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X-WR-CALNAME:Canadian Rare Disease Network
X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251030T080000
DTEND;TZID=America/Toronto:20251101T170000
DTSTAMP:20260602T234228
CREATED:20250501T162537Z
LAST-MODIFIED:20250501T162537Z
UID:8114-1761811200-1762016400@canadianrdn.ca
SUMMARY:YPAHD Day + National Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/ypahd-day-national-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251101T080000
DTEND;TZID=America/Edmonton:20251101T180000
DTSTAMP:20260602T234228
CREATED:20251024T182943Z
LAST-MODIFIED:20251024T182943Z
UID:9081-1761984000-1762020000@canadianrdn.ca
SUMMARY:Ehlers-Danlos Society ECHO Summit: Mental Health
DESCRIPTION:The Ehlers-Danlos Society is delighted to welcome you to register for the EDS ECHO Summit: Mental Health\, a virtual event held on November 1\, 2025. This event is suitable for community members\, their friends\, families\, and caregivers\, as well as healthcare professionals. \nThis event will feature presentations\, case studies\, and panel discussions around the latest management and care strategies\, featuring presentations on the following topics: \n\nThe Mind/Body Connection\nCoping with a Diagnosis\nIntersectionality\nNeurodivergence\nPractical Management Strategies
URL:https://canadianrdn.ca/event/ehlers-danlos-society-echo-summit-mental-health/
CATEGORIES:Caregiver,Events,National,Patient Focused,Research Focused,Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251103T080000
DTEND;TZID=America/New_York:20251104T170000
DTSTAMP:20260602T234228
CREATED:20250403T023652Z
LAST-MODIFIED:20250403T023652Z
UID:7906-1762156800-1762275600@canadianrdn.ca
SUMMARY:Canadian Caregiving Summit 2025
DESCRIPTION:A brighter future of care is possible. Following the release of A National Caregiving Strategy for Canada\, the Canadian Caregiving Summit\, hosted by the Azrieli Foundation’s Canadian Centre for Caregiving Excellence\, will mobilize caregivers\, care providers\, systems leaders\, policy makers and researchers across the aging\, disability and healthcare communities to work together to make caregiving a national priority.
URL:https://canadianrdn.ca/event/canadian-caregiving-summit-2025/
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251104T130000
DTEND;TZID=America/Toronto:20251106T170000
DTSTAMP:20260602T234228
CREATED:20251014T175501Z
LAST-MODIFIED:20251014T175501Z
UID:9011-1762261200-1762448400@canadianrdn.ca
SUMMARY:Canadian Collaborative Conference on Myalgic Encephalomyelitis (ME)
DESCRIPTION:This will include presentations and panel discussions focused on current scientific findings\, the opportunities to strengthen research design\, and the need to create more inclusive and accessible research spaces.
URL:https://canadianrdn.ca/event/canadian-collaborative-conference-on-myalgic-encephalomyelitis-me/
CATEGORIES:Conferences,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251107T080000
DTEND;TZID=America/Toronto:20251107T170000
DTSTAMP:20260602T234228
CREATED:20251014T175245Z
LAST-MODIFIED:20251014T175245Z
UID:9008-1762502400-1762534800@canadianrdn.ca
SUMMARY:The McMaster Immune Thrombocytopenia (ITP) Summit 2025
DESCRIPTION:By attending this activity\, participants will be able to: \n\nCompare the clinical and laboratory features of Immune Thrombocytopenia (ITP) and Warm Autoimmune Hemolytic Anemia (WAIHA).\nEvaluate current and emerging therapeutic strategies for ITP in the context of shared immune mechanisms with WAIHA.\nInterpret patient experiences to inform a more empathetic and holistic approach to managing autoimmune cytopenias.\nDiscuss the role of antibody\, complement\, and cellular immune mechanisms in the pathogenesis of ITP and WAIHA.
URL:https://canadianrdn.ca/event/the-mcmaster-immune-thrombocytopenia-itp-summit-2025/
CATEGORIES:National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/10/ITP25_website_card-1-768x432-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251107T080000
DTEND;TZID=America/Toronto:20251108T170000
DTSTAMP:20260602T234228
CREATED:20251014T174326Z
LAST-MODIFIED:20251014T174326Z
UID:9002-1762502400-1762621200@canadianrdn.ca
SUMMARY:2025 Canadian Fragile X Conference
DESCRIPTION:November 7–8\, 2025 | Toronto\, Ontario Canada’s first national Fragile X conference
URL:https://canadianrdn.ca/event/2025-canadian-fragile-x-conference/
CATEGORIES:Conferences,In Person,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251108T110000
DTEND;TZID=America/Toronto:20251108T170000
DTSTAMP:20260602T234228
CREATED:20251014T175716Z
LAST-MODIFIED:20251014T175716Z
UID:9014-1762599600-1762621200@canadianrdn.ca
SUMMARY:TSF's Toronto Patient Day for Rare Neuroinflammatory Disorders
DESCRIPTION:TSF is inviting patients and caregivers impacted by rare neuroinflammatory disorders from all over Canada to join us!
URL:https://canadianrdn.ca/event/tsfs-toronto-patient-day-for-rare-neuroinflammatory-disorders/
CATEGORIES:Conferences,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251110T120000
DTEND;TZID=America/Toronto:20251110T140000
DTSTAMP:20260602T234228
CREATED:20251024T183314Z
LAST-MODIFIED:20251024T183314Z
UID:9084-1762776000-1762783200@canadianrdn.ca
SUMMARY:ISCT North America Regional Virtual Town Hall
DESCRIPTION:Join ISCT on November 10 for an engaging Town Hall discussion on the real-world implementation of gene therapy for sickle cell disease (SCD). The session will be led by Dr. Hemalatha Rangarajan\, leader of the gene therapy program for non-malignant disorders\, who has also launched multiple clinical trials in transplant for SCD at Nationwide Children’s Hospital (NCH).
URL:https://canadianrdn.ca/event/isct-north-america-regional-virtual-town-hall/
CATEGORIES:Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T080000
DTEND;TZID=America/New_York:20251119T170000
DTSTAMP:20260602T234228
CREATED:20241218T230757Z
LAST-MODIFIED:20251027T201716Z
UID:7283-1763452800-1763571600@canadianrdn.ca
SUMMARY:2025 IMPaCT Summit
DESCRIPTION:
URL:https://canadianrdn.ca/event/2025-impact-summit-save-the-date/
CATEGORIES:Clinical Trials,Conferences,Industry,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251121T060000
DTEND;TZID=America/Edmonton:20251121T073000
DTSTAMP:20260602T234228
CREATED:20251024T183912Z
LAST-MODIFIED:20251024T183913Z
UID:9087-1763704800-1763710200@canadianrdn.ca
SUMMARY:IP Strategies for Repurposing
DESCRIPTION:Discover the value of having an intellectual property (IP) strategy in your repurposing project and how to use this to drive succes. \n 
URL:https://canadianrdn.ca/event/ip-strategies-for-repurposing/
CATEGORIES:Industry,National,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251122T110000
DTEND;TZID=America/Toronto:20251122T160000
DTSTAMP:20260602T234228
CREATED:20251103T203915Z
LAST-MODIFIED:20251103T203915Z
UID:9119-1763809200-1763827200@canadianrdn.ca
SUMMARY:Bridging Gaps: A Patient-Oriented Neuroscience Research Symposium
DESCRIPTION:Bringing together neuroscience researchers\, patients\, advocates and caregivers to highlight brain health research in an accessible format.
URL:https://canadianrdn.ca/event/bridging-gaps-a-patient-oriented-neuroscience-research-symposium/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251125T080000
DTEND;TZID=America/Toronto:20251126T170000
DTSTAMP:20260602T234228
CREATED:20250703T162704Z
LAST-MODIFIED:20250703T162809Z
UID:8507-1764057600-1764176400@canadianrdn.ca
SUMMARY:CORD: Rare Disease Conference Fall 2025
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-conference-fall-2025/
CATEGORIES:Conferences,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251126T180000
DTEND;TZID=America/Toronto:20251128T190000
DTSTAMP:20260602T234228
CREATED:20251113T225719Z
LAST-MODIFIED:20251113T225719Z
UID:9156-1764180000-1764356400@canadianrdn.ca
SUMMARY:Hope on the Horizon: Trials\, Treatments and Therapies for DMD\, DM1 & MG
DESCRIPTION:Muscular Dystrophy Canada in partnership with the Neuromuscular Disease Network for Canada (NMD4C)’s Clinical Trial Network is excited to host three Hope on the Horizon events! \nThese webinars are geared towards family members and people living with NMDs.\nJoin us from November 26th – 29th to learn more about the treatment and clinical trial landscape for Duchenne Muscular Dystrophy\, Myotonic Dystrophy Type 1 and Myasthenia Gravis from key experts in the field!
URL:https://canadianrdn.ca/event/hope-on-the-horizon-trials-treatments-and-therapies-for-dmd-dm1-mg/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
END:VCALENDAR