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X-WR-CALNAME:Canadian Rare Disease Network
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X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART:20250309T060000
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DTSTART:20260308T060000
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260608T080000
DTEND;TZID=America/Toronto:20260610T170000
DTSTAMP:20260527T195016Z
CREATED:20260527T161034Z
LAST-MODIFIED:20260527T195016Z
UID:10696-1780905600-1781110800@canadianrdn.ca
SUMMARY:Brain-Heart Interconnectome (BHI) State of the Science Summit
DESCRIPTION:The summit is an international conference meant to highlight the latest science at the crossroads of brain and heart health\, showcasing innovation and state-of-the-art research.
URL:https://canadianrdn.ca/event/brain-heart-interconnectome-bhi-state-of-the-science-summit/
CATEGORIES:Conferences,In Person,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/05/BHI-Website-Hero-images-25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260709T080000
DTEND;TZID=America/Chicago:20260712T170000
DTSTAMP:20260702T193713Z
CREATED:20260702T160937Z
LAST-MODIFIED:20260702T193713Z
UID:11184-1783584000-1783875600@canadianrdn.ca
SUMMARY:Dysautonomia International: Piece by Piece: Building the Future of Dysautonomia Care
DESCRIPTION:Join Dysautonomia International in Houston\, Texas\, July 9–12\, 2026 for the 14th Annual Dysautonomia International Conference\, the world’s largest conference on autonomic disorders.
URL:https://canadianrdn.ca/event/dysautonomia-international-piece-by-piece-building-the-future-of-dysautonomia-care/
CATEGORIES:Caregiver,Clinical Trials,Conferences,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/07/0f3cee_e678110a0114498d980b68032a779feemv2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260722T120000
DTEND;TZID=America/Toronto:20260722T130000
DTSTAMP:20260704T234500Z
CREATED:20260704T233339Z
LAST-MODIFIED:20260704T234500Z
UID:11337-1784721600-1784725200@canadianrdn.ca
SUMMARY:Health Canada Webinar: Real-World Evidence in the National Strategy for Drugs for Rare Diseases
DESCRIPTION:This session is designed to provide you with a clear understanding of the goals\, an update on progress\, and the next steps as planning advances. It will include a short presentation from Health Canada followed by a Question & Answer session.
URL:https://canadianrdn.ca/event/health-canada-real-world-evidence-in-the-national-strategy-for-drugs-for-rare-diseases-webinar/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/07/health_canada_logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260909T080000
DTEND;TZID=America/Toronto:20260911T170000
DTSTAMP:20260826T202920Z
CREATED:20260826T202920Z
LAST-MODIFIED:20260826T202920Z
UID:11552-1788940800-1789146000@canadianrdn.ca
SUMMARY:Global Genes: RARE Drug Development Symposium
DESCRIPTION:Join Global Genes virtually from September 9 – 11\, 2026 and access high-impact sessions directly from your home or office. \nWhat’s included in the Live Stream:\n2 Fireside Chats\n6 General Sessions\nKeynote Talks\nPitch Perfect Session \nConnect with advocates\, researchers\, and leaders shaping the future of rare drug development.
URL:https://canadianrdn.ca/event/global-genes-rare-drug-development-symposium/
CATEGORIES:Caregiver,Conferences,Healthcare,Industry,International,Patient Focused,Research Focused,Virtual
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1787775215021.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260917T090000
DTEND;TZID=America/Edmonton:20260917T100000
DTSTAMP:20260910T155343Z
CREATED:20260910T155343Z
LAST-MODIFIED:20260910T155343Z
UID:11618-1789635600-1789639200@canadianrdn.ca
SUMMARY:IMPaCT Webinar: European Pediatric Clinical Trial Networks and Infrastructure: Partnership and Funding Opportunities
DESCRIPTION:The webinar will explore the landscape of pediatric trial networks in Europe\, the Horizon Europe PRISM Clinical Trial Call\, and practical lessons for developing and leading Horizon Europe consortium applications. \nMICYRN Scientific Director\, Thierry Lacaze-Masmonteil\, MD\, PhD\, will moderate a panel to discuss pathways for Canadian participation in European trial teams\, funding strategies and approaches to building strong international research partnerships.
URL:https://canadianrdn.ca/event/impact-webinar-european-pediatric-clinical-trial-networks-and-infrastructure-partnership-and-funding-opportunities/
CATEGORIES:Clinical Trials,Industry,National,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788539310832.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260918T080000
DTEND;TZID=America/Toronto:20260919T170000
DTSTAMP:20260624T184512Z
CREATED:20260624T184512Z
LAST-MODIFIED:20260624T184512Z
UID:11102-1789718400-1789837200@canadianrdn.ca
SUMMARY:Cavernous Malformation Canada Patient & Family Conference
DESCRIPTION:Join Cavernous Malformation for an educational two-day patient and family conference featuring expert speakers\, interactive opportunities between patients and clinicians\, and meaningful moments of connection and sharing with others impacted by cavernous malformation. 
URL:https://canadianrdn.ca/event/cavernous-malformation-canada-patient-family-conference/
CATEGORIES:Caregiver,Conferences,Healthcare,Industry,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/06/ce2b7ab4-753a-41b5-80ce-de2f738e0aaf.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260919T090000
DTEND;TZID=America/Toronto:20260919T140000
DTSTAMP:20260817T155910Z
CREATED:20260817T155910Z
LAST-MODIFIED:20260817T155910Z
UID:11420-1789808400-1789826400@canadianrdn.ca
SUMMARY:SickKids: Neurovascular Family Education Day 2026
DESCRIPTION:Please join SickKids for an educational event for patients\, families\, and care-givers featuring expert speakers on Moyamoya Disease.
URL:https://canadianrdn.ca/event/sickkids-neurovascular-family-education-day-2026/
CATEGORIES:Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/images.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20260924T080000
DTEND;TZID=America/Vancouver:20260926T170000
DTSTAMP:20260624T183648Z
CREATED:20260624T183634Z
LAST-MODIFIED:20260624T183648Z
UID:11096-1790236800-1790442000@canadianrdn.ca
SUMMARY:Pulmonary Hypertension Association Canada’s PH Community Conference & Scientific Sessions
DESCRIPTION:🔬 Thursday\, September 24\nCPHPN and CaPH-Net meetings (by invitation) and the Scientific Sessions Opening Reception. Primarily for healthcare professionals\, researchers\, and invited network members. \n🩺 Friday\, September 25\nScientific Sessions — a full day dedicated to the latest PH research\, clinical advancements\, and collaboration among healthcare professionals and researchers. The day concludes with the Patient & Family Symposium Welcome Reception\, where the entire PH community comes together. \n💜 Saturday\, September 26\nPatient & Family Symposium — designed specifically for PH patients\, caregivers\, family members\, and supporters. A day of education\, inspiration\, connection\, and community.
URL:https://canadianrdn.ca/event/pulmonary-hypertension-association-canadas-ph-community-conference-scientific-sessions/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/06/1780531229165.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260925T050000
DTEND;TZID=America/Edmonton:20260925T060000
DTSTAMP:20260922T164008Z
CREATED:20260922T164008Z
LAST-MODIFIED:20260922T164008Z
UID:11625-1790312400-1790316000@canadianrdn.ca
SUMMARY:ERDERA:Diagnostic Research Workstream – Session 2: Data Sharing\, Data Management & Ethics
DESCRIPTION:This webinar gives an overview of the ERDERA Diagnostic Research Workstream’s data sharing framework\, covering the Data Sharing Framework Agreement\, ethical/governance requirements\, and the data submission process via GPAP/Phenostore and RD3. Intended for researchers\, clinicians\, data managers\, ERN and National Mirror Group members involved in or interested in ERDERA diagnostic research.
URL:https://canadianrdn.ca/event/erderadiagnostic-research-workstream-session-2-data-sharing-data-management-ethics/
CATEGORIES:Clinical Trials,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/ERDERA-trainings-template-6-1024x724-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260929T060000
DTEND;TZID=America/Edmonton:20260929T070000
DTSTAMP:20260910T154559Z
CREATED:20260910T154559Z
LAST-MODIFIED:20260910T154559Z
UID:11611-1790661600-1790665200@canadianrdn.ca
SUMMARY:Rare Diseases International: Innovative Financing for Rare Diseases: From Concept to Implementation
DESCRIPTION:This final webinar focuses on what it takes to move from models on paper to solutions that work in practice. It will look at feasibility\, governance\, stakeholder alignment\, and the concrete pathways countries and funders can use to adopt and sustain these mechanisms. The discussion will pay particular attention to how innovative financing can support the integration of rare diseases into Universal Health Coverage frameworks and long-term national strategies\, and to the realities of low- and middle-income settings where financing gaps are most acute.
URL:https://canadianrdn.ca/event/rare-diseases-international-innovative-financing-for-rare-diseases-from-concept-to-implementation/
CATEGORIES:Healthcare,Industry,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1788252678497.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20260929T080000
DTEND;TZID=Europe/Paris:20261002T170000
DTSTAMP:20250812T194434Z
CREATED:20250812T194434Z
LAST-MODIFIED:20250812T194434Z
UID:8714-1790668800-1790960400@canadianrdn.ca
SUMMARY:17th International Symposium on Sjögren's Disease
DESCRIPTION:This prestigious event\, which brings together researchers\, physicians\, patients and experts from around the world to discuss the latest advancements in Sjögren’s disease.
URL:https://canadianrdn.ca/event/17th-international-symposium-on-sjogrens-disease/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260930T050000
DTEND;TZID=America/Edmonton:20260930T060000
DTSTAMP:20260922T164137Z
CREATED:20260922T164137Z
LAST-MODIFIED:20260922T164137Z
UID:11628-1790744400-1790748000@canadianrdn.ca
SUMMARY:ERDERA: Regulatory Insights of Advanced Therapies Research & Development
DESCRIPTION:This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements\, supporting responsible research and smooth clinical translation. Particular attention will be given to genome editing and paediatric research\, two areas that raise specific regulatory considerations within the ATMP field.
URL:https://canadianrdn.ca/event/erdera-regulatory-insights-of-advanced-therapies-research-development/
CATEGORIES:Clinical Trials,Healthcare,Industry,International,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/09/ERDERA-trainings-template-7.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20261018T080000
DTEND;TZID=America/Edmonton:20261020T170000
DTSTAMP:20260929T165740Z
CREATED:20251113T224713Z
LAST-MODIFIED:20260929T165740Z
UID:9153-1792310400-1792515600@canadianrdn.ca
SUMMARY:Kids Brain Health Network (KBHN) Annual Conference
DESCRIPTION:Kids Brain Health Network (KBHN) is thrilled to announce the return of their Annual Conference\, happening October 18–20\, 2026\, in Calgary\, Alberta!
URL:https://canadianrdn.ca/event/kids-brain-health-network-kbhn-annual-conference/
CATEGORIES:Caregiver,Conferences,In Person,Industry,National,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/11/6346391-6978e2ae9c849.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20261025T080000
DTEND;TZID=America/Vancouver:20261027T170000
DTSTAMP:20260929T164955Z
CREATED:20260929T164955Z
LAST-MODIFIED:20260929T164955Z
UID:11695-1792915200-1793120400@canadianrdn.ca
SUMMARY:NORD Breakthrough Summit 2026
DESCRIPTION:Shape the future of rare disease treatments\, research and policy at the NORD® Rare Diseases and Orphan Products Breakthrough Summit.®
URL:https://canadianrdn.ca/event/nord-breakthrough-summit-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/NEW-Summit-Logo-FNL-01.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Amsterdam:20261026T080000
DTEND;TZID=Europe/Amsterdam:20261028T170000
DTSTAMP:20260929T164646Z
CREATED:20260929T164646Z
LAST-MODIFIED:20260929T164646Z
UID:11692-1793001600-1793206800@canadianrdn.ca
SUMMARY:World Orphan Drug Congress Europe 2026
DESCRIPTION:The World Orphan Drug Congress is Europe’s largest and most established orphan drug & rare disease meeting. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/world-orphan-drug-congress-europe-2026/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/09/1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261027T080000
DTEND;TZID=America/Toronto:20261029T170000
DTSTAMP:20261001T190812Z
CREATED:20261001T190812Z
LAST-MODIFIED:20261001T190812Z
UID:11738-1793088000-1793293200@canadianrdn.ca
SUMMARY:Stronger Together: IMPaCT & RareKids-CAN Joint National Conference 2026
DESCRIPTION:IMPaCT and RareKids-CAN are bringing Canada’s maternal\, pediatric\, and rare disease research communities together for a three-day national conference in Montréal.
URL:https://canadianrdn.ca/event/stronger-together-impact-rarekids-can-joint-national-conference-2026/
CATEGORIES:Conferences,Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/Codex-Image-Sep-17-2026-12_14_11-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20261112T080000
DTEND;TZID=America/Halifax:20261113T170000
DTSTAMP:20261001T190948Z
CREATED:20261001T190948Z
LAST-MODIFIED:20261001T190948Z
UID:11741-1794470400-1794589200@canadianrdn.ca
SUMMARY:CORD Fall Conference 2026
DESCRIPTION:From policy to patient: can Canada close the rare disease delivery gap? Join CORD’s Next Generation Rare Canada 2026 conference for a keynote from Josie Godfrey\, Co-Lead Investigator & Policy for the 2026 RareCare Evaluation of England’s Rare Diseases Action Plans.
URL:https://canadianrdn.ca/event/cord-fall-conference-2026/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/10/lg_SavetheDateFallConference2026-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20270125T080000
DTEND;TZID=America/Toronto:20270126T170000
DTSTAMP:20260817T162431Z
CREATED:20260817T162431Z
LAST-MODIFIED:20260817T162431Z
UID:11430-1800864000-1800982800@canadianrdn.ca
SUMMARY:Inaugural Canadian Gene & Cell Therapy Conference
DESCRIPTION:Convened by RareKids-CAN in partnership with the Conference Organizing Committee\, the conference will bring together researchers\, clinicians\, manufacturers\, industry leaders\, regulators\, trainees\, and patient and family partners from across the full translational pipeline.
URL:https://canadianrdn.ca/event/inaugural-canadian-gene-cell-therapy-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/08/1784829020316.jpg
END:VEVENT
END:VCALENDAR