA Together: Learn. Share. Connect. A Mini-Regional Conference - Toronto
DESCRIPTION:The SMA Together: Learn. Share. Connect. Mini-regional conference in Toronto is less than three weeks away! Join them\, in-person on December 13 to learn about the latest updates in spinal muscular atrophy\, including:
URL:https://canadianrdn.ca/event/sma-together-learn-share-connect-a-mini-regional-conference-toronto/
CATEGORIES:Caregiver,Conferences,Events,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/1764174313486.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260114T190000
DTEND;TZID=America/Edmonton:20260114T200000
DTSTAMP:20260403T125512
CREATED:20260113T165855Z
LAST-MODIFIED:20260113T165855Z
UID:9617-1768417200-1768420800@canadianrdn.ca
SUMMARY:CanPKU+:  Advocacy in Action Update Sessions
DESCRIPTION:Join the Advocacy in Action Update Sessions with John Adams in order to hear updates on various campaigns and what needs to be done to move things forward for the PKU community.
URL:https://canadianrdn.ca/event/canpku-advocacy-in-action-update-sessions/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767738677475.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260119T190000
DTEND;TZID=America/Toronto:20260119T200000
DTSTAMP:20260403T125512
CREATED:20260101T231935Z
LAST-MODIFIED:20260101T231935Z
UID:9500-1768849200-1768852800@canadianrdn.ca
SUMMARY:Knowledge Sharing Sessions – Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy.
DESCRIPTION:Dr. Geoff Frost will be leading NMD4C’s first Physiatrist Community of Practice (CoP) Knowledge Sharing Session. He will present a recent article authored by Iraqi et al. on a work conducted in Canada by  fellow NMD4C members: “Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy.”\nThe session will take place on January 19th\, 2026 at 7:00 PM EST. To register\, please contact CoP manager Maria Masnata. Once registered\, Maria will send a calendar invite so you can easily save the date. We are looking forward to seeing you there!
URL:https://canadianrdn.ca/event/knowledge-sharing-sessions-feasibility-of-a-home-based-exergaming-intervention-for-youth-with-spinal-muscular-atrophy/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/NMD4c.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260122T190000
DTEND;TZID=America/Toronto:20260122T200000
DTSTAMP:20260403T125512
CREATED:20260113T164000Z
LAST-MODIFIED:20260113T164000Z
UID:9605-1769108400-1769112000@canadianrdn.ca
SUMMARY:Healthy Living and Aortopathy
DESCRIPTION:Save the date for your upcoming webinar with Dr. Nathaniel Moulson\, focused on exercise. This webinar will take place on January 22\, 2026 at 7:00pm\, registration details to be released in the coming weeks.
URL:https://canadianrdn.ca/event/healthy-living-and-aortopathy/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767998210155.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T120000
DTEND;TZID=America/Toronto:20260128T130000
DTSTAMP:20260403T125512
CREATED:20260113T164735Z
LAST-MODIFIED:20260113T164735Z
UID:9611-1769601600-1769605200@canadianrdn.ca
SUMMARY:PiPER Community of Practice for 2026
DESCRIPTION:Save the date on *January 28th 2026* from 12-1 pm for a dynamic session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials ”.
URL:https://canadianrdn.ca/event/piper-community-of-practice-for-2026/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767798374027.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T140000
DTEND;TZID=America/Toronto:20260128T153000
DTSTAMP:20260403T125512
CREATED:20260113T164448Z
LAST-MODIFIED:20260113T164448Z
UID:9608-1769608800-1769614200@canadianrdn.ca
SUMMARY:Canada's Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
DESCRIPTION:Join CDA’s preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. \nYou will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews.
URL:https://canadianrdn.ca/event/canadas-drug-agency-preconsultation-webinar-improvements-to-the-drug-reimbursement-review-process/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/CDA-Drug.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260129T180000
DTEND;TZID=America/Toronto:20260129T193000
DTSTAMP:20260403T125512
CREATED:20260105T194852Z
LAST-MODIFIED:20260105T194852Z
UID:9575-1769709600-1769715000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada-Research Grant Announcement 2026
DESCRIPTION:Mark your calendar for Thursday\, January 29\, 2026\, from 6:00–7:30 p.m. ET\, and join Defeat Duchenne Canada online for an evening celebrating the incredible progress of their  community and the promise of the future.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-research-grant-announcement-2026/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Research-grant-cycle-banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260131T110000
DTEND;TZID=America/Edmonton:20260131T123000
DTSTAMP:20260403T125512
CREATED:20260105T200351Z
LAST-MODIFIED:20260105T200351Z
UID:9591-1769857200-1769862600@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life - Clinical Trials 101 What Every Patient Should Know Before Enrolling
DESCRIPTION:Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process\, benefits\, and important considerations before enrolling.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-scago-learning-for-life-clinical-trials-101-what-every-patient-should-know-before-enrolling/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767591298846.jpg
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END:VCALENDAR