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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Toronto:20260909T080000
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UID:11552-1788940800-1789146000@canadianrdn.ca
SUMMARY:Global Genes: RARE Drug Development Symposium
DESCRIPTION:Join Global Genes virtually from September 9 – 11\, 2026 and access high-impact sessions directly from your home or office. \nWhat’s included in the Live Stream:\n2 Fireside Chats\n6 General Sessions\nKeynote Talks\nPitch Perfect Session \nConnect with advocates\, researchers\, and leaders shaping the future of rare drug development.
URL:https://canadianrdn.ca/event/global-genes-rare-drug-development-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,Industry,International,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1787775215021.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T050000
DTEND;TZID=America/Edmonton:20260925T060000
DTSTAMP:20260922T164008Z
CREATED:20260922T164008Z
LAST-MODIFIED:20260922T164008Z
UID:11625-1790312400-1790316000@canadianrdn.ca
SUMMARY:ERDERA:Diagnostic Research Workstream – Session 2: Data Sharing\, Data Management & Ethics
DESCRIPTION:This webinar gives an overview of the ERDERA Diagnostic Research Workstream’s data sharing framework\, covering the Data Sharing Framework Agreement\, ethical/governance requirements\, and the data submission process via GPAP/Phenostore and RD3. Intended for researchers\, clinicians\, data managers\, ERN and National Mirror Group members involved in or interested in ERDERA diagnostic research.
URL:https://canadianrdn.ca/event/erderadiagnostic-research-workstream-session-2-data-sharing-data-management-ethics/
CATEGORIES:Clinical Trials,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/ERDERA-trainings-template-6-1024x724-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T060000
DTEND;TZID=America/Edmonton:20260929T070000
DTSTAMP:20260910T154559Z
CREATED:20260910T154559Z
LAST-MODIFIED:20260910T154559Z
UID:11611-1790661600-1790665200@canadianrdn.ca
SUMMARY:Rare Diseases International: Innovative Financing for Rare Diseases: From Concept to Implementation
DESCRIPTION:This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility\, governance\, stakeholder alignment\, and the concrete pathways countries and funders can use to adopt and sustain these mechanisms. The discussion will pay particular attention to how innovative financing can support the integration of rare diseases into Universal Health Coverage frameworks and long-term national strategies\, and to the realities of low- and middle-income settings where financing gaps are most acute.
URL:https://canadianrdn.ca/event/rare-diseases-international-innovative-financing-for-rare-diseases-from-concept-to-implementation/
CATEGORIES:Healthcare,Industry,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788252678497.jpg
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DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20250812T194434Z
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
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DTSTART;TZID=America/Edmonton:20260930T050000
DTEND;TZID=America/Edmonton:20260930T060000
DTSTAMP:20260922T164137Z
CREATED:20260922T164137Z
LAST-MODIFIED:20260922T164137Z
UID:11628-1790744400-1790748000@canadianrdn.ca
SUMMARY:ERDERA: Regulatory Insights of Advanced Therapies Research & Development
DESCRIPTION:This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements\, supporting responsible research and smooth clinical translation. Particular attention will be given to genome editing and paediatric research\, two areas that raise specific regulatory considerations within the ATMP field.
URL:https://canadianrdn.ca/event/erdera-regulatory-insights-of-advanced-therapies-research-development/
CATEGORIES:Clinical Trials,Healthcare,Industry,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/ERDERA-trainings-template-7.png
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