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X-ORIGINAL-URL:https://canadianrdn.ca
X-WR-CALDESC:Events for Canadian Rare Disease Network
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DTSTART;TZID=America/Guadeloupe:20260303T080000
DTEND;TZID=America/Guadeloupe:20260304T170000
DTSTAMP:20260409T083747
CREATED:20260113T165427Z
LAST-MODIFIED:20260113T165427Z
UID:9614-1772524800-1772643600@canadianrdn.ca
SUMMARY:EP PerMed Hackathon
DESCRIPTION:This is your chance to be a part of an immersive event at the forefront of innovation in personalised medicine. Join ER PerMed and work together with experts\, innovators\, and visionaries to shape the future of healthcare.
URL:https://canadianrdn.ca/event/ep-permed-hackathon/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1767705972185.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260304T110000
DTEND;TZID=America/Edmonton:20260304T123000
DTSTAMP:20260409T083747
CREATED:20260126T210847Z
LAST-MODIFIED:20260126T210847Z
UID:9656-1772622000-1772627400@canadianrdn.ca
SUMMARY:Stem Cell Network: Clinical Translation in Cell and Gene Therapy
DESCRIPTION:Stem Cell Network and BioCanRx are pleased to present this webinar on clinical translation\, offering trainees\, early-career investigators\, and researchers a high-level introduction to how cell and gene therapies (including regenerative medicine and cancer biotherapeutics) move from the lab to clinical trials.
URL:https://canadianrdn.ca/event/stem-cell-network-clinical-translation-in-cell-and-gene-therapy/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/01/1768827404847.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260306T100000
DTEND;TZID=America/Toronto:20260307T130000
DTSTAMP:20260409T083747
CREATED:20260212T211012Z
LAST-MODIFIED:20260212T211012Z
UID:9803-1772791200-1772888400@canadianrdn.ca
SUMMARY:Rare Kidney Disease Foundation: 5th International ADTKD Summit
DESCRIPTION:The Rare Kidney Disease Foundation presents: RKDF 5th International ADTKD Summit – A Time For Action Friday\, March 6\, 10AM – 1:00PM EST – Science Program Saturday\, March 7\, 10AM – 1:00PM EST – Patient Program
URL:https://canadianrdn.ca/event/rare-kidney-disease-foundation-5th-international-adtkd-summit/
CATEGORIES:Healthcare,Industry,International,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770644514287.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260311T130000
DTEND;TZID=America/Toronto:20260311T140000
DTSTAMP:20260409T083747
CREATED:20260212T210726Z
LAST-MODIFIED:20260212T210726Z
UID:9800-1773234000-1773237600@canadianrdn.ca
SUMMARY:RareKids-CAN: Rare Methods Workshop Series: Eliciting prior distributions for rare disease clinical trials
DESCRIPTION:Are you a rare disease methodologist\, investigator or trainee? Join RareKids-CAN and speaker Arlene Jiang for a Rare Methods Workshop on expert elicitation in rare disease research on March 11. \nLearn what expert elicitation is\, how it can support rare disease clinical design and how expert input can be used to construct a prior distribution.
URL:https://canadianrdn.ca/event/rarekids-can-rare-methods-workshop-series-eliciting-prior-distributions-for-rare-disease-clinical-trials/
CATEGORIES:Clinical Trials,Healthcare,Industry,National,Patient Focused,Policy,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770730225814.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Edmonton:20260317T080000
DTEND;TZID=America/Edmonton:20260319T170000
DTSTAMP:20260409T083747
CREATED:20260204T172823Z
LAST-MODIFIED:20260204T172823Z
UID:9748-1773734400-1773939600@canadianrdn.ca
SUMMARY:Rare Disease Summit: Access USA
DESCRIPTION:The Rare Disease Summit unites stakeholders to accelerate therapeutic innovation for areas of unmet medical need. Gain actionable insights on launch planning\, market access\, reimbursement strategies and strategic partnerships to optimize rare disease commercialization and elevate patient impact.
URL:https://canadianrdn.ca/event/rare-disease-summit-access-usa/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2026/02/1770040824093.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260325T080000
DTEND;TZID=America/Toronto:20260327T170000
DTSTAMP:20260409T083747
CREATED:20260101T231316Z
LAST-MODIFIED:20260101T231316Z
UID:9497-1774425600-1774630800@canadianrdn.ca
SUMMARY:4th Annual Scientific Symposium on SPG4
DESCRIPTION:The premier gathering for childhood-onset SPG4 research returns in 2026 — uniting leading scientists\, clinicians\, industry innovators\, patient advocates\, and families for three days of focused collaboration. Designed to accelerate the path from discovery to treatment\, the symposium will feature experts from across the U.S. and abroad\, offering a rare opportunity to share knowledge\, align priorities\, and drive progress.
URL:https://canadianrdn.ca/event/4th-annual-scientific-symposium-on-spg4/
CATEGORIES:Clinical Trials,Conferences,Hybrid,Industry,International,Patient Focused,Policy,Research Focused
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260327T080000
DTEND;TZID=America/Toronto:20260327T170000
DTSTAMP:20260409T083747
CREATED:20260101T231010Z
LAST-MODIFIED:20260101T231010Z
UID:9494-1774598400-1774630800@canadianrdn.ca
SUMMARY:RARE.Qc's Scientific Day and Annual General Meeting
DESCRIPTION:The event will take place in the Cruess Amphitheatre and the Elspeth McConnell Atrium at the Research Institute of the McGill University Health Centre (RI-MUHC) in Montréal\, and will also be offered in a virtual format.
URL:https://canadianrdn.ca/event/rare-qcs-scientific-day-and-annual-general-meeting/
CATEGORIES:Conferences,Hybrid,Industry,National,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2026/01/Affiche_JourneeScientifique_RARE-Qc_2026_EN.png
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