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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260203T170000
DTEND;TZID=America/Edmonton:20260203T183000
DTSTAMP:20260409T083746
CREATED:20260105T200023Z
LAST-MODIFIED:20260105T200023Z
UID:9585-1770138000-1770143400@canadianrdn.ca
SUMMARY:RealiseD Webinar 3: Single arm\, RCT or something in between – how to enrich clinical trial design and analysis in rare diseases
DESCRIPTION:Single-arm trials remain a cornerstone of rare disease research\, but their limitations and complexities cannot be ignored. In the third webinar\, experts Yulia Dyachkova (Merck Healthcare)\, Jenny Devenport (Roche)\, Cornelia Dunger-Baldauf (Novartis) abd Guillaume Canaud will lead a deep dive into the evolving role of SATs in drug development. The discussion will cover regulatory and HTA perspectives\, review case studies of success and failure\, and explore advanced statistical methods designed to optimise trial design. This session is not just about understanding the current landscape—it is about shaping the future of evidence generation for rare and ultra-rare diseases.
URL:https://canadianrdn.ca/event/realised-webinar-3-single-arm-rct-or-something-in-between-how-to-enrich-clinical-trial-design-and-analysis-in-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/RealiseD-Visuals-Webinars-2026-800x450-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260129T080000
DTEND;TZID=America/Edmonton:20260129T090000
DTSTAMP:20260409T083746
CREATED:20260101T225747Z
LAST-MODIFIED:20260101T225747Z
UID:9482-1769673600-1769677200@canadianrdn.ca
SUMMARY:CMT episode 4: Current Progress in Charcot-Marie-Tooth disease (CMT) Treatments
DESCRIPTION:Delivered by Prof. Kleopas Kleopa (Cyprus Institute of Neurology and Genetics (CING)\, Thu 29 Jan 2026 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.
URL:https://canadianrdn.ca/event/cmt-episode-4-current-progress-in-charcot-marie-tooth-disease-cmt-treatments/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Current-progress-in-CMT-treatments_2901.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Belgrade:20260122T173000
DTEND;TZID=Europe/Belgrade:20260122T183000
DTSTAMP:20260409T083746
CREATED:20260113T170231Z
LAST-MODIFIED:20260113T170231Z
UID:9620-1769103000-1769106600@canadianrdn.ca
SUMMARY:ERN-EuroBloodNet-Session 1: Strong at Any Age – Redefining Frailty Together
DESCRIPTION:EuroBloodNet Topic on Focus: Ageing with a Bleeding Disorder”! \nThis educational program is coordinated by ERN-EuroBloodNet together with the umbrella patient organisation EHC – European Haemophilia Consortium\, represented by ePAG advocate Marius Tanase.
URL:https://canadianrdn.ca/event/ern-eurobloodnet-session-1-strong-at-any-age-redefining-frailty-together/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767624708973.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260122T080000
DTEND;TZID=America/Edmonton:20260122T090000
DTSTAMP:20260409T083746
CREATED:20260101T225614Z
LAST-MODIFIED:20260101T225614Z
UID:9479-1769068800-1769072400@canadianrdn.ca
SUMMARY:CMT episode 3: Bioarkers and outcome measures for clinical trial readiness in CMT
DESCRIPTION:Delivered by Prof. Mary Reilly (University College London\, Department of Neuromuscular Diseases\, UK)\, Thu 22 Jan 2026 at 17:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.
URL:https://canadianrdn.ca/event/cmt-episode-3-bioarkers-and-outcome-measures-for-clinical-trial-readiness-in-cmt/
CATEGORIES:Clinical Trials,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Biomarkers-and-outcomes-measures-for-clinical-trial_2201.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260120T170000
DTEND;TZID=America/Edmonton:20260120T183000
DTSTAMP:20260409T083746
CREATED:20260105T195814Z
LAST-MODIFIED:20260105T195814Z
UID:9582-1768928400-1768933800@canadianrdn.ca
SUMMARY:RealiseD Webinar 2: Evidence Assessment Framework. A need to change mindset from developers\, regulators and HTA
DESCRIPTION:The second webinar turns the spotlight on one of the most critical issues in rare disease research: the generation and assessment of evidence. François Meyer\, a leading consultant in health technology assessment\, will examine why current frameworks often fail to deliver predictable and aligned outcomes\, resulting in delays and inequalities in patient access. The session will explore the global and European initiatives aimed at addressing these shortcomings and present the RealiseD consortium’s efforts to advance scientific and operational solutions. More importantly\, it will advocate for a fundamental shift in mindset—one that embraces flexibility and innovation in the way evidence is generated\, interpreted\, and assessed.
URL:https://canadianrdn.ca/event/realised-webinar-2-evidence-assessment-framework-a-need-to-change-mindset-from-developers-regulators-and-hta/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/images.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260115T080000
DTEND;TZID=America/Edmonton:20260115T090000
DTSTAMP:20260409T083746
CREATED:20260101T225316Z
LAST-MODIFIED:20260101T225316Z
UID:9476-1768464000-1768467600@canadianrdn.ca
SUMMARY:CMT episode 2: Progress in genetic diagnosis for neuropathies
DESCRIPTION:Delivered by Dr. Andrea Cortese (University College London\, Department of Neuromuscular Diseases\, UK)\, Thu 15 Jan 2026 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.
URL:https://canadianrdn.ca/event/cmt-episode-2-progress-in-genetic-diagnosis-for-neuropathies/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/03c6e293-c06f-4597-a551-ca4e516f7312.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260115T053000
DTEND;TZID=America/Edmonton:20260115T063000
DTSTAMP:20260409T083746
CREATED:20260111T210920Z
LAST-MODIFIED:20260111T210920Z
UID:9596-1768455000-1768458600@canadianrdn.ca
SUMMARY:Rare Disease Internation-Moving the WHA Resolution on Rare Diseases Forward: From Promise to Action
DESCRIPTION:Join RDI for this public webinar where they will discuss the current status of the WHA Resolution implementation\, as they approach the World Health Organization Executive Board meeting taking place in February 2026. This webinar will engage in a multistakeholder dialogue focusing on the necessary path forward to accelerate the implementation of the Resolution and importantly the development of the GAPRD. \n 
URL:https://canadianrdn.ca/event/rare-disease-internation-moving-the-wha-resolution-on-rare-diseases-forward-from-promise-to-action/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767795977515.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260113T170000
DTEND;TZID=America/Edmonton:20260113T183000
DTSTAMP:20260409T083746
CREATED:20260105T195201Z
LAST-MODIFIED:20260105T200439Z
UID:9578-1768323600-1768329000@canadianrdn.ca
SUMMARY:RealiseD Webinar 1: Realising Clinical trials in Ultra-Rare diseases
DESCRIPTION:Join RealiseD’s first webinar to learn how RealiseD is pioneering a collaborative and comprehensive approach to clinical trials in ultra-rare diseases. During the webinar\, they’ll walk you through the project’s objectives\, structure\, and methodologies—and show how you can be part of this transformative journey.
URL:https://canadianrdn.ca/event/realised-realising-clinical-trials-in-ultra-rare-diseases/
CATEGORIES:Clinical Trials,Healthcare,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1765887061354.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260108T080000
DTEND;TZID=America/Edmonton:20260108T090000
DTSTAMP:20260409T083746
CREATED:20260101T225056Z
LAST-MODIFIED:20260101T225056Z
UID:9473-1767859200-1767862800@canadianrdn.ca
SUMMARY:CMT episode 1: Challenges in the diagnosis and treatment of inherited neuropathies
DESCRIPTION:Delivered by Dr. Davide Pareyson (Fondazione IRCCS Istituto Neurologico C.Besta (FINCB)\, Milan\, Italy) & Dr. Filippo Genovese (The European Charcot-Marie-Tooth Federation & ACMT-Rete per la malattia di Charcot-Marie-Tooth OdV)\, Thu 08 Jan 2026 at 16:00 Paris Time This is a EURO-NMD webinar in collaboration with ERN-RND (rare neurological disorders) and European Academy of Neurology.
URL:https://canadianrdn.ca/event/cmt-episode-1-challenges-in-the-diagnosis-and-treatment-of-inherited-neuropathies/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Challenges-in-the-diagnosis-and-treatment-of-inherited-neuropathies_0801.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251217T120000
DTEND;TZID=America/Toronto:20251217T140000
DTSTAMP:20260409T083746
CREATED:20251126T192615Z
LAST-MODIFIED:20251126T192615Z
UID:9198-1765972800-1765980000@canadianrdn.ca
SUMMARY:Webinar: Lymphodepletion for CAR-T/IEC Outcomes
DESCRIPTION:Achieving consistent and effective outcomes in CAR T and other immune effector cell (IEC) therapies relies heavily on getting lymphodepletion “right.” Emerging evidence shows that both under- and over-exposure can impact safety\, efficacy\, and long-term persistence\, making optimized dosing strategies increasingly critical as the field evolves. \nThis webinar will explore how model-informed and data-driven approaches can help identify the optimal lymphodepletion exposure window\, improve predictability\, and support more standardized practices across patient populations and treatment centers. Speakers will discuss current challenges\, scientific rationale\, clinical insights\, and practical considerations for implementation.
URL:https://canadianrdn.ca/event/webinar-lymphodepletion-for-car-t-iec-outcomes/
CATEGORIES:Clinical Trials,International,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251216T150000
DTEND;TZID=America/Edmonton:20251216T170000
DTSTAMP:20260409T083746
CREATED:20251126T193306Z
LAST-MODIFIED:20251126T193306Z
UID:9204-1765897200-1765904400@canadianrdn.ca
SUMMARY:ERDERA: Joint Transnational Call 2026
DESCRIPTION:This information webinar on the 2026 Joint Transnational Call for Proposals is scheduled for 16 December 2025\, 15:00–17:00 CET\, focusing on resolving unsolved rare genetic and non‑genetic diseases.
URL:https://canadianrdn.ca/event/erdera-joint-transnational-call-2026/
CATEGORIES:Healthcare,International,Policy,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251209T080000
DTEND;TZID=America/Edmonton:20251210T170000
DTSTAMP:20260409T083746
CREATED:20250902T192732Z
LAST-MODIFIED:20250902T192732Z
UID:8848-1765267200-1765386000@canadianrdn.ca
SUMMARY:2nd International Conference on Clinical Research Networks (CRNs) for Rare Diseases
DESCRIPTION:This second edition will convene a wide range of international experts\, including researchers\, clinicians\, patient advocates\, industry representatives\, policymakers\, and funders to strengthen the collaborative ecosystem that underpins clinical research in rare diseases worldwide.
URL:https://canadianrdn.ca/event/2nd-international-conference-on-clinical-research-networks-crns-for-rare-diseases/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251209T070000
DTEND;TZID=America/Edmonton:20251209T090000
DTSTAMP:20260409T083746
CREATED:20251202T164751Z
LAST-MODIFIED:20251202T164803Z
UID:9223-1765263600-1765270800@canadianrdn.ca
SUMMARY:Webinar: 'The importance of genetic counselling in the diagnostic of rare neurological disorders' by Maria Judit Molnar
DESCRIPTION:Educational webinars on rare neurological\, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN).
URL:https://canadianrdn.ca/event/webinar-the-importance-of-genetic-counselling-in-the-diagnostic-of-rare-neurological-disorders-by-maria-judit-molnar/
CATEGORIES:International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251205T080000
DTEND;TZID=America/Los_Angeles:20251207T170000
DTSTAMP:20260409T083746
CREATED:20250728T214728Z
LAST-MODIFIED:20250728T214728Z
UID:8604-1764921600-1765126800@canadianrdn.ca
SUMMARY:36th International Symposium on ALS/MND
DESCRIPTION:The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year they bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease.
URL:https://canadianrdn.ca/event/36th-international-symposium-on-als-mnd/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Zurich:20251118T080000
DTEND;TZID=Europe/Zurich:20251118T170000
DTSTAMP:20260409T083746
CREATED:20250812T193902Z
LAST-MODIFIED:20250812T193902Z
UID:8708-1763452800-1763485200@canadianrdn.ca
SUMMARY:ITINERARE Symposium 2025
DESCRIPTION:The programme features experts from a variety of fields\, ranging from basic and translational research to clinical application and the ethical\, social and legal aspects of rare disease research.
URL:https://canadianrdn.ca/event/itinerare-symposium-2025/
CATEGORIES:Clinical Trials,Events,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/08/Pic-webpage.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251115T080000
DTEND;TZID=America/New_York:20251116T170000
DTSTAMP:20260409T083746
CREATED:20250109T232455Z
LAST-MODIFIED:20250109T232455Z
UID:7343-1763193600-1763312400@canadianrdn.ca
SUMMARY:3rd Edition on International Neurology Conference 2025 in USA
DESCRIPTION:
URL:https://canadianrdn.ca/event/3rd-edition-on-international-neurology-conference-2025-in-usa/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Dubai:20251110T080000
DTEND;TZID=Asia/Dubai:20251111T170000
DTSTAMP:20260409T083746
CREATED:20250403T024050Z
LAST-MODIFIED:20250403T024050Z
UID:7909-1762761600-1762880400@canadianrdn.ca
SUMMARY:42nd International Conference on Advances in Psychiatry and Mental Health
DESCRIPTION:This premier event will bring together leading experts\, researchers\, and mental health professionals to explore innovative approaches and emerging trends in the field of psychiatry. Psychiatry Conference 2025 cordially invites all psychiatrists\, psychologists\, researchers\, clinicians\, mental health professionals\, neuroscientists\, healthcare practitioners\, academicians\, and industry experts to join us on November 10-11\, 2025\, in Dubai\, UAE.
URL:https://canadianrdn.ca/event/42nd-international-conference-on-advances-in-psychiatry-and-mental-health/
CATEGORIES:Conferences,Hybrid,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20251105T080000
DTEND;TZID=Europe/Helsinki:20251107T170000
DTSTAMP:20260409T083746
CREATED:20240812T213206Z
LAST-MODIFIED:20240812T213222Z
UID:5109-1762329600-1762534800@canadianrdn.ca
SUMMARY:IPIC 2025
DESCRIPTION:IPIC is one of the leading international congresses on primary immunodeficiency (PID) diagnosis and clinical care with a unique approach to its scientific programme underpinned by its focus on patient-centredness. With a truly international impact\, the congress has earned its definite place and role in the PID clinical landscape.
URL:https://canadianrdn.ca/event/ipic-2025/
CATEGORIES:Caregiver,Conferences,In Person,International,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/08/desktop-ipic25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251105T060000
DTEND;TZID=America/Edmonton:20251105T080000
DTSTAMP:20260409T083746
CREATED:20251006T202535Z
LAST-MODIFIED:20251006T202535Z
UID:8955-1762322400-1762329600@canadianrdn.ca
SUMMARY:Webinar: Health Financing & Social Health Protection for Rare Diseases
DESCRIPTION:Rare Diseases International (RDI) and the P4H Network have partnered to enable global advocacy and collaboration to influence and support innovation in health financing arrangement and social health protection that concretely promote effective health coverage\, increased access and adequate financial protection for people living with rare diseases.
URL:https://canadianrdn.ca/event/webinar-health-financing-social-health-protection-for-rare-diseases/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1758185385885.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251104T053000
DTEND;TZID=America/Edmonton:20251104T073000
DTSTAMP:20260409T083746
CREATED:20251027T200736Z
LAST-MODIFIED:20251027T200736Z
UID:9094-1762234200-1762241400@canadianrdn.ca
SUMMARY:Screen4Rare: Making AI Diagnosis Understandable
DESCRIPTION:A co-creation workshop  inviting non-AI experts to help design communication tools such as videos and brochures that make AI-supported diagnosis more understandable\, trustworthy and human.
URL:https://canadianrdn.ca/event/screen4rare-making-ai-diagnosis-understandable/
CATEGORIES:Caregiver,Healthcare,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20251027T080000
DTEND;TZID=Europe/Amsterdam:20251029T170000
DTSTAMP:20260409T083746
CREATED:20250618T150752Z
LAST-MODIFIED:20250618T150752Z
UID:8460-1761552000-1761757200@canadianrdn.ca
SUMMARY:The World Orphan Drug Congress
DESCRIPTION:The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/the-world-orphan-drug-congress/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Krasnoyarsk:20251018T080000
DTEND;TZID=Asia/Krasnoyarsk:20251019T170000
DTSTAMP:20260409T083746
CREATED:20241218T230242Z
LAST-MODIFIED:20241218T230242Z
UID:7274-1760774400-1760893200@canadianrdn.ca
SUMMARY:International Neurology Conference 2025 |  Mental Health Conference\, Thailand
DESCRIPTION:Neurology & Mental Health conference 2025 is set to be held on the 18th and 19th of October 2025\, in Bangkok\, Thailand in hybrid mode\, allowing everyone to gain knowledge and providing a platform for discussing the latest advancements in treatments and techniques\, future and present challenges\, and sharing invaluable experiences in Neurology and allied disciplines. The event will feature plenary lectures\, speeches\, research & technical presentations\, and hands-on experience workshops to help shape the future of neurology & psychiatry.
URL:https://canadianrdn.ca/event/international-neurology-conference-2025-mental-health-conference-thailand/
CATEGORIES:Conferences,Healthcare,Hybrid,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20251010T070000
DTEND;TZID=America/Edmonton:20251010T080000
DTSTAMP:20260409T083746
CREATED:20251006T202336Z
LAST-MODIFIED:20251006T202336Z
UID:8952-1760079600-1760083200@canadianrdn.ca
SUMMARY:Rare Diseases International-Community Conversations on Mental Health
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-diseases-international-community-conversations-on-mental-health/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/10/1759479484624.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Vienna:20251007T080000
DTEND;TZID=Europe/Vienna:20251011T170000
DTSTAMP:20260409T083746
CREATED:20250812T195000Z
LAST-MODIFIED:20250812T195000Z
UID:8721-1759824000-1760202000@canadianrdn.ca
SUMMARY:30th Annual International Congress of the World Muscle Society
DESCRIPTION:The World Muscle Society is a dynamic community that aims to promote\, disseminate\, and share all aspects of neuromuscular physiology and diseases\, from basic science to patient care. It encompasses a broad range of scientists and healthcare professionals who share the common interest for neuromuscular disorders.
URL:https://canadianrdn.ca/event/30th-annual-international-congress-of-the-world-muscle-society/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251006T080000
DTEND;TZID=Europe/Paris:20251010T170000
DTSTAMP:20260409T083746
CREATED:20241118T223610Z
LAST-MODIFIED:20241118T223610Z
UID:6998-1759737600-1760115600@canadianrdn.ca
SUMMARY:Global Alliance for Genomics and Health (GA4GH) 13th Plenary
DESCRIPTION:GA4GH 13th Plenary will bring together the global genomics and health community for workshops\, presentations\, and keynote talks that uncover opportunities to scale genomic and clinical data sharing.
URL:https://canadianrdn.ca/event/global-alliance-for-genomics-and-health-ga4gh-13th-plenary/
CATEGORIES:Conferences,In Person,Industry,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/11/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250926T080000
DTEND;TZID=America/Edmonton:20250928T170000
DTSTAMP:20260409T083746
CREATED:20250520T191324Z
LAST-MODIFIED:20250520T191324Z
UID:8291-1758873600-1759078800@canadianrdn.ca
SUMMARY:Biennial National Conference
DESCRIPTION:Registration information coming soon.
URL:https://canadianrdn.ca/event/biennial-national-conference/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250923T093000
DTEND;TZID=America/Edmonton:20250923T113000
DTSTAMP:20260409T083746
CREATED:20250916T184831Z
LAST-MODIFIED:20250916T184831Z
UID:8897-1758619800-1758627000@canadianrdn.ca
SUMMARY:Advancing Rare Disease Healthcare: Spotlighting the Economic and Health System Burden of Disease
DESCRIPTION:Please join this 1.5-hour live virtual meeting to hear esteemed faculty describe the global economic impact of rare diseases on patients and healthcare systems. Expert community advocates will also share their practical experience of advancing patients’ needs with key stakeholders. Panel discussion and audience questions will consider how to have meaningful impact in your country or region with patient healthcare experience data and insights to drive change in practice and better health outcomes for people living with rare disease. The live virtual meeting is further supplemented with published studies and content.
URL:https://canadianrdn.ca/event/advancing-rare-disease-healthcare-spotlighting-the-economic-and-health-system-burden-of-disease/
CATEGORIES:Caregiver,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/09/1757616693554.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250921T080000
DTEND;TZID=America/Chicago:20250924T170000
DTSTAMP:20260409T083746
CREATED:20250827T161756Z
LAST-MODIFIED:20250827T161756Z
UID:8771-1758441600-1758733200@canadianrdn.ca
SUMMARY:Undiagnosed Hackathon 2025
DESCRIPTION:350 million people live with an undiagnosed disease worldwide. Genome sequencing can provide answers for 40% of the People Living With Undiagnosed Disease (PLWUD) but around 60% still don’t receive a diagnosis. The purpose of the Undiagnosed Hackathon is trying to find new ways and collaborations to solve the undiagnosed diseases\, that can’t be solved today. In this unique event multidisciplinary teams of clinicians\, bioinformaticians/molecular biologists\, scientists\, developers\, AI specialists and brilliant minds will work together to tackle the most difficult diseases.
URL:https://canadianrdn.ca/event/undiagnosed-hackathon-2025/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/08/Undiagnosed-Hackathon-logo-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20250918T180000
DTEND;TZID=America/Edmonton:20250918T190000
DTSTAMP:20260409T083746
CREATED:20250916T184602Z
LAST-MODIFIED:20250916T184602Z
UID:8894-1758218400-1758222000@canadianrdn.ca
SUMMARY:EURORDIS Webinar: Patient Partnership 2025 – The Lupus100 Project
DESCRIPTION:The Lupus100 Project\, recognized as a winner of the 2025 Patient Partnership Good Practice Challenge\, highlights the crucial role of patient partnership in improving communication about rare diseases such as lupus.
URL:https://canadianrdn.ca/event/eurordis-webinar-patient-partnership-2025-the-lupus100-project/
CATEGORIES:Caregiver,International,Patient Focused,Research Focused,Virtual,Webinars
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250916T080000
DTEND;TZID=Europe/London:20250919T170000
DTSTAMP:20260409T083746
CREATED:20250520T192354Z
LAST-MODIFIED:20250520T192354Z
UID:8304-1758009600-1758301200@canadianrdn.ca
SUMMARY:Manchester Dysmorphology and Developmental Disorders Conference
DESCRIPTION:The Manchester Dysmorphology Conference (MDC) is a biennial event that has brought together global experts in genomic syndromology since 1984. Established by Professor Dian Donnai\, MDC promotes the exchange of knowledge and ideas to advance the understanding of developmental disorders and congenital malformations. Each conference offers leading-edge content and a supportive setting\, encouraging discussions\, building collaborations\, and inspiring innovative strategies to improve the lives of individuals living with rare conditions.
URL:https://canadianrdn.ca/event/manchester-dysmorphology-and-developmental-disorders-conference/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
END:VCALENDAR