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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Toronto:20250604T180000
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LAST-MODIFIED:20250529T205450Z
UID:8391-1749060000-1749067200@canadianrdn.ca
SUMMARY:BHI Cafe Scientific-Where the brain and heart meet
DESCRIPTION:This event will highlight innovative\, patient-oriented strategies designed to address fragmented care for brain and heart conditions. Although brain and heart health are closely linked\, the heath care system often treats them in isolation. This Café Scientific will showcase how research is driving real-world solutions that enhance patient care.
URL:https://canadianrdn.ca/event/bhi-cafe-scientific-where-the-brain-and-heart-meet/
CATEGORIES:Caregiver,Healthcare,Hybrid,National,Patient Focused,Research Focused,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/05/Event-Page-Heros-3.png
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DTSTART;TZID=America/New_York:20250607T080000
DTEND;TZID=America/New_York:20250607T170000
DTSTAMP:20260403T124835
CREATED:20250122T001108Z
LAST-MODIFIED:20250122T001108Z
UID:7394-1749283200-1749315600@canadianrdn.ca
SUMMARY:Wilson Disease Event for patients\, families\, and caregivers
DESCRIPTION:The newly formed Canadian chapter of Wilson Disease Association is hosting a one day conference for WD patients\, caregivers\, friends\, medical students\, physicians and supporters. \nThey are bringing together the top Canadian doctors who treat Wilson disease. \nGreat opportunity to network and learn more about treatment options for Wilson disease. \nMore details and registration link coming soon. \nOpen to everyone interested in learning more about this rare genetic disorder. \nFor more information\, visit alice.williams@wilsonsdisease.org.
URL:https://canadianrdn.ca/event/wilson-disease-event-for-patients-families-and-caregivers/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250618T120000
DTEND;TZID=America/Edmonton:20250618T130000
DTSTAMP:20260403T124835
CREATED:20250526T204049Z
LAST-MODIFIED:20250526T204049Z
UID:8322-1750248000-1750251600@canadianrdn.ca
SUMMARY:Webinar - Key Considerations for Including Pediatric Populations with Neurodevelopmental Conditions in Clinical Trials
DESCRIPTION:Speakers: Evdokia Anagnostou and Mayada Elsabbagh Title: Key considerations for including pediatric populations with neurodevelopmental conditions in clinical trials
URL:https://canadianrdn.ca/event/webinar-key-considerations-for-including-pediatric-populations-with-neurodevelopmental-conditions-in-clinical-trials/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1748012679658.jpg
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DTSTART;TZID=America/Edmonton:20250623T160000
DTEND;TZID=America/Edmonton:20250623T170000
DTSTAMP:20260403T124835
CREATED:20250618T145940Z
LAST-MODIFIED:20250618T145940Z
UID:8451-1750694400-1750698000@canadianrdn.ca
SUMMARY:Defeat Duchenne Canada-Industry Partner Update: REGENXBIO
DESCRIPTION:Join Defeat Duchenne Canada for an educational webinar featuring Dr. Jahannaz Dastgir\, Executive Director of Clinical Development at REGENXBIO\, as she shares the latest updates on RGX-202\, an investigational gene therapy for the treatment of Duchenne muscular dystrophy\, and their Phase 1/2/3 AFFINITY DUCHENNE® trial. \nThis session will provide valuable insights into the science behind RGX-202\, trial progress\, and what this potential investigational treatment could mean for the Duchenne community. Whether you are a parent\, caregiver\, clinician\, or advocate\, this webinar is an opportunity to stay informed and ask questions directly to the team leading this important research.
URL:https://canadianrdn.ca/event/defeat-duchenne-canada-industry-partner-update-regenxbio/
CATEGORIES:Caregiver,Clinical Trials,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/06/Gs8jXy9WYAA0ZX1.jpg
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