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X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261006T170000
DTEND;TZID=America/Toronto:20261006T180000
DTSTAMP:20260929T163857Z
CREATED:20260929T163857Z
LAST-MODIFIED:20260929T163857Z
UID:11689-1791306000-1791309600@canadianrdn.ca
SUMMARY:NMD4C and MDC: CPD-Accredited Webinar | DM1 Clinical and Translational Research Updates
DESCRIPTION:NMD4C and MDC Canada are pleased to invite you to a CPD-accredited webinar on DM1 Clinical and Translational Research Updates. This webinar is primarily targeted at Canadian clinicians\, academics and trainees with an interest in neuromuscular diseases. NMD4C and MDC are providing organizational and technical support. This webinar is supported by Novartis through a restricted educational sponsorship with no involvement or influence on program content.
URL:https://canadianrdn.ca/event/nmd4c-and-mdc-cpd-accredited-webinar-dm1-clinical-and-translational-research-updates/
CATEGORIES:Clinical Trials,Healthcare,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/10-2026-NMD-Mystery-Case-Rounds.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261006T110000
DTEND;TZID=America/Edmonton:20261006T120000
DTSTAMP:20261001T185808Z
CREATED:20261001T185808Z
LAST-MODIFIED:20261001T185808Z
UID:11726-1791284400-1791288000@canadianrdn.ca
SUMMARY:RareKids-CAN: Logistics of ATMP Workflows for Pharmacy Teams
DESCRIPTION:This webinar will provide a practical\, high-level overview of how pharmacies handle Advanced Therapeutics Medicinal Products (ATMPs). ATMPs\, such as gene therapy products\, significantly differ from the traditional therapies (i.e.\, small molecule drugs\, biologics\, etc.). Therefore\, pharmacies require tailored workflows from the initial storage\, documentation and handling\, \, as well as chain-of-custody consideration.
URL:https://canadianrdn.ca/event/rarekids-can-logistics-of-atmp-workflows-for-pharmacy-teams/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/10/9a37b757-49b5-4c82-bf34-f3a1e20eba1c.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261003T080000
DTEND;TZID=America/Toronto:20261004T170000
DTSTAMP:20260817T160153Z
CREATED:20260817T160131Z
LAST-MODIFIED:20260817T160153Z
UID:11423-1791014400-1791133200@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada: Family Forum 2026
DESCRIPTION:Hosted in partnership with IWK Health Centre and the Stan Cassidy Centre for Rehabilitation\, this year’s Family Forum is designed to be a destination experience for the Duchenne community. Families from across Canada will come together to learn from leading experts\, share experiences\, and build lasting friendships with others who understand the journey.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-family-forum-2026/
CATEGORIES:Caregiver,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/08/Event-Image.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T123000
DTEND;TZID=America/Edmonton:20260929T133000
DTSTAMP:20260910T154339Z
CREATED:20260910T154339Z
LAST-MODIFIED:20260910T154339Z
UID:11608-1790685000-1790688600@canadianrdn.ca
SUMMARY:National Day for Truth and Reconciliation: Anti-Indigenous Racism in the Emergency Department
DESCRIPTION:The Indigenous Health Office invites you to attend “Anti-Indigenous Racism in the Emergency Department”\, a conversation with Dr. Tailfeathers (MD) and Dr. Patrick McLane (PhD).
URL:https://canadianrdn.ca/event/national-day-for-truth-and-reconciliation-anti-indigenous-racism-in-the-emergency-department/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788891496595.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T110000
DTEND;TZID=America/Edmonton:20260929T123000
DTSTAMP:20260910T155159Z
CREATED:20260910T155159Z
LAST-MODIFIED:20260910T155159Z
UID:11615-1790679600-1790685000@canadianrdn.ca
SUMMARY:Indigenous Caregivers Collective (ICC): Virtual Panel Indigenous Values in Care
DESCRIPTION:In acknowledgement of the National Day for Truth and Reconciliation\, this virtual panel will centre the voices\, experiences\, and knowledge of Indigenous caregivers from across Canada. Members of the National Indigenous Caregiver Advisory will share their lived experiences and perspectives on caregiving\, culture\, community\, and reconciliation.
URL:https://canadianrdn.ca/event/indigenous-caregivers-collective-icc-virtual-panel-indigenous-values-in-care/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788281843629.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T100000
DTEND;TZID=America/Edmonton:20260929T120000
DTSTAMP:20260922T164330Z
CREATED:20260922T164330Z
LAST-MODIFIED:20260922T164330Z
UID:11631-1790676000-1790683200@canadianrdn.ca
SUMMARY:CORD: Webinar 1 : How Readiness Is Built: Lessons from Canadian Rare Disease Pathways
DESCRIPTION:Beyond Drug Access: Building End-to-End Readiness for Phase 2 of Canada’s Rare Disease Drug Strategy As Canada moves toward Phase 2 of the Rare Disease Drug Strategy\, what can we learn from Phase 1\, and what needs to be strengthened? This webinar will explore end-to-end readiness through Canadian experiences with hemophilia\, thalassemia and sickle cell disease\, examining diagnosis\, specialist care\, access to therapies\, disease management and patient support. We will consider what these experiences can teach us about the capabilities Canada needs to build and sustain as new rare disease therapies emerge.
URL:https://canadianrdn.ca/event/cord-webinar-1-how-readiness-is-built-lessons-from-canadian-rare-disease-pathways/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1789739264388.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T080000
DTEND;TZID=America/Edmonton:20260927T170000
DTSTAMP:20260831T190839Z
CREATED:20260831T190826Z
LAST-MODIFIED:20260831T190839Z
UID:11565-1790323200-1790528400@canadianrdn.ca
SUMMARY:6th Western Canadian Neuromuscular Conference (WCNMC 2026)
DESCRIPTION:WCNMC 2026 will continue with its proud collaboration with Muscular Dystrophy Canada and the Neuromuscular Disease Network for Canada (NMD4C) to broaden reach and amplify impact. The WCNMC brings together clinicians\, researchers\, trainees\, nurses\, and allied health professionals for three days of learning\, featuring parallel basic/translational science and clinical sessions\, alongside case discussions and neuromuscular research presentations.
URL:https://canadianrdn.ca/event/6th-western-canadian-neuromuscular-conference-wcnmc-2026/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/wcnmc.ca_.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T080000
DTEND;TZID=America/Edmonton:20260925T170000
DTSTAMP:20260831T190905Z
CREATED:20260831T190559Z
LAST-MODIFIED:20260831T190905Z
UID:11562-1790323200-1790355600@canadianrdn.ca
SUMMARY:2026 NMD4C Annual Meeting
DESCRIPTION:Join NMD4C for a full day of dynamic discussions\, research updates\, and networking opportunities—just ahead of the 6th Western Canadian Neuromuscular Conference (WCNMC 2026). The agenda will feature a brief network update\, trainee and early‑career recognitions\, flash talks\, a health economics research showcase\, and the following cross‑disciplinary and parallel clinical / pre‑clinical discussion sessions
URL:https://canadianrdn.ca/event/2026-nmd4c-annual-meeting/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/08/2026-NMD4C-AM-Banner.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260924T110000
DTEND;TZID=America/Edmonton:20260924T120000
DTSTAMP:20260910T155541Z
CREATED:20260910T155541Z
LAST-MODIFIED:20260910T155541Z
UID:11621-1790247600-1790251200@canadianrdn.ca
SUMMARY:Health Data Research Network Canada: Quantifiable Indigenous Concepts: Increasing Precision of Population Analysis by Including “Indian Act” Legislation
DESCRIPTION:Drawing on Canada’s 2021 Census of Population\, Kienan will discuss Quantifiable Indigenous Concepts\, which were developed to strengthen how Indigenous populations are identified and analyzed in quantitative data. He’ll also draw on his lived experience as an Indigenous person represented in population datasets and examine the importance of appropriately representing the approximately 0.9 million people in the Status Indian population.
URL:https://canadianrdn.ca/event/health-data-research-network-canada-quantifiable-indigenous-concepts-increasing-precision-of-population-analysis-by-including-indian-act-legislation/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1787602896646.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260919T090000
DTEND;TZID=America/Toronto:20260919T140000
DTSTAMP:20260817T155910Z
CREATED:20260817T155910Z
LAST-MODIFIED:20260817T155910Z
UID:11420-1789808400-1789826400@canadianrdn.ca
SUMMARY:SickKids: Neurovascular Family Education Day 2026
DESCRIPTION:Please join SickKids for an educational event for patients\, families\, and care-givers featuring expert speakers on Moyamoya Disease.
URL:https://canadianrdn.ca/event/sickkids-neurovascular-family-education-day-2026/
CATEGORIES:Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260917T090000
DTEND;TZID=America/Edmonton:20260917T100000
DTSTAMP:20260910T155343Z
CREATED:20260910T155343Z
LAST-MODIFIED:20260910T155343Z
UID:11618-1789635600-1789639200@canadianrdn.ca
SUMMARY:IMPaCT Webinar: European Pediatric Clinical Trial Networks and Infrastructure: Partnership and Funding Opportunities
DESCRIPTION:The webinar will explore the landscape of pediatric trial networks in Europe\, the Horizon Europe PRISM Clinical Trial Call\, and practical lessons for developing and leading Horizon Europe consortium applications. \nMICYRN Scientific Director\, Thierry Lacaze-Masmonteil\, MD\, PhD\, will moderate a panel to discuss pathways for Canadian participation in European trial teams\, funding strategies and approaches to building strong international research partnerships.
URL:https://canadianrdn.ca/event/impact-webinar-european-pediatric-clinical-trial-networks-and-infrastructure-partnership-and-funding-opportunities/
CATEGORIES:Clinical Trials,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788539310832.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260820T130000
DTEND;TZID=America/Toronto:20260820T140000
DTSTAMP:20260730T182604Z
CREATED:20260730T182604Z
LAST-MODIFIED:20260730T182604Z
UID:11417-1787230800-1787234400@canadianrdn.ca
SUMMARY:ALS Canada: Storytelling and Legacy Building for the ALS Community
DESCRIPTION:Join ALS Canada for an inspiring panel on how people affected by ALS are sharing their lived experiences and turning their stories into meaningful legacies. Learn simple ways to document your journey\, build connection through storytelling\, and preserve your story for the future.
URL:https://canadianrdn.ca/event/als-canada-storytelling-and-legacy-building-for-the-als-community/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/images-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260819T130000
DTEND;TZID=America/Toronto:20260819T140000
DTSTAMP:20260730T182454Z
CREATED:20260730T182454Z
LAST-MODIFIED:20260730T182454Z
UID:11414-1787144400-1787148000@canadianrdn.ca
SUMMARY:ALS Canada: ALS Research and Clinical Trials 101 Q&A Drop-In
DESCRIPTION:This monthly Q&A drop-in session is available for people living with ALS\, their families\, caregivers\, and anyone close to someone living with the disease who is seeking information or might have questions about ALS research and/or clinical trials
URL:https://canadianrdn.ca/event/als-canada-als-research-and-clinical-trials-101-qa-drop-in/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/images-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260811T120000
DTEND;TZID=America/Toronto:20260811T133000
DTSTAMP:20260730T181325Z
CREATED:20260730T181325Z
LAST-MODIFIED:20260730T181325Z
UID:11408-1786449600-1786455000@canadianrdn.ca
SUMMARY:CORD: From Readiness to Action: The Capstone Consultation Before the Rare Readiness Scorecard Launch
DESCRIPTION:Final Webinar in CORD’s 4-Part Summer Rare Disease Readiness Series
URL:https://canadianrdn.ca/event/cord-from-readiness-to-action-the-capstone-consultation-before-the-rare-readiness-scorecard-launch/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/1785351822684.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260728T100000
DTEND;TZID=America/Edmonton:20260728T110000
DTSTAMP:20260715T194531Z
CREATED:20260715T194531Z
LAST-MODIFIED:20260715T194531Z
UID:11378-1785232800-1785236400@canadianrdn.ca
SUMMARY:CORD Webinar: Building the Baseline: How Does Canada Measure Up in Terms of Rare Disease Readiness?
DESCRIPTION:Join CORD for an interactive 60-minute indicator lab exploring how Canada can measure progress in rare disease readiness. Together\, experts and participants will examine and rate key policy and delivery indicators to identify what matters most\, where data gaps exist\, and what a national readiness baseline could look like. This session focuses on building a Canada-wide picture of rare disease readiness\, not ranking provinces. Participants will help identify promising examples and shared opportunities for improvement as CORD develops a national readiness indicator inventory.
URL:https://canadianrdn.ca/event/cord-webinar-building-the-baseline-how-does-canada-measure-up-in-terms-of-rare-disease-readiness/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/1784125132372.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260704T234500Z
CREATED:20260704T233339Z
LAST-MODIFIED:20260704T234500Z
UID:11337-1784721600-1784725200@canadianrdn.ca
SUMMARY:Health Canada Webinar: Real-World Evidence in the National Strategy for Drugs for Rare Diseases
DESCRIPTION:This session is designed to provide you with a clear understanding of the goals\, an update on progress\, and the next steps as planning advances. It will include a short presentation from Health Canada followed by a Question & Answer session.
URL:https://canadianrdn.ca/event/health-canada-real-world-evidence-in-the-national-strategy-for-drugs-for-rare-diseases-webinar/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/health_canada_logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260702T193457Z
CREATED:20260624T182608Z
LAST-MODIFIED:20260702T193457Z
UID:11082-1784721600-1784725200@canadianrdn.ca
SUMMARY:RareKids-CAN: Delivering Gene Therapy Trials: Understanding Clinical Workflows\, Operations\, and the Patient Journey
DESCRIPTION:Join RareKid-CAN on July 22nd for their second webinar in our ATMP series for research coordinators\, nurses\, pharmacists\, investigators\, and other clinical research professionals. \nTheir speaker Ana Stosic will provide a practical overview of the clinical workflows involved in delivering gene therapy clinical trials for pediatric rare diseases.
URL:https://canadianrdn.ca/event/rarekids-can-delivering-gene-therapy-trials-understanding-clinical-workflows-operations-and-the-patient-journey/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1782308336701.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260716T100000
DTEND;TZID=America/Edmonton:20260716T120000
DTSTAMP:20260624T182800Z
CREATED:20260624T182800Z
LAST-MODIFIED:20260624T182800Z
UID:11085-1784196000-1784203200@canadianrdn.ca
SUMMARY:Kabuki Syndrome Foundation Live Webinar: Together for Progress
DESCRIPTION:Join the Kabuki Syndrome Foundation at their upcoming live webinar\, Together for Progress\, on July 16\, 2026. You can look forward to the latest updates on treatment development\, learn about new resources for families and clinicians\, and discover what’s next in their global efforts to improve the health of everyone with Kabuki syndrome.
URL:https://canadianrdn.ca/event/kabuki-syndrome-foundation-live-webinar-together-for-progress/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781198318313.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260714T103000
DTEND;TZID=America/Toronto:20260714T113000
DTSTAMP:20260702T193701Z
CREATED:20260702T161146Z
LAST-MODIFIED:20260702T193701Z
UID:11188-1784025000-1784028600@canadianrdn.ca
SUMMARY:DNA2RNA: Generative AI to Predict and Engineer Human Tissues and Cells
DESCRIPTION:Join D2R for this hybrid seminar with Professor Mo Lotfollahi from the Wellcome Sanger Institute and the Cambridge School of AI in Medicine at the University of Cambridge about “Generative AI to Predict and Engineer Human Tissues and Cells”. 
URL:https://canadianrdn.ca/event/dna2rna-generative-ai-to-predict-and-engineer-human-tissues-and-cells/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/07/d2r_-_events_-_d2r_seminar_series_newsletter_banner_template-3-newsletter_2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260714T100000
DTEND;TZID=America/Edmonton:20260714T110000
DTSTAMP:20260710T144840Z
CREATED:20260710T144840Z
LAST-MODIFIED:20260710T144840Z
UID:11375-1784023200-1784026800@canadianrdn.ca
SUMMARY:CORD Webinar: The Cost of Waiting: Socioeconomic Impact of Rare Disease in Canada
DESCRIPTION:CORD is pleased to invite you to our upcoming webinar\, The Cost of Waiting: Socioeconomic Impact of Rare Disease in Canada . Join patients\, caregivers\, clinicians\, researchers\, policy makers and health system leaders for a conversation on the real-world impacts of delayed diagnosis and fragmented care\, and what Canada can do to reduce the burden on families while building a more responsive rare disease system.
URL:https://canadianrdn.ca/event/cord-webinar-the-cost-of-waiting-socioeconomic-impact-of-rare-disease-in-canada/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/1783432322800.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260709T120000
DTEND;TZID=America/Toronto:20260709T130000
DTSTAMP:20260702T193538Z
CREATED:20260624T182155Z
LAST-MODIFIED:20260702T193538Z
UID:11076-1783598400-1783602000@canadianrdn.ca
SUMMARY:IMPaCT Webinar: Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials
DESCRIPTION:Register today for IMPaCT’s next webinar with Ami Baba\, PhD\, where she’ll discuss Responsible Research Practices: How Reporting Guidelines Can Improve Child Health Trials. \n✅ Identify who needs trial reporting guidelines\n✅ Introduce pediatric-specific reporting guideline extensions for trials and systematic reviews\n✅ Describe how SPIRIT-C\, CONSORT-C\, TIDieR-C\, and PRISMA-C can impact both upstream and downstream research processes
URL:https://canadianrdn.ca/event/impact-webinar-responsible-research-practices-how-reporting-guidelines-can-improve-child-health-trials/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1781796311513.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260708T110000
DTEND;TZID=America/Edmonton:20260708T120000
DTSTAMP:20260704T233610Z
CREATED:20260704T233610Z
LAST-MODIFIED:20260704T233610Z
UID:11341-1783508400-1783512000@canadianrdn.ca
SUMMARY:Spastic Paraplegia Foundation (SPF) TALKS w/ Dr Ziv Gan-Or/Neuro and Linda Lafontaine
DESCRIPTION:
URL:https://canadianrdn.ca/event/spastic-paraplegia-foundation-spf-talks-w-dr-ziv-gan-or-neuro-and-linda-lafontaine/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/image.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260707T100000
DTEND;TZID=America/Toronto:20260707T110000
DTSTAMP:20260704T234131Z
CREATED:20260702T193159Z
LAST-MODIFIED:20260704T234131Z
UID:11237-1783418400-1783422000@canadianrdn.ca
SUMMARY:CIHR: Information Webinar for Canadian applicants to the ERDERA Clinical Trial Call 2026
DESCRIPTION:CIHR is hosting an information session to provide interested Canadian applicants with information on the requirements of the “ERDERA Clinical Trial Call 2026 (ECTC 2026)” funding opportunity and to answer questions on how to apply.
URL:https://canadianrdn.ca/event/webinar-for-canadian-applicants-to-the-erdera-clinical-trial-call-2026/
CATEGORIES:Clinical Trials,Healthcare,International,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/leaf-cihr-colour-en.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260623T120000
DTEND;TZID=America/Toronto:20260623T130000
DTSTAMP:20260604T174200Z
CREATED:20260604T144221Z
LAST-MODIFIED:20260604T174200Z
UID:10842-1782216000-1782219600@canadianrdn.ca
SUMMARY:CORD Webinar: From Genomic Testing Readiness to Rare Disease System Readiness
DESCRIPTION:Join Durhane Wong-Rieger (CORD) and Don Husereau (University of Ottawa) for a discussion on moving from genomic testing readiness to rare disease system readiness and shaping the next phase of Canada’s Rare Disease Strategy
URL:https://canadianrdn.ca/event/cord-webinar-from-genomic-testing-readiness-to-rare-disease-system-readiness/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1780406794177-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260617T120000
DTEND;TZID=America/Edmonton:20260617T133000
DTSTAMP:20260604T174114Z
CREATED:20260604T144508Z
LAST-MODIFIED:20260604T174114Z
UID:10844-1781697600-1781703000@canadianrdn.ca
SUMMARY:Cystic Fibrosis Canada's 2026 Webinar: Spotlight on CF Research 2026
DESCRIPTION:Register now for Cystic Fibrosis Canada’s 2026 Spotlight on CF Research Webinar\, offered in English and French with live simultaneous interpretation.
URL:https://canadianrdn.ca/event/cystic-fibrosis-canadas-2026-webinar-spotlight-on-cf-research-2026/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/703763071_1393256339501763_581508815341888921_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260616T143000
DTEND;TZID=America/Edmonton:20260616T153000
DTSTAMP:20260527T155401Z
CREATED:20260527T155401Z
LAST-MODIFIED:20260527T155401Z
UID:10690-1781620200-1781623800@canadianrdn.ca
SUMMARY:PONDA Pop-up-Rare Care: What Care Support looks like for Patients and Families Affected by Rare Disease and Rare Diagnoses
DESCRIPTION:
URL:https://canadianrdn.ca/event/ponda-pop-up-rare-care-what-care-support-looks-like-for-patients-and-families-affected-by-rare-disease-and-rare-diagnoses/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260615T130000
DTEND;TZID=America/Edmonton:20260615T140000
DTSTAMP:20260526T014505Z
CREATED:20260526T014505Z
LAST-MODIFIED:20260526T014505Z
UID:10664-1781528400-1781532000@canadianrdn.ca
SUMMARY:RareKids-CAN Advanced Therapy Medicinal Products (ATMPs) series: ATMP Webinar: A Practical Primer for Clinical Coordinators\, Nurses & Pharmacists
DESCRIPTION:Designed for clinical coordinators\, nurses\, pharmacists\, and research staff working in pediatric rare disease trials\, this introductory session will provide a practical overview of:\n🔹 Gene therapies\, cell therapies\, and antisense oligonucleotides (ASOs)\n🔹 How ATMPs differ from traditional therapies\n🔹 Key operational considerations for clinical teams\n🔹 Strategies for explaining ATMPs in clear\, accessible language
URL:https://canadianrdn.ca/event/rarekids-can-advanced-therapy-medicinal-products-atmps-series-atmp-webinar-a-practical-primer-for-clinical-coordinators-nurses-pharmacists/
CATEGORIES:Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779364414697.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260612T100000
DTEND;TZID=America/Edmonton:20260612T110000
DTSTAMP:20260526T152225Z
CREATED:20260526T152225Z
LAST-MODIFIED:20260526T152225Z
UID:10687-1781258400-1781262000@canadianrdn.ca
SUMMARY:Building on Progress: Charting the Future of Canada's Rare Disease Strategy
DESCRIPTION:Leading experts and advocates will convene to discuss the critical insights\, challenges\, and opportunities in advancing Canada’s National Rare Disease Strategy. Drawing upon key findings from a recent national study\, panelists will delve into the economic burden\, the profound impact of delayed diagnosis on patient journeys\, and the imperative for improved pathways\, access\, and research. The aim is to generate actionable insights and solutions for a more effective and equitable rare disease landscape for all Canadians as we look ahead to 2027 and beyond.
URL:https://canadianrdn.ca/event/building-on-progress-charting-the-future-of-canadas-rare-disease-strategy/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/Alexion-1024x512-event-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260611T170000
DTEND;TZID=America/Toronto:20260611T180000
DTSTAMP:20260527T194915Z
CREATED:20260527T160553Z
LAST-MODIFIED:20260527T194915Z
UID:10692-1781197200-1781200800@canadianrdn.ca
SUMMARY:Muscular Dystrophy Canada- Working Together to Build E-Learning in Rare Neuromuscular Diseases: Lessons from Arthrogryposis
DESCRIPTION:Muscular Dystrophy Canada is excited to host a webinar on building e-learning in rare neuromuscular diseases. \nThe objectives of this session are as follows: \n\nRecognize the key principles of knowledge co-development\, including respectful partnerships between people with arthrogryposis multiplex congenita (AMC)\, families\, clinicians\, researchers\, and organizations.\nUnderstand the value of multidisciplinary teams that include people with lived experience in creating and sharing knowledge that is relevant and meaningful to AMC.\nUnderstand how educational resources in rare neuromuscular diseases are developed to support clear communication\, combining scientific evidence and lived experience through accessible and engaging e-learning approaches.\nReflect on how co-development can strengthen communication and trust between people with AMC and clinicians\, and how these ideas can be applied in care\, education\, advocacy\, or research.
URL:https://canadianrdn.ca/event/muscular-dystrophy-canada-working-together-to-build-e-learning-in-rare-neuromuscular-diseases-lessons-from-arthrogryposis/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1779821521360-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260602T160000
DTEND;TZID=America/Edmonton:20260602T170000
DTSTAMP:20260526T020210Z
CREATED:20260526T020210Z
LAST-MODIFIED:20260526T020210Z
UID:10673-1780416000-1780419600@canadianrdn.ca
SUMMARY:NMD4C and MDC: Neuromuscular Mystery Case Rounds
DESCRIPTION:Join NMD4C and Muscular Dystrophy Canada at their next CPD-accredited webinar\, “Neuromuscular Mystery Case Rounds\,” on Tuesday\, June 2nd\, 2026 at 5:00 p.m. ET\, with their speaker\, Dr. Albert Yeung\, Neuromuscular Clinical Fellow at the University of Alberta. This session will be chaired by Drs. Aaron Izenberg\, Shafina Sachedina and Christen Shoesmith.
URL:https://canadianrdn.ca/event/nmd4c-and-mdc-neuromuscular-mystery-case-rounds/
CATEGORIES:Healthcare,National,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/05/1776686490346.jpg
END:VEVENT
END:VCALENDAR