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BEGIN:DAYLIGHT
TZOFFSETFROM:-0700
TZOFFSETTO:-0600
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DTSTART:20230312T090000
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BEGIN:STANDARD
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DTSTART:20231105T080000
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TZOFFSETFROM:-0700
TZOFFSETTO:-0600
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DTSTART:20240310T090000
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TZOFFSETTO:-0700
TZNAME:MST
DTSTART:20241103T080000
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BEGIN:DAYLIGHT
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250130T160000
DTEND;TZID=Europe/Paris:20250130T170000
DTSTAMP:20260409T204919
CREATED:20250121T232927Z
LAST-MODIFIED:20250121T232927Z
UID:7380-1738252800-1738256400@canadianrdn.ca
SUMMARY:Update on Guillain-Barré Syndrome Guidelines
DESCRIPTION:
URL:https://canadianrdn.ca/event/update-on-guillain-barre-syndrome-guidelines/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250129T080000
DTEND;TZID=UTC:20250130T170000
DTSTAMP:20260409T204919
CREATED:20241112T225050Z
LAST-MODIFIED:20241112T225050Z
UID:6979-1738137600-1738256400@canadianrdn.ca
SUMMARY:The Festival of Genomics & Biodata London
DESCRIPTION:The UK’s largest life sciences event is back! \nNow celebrating its 10th year\, the Festival has long been the annual get-together for the UK genomics community. And with more speakers and sessions than ever before\, the 2025 edition is bigger and better than ever! \nAs the genomics sector has expanded\, so has its impact. The Festival now covers a diverse array of topics beyond genomics\, including biodata\, diagnostics\, cancer research\, healthcare\, drug discovery and development\, infectious diseases\, AI\, proteomics\, multi-omics\, single-cell & spatial analysis and so much more.
URL:https://canadianrdn.ca/event/the-festival-of-genomics-biodata-london/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250123T160000
DTEND;TZID=Europe/Paris:20250123T170000
DTSTAMP:20260409T204919
CREATED:20250121T232634Z
LAST-MODIFIED:20250121T232634Z
UID:7377-1737648000-1737651600@canadianrdn.ca
SUMMARY:Challenges in the Diagnosis and Treatment of Inflammatory Neuropathies
DESCRIPTION:Delivered by Dr. Filip Eftimov (University Medical Center of Amsterdam\, the Netherlands) & Jean-Philippe Plançon (EPODIN – European Patient Organisation for Dysimmune and Inflammatory Neuropathies\, France)\, January 23rd 2025 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology. READ CAREFULLY please: By registering and attending the webinar you consent to the recording of the webinar and its later diffusion through the EURO-NMD websites using an YouTube Channel
URL:https://canadianrdn.ca/event/challenges-in-the-diagnosis-and-treatment-of-inflammatory-neuropathies/
CATEGORIES:Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250121T080000
DTEND;TZID=Europe/Paris:20250124T170000
DTSTAMP:20260409T204919
CREATED:20250109T233514Z
LAST-MODIFIED:20250109T233514Z
UID:7352-1737446400-1737738000@canadianrdn.ca
SUMMARY:2025 International Scientific Conference on Albinism
DESCRIPTION:The Global Albinism Alliance (GAA) is very pleased to announce the 2025 International Scientific Conference on Albinism – ISCA 2025\, that will be held virtually on January 21-24\, 2025. \nISCA is THE meeting point worldwide for all scientists interested in sharing and improving knowledge of the biomedical aspects of albinism and\, more generally\, improving the health of those with albinism. It builds on the momentum created in 2012 with the launch of the EDA (European Days of Albinism) conference series that evolved into ISCA in 2022.
URL:https://canadianrdn.ca/event/2025-international-scientific-conference-on-albinism/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250114T140000
DTEND;TZID=Europe/Paris:20250114T160000
DTSTAMP:20260409T204919
CREATED:20250107T232714Z
LAST-MODIFIED:20250107T232714Z
UID:7332-1736863200-1736870400@canadianrdn.ca
SUMMARY:ERDERA Joint Transnational Call 2025 Extended Information Webinar
DESCRIPTION:The European Rare Diseases Research Alliance (ERDERA) invites you to the Joint Transnational Call (JTC) 2025 Extended Information Webinar. \nObjectives of this webinar: \nThe webinar scheduled for January 14th aims to provide educational and preparatory support to applicants at the pre-proposal stage\, focusing on key elements that enhance the quality of their submissions. The objectives include: \nInform applicants about lessons learned about the evaluation. \nGuide applicants with key translational\, regulatory\, data managing\, and methodological considerations for drafting strong pre-proposals. \nAddress your questions through dedicated Q&A sessions.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2025-extended-information-webinar/
CATEGORIES:International,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241217T140000
DTEND;TZID=Europe/Paris:20241217T160000
DTSTAMP:20260409T204919
CREATED:20241203T035249Z
LAST-MODIFIED:20241203T035249Z
UID:7127-1734444000-1734451200@canadianrdn.ca
SUMMARY:ERDERA Joint Transnational Call 2025 Information Webinar
DESCRIPTION:This Webinar will: \n\nProvide general information on the call\, including its scientific goals\, administrative aspects\, support services\, and patient engagement strategies.\nAddress your questions through two dedicated Q&A sessions.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2025-information-webinar/
CATEGORIES:Industry,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/09/ERDERA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241205T080000
DTEND;TZID=UTC:20241205T170000
DTSTAMP:20260409T204919
CREATED:20241017T225206Z
LAST-MODIFIED:20241121T024034Z
UID:6105-1733385600-1733418000@canadianrdn.ca
SUMMARY:Kabuki Syndrome Foundation: Annual Research Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/kabuki-syndrome-foundation-annual-research-conference/
CATEGORIES:Conferences,Healthcare,International,Patient Focused,Research Focused,Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241126T150000
DTEND;TZID=Europe/Paris:20241126T160000
DTSTAMP:20260409T204919
CREATED:20241031T213740Z
LAST-MODIFIED:20241031T213740Z
UID:6890-1732633200-1732636800@canadianrdn.ca
SUMMARY:'Differential diagnosis aside from neuroimaging for non-Leukodystrophy white matter diseases' by Nicole Wolf
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/differential-diagnosis-aside-from-neuroimaging-for-non-leukodystrophy-white-matter-diseases-by-nicole-wolf/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241124T080000
DTEND;TZID=America/Halifax:20241125T170000
DTSTAMP:20260409T204919
CREATED:20241007T215427Z
LAST-MODIFIED:20241007T215427Z
UID:6046-1732435200-1732554000@canadianrdn.ca
SUMMARY:Genetic Rare Immune Disorders Symposium (GRIDS)
DESCRIPTION:GRIDS brings together world renowned experts from across the globe to discuss recent developments and unique challenges in the field of lysosomal storage disorders and/or rare genetic diseases.
URL:https://canadianrdn.ca/event/genetic-rare-immune-disorders-symposium-grids/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/GRIDS-LOGO_800pxW.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241121T160000
DTEND;TZID=Europe/Paris:20241121T170000
DTSTAMP:20260409T204919
CREATED:20241031T213608Z
LAST-MODIFIED:20241031T213608Z
UID:6888-1732204800-1732208400@canadianrdn.ca
SUMMARY:Muscle pathology of storage diseases with focus on plyglucosan and lipid storage myopathies
DESCRIPTION:Delivered by Prof. Anders Oldfors (University of Gothenburg\, Sweden) on November 21st 2024 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology. READ CAREFULLY please: By registering and attending the webinar you consent to the recording of the webinar and its later diffusion through the EURO-NMD websites using an YouTube Channel.
URL:https://canadianrdn.ca/event/muscle-pathology-of-storage-diseases-with-focus-on-plyglucosan-and-lipid-storage-myopathies/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241120T170000
DTEND;TZID=Europe/Paris:20241120T180000
DTSTAMP:20260409T204919
CREATED:20241119T234913Z
LAST-MODIFIED:20241119T234913Z
UID:7016-1732122000-1732125600@canadianrdn.ca
SUMMARY:Webinar on ''mental health and behavioral difficulties in children with rare neonatal surgical disease''
DESCRIPTION:You are invited to join an insightful webinar hosted by ERNICA\, eUROGEN\, and EURORDIS on Mental health and behavioral difficulties in children with rare neonatal surgical disease: assessment\, outcomes and implications for research\, policy and practice’. \nThis interactive session will raise awareness of the mental health and behavioral challenges faced by children with rare neonatal surgical conditions\,
URL:https://canadianrdn.ca/event/webinar-on-mental-health-and-behavioral-difficulties-in-children-with-rare-neonatal-surgical-disease/
CATEGORIES:Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241119T150000
DTEND;TZID=Europe/Paris:20241119T160000
DTSTAMP:20260409T204919
CREATED:20241031T213420Z
LAST-MODIFIED:20241031T213420Z
UID:6886-1732028400-1732032000@canadianrdn.ca
SUMMARY:'Autonomic dysfunction in movement disorders' by Pietro Guaraldi
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/autonomic-dysfunction-in-movement-disorders-by-pietro-guaraldi/
CATEGORIES:International,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241118
DTEND;VALUE=DATE:20241119
DTSTAMP:20260409T204919
CREATED:20240618T030756Z
LAST-MODIFIED:20240618T030756Z
UID:4471-1731888000-1731974399@canadianrdn.ca
SUMMARY:4th Annual Symposium for Researchers and Clinicians on Wiskott Aldrich Syndrome
DESCRIPTION:The fourth international symposium for researchers and clinicians on Wiskott Aldrich Syndrome is being held in Milan\, Italy and offers access to the latest research and analysis related to this rare disease. \nMeeting participants will gain valuable insights into innovative perspectives in both basic and clinical research. The scientific programme will draw together experts from around the world to discuss breakthroughs in basic research\, advances in clinical practice\, novel therapeutic approaches and new insights into stem-cell and cellular therapies. An ideal forum to share knowledge\, connect with professional colleagues and grow your professional network.
URL:https://canadianrdn.ca/event/4th-annual-symposium-for-researchers-and-clinicians-on-wiskott-aldrich-syndrome/
LOCATION:San Raffaele Institute\, Milan\, Italy
CATEGORIES:Conferences,Events,Healthcare,In Person,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241114T160000
DTEND;TZID=Europe/Paris:20241114T170000
DTSTAMP:20260409T204919
CREATED:20241031T213203Z
LAST-MODIFIED:20241031T213203Z
UID:6883-1731600000-1731603600@canadianrdn.ca
SUMMARY:'DBS in Dystonia - the network perspective' by Juho Joutsa
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/dbs-in-dystonia-the-network-perspective-by-juho-joutsa/
CATEGORIES:Healthcare,International,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/ERN-RND-header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241113T180000
DTEND;TZID=America/Chicago:20241113T190000
DTSTAMP:20260409T204919
CREATED:20241017T224617Z
LAST-MODIFIED:20241017T224617Z
UID:6099-1731520800-1731524400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 webinar: Healthcare professionals
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-day-2025-webinar-healthcare-professionals/
CATEGORIES:Healthcare,International,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241112T080000
DTEND;TZID=UTC:20241115T170000
DTSTAMP:20260409T204919
CREATED:20241112T224717Z
LAST-MODIFIED:20241112T224717Z
UID:6976-1731398400-1731690000@canadianrdn.ca
SUMMARY:2024 International Congress for Ataxia Research
DESCRIPTION:Today marks the opening of the largest-ever scientific conference on ataxia research — the International Congress for Ataxia Research (ICAR) is welcoming a record-setting 600 attendees. The London-based conference runs through to November 15 and will be a comprehensive scientific review of new research into the ataxias\, covering topics from advances in genetics and disease mechanisms to therapeutics approaches\, as well as a debate on emerging ataxia research topics. ICAR represents a strong collaboration between global advocacy organizations focused on advancing research for ataxia\, including co-hosts Ataxia UK\, Friedreich’s Ataxia Research Alliance (FARA)\, National Ataxia Foundation (NAF)\, and Ataxia Global Initiative (AGI).
URL:https://canadianrdn.ca/event/2024-international-congress-for-ataxia-research/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241108T080000
DTEND;TZID=UTC:20241109T170000
DTSTAMP:20260409T204919
CREATED:20241017T212626Z
LAST-MODIFIED:20241017T212626Z
UID:6093-1731052800-1731171600@canadianrdn.ca
SUMMARY:Global Congress of the GANSID: November 8-9\, 2024
DESCRIPTION:GANSID Congress 2024 is the 2nd Congress of the Global Action Network for Sickle Cell & Other Inherited Blood Disorders (GANSID) taking place virtually to ensure all clinicians\, people with hereditary blood disorders\, and global advocates can participate from any part of the world.
URL:https://canadianrdn.ca/event/global-congress-of-the-gansid-november-8-9-2024/
CATEGORIES:Conferences,Healthcare,International,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/10/462814113_1091299899663904_8574680770729088772_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241031
DTEND;VALUE=DATE:20241101
DTSTAMP:20260409T204919
CREATED:20240819T214035Z
LAST-MODIFIED:20240819T214035Z
UID:5210-1730332800-1730419199@canadianrdn.ca
SUMMARY:Developing Therapies in Rare Neuromuscular Disease
DESCRIPTION:The symposium is designed for industry professionals involved in developing treatments for rare neuromuscular diseases and offers a unique opportunity to learn from past mistakes\, engage with leading experts\, and gain valuable insights into the challenges and opportunities within the field. Attendees can expect interactive sessions and opportunities to pose questions to the speakers\, fostering meaningful dialogue and knowledge exchange.
URL:https://canadianrdn.ca/event/developing-therapies-in-rare-neuromuscular-disease/
CATEGORIES:Conferences,Healthcare,In Person,International,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241022T100000
DTEND;TZID=Europe/Helsinki:20241025T180000
DTSTAMP:20260409T204919
CREATED:20240523T000415Z
LAST-MODIFIED:20240531T022124Z
UID:4150-1729591200-1729879200@canadianrdn.ca
SUMMARY:World Orphan Drug Congress 2024
DESCRIPTION:The World Orphan Drug Congress is the largest\, most established European meeting dedicated to orphan drugs. This year the conference will take place in Barcelona\, Spain. \nFrom cell & gene therapy\, genetic testing\, market access to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/world-orphan-drug-congress-2024/
LOCATION:Fira de Barcelona Montjuic\, Barcelona\, Spain
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/webp:https://canadianrdn.ca/wp-content/uploads/2024/05/World-Orphan-Drug-Congress-Europe-2024-Logo.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241017T080000
DTEND;TZID=Europe/Helsinki:20241019T170000
DTSTAMP:20260409T204919
CREATED:20241002T203519Z
LAST-MODIFIED:20241002T203519Z
UID:5967-1729152000-1729357200@canadianrdn.ca
SUMMARY:DIFFERENT FACES OF RARE AND COMPLEX EPILEPSIES
DESCRIPTION:
URL:https://canadianrdn.ca/event/different-faces-of-rare-and-complex-epilepsies/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241017T080000
DTEND;TZID=Europe/Helsinki:20241018T170000
DTSTAMP:20260409T204919
CREATED:20241002T203337Z
LAST-MODIFIED:20241002T203337Z
UID:5964-1729152000-1729270800@canadianrdn.ca
SUMMARY:EPNS Research Meeting 2024
DESCRIPTION:The EPNS has been organising Research Meetings since 2008. With an aim to enhance research in Paediatric Neurology\, the meeting brings together leaders in the field\, active researchers and young fellows who are interested to join or to set up research projects. It is a forum for researchers in Paediatric Neurology\, where they present their work\, ideas\, results\, creating the possibility for good interaction between researchers and premises for networking\, future collaborative research in Europe and beyond. Experienced professionals and young researchers get together\, in an environment where interactive\, vivid discussions can take place around the presented topics.
URL:https://canadianrdn.ca/event/epns-research-meeting-2024/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241016T080000
DTEND;TZID=Europe/Paris:20241019T170000
DTSTAMP:20260409T204919
CREATED:20240801T205116Z
LAST-MODIFIED:20240801T205116Z
UID:4907-1729065600-1729357200@canadianrdn.ca
SUMMARY:21st Biennial ESID Meeting
DESCRIPTION:The ESID 2024 meeting in Marseille will cover the latest most exciting discoveries in basic and clinical science covering our expanding field\, bringing together internationally renowned scientists and clinicians to present and discuss major and exciting developments in diagnosis\, clinical management\, genetics\, immunobiology of inborn errors of immunity\, through keynote lectures\, symposia\, educational workshops\, interactive sessions\, poster presentations\, and meet-the-expert sessions.
URL:https://canadianrdn.ca/event/21st-biennial-esid-meeting/
LOCATION:france\, Marseille\, France
CATEGORIES:Conferences,In Person,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241009
DTEND;VALUE=DATE:20241011
DTSTAMP:20260409T204919
CREATED:20240702T205524Z
LAST-MODIFIED:20240702T205524Z
UID:4719-1728432000-1728604799@canadianrdn.ca
SUMMARY:International Conference on Newborn Screening 2024
DESCRIPTION:The 2024 meeting of the International Consortium on Newborn Sequencing (ICoNS) will be held in New York City\, USA on October 9 – 10\, 2024. \nICoNS is the premier event for connecting with top experts and gaining insights into the frontier of newborn sequencing as screening for ushering in the era of preventive medicine.
URL:https://canadianrdn.ca/event/international-conference-on-newborn-screening-2024/
CATEGORIES:Conferences,Events,Healthcare,In Person,International,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/07/logo-wht.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241008T080000
DTEND;TZID=Europe/Helsinki:20241011T170000
DTSTAMP:20260409T204919
CREATED:20241002T203156Z
LAST-MODIFIED:20241002T203156Z
UID:5961-1728374400-1728666000@canadianrdn.ca
SUMMARY:🔵26èmes Journées Françaises de l’Epilepsie
DESCRIPTION:
URL:https://canadianrdn.ca/event/%f0%9f%94%b526emes-journees-francaises-de-lepilepsie/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240926T080000
DTEND;TZID=America/New_York:20240928T170000
DTSTAMP:20260409T204919
CREATED:20240801T212559Z
LAST-MODIFIED:20240801T212706Z
UID:4914-1727337600-1727542800@canadianrdn.ca
SUMMARY:2024 Global CMT Research Convention
DESCRIPTION:The CMT Research Foundation unites the voices of patients\, researchers\, pharma companies\, and regulatory agencies to develop treatments for CMT. \nThis event takes place over three days. Thursday and Friday are scientific meetings meant for researchers and scientists working in CMT. Saturday is primarily for patients and their families and caregivers\, providing a chance to interact with the research community that is working so hard on their behalf and to better understand the latest in research progress.
URL:https://canadianrdn.ca/event/2024-global-cmt-research-convention/
LOCATION:Cambridge\, Cambridge\, MA\, United States
CATEGORIES:Conferences,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20240926T080000
DTEND;TZID=America/Halifax:20240928T170000
DTSTAMP:20260409T204919
CREATED:20240523T005941Z
LAST-MODIFIED:20240531T022557Z
UID:4169-1727337600-1727542800@canadianrdn.ca
SUMMARY:North American Cystic Fibrosis Conference
DESCRIPTION:NACFC provides a collaborative and educational forum for all CF professionals. The educational elements of the meeting program are targeted to physicians\, nurses\, research scientists\, respiratory therapists\, physical therapists\, nutritionists\, social workers\, and pharmacists. \nThis annual meeting brings together scientists\, clinicians\, and caregivers from around the world to discuss and share ideas on the latest advances in CF research\, care\, and drug development and to exchange ideas about ways to improve the health and quality of life for people with CF.
URL:https://canadianrdn.ca/event/north-american-cystic-fibrosis-conference/
LOCATION:Boston Convention and Exhibition Center\, Boston\, MA\, United States
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20240925T080000
DTEND;TZID=Asia/Karachi:20240928T203000
DTSTAMP:20260409T204919
CREATED:20240522T223719Z
LAST-MODIFIED:20240531T022742Z
UID:4141-1727251200-1727555400@canadianrdn.ca
SUMMARY:Week in RARE: RARE Advocacy Summit and Health Equity Forum
DESCRIPTION:Global Genes is on the move — Week in RARE is moving to Kansas City\, Missouri in 2024. Week in RARE combines the RARE Health Equity Forum and RARE Advocacy Summit\, in addition to the RARE Champions of Hope awards ceremony and annual membership meetings for Global Advocacy Alliance and RARE Corporate Alliance. This is a unique opportunity to gather and engage rare disease advocates and leaders in the same space for conversation. \nEach year\, Global Genes convenes one of the world’s largest gatherings of rare disease patients\, caregivers\, advocates\, healthcare professionals\, researchers\, partners\, and allies at the RARE Advocacy Summit to work together to build a path to hope. This is an unparalleled opportunity for advocates\, whether new or veteran\, to forge meaningful connections with others in the rare disease community for future collaboration. Sessions provide attendees\, with insights about the latest in rare disease innovations\, best practices for advocating on an individual and organizational level\, and actionable strategies they can take home and implement immediately to improve care and accelerate change. \nThe RARE Health Equity Forum is the first one-of-a-kind event focused on the intersection of rare disease and health equity with an agenda built around creating systemic and organizational change. The conference was developed to better understand the persistent gaps that exist in the rare disease community for underrepresented and/or marginalized patient populations\, including those who are still seeking a diagnosis or are unaffiliated with a disease-specific foundation. \nThis year\, the Summit will be held in Kansas City\, Missouri.
URL:https://canadianrdn.ca/event/week-in-rare-rare-advocacy-summit-and-health-equity-forum/
LOCATION:Kansas City\, Kansas City\, MO\, United States
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240916T080000
DTEND;TZID=Australia/Melbourne:20240920T170000
DTSTAMP:20260409T204919
CREATED:20240522T222536Z
LAST-MODIFIED:20240531T022852Z
UID:4138-1726473600-1726851600@canadianrdn.ca
SUMMARY:Global Alliance for Genomics and Health - 12th Plenary
DESCRIPTION:GA4GH 12th Plenary brings together organisations and initiatives from the genomics and health community for keynotes\, talks\, and workshops. The conference will focus on genomic and clinical data sharing issues that pervade diverse industries\, disciplines\, and communities.
URL:https://canadianrdn.ca/event/global-alliance-for-genomics-and-health-12th-plenary/
LOCATION:Park Hyatt Melbourne\, Melbourne\, Australia
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240911T080000
DTEND;TZID=Europe/Paris:20240914T170000
DTSTAMP:20260409T204919
CREATED:20240801T204730Z
LAST-MODIFIED:20240801T204730Z
UID:4902-1726041600-1726333200@canadianrdn.ca
SUMMARY:31st European Paediatric Rheumatology
DESCRIPTION:As always at PReS meetings\, the invited faculty represents internationally renowned clinicians and scientists who will present and discuss significant and exciting developments in pathophysiology\, diagnostics\, and clinical management of pediatric rheumatology. In the program they will recognize some of the favorites over the year: Grand debates and Thieves market. Added to that many outstanding presentations with varying themes. Also\, of course\, as tradition is\, they will find Young Investigators Meeting and EULAR Pediatric Ultrasound Course.
URL:https://canadianrdn.ca/event/31st-european-paediatric-rheumatology/
LOCATION:Sweden\, Gothenburg\, Sweden
CATEGORIES:Conferences,In Person,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20240909T080000
DTEND;TZID=America/Denver:20240911T170000
DTSTAMP:20260409T204919
CREATED:20240809T210908Z
LAST-MODIFIED:20240809T210938Z
UID:5091-1725868800-1726074000@canadianrdn.ca
SUMMARY:C-Path 2024 Global Impact Conference
DESCRIPTION:Attendees of the 3-day conference\, including patients\, providers\, researchers\, clinicians\, biopharmaceutical companies\, regulatory reviewers and scientists\, will leave with knowledge of: \n\nAccelerating drug development across neurology\, rare diseases\, pediatrics\, and beyond.\nIntegrating insights across therapeutic areas to advance the process for novel treatments and cures.\nThe power of every precious data point in rare and orphan diseases.\nNavigating novel therapies with novel evidence sources.\nInnovative methods and approaches.\nThe value and impact that C-Path partnerships have on accelerating drug development.
URL:https://canadianrdn.ca/event/c-path-2024-global-impact-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/C-PATH1.jpeg
END:VEVENT
END:VCALENDAR