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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Edmonton:20260114T190000
DTEND;TZID=America/Edmonton:20260114T200000
DTSTAMP:20260602T215301
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UID:9617-1768417200-1768420800@canadianrdn.ca
SUMMARY:CanPKU+:  Advocacy in Action Update Sessions
DESCRIPTION:Join the Advocacy in Action Update Sessions with John Adams in order to hear updates on various campaigns and what needs to be done to move things forward for the PKU community.
URL:https://canadianrdn.ca/event/canpku-advocacy-in-action-update-sessions/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260119T190000
DTEND;TZID=America/Toronto:20260119T200000
DTSTAMP:20260602T215301
CREATED:20260101T231935Z
LAST-MODIFIED:20260101T231935Z
UID:9500-1768849200-1768852800@canadianrdn.ca
SUMMARY:Knowledge Sharing Sessions – Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy.
DESCRIPTION:Dr. Geoff Frost will be leading NMD4C’s first Physiatrist Community of Practice (CoP) Knowledge Sharing Session. He will present a recent article authored by Iraqi et al. on a work conducted in Canada by  fellow NMD4C members: “Feasibility of a Home-Based Exergaming Intervention for Youth With Spinal Muscular Atrophy.”\nThe session will take place on January 19th\, 2026 at 7:00 PM EST. To register\, please contact CoP manager Maria Masnata. Once registered\, Maria will send a calendar invite so you can easily save the date. We are looking forward to seeing you there!
URL:https://canadianrdn.ca/event/knowledge-sharing-sessions-feasibility-of-a-home-based-exergaming-intervention-for-youth-with-spinal-muscular-atrophy/
CATEGORIES:Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260122T190000
DTEND;TZID=America/Toronto:20260122T200000
DTSTAMP:20260602T215301
CREATED:20260113T164000Z
LAST-MODIFIED:20260113T164000Z
UID:9605-1769108400-1769112000@canadianrdn.ca
SUMMARY:Healthy Living and Aortopathy
DESCRIPTION:Save the date for your upcoming webinar with Dr. Nathaniel Moulson\, focused on exercise. This webinar will take place on January 22\, 2026 at 7:00pm\, registration details to be released in the coming weeks.
URL:https://canadianrdn.ca/event/healthy-living-and-aortopathy/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T120000
DTEND;TZID=America/Toronto:20260128T130000
DTSTAMP:20260602T215301
CREATED:20260113T164735Z
LAST-MODIFIED:20260113T164735Z
UID:9611-1769601600-1769605200@canadianrdn.ca
SUMMARY:PiPER Community of Practice for 2026
DESCRIPTION:Save the date on *January 28th 2026* from 12-1 pm for a dynamic session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials ”.
URL:https://canadianrdn.ca/event/piper-community-of-practice-for-2026/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T140000
DTEND;TZID=America/Toronto:20260128T153000
DTSTAMP:20260602T215301
CREATED:20260113T164448Z
LAST-MODIFIED:20260113T164448Z
UID:9608-1769608800-1769614200@canadianrdn.ca
SUMMARY:Canada's Drug Agency-Preconsultation Webinar: Improvements to the Drug Reimbursement Review Process
DESCRIPTION:Join CDA’s preconsultation webinar on proposed improvements and upcoming procedural changes to our drug reimbursement review process. \nYou will hear from their senior leaders how these plans will advance our efforts to modernize and streamline drug reimbursement reviews.
URL:https://canadianrdn.ca/event/canadas-drug-agency-preconsultation-webinar-improvements-to-the-drug-reimbursement-review-process/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260129T180000
DTEND;TZID=America/Toronto:20260129T193000
DTSTAMP:20260602T215301
CREATED:20260105T194852Z
LAST-MODIFIED:20260105T194852Z
UID:9575-1769709600-1769715000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada-Research Grant Announcement 2026
DESCRIPTION:Mark your calendar for Thursday\, January 29\, 2026\, from 6:00–7:30 p.m. ET\, and join Defeat Duchenne Canada online for an evening celebrating the incredible progress of their  community and the promise of the future.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-research-grant-announcement-2026/
CATEGORIES:Events,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Research-grant-cycle-banner.png
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260131T110000
DTEND;TZID=America/Edmonton:20260131T123000
DTSTAMP:20260602T215301
CREATED:20260105T200351Z
LAST-MODIFIED:20260105T200351Z
UID:9591-1769857200-1769862600@canadianrdn.ca
SUMMARY:Sickle Cell Awareness Group of Ontario (SCAGO) Learning for Life - Clinical Trials 101 What Every Patient Should Know Before Enrolling
DESCRIPTION:Considering a clinical trial? Join SCAGO for an informative virtual session designed to help patients and caregivers understand the process\, benefits\, and important considerations before enrolling.
URL:https://canadianrdn.ca/event/sickle-cell-awareness-group-of-ontario-scago-learning-for-life-clinical-trials-101-what-every-patient-should-know-before-enrolling/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
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