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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250429T080000
DTEND;TZID=America/Denver:20250501T170000
DTSTAMP:20260403T142629
CREATED:20250123T225518Z
LAST-MODIFIED:20250123T225535Z
UID:7417-1745913600-1746118800@canadianrdn.ca
SUMMARY:Save the Date: Rare Disease Day 2025 Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-day-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/Gh11VK5WcAAg2ym.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250501T183000
DTEND;TZID=America/Edmonton:20250501T203000
DTSTAMP:20260403T142629
CREATED:20250501T161720Z
LAST-MODIFIED:20250501T161720Z
UID:8103-1746124200-1746131400@canadianrdn.ca
SUMMARY:Managing Anxiety in Children and Adolescents with Neurodevelopmental Disorders (NDDs)
DESCRIPTION:Presenters: Thomas Qiao\, MSc\, Research Coordinator\, Department of Psychiatry\, University of Calgary Noah Furlani\, MSc\, Research Coordinator\, Department of Psychiatry\, University of Calgary Dr. Kara Murias\, MD PhD FRCPC\, Pediatric Neurologist\, Alberta Children’s Hospital; Assistant Professor\, Department of Pediatrics and Clinical Neuroscience\, University of Calgary
URL:https://canadianrdn.ca/event/managing-anxiety-in-children-and-adolescents-with-neurodevelopmental-disorders-ndds/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1745532032179.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250503T080000
DTEND;TZID=America/Toronto:20250503T170000
DTSTAMP:20260403T142629
CREATED:20250421T222047Z
LAST-MODIFIED:20250421T222047Z
UID:8020-1746259200-1746291600@canadianrdn.ca
SUMMARY:FSHS 360 Conference
DESCRIPTION:Patients and family members affected by FSHD are invited to attend an event hosted by the FSHD Canada Foundation and the FSHD Society! The FSHD 360 Conference Ontario is an event where patients and family can meet leaders in FSHD research and hear the latest updates\, including presentations from NMD4C investigators Dr Lawrence Korngut and Dr Hanns Lochmuller.
URL:https://canadianrdn.ca/event/fshs-360-conference/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1743602806527.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250505T150000
DTEND;TZID=America/New_York:20250505T170000
DTSTAMP:20260403T142629
CREATED:20250403T022441Z
LAST-MODIFIED:20250403T022441Z
UID:7894-1746457200-1746464400@canadianrdn.ca
SUMMARY:Applying Principles of Equity\, Diversity\, Inclusion\, and Accessibility in Patient Engagement with Equity Seeking Groups
DESCRIPTION:
URL:https://canadianrdn.ca/event/applying-principles-of-equity-diversity-inclusion-and-accessibility-in-patient-engagement-with-equity-seeking-groups/
CATEGORIES:Caregiver,Events,Healthcare,National,Patient Focused,Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250508T080000
DTEND;TZID=America/Denver:20250508T170000
DTSTAMP:20260403T142629
CREATED:20250225T041704Z
LAST-MODIFIED:20250225T041704Z
UID:7567-1746691200-1746723600@canadianrdn.ca
SUMMARY:Save the date: Redefining Patient Engagement
DESCRIPTION:
URL:https://canadianrdn.ca/event/save-the-date-redefining-patient-engagement/
CATEGORIES:Caregiver,Healthcare,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/02/1740074652997.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250508T110000
DTEND;TZID=America/Edmonton:20250508T120000
DTSTAMP:20260403T142629
CREATED:20250501T163248Z
LAST-MODIFIED:20250501T163248Z
UID:8123-1746702000-1746705600@canadianrdn.ca
SUMMARY:Webinar for Patient Groups: Evolving Patient Group Input in Drug Reimbursement Reviews
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-for-patient-groups-evolving-patient-group-input-in-drug-reimbursement-reviews/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/8a892476-2fc8-476b-a4e2-b0950c425eb9.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250509T120000
DTEND;TZID=America/Toronto:20250509T130000
DTSTAMP:20260403T142629
CREATED:20250507T180114Z
LAST-MODIFIED:20250507T180114Z
UID:8170-1746792000-1746795600@canadianrdn.ca
SUMMARY:Webinar: Canadian Survey on the Impact of Disease
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-canadian-survey-on-the-impact-of-disease/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/05/CORD-Survey-Promo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250512T120000
DTEND;TZID=America/Vancouver:20250512T130000
DTSTAMP:20260403T142629
CREATED:20250421T222546Z
LAST-MODIFIED:20250421T222546Z
UID:8026-1747051200-1747054800@canadianrdn.ca
SUMMARY:PxP-Upcoming webinar: Growing your influence and a patient partner
DESCRIPTION:Join PxP for an engaging webinar hosted in collaboration with the Patient Engagement Research Ambassadors at the Institute of Musculoskeletal Health and Arthritis.
URL:https://canadianrdn.ca/event/pxp-upcoming-webinar-growing-your-influence-and-a-patient-partner/
CATEGORIES:Caregiver,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1744843903932.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250512T120000
DTEND;TZID=America/Edmonton:20250512T130000
DTSTAMP:20260403T142629
CREATED:20250507T175854Z
LAST-MODIFIED:20250507T175905Z
UID:8166-1747051200-1747054800@canadianrdn.ca
SUMMARY:The Canadian Friedreich Ataxia Journey
DESCRIPTION:Muscular Dystrophy Canada recognizes World Friedreich Ataxia Awareness Day on May 17th 2025. Join them as they share their learnings from their recent Friedreich Ataxia journey mapping project!
URL:https://canadianrdn.ca/event/the-canadian-friedreich-ataxia-journey/
CATEGORIES:National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/GqWjQPsXQAAaz8A-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250513T183000
DTEND;TZID=America/Toronto:20250513T203000
DTSTAMP:20260403T142629
CREATED:20250421T221434Z
LAST-MODIFIED:20250421T221434Z
UID:8014-1747161000-1747168200@canadianrdn.ca
SUMMARY:Rett Rounds: Live Webinar Education Session
DESCRIPTION:
URL:https://canadianrdn.ca/event/rett-rounds-live-webinar-education-session/
CATEGORIES:Healthcare,National,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1744759035989.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250518T080000
DTEND;TZID=America/Vancouver:20250521T170000
DTSTAMP:20260403T142629
CREATED:20250421T222319Z
LAST-MODIFIED:20250421T222319Z
UID:8023-1747555200-1747846800@canadianrdn.ca
SUMMARY:Society for Clinical Trials’ 2025 Annual Meeting “Shaping the Future: The Right Questions\, Robust Answers”
DESCRIPTION:
URL:https://canadianrdn.ca/event/society-for-clinical-trials-2025-annual-meeting-shaping-the-future-the-right-questions-robust-answers/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/04/1744206140042.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250522T130000
DTEND;TZID=America/Edmonton:20250522T140000
DTSTAMP:20260403T142629
CREATED:20250520T191925Z
LAST-MODIFIED:20250520T191925Z
UID:8298-1747918800-1747922400@canadianrdn.ca
SUMMARY:Indigenous Data Governance Principles & New Approaches to Race-Related Data
DESCRIPTION:Working closely with First Nations\, Inuit and Métis partners as well as urban Indigenous health service providers\, ICES has developed unique partnerships that include data governance and data sharing agreements. This work\, supported by the Indigenous Partnerships\, Data and Analytics department at ICES\, enables Indigenous-driven analyses using ICES data. In this session\, Dominique Legacy and Laura Ferreira-Legere will discuss becoming a trusted partner and forming partnerships with Indigenous communities and organizations. They’ll explore current processes for using Indigenous data\, and share how this work has informed planning for community governance of immigration data at ICES
URL:https://canadianrdn.ca/event/indigenous-data-governance-principles-new-approaches-to-race-related-data/
CATEGORIES:Healthcare,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1747427539341.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250531T080000
DTEND;TZID=America/Edmonton:20250531T163000
DTSTAMP:20260403T142629
CREATED:20250526T204245Z
LAST-MODIFIED:20250526T204245Z
UID:8325-1748678400-1748709000@canadianrdn.ca
SUMMARY:XLID98 1st Annual Conference 2025
DESCRIPTION:
URL:https://canadianrdn.ca/event/xlid98-1st-annual-conference-2025/
CATEGORIES:Events,National,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/05/1747841039325.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250531T080000
DTEND;TZID=America/New_York:20250531T170000
DTSTAMP:20260403T142629
CREATED:20250304T033141Z
LAST-MODIFIED:20250304T033141Z
UID:7614-1748678400-1748710800@canadianrdn.ca
SUMMARY:Unity Through Rheumatic Diseases: In-Person Event
DESCRIPTION:
URL:https://canadianrdn.ca/event/unity-through-rheumatic-diseases-in-person-event/
CATEGORIES:Caregiver,Conferences,Industry,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/03/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250531T080000
DTEND;TZID=America/New_York:20250531T170000
DTSTAMP:20260403T142629
CREATED:20250403T023343Z
LAST-MODIFIED:20250403T023343Z
UID:7903-1748678400-1748710800@canadianrdn.ca
SUMMARY:Unity Through Rheumatic Diseases: In-Person Event
DESCRIPTION:Take a Pain Check Foundation is thrilled to invite you to Unity Through Rheumatic Diseases\, an in-person event dedicated to promoting collaboration and driving change in rheumatology. Join us on Saturday\, May 31\, 2025\, from 8:00 AM to 5:00 PM EST at the InterContinental Toronto Centre (225 Front St W\, Toronto\, ON M5V 2X3) for a day of insightful discussions\, networking\, and empowerment.
URL:https://canadianrdn.ca/event/unity-through-rheumatic-diseases-in-person-event-2/
CATEGORIES:Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
END:VEVENT
END:VCALENDAR