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X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251001T130000
DTEND;TZID=America/Toronto:20251001T160000
DTSTAMP:20260603T005620
CREATED:20250916T185043Z
LAST-MODIFIED:20250916T185043Z
UID:8900-1759323600-1759334400@canadianrdn.ca
SUMMARY:Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing capabilities in Canada
DESCRIPTION:The Stem Cell Network (SCN) and the National Research Council Canada (NRC) are excited to contribute to the national conversation on cell and gene therapy for rare diseases. Building on the 2024 event titled “Canadian Rare Disease Ecosystem Symposium: Genetic Therapies for Rare Disease”\, SCN and NRC are pleased to invite you to the Canadian Rare Disease Symposium: Preparing for Clinical Trials – International Regulatory Insights\, and cGMP Gene Therapy Manufacturing Capabilities in Canada–a focused half-day event dedicated to advancing gene and cell therapy development in Canada through regulatory alignment and manufacturing readiness. \nThis virtual symposium will convene international regulatory authorities\, Canadian manufacturing experts\, and rare disease developers to explore two critical enablers of translational success: clinical trial readiness and cGMP manufacturing capacity.
URL:https://canadianrdn.ca/event/canadian-rare-disease-symposium-preparing-for-clinical-trials-international-regulatory-insights-and-cgmp-gene-therapy-manufacturing-capabilities-in-canada/
CATEGORIES:Caregiver,Clinical Trials,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251006T080000
DTEND;TZID=America/Toronto:20251008T170000
DTSTAMP:20260603T005620
CREATED:20250812T195947Z
LAST-MODIFIED:20250812T195947Z
UID:8734-1759737600-1759942800@canadianrdn.ca
SUMMARY:Connected Minds: Exploring the Intersection of Brains\, Machines & Society
DESCRIPTION:Explore the future of tech\, health & society at the Connected Minds Conference 2025\, where ideas ignite and innovation thrives! \n 
URL:https://canadianrdn.ca/event/connected-minds-exploring-the-intersection-of-brains-machines-society/
CATEGORIES:Conferences,Healthcare,In Person,National,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251015T100000
DTEND;TZID=America/Edmonton:20251015T113000
DTSTAMP:20260603T005620
CREATED:20251006T201940Z
LAST-MODIFIED:20251006T201940Z
UID:8949-1760522400-1760527800@canadianrdn.ca
SUMMARY:A Conversation About Patient Partner Outsider Syndrome
DESCRIPTION:Patient/caregiver partnership in health research has evolved substantially since the launch of Canada’s Strategy for Patient-Oriented Research (SPOR) over a decade ago. However\, findings from the Patient Advisors Network (PAN) “Reimagining the Research Landscape” report\, commissioned by CIHR in 2024 for the SPOR Refresh\, revealed that patient/caregiver partners often feel like outsiders in the research ecosystem. This webinar will take a deeper dive into the OSSU Research Day presentation “Why do patient/caregiver partners feel like outsiders?” \nMs. Maureen Smith will moderate a frank discussion between two of the report authors\, Mses. Alies Maybee and Annette McKinnon\, and PAN Board member Ms. Sandra Holdsworth\, and leading patient-oriented researchers Drs. Manoj Lalu\, Ambreen Sayani and Stuart Nicholls\, on the barriers uncovered by the report and showcasing best practices to mitigate these barriers.
URL:https://canadianrdn.ca/event/a-conversation-about-patient-partner-outsider-syndrome/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251016T080000
DTEND;TZID=America/Edmonton:20251017T170000
DTSTAMP:20260603T005620
CREATED:20250729T164926Z
LAST-MODIFIED:20250729T164926Z
UID:8613-1760601600-1760720400@canadianrdn.ca
SUMMARY:2nd Canadian Symposium on Neurofibromatosis
DESCRIPTION:This Symposium is aimed at the patients and families\, as well as clinicians and health professionals (doctors\, nurses\, researchers).
URL:https://canadianrdn.ca/event/2nd-canadian-symposium-on-neurofibromatosis/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251016T123000
DTEND;TZID=America/Toronto:20251016T133000
DTSTAMP:20260603T005620
CREATED:20251015T212343Z
LAST-MODIFIED:20251015T212343Z
UID:9023-1760617800-1760621400@canadianrdn.ca
SUMMARY:Aging Out: Transition of care for children with rare neurodevelopmental disorders
DESCRIPTION:Approximately one in 12 Canadians are affected by a rare disorder and two thirds of them are children\, according to the Canadian Organization for Rare Disorders (CORD). Due to the low number of individual cases\, qualified specialists are hard to find. After years of assembling a trusted pediatric care team\, parents are often faced with the challenge of finding a new adult care team once their child turns 18. The challenge is even more complex for rare neurodevelopmental disorders requiring multi-disciplinary care. \nWhat strategies would ease the pediatric to adult care transition? This webcast will bring health care providers\, medical experts and patient advocates together to share ideas and solutions to bridge the gap between pediatric to adult care for those living with neurodevelopmental disorders.
URL:https://canadianrdn.ca/event/aging-out-transition-of-care-for-children-with-rare-neurodevelopmental-disorders/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251016T200000
DTEND;TZID=America/Toronto:20251016T210000
DTSTAMP:20260603T005620
CREATED:20251014T180518Z
LAST-MODIFIED:20251014T180518Z
UID:9017-1760644800-1760648400@canadianrdn.ca
SUMMARY:RareKids-CAN Coffee Chat: Digital Storytelling with Krystle Schofield
DESCRIPTION:Join other parents\, caregivers\, and individuals impacted by rare diagnosis and rare disease on October 16 at 8 P.M. EST. and learn about digital storytelling. Learn from Krystle Schofield\, a RareKids-CAN parent partner\, B.C. mom\, digital storytelling facilitator + photographer.
URL:https://canadianrdn.ca/event/rarekids-can-coffee-chat-digital-storytelling-with-krystle-schofield/
CATEGORIES:Caregiver,National,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251018T080000
DTEND;TZID=America/Toronto:20251018T170000
DTSTAMP:20260603T005620
CREATED:20250618T150152Z
LAST-MODIFIED:20250618T150152Z
UID:8454-1760774400-1760806800@canadianrdn.ca
SUMMARY:RQMO 2025 Education Day
DESCRIPTION:Under the theme “Rare Diseases: Let’s Break Isolation Together!”\, this event aims to build bridges between those who live the daily reality of rare diseases and those who accompany and care for them.
URL:https://canadianrdn.ca/event/rqmo-2025-education-day/
CATEGORIES:Caregiver,Healthcare,In Person,National,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251022T080000
DTEND;TZID=America/Toronto:20251022T170000
DTSTAMP:20260603T005620
CREATED:20250812T195732Z
LAST-MODIFIED:20250812T195732Z
UID:8730-1761120000-1761152400@canadianrdn.ca
SUMMARY:Building Bridges: Advancing Collaborative Pediatric Palliative Care
DESCRIPTION:This pediatric palliative care symposium is for health care professionals interested in increasing their knowledge and skill in working with children with serious illness and their families. \nThe goal is to share research and clinical experiences that broaden the perspectives and collaborative efforts to enhance the care delivery in hospital\, home and hospice. \nPediatric-focused clinician’s and adult palliative care clinicians most welcome
URL:https://canadianrdn.ca/event/building-bridges-advancing-collaborative-pediatric-palliative-care/
CATEGORIES:Caregiver,Events,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251029T080000
DTEND;TZID=America/Toronto:20251030T170000
DTSTAMP:20260603T005620
CREATED:20250529T204853Z
LAST-MODIFIED:20250529T204853Z
UID:8388-1761724800-1761843600@canadianrdn.ca
SUMMARY:The 5th Annual Canadian Children\, Youth and Communities (CCYC) In | Equity Conference
DESCRIPTION:This conference reaches a national\, interdisciplinary audience and is a collaborative space where ideas are put into practice. Together\, you’ll explore how sustainable solutions and community partnerships can improve child and youth health equity.
URL:https://canadianrdn.ca/event/the-5th-annual-canadian-children-youth-and-communities-ccyc-in-equity-conference/
CATEGORIES:Conferences,National,Patient Focused,Policy,Research Focused,Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251029T080000
DTEND;TZID=America/Toronto:20251031T170000
DTSTAMP:20260603T005620
CREATED:20250902T192527Z
LAST-MODIFIED:20250902T192527Z
UID:8845-1761724800-1761930000@canadianrdn.ca
SUMMARY:Cardiac Precision Medicine in the 21st Century
DESCRIPTION:The 10th International Cardiovascular Genomic Medicine & SickKids Cardiac Precision Medicine Conference is making its debut in North America! This year’s theme\, “Cardiac Precision Medicine in the 21st Century\,” delves into cardiovascular genomics and precision medicine in the era of ‘Omics’\, AI and digital medicine. Join us as we bring together international experts and innovators to explore transformative research and collaborative opportunities that can shape the future of cardiovascular medicine. \nThis event will feature the 4th William Harvey Oration delivered by Dr. Sharlene Day and the Dr. Michael Braudo Lectureship delivered by Dr. Ma’n H. Zawati.
URL:https://canadianrdn.ca/event/cardiac-precision-medicine-in-the-21st-century/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251029T090000
DTEND;TZID=America/Edmonton:20251029T100000
DTSTAMP:20260603T005620
CREATED:20251024T184502Z
LAST-MODIFIED:20251024T184502Z
UID:9090-1761728400-1761732000@canadianrdn.ca
SUMMARY:Easing Pain\, Advancing Care: A New Pathway for Children with Severe Neurological Impairments
DESCRIPTION:This webinar will provide an overview of the multi-phased project\, from clinical trial to implementation. It will highlight the clinical complexity of assessing pain and irritability; the project’s relevance and impact for clinicians\, children with health complexity\, and their families; as well as key lessons for patient-oriented research and implementation science.
URL:https://canadianrdn.ca/event/easing-pain-advancing-care-a-new-pathway-for-children-with-severe-neurological-impairments/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251029T100000
DTEND;TZID=America/Edmonton:20251029T120000
DTSTAMP:20260603T005620
CREATED:20251015T184026Z
LAST-MODIFIED:20251015T184026Z
UID:9020-1761732000-1761739200@canadianrdn.ca
SUMMARY:Taking multiple medications? 5 questions to ask
DESCRIPTION:In recognition of Canadian Patient Safety Week 2025 (October 27-31)\, join Dr. Emily McDonald — a physician specializing in patient safety and Director of the Canadian Medication Appropriateness and Deprescribing Network — for a live\, interactive webinar. \nLearn essential questions to ask to ensure all your medications are still necessary and helping you.
URL:https://canadianrdn.ca/event/taking-multiple-medications-5-questions-to-ask/
CATEGORIES:Caregiver,National,Patient Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251030T080000
DTEND;TZID=America/Toronto:20251101T170000
DTSTAMP:20260603T005620
CREATED:20250501T162537Z
LAST-MODIFIED:20250501T162537Z
UID:8114-1761811200-1762016400@canadianrdn.ca
SUMMARY:YPAHD Day + National Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/ypahd-day-national-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Hybrid,National,Patient Focused,Provincial,Research Focused
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