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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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UID:7471-1740819600-1740834000@canadianrdn.ca
SUMMARY:Rare Disease Day 2025: Unlocking Hope for Rare Diseases
DESCRIPTION:On Saturday March 1st\, the Rare Disease Network of Alberta (rDNA) will be hosting Rare Disease Day 2025: Unlocking Hope for Rare Diseases in Edmonton. Members from their team will be attending!
URL:https://canadianrdn.ca/event/rare-disease-day-2025-unlocking-hope-for-rare-diseases/
CATEGORIES:Events,Hybrid,National,Patient Focused,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250305T120000
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CREATED:20241218T230623Z
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UID:7280-1741176000-1741179600@canadianrdn.ca
SUMMARY:Webinar - Initiating Clinical Trials in Canada
DESCRIPTION:
URL:https://canadianrdn.ca/event/webinar-initiating-clinical-trials-in-canada/
CATEGORIES:Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250306T130000
DTEND;TZID=America/Denver:20250306T140000
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CREATED:20250225T041503Z
LAST-MODIFIED:20250225T041853Z
UID:7563-1741266000-1741269600@canadianrdn.ca
SUMMARY:ALS Clinical Trials Unboxed
DESCRIPTION:Join ALS Canada\, on March 6 at 1:00 pm ET\, for ALS Clinical Trials Unboxed. In this webinar\, Dr. Lauren Kett\, Medical Director of Clinical Development at Amylyx Pharmaceuticals will present on the Phase 1 LUMINA study\, an investigational antisense oligonucleotide (ASO) targeting calpain-2 for the potential treatment of ALS.
URL:https://canadianrdn.ca/event/als-clinical-trials-unboxed-2/
CATEGORIES:Caregiver,Clinical Trials,National,Patient Focused,Research Focused,Virtual,Webinars
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250324T080000
DTEND;TZID=America/New_York:20250324T110000
DTSTAMP:20260424T083004
CREATED:20250219T020555Z
LAST-MODIFIED:20250219T020555Z
UID:7513-1742803200-1742814000@canadianrdn.ca
SUMMARY:Save-The-Date: RareKids-CAN Virtual Information Session
DESCRIPTION:During this information session\, you will gain an overview of RareKids-CAN\, build connections within the community\, and more!
URL:https://canadianrdn.ca/event/save-the-date-rarekids-can-virtual-information-session/
CATEGORIES:National,Policy,Research Focused,Virtual,Webinars
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