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BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241022T100000
DTEND;TZID=Europe/Helsinki:20241025T180000
DTSTAMP:20260409T191024
CREATED:20240523T000415Z
LAST-MODIFIED:20240531T022124Z
UID:4150-1729591200-1729879200@canadianrdn.ca
SUMMARY:World Orphan Drug Congress 2024
DESCRIPTION:The World Orphan Drug Congress is the largest\, most established European meeting dedicated to orphan drugs. This year the conference will take place in Barcelona\, Spain. \nFrom cell & gene therapy\, genetic testing\, market access to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress.
URL:https://canadianrdn.ca/event/world-orphan-drug-congress-2024/
LOCATION:Fira de Barcelona Montjuic\, Barcelona\, Spain
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/webp:https://canadianrdn.ca/wp-content/uploads/2024/05/World-Orphan-Drug-Congress-Europe-2024-Logo.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/St_Johns:20241020T080000
DTEND;TZID=America/St_Johns:20241022T210000
DTSTAMP:20260409T191024
CREATED:20240730T202537Z
LAST-MODIFIED:20240730T202537Z
UID:4890-1729411200-1729630800@canadianrdn.ca
SUMMARY:#ChildHealthCan2024
DESCRIPTION:Children’s Healthcare Canada and co-hosts\, the Janeway Children’s Hospital Foundation and NL Health Services\, invite you to join us in picturesque Newfoundland and Labrador from October 20-22\, at the St. John’s Convention Centre for their 2024 Annual Conference\, Right-Sizing Health Systems for Kids: Navigating to Brighter Futures. For those unable to attend in person\, a real-time virtual option will also be available. \nChildren’s Healthcare Canada is on a mission to Right-Size Child Healthcare Systems. In 2024\, they will explore how to pave the way for brighter futures for children\, youth\, and families within the healthcare systems. Through the collective efforts of their members\, strategic partners\, and sponsors\, they are dedicated to ensuring that all children and youth in Canada have access to the healthcare services they require in a timely manner. \nWe are thrilled to share that we will be hosting another conference in the Spring of 2025\, giving attendees the opportunity to engage in two conferences within a six-month period! \nJoin us at our upcoming conferences in October 2024 and 2025 as they delve into the concept of right-sizing health systems. Together\, they will discuss what it takes to establish a flexible and responsive system that meets the unique needs of children and youth\, ultimately leading to improved outcomes for all. \nDon’t miss the opportunity to contribute to the conversation on shaping a better future for the health and well-being of our youngest generation. They eagerly anticipate welcoming you to St. John’s\, Newfoundland and Labrador\, as we work towards a brighter tomorrow for our children and families.
URL:https://canadianrdn.ca/event/childhealthcan2024/
LOCATION:St.Johns\, Newfoundland\, 50 New Gower Street\, St.Johns\, Newfoundland\, A1C 1J3\, Canada
CATEGORIES:Caregiver,Conferences,Hybrid,In Person,Patient Focused,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/07/1707853515557.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241019T080000
DTEND;TZID=America/Halifax:20241019T170000
DTSTAMP:20260409T191024
CREATED:20240923T212950Z
LAST-MODIFIED:20240923T212950Z
UID:5915-1729324800-1729357200@canadianrdn.ca
SUMMARY:RQMO Educational Day 2024
DESCRIPTION:The 2024 RQMO educational day will focus on a theme that affects many families who have a child with a rare disease: \nThe transition to adulthood of children with differences.
URL:https://canadianrdn.ca/event/rqmo-educational-day-2024/
CATEGORIES:In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241017T080000
DTEND;TZID=Europe/Helsinki:20241019T170000
DTSTAMP:20260409T191024
CREATED:20241002T203519Z
LAST-MODIFIED:20241002T203519Z
UID:5967-1729152000-1729357200@canadianrdn.ca
SUMMARY:DIFFERENT FACES OF RARE AND COMPLEX EPILEPSIES
DESCRIPTION:
URL:https://canadianrdn.ca/event/different-faces-of-rare-and-complex-epilepsies/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241017T080000
DTEND;TZID=Europe/Helsinki:20241018T170000
DTSTAMP:20260409T191024
CREATED:20241002T203337Z
LAST-MODIFIED:20241002T203337Z
UID:5964-1729152000-1729270800@canadianrdn.ca
SUMMARY:EPNS Research Meeting 2024
DESCRIPTION:The EPNS has been organising Research Meetings since 2008. With an aim to enhance research in Paediatric Neurology\, the meeting brings together leaders in the field\, active researchers and young fellows who are interested to join or to set up research projects. It is a forum for researchers in Paediatric Neurology\, where they present their work\, ideas\, results\, creating the possibility for good interaction between researchers and premises for networking\, future collaborative research in Europe and beyond. Experienced professionals and young researchers get together\, in an environment where interactive\, vivid discussions can take place around the presented topics.
URL:https://canadianrdn.ca/event/epns-research-meeting-2024/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20241016T080000
DTEND;TZID=Europe/Paris:20241019T170000
DTSTAMP:20260409T191024
CREATED:20240801T205116Z
LAST-MODIFIED:20240801T205116Z
UID:4907-1729065600-1729357200@canadianrdn.ca
SUMMARY:21st Biennial ESID Meeting
DESCRIPTION:The ESID 2024 meeting in Marseille will cover the latest most exciting discoveries in basic and clinical science covering our expanding field\, bringing together internationally renowned scientists and clinicians to present and discuss major and exciting developments in diagnosis\, clinical management\, genetics\, immunobiology of inborn errors of immunity\, through keynote lectures\, symposia\, educational workshops\, interactive sessions\, poster presentations\, and meet-the-expert sessions.
URL:https://canadianrdn.ca/event/21st-biennial-esid-meeting/
LOCATION:france\, Marseille\, France
CATEGORIES:Conferences,In Person,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241009
DTEND;VALUE=DATE:20241011
DTSTAMP:20260409T191024
CREATED:20240702T205524Z
LAST-MODIFIED:20240702T205524Z
UID:4719-1728432000-1728604799@canadianrdn.ca
SUMMARY:International Conference on Newborn Screening 2024
DESCRIPTION:The 2024 meeting of the International Consortium on Newborn Sequencing (ICoNS) will be held in New York City\, USA on October 9 – 10\, 2024. \nICoNS is the premier event for connecting with top experts and gaining insights into the frontier of newborn sequencing as screening for ushering in the era of preventive medicine.
URL:https://canadianrdn.ca/event/international-conference-on-newborn-screening-2024/
CATEGORIES:Conferences,Events,Healthcare,In Person,International,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/07/logo-wht.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20241008T080000
DTEND;TZID=Europe/Helsinki:20241011T170000
DTSTAMP:20260409T191024
CREATED:20241002T203156Z
LAST-MODIFIED:20241002T203156Z
UID:5961-1728374400-1728666000@canadianrdn.ca
SUMMARY:🔵26èmes Journées Françaises de l’Epilepsie
DESCRIPTION:
URL:https://canadianrdn.ca/event/%f0%9f%94%b526emes-journees-francaises-de-lepilepsie/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240929T100000
DTEND;TZID=America/New_York:20240929T150000
DTSTAMP:20260409T191024
CREATED:20240716T204443Z
LAST-MODIFIED:20240823T210828Z
UID:4816-1727604000-1727622000@canadianrdn.ca
SUMMARY:4th Regional Meeting on ITP - PDSA Canada
DESCRIPTION:On September 29\, 2024\, the 4th annual Canadian Regional Meeting will take place in Burlington\, ON\, for patients and families affected by ITP. The event will be held at the Courtyard Marriot. This meeting is a chance to meet other Canadian ITP patients and learn from Canadian ITP experts. If you are interested in registering for the event\, be on the lookout for updates on pdsa.org/Canada or reach out to Jennifer DiRaimo at jdiraimo@pdsa.org. \n  \n 
URL:https://canadianrdn.ca/event/4th-regional-meeting-on-itp-pdsa-canada/
LOCATION:The Courtyard Marriott Burlington\, Burlington\, Ontario\, Canada
CATEGORIES:Events,In Person,National,Patient Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240929T080000
DTEND;TZID=UTC:20241001T170000
DTSTAMP:20260409T191024
CREATED:20240918T211234Z
LAST-MODIFIED:20240918T211234Z
UID:5877-1727596800-1727802000@canadianrdn.ca
SUMMARY:4th International Symposium on Arthrogryposis
DESCRIPTION:The International Symposium on Arthrogryposis provides a platform for learning and exchanging on the clinical management and research in Arthrogryposis Multiplex Congenita (AMC) in the areas of genetics\, orthopedics\, and rehabilitation. Multisite collaborations are key to advance research initiatives and standardize practice across centers.
URL:https://canadianrdn.ca/event/4th-international-symposium-on-arthrogryposis/
CATEGORIES:Conferences,Healthcare,In Person,National,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/09/451645084_18448036270019107_2342645705354448652_n.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240927T170000
DTEND;TZID=America/Chicago:20240929T130000
DTSTAMP:20260409T191024
CREATED:20240522T224236Z
LAST-MODIFIED:20240531T022345Z
UID:4144-1727456400-1727614800@canadianrdn.ca
SUMMARY:Western Canadian Neuromuscular Conference (WCNMC)
DESCRIPTION:This is the 5th WCNMC and is being held in Calgary on September 27 – 29\, 2024. The conference has rotated locations in Western Canada with the inaugural conference hosted in Calgary in 2013. This weekend conference is designed for general neurologists\, neuromuscular specialists\, physical medicine and rehabilitation specialists\, trainee physicians with interest in Neuromuscular Medicine and allied health members from the neuromuscular community. \nThe conference anticipates 100 – 150 attendees. The majority of attendees will come from Calgary\, Edmonton and Vancouver\, with a smaller but important complement of colleagues travelling from mid-sized centres such as Victoria\, Regina\, Kelowna\, Lethbridge and Saskatoon. \nThis conference has been well received in the past within the neuromuscular community as an opportunity to update and share knowledge. The conference has not been held in-person since 2017 and there is much excitement and enthusiasm for this conference within the neuromuscular community to reconnect in person. \nThe conference will update participants on recent advances in the diagnosis and management of common nerve\, muscle and motor neuron diseases. The format will be a blend of short didactic presentations with interactive discussions\, international keynote speakers leading the plenary sessions and question answer sessions. Additionally\, the conference will provide ample networking opportunities as the exhibit hall will be in the same space as all meals and include a robust welcome reception. \nIf you have questions about speakers\, sponsorship or anything else regarding WCNMC\, please contact info@wcnmc.ca.
URL:https://canadianrdn.ca/event/western-canadian-neuromuscular-conference-wcnmc/
LOCATION:Hotel Arts Calgary\, Calgary\, Alberta\, Canada
CATEGORIES:Healthcare,In Person,Provincial,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/05/1709814041logo-jpg1709814041.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240926T080000
DTEND;TZID=America/New_York:20240928T170000
DTSTAMP:20260409T191024
CREATED:20240801T212559Z
LAST-MODIFIED:20240801T212706Z
UID:4914-1727337600-1727542800@canadianrdn.ca
SUMMARY:2024 Global CMT Research Convention
DESCRIPTION:The CMT Research Foundation unites the voices of patients\, researchers\, pharma companies\, and regulatory agencies to develop treatments for CMT. \nThis event takes place over three days. Thursday and Friday are scientific meetings meant for researchers and scientists working in CMT. Saturday is primarily for patients and their families and caregivers\, providing a chance to interact with the research community that is working so hard on their behalf and to better understand the latest in research progress.
URL:https://canadianrdn.ca/event/2024-global-cmt-research-convention/
LOCATION:Cambridge\, Cambridge\, MA\, United States
CATEGORIES:Conferences,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20240926T080000
DTEND;TZID=America/Halifax:20240928T170000
DTSTAMP:20260409T191024
CREATED:20240523T005941Z
LAST-MODIFIED:20240531T022557Z
UID:4169-1727337600-1727542800@canadianrdn.ca
SUMMARY:North American Cystic Fibrosis Conference
DESCRIPTION:NACFC provides a collaborative and educational forum for all CF professionals. The educational elements of the meeting program are targeted to physicians\, nurses\, research scientists\, respiratory therapists\, physical therapists\, nutritionists\, social workers\, and pharmacists. \nThis annual meeting brings together scientists\, clinicians\, and caregivers from around the world to discuss and share ideas on the latest advances in CF research\, care\, and drug development and to exchange ideas about ways to improve the health and quality of life for people with CF.
URL:https://canadianrdn.ca/event/north-american-cystic-fibrosis-conference/
LOCATION:Boston Convention and Exhibition Center\, Boston\, MA\, United States
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Karachi:20240925T080000
DTEND;TZID=Asia/Karachi:20240928T203000
DTSTAMP:20260409T191024
CREATED:20240522T223719Z
LAST-MODIFIED:20240531T022742Z
UID:4141-1727251200-1727555400@canadianrdn.ca
SUMMARY:Week in RARE: RARE Advocacy Summit and Health Equity Forum
DESCRIPTION:Global Genes is on the move — Week in RARE is moving to Kansas City\, Missouri in 2024. Week in RARE combines the RARE Health Equity Forum and RARE Advocacy Summit\, in addition to the RARE Champions of Hope awards ceremony and annual membership meetings for Global Advocacy Alliance and RARE Corporate Alliance. This is a unique opportunity to gather and engage rare disease advocates and leaders in the same space for conversation. \nEach year\, Global Genes convenes one of the world’s largest gatherings of rare disease patients\, caregivers\, advocates\, healthcare professionals\, researchers\, partners\, and allies at the RARE Advocacy Summit to work together to build a path to hope. This is an unparalleled opportunity for advocates\, whether new or veteran\, to forge meaningful connections with others in the rare disease community for future collaboration. Sessions provide attendees\, with insights about the latest in rare disease innovations\, best practices for advocating on an individual and organizational level\, and actionable strategies they can take home and implement immediately to improve care and accelerate change. \nThe RARE Health Equity Forum is the first one-of-a-kind event focused on the intersection of rare disease and health equity with an agenda built around creating systemic and organizational change. The conference was developed to better understand the persistent gaps that exist in the rare disease community for underrepresented and/or marginalized patient populations\, including those who are still seeking a diagnosis or are unaffiliated with a disease-specific foundation. \nThis year\, the Summit will be held in Kansas City\, Missouri.
URL:https://canadianrdn.ca/event/week-in-rare-rare-advocacy-summit-and-health-equity-forum/
LOCATION:Kansas City\, Kansas City\, MO\, United States
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240925T080000
DTEND;TZID=UTC:20240928T170000
DTSTAMP:20260409T191024
CREATED:20240819T214651Z
LAST-MODIFIED:20240819T214651Z
UID:5216-1727251200-1727542800@canadianrdn.ca
SUMMARY:Canadian Association of Genetic Counsellors 2024 Annual Education Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/canadian-association-of-genetic-counsellors-2024-annual-education-conference/
CATEGORIES:Conferences,Healthcare,In Person,Patient Focused,Policy,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240920
DTEND;VALUE=DATE:20240923
DTSTAMP:20260409T191024
CREATED:20240716T210445Z
LAST-MODIFIED:20240717T005444Z
UID:4820-1726790400-1727049599@canadianrdn.ca
SUMMARY:CHAEN / International Guideline Conference
DESCRIPTION:The Canadian Hereditary Angioedema Network (CHAEN) is an organization of physicians who treat and/or are interested in Hereditary Angioedema. CHAEN is incorporated under the Canada Not-For-Profit Corporations Act. \nCHAEN unites physicians committed to ensuring all HAE patients in Canada have access to excellent care that reflects current management and treatment guidelines\, and works to promote research and education.
URL:https://canadianrdn.ca/event/chaen-international-guideline-conference/
LOCATION:Hilton Hotel Toronto\, Toronto\, Ontario\, Canada
CATEGORIES:Conferences,Events,Healthcare,In Person,National,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20240916T080000
DTEND;TZID=Australia/Melbourne:20240920T170000
DTSTAMP:20260409T191024
CREATED:20240522T222536Z
LAST-MODIFIED:20240531T022852Z
UID:4138-1726473600-1726851600@canadianrdn.ca
SUMMARY:Global Alliance for Genomics and Health - 12th Plenary
DESCRIPTION:GA4GH 12th Plenary brings together organisations and initiatives from the genomics and health community for keynotes\, talks\, and workshops. The conference will focus on genomic and clinical data sharing issues that pervade diverse industries\, disciplines\, and communities.
URL:https://canadianrdn.ca/event/global-alliance-for-genomics-and-health-12th-plenary/
LOCATION:Park Hyatt Melbourne\, Melbourne\, Australia
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20240911T080000
DTEND;TZID=Europe/Paris:20240914T170000
DTSTAMP:20260409T191024
CREATED:20240801T204730Z
LAST-MODIFIED:20240801T204730Z
UID:4902-1726041600-1726333200@canadianrdn.ca
SUMMARY:31st European Paediatric Rheumatology
DESCRIPTION:As always at PReS meetings\, the invited faculty represents internationally renowned clinicians and scientists who will present and discuss significant and exciting developments in pathophysiology\, diagnostics\, and clinical management of pediatric rheumatology. In the program they will recognize some of the favorites over the year: Grand debates and Thieves market. Added to that many outstanding presentations with varying themes. Also\, of course\, as tradition is\, they will find Young Investigators Meeting and EULAR Pediatric Ultrasound Course.
URL:https://canadianrdn.ca/event/31st-european-paediatric-rheumatology/
LOCATION:Sweden\, Gothenburg\, Sweden
CATEGORIES:Conferences,In Person,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20240909T080000
DTEND;TZID=America/Denver:20240911T170000
DTSTAMP:20260409T191024
CREATED:20240809T210908Z
LAST-MODIFIED:20240809T210938Z
UID:5091-1725868800-1726074000@canadianrdn.ca
SUMMARY:C-Path 2024 Global Impact Conference
DESCRIPTION:Attendees of the 3-day conference\, including patients\, providers\, researchers\, clinicians\, biopharmaceutical companies\, regulatory reviewers and scientists\, will leave with knowledge of: \n\nAccelerating drug development across neurology\, rare diseases\, pediatrics\, and beyond.\nIntegrating insights across therapeutic areas to advance the process for novel treatments and cures.\nThe power of every precious data point in rare and orphan diseases.\nNavigating novel therapies with novel evidence sources.\nInnovative methods and approaches.\nThe value and impact that C-Path partnerships have on accelerating drug development.
URL:https://canadianrdn.ca/event/c-path-2024-global-impact-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/C-PATH1.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Tokyo:20240905T080000
DTEND;TZID=Asia/Tokyo:20240907T170000
DTSTAMP:20260409T191024
CREATED:20240522T221845Z
LAST-MODIFIED:20240531T023045Z
UID:4135-1725523200-1725728400@canadianrdn.ca
SUMMARY:13th Conference of Undiagnosed Diseases Network International
DESCRIPTION:This event will be held in Seoul\, South Korea\, and promises to be an enriching experience filled with insightful discussions and valuable networking opportunities.
URL:https://canadianrdn.ca/event/13th-conference-of-undiagnosed-diseases-network-international/
LOCATION:Seoul National University Children’s Hospital\, Seoul\, Korea\, Republic of
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=application/pdf:https://canadianrdn.ca/wp-content/uploads/2024/05/e_poster_2024_udni_conference_final_1.pdf
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240904T100000
DTEND;TZID=America/New_York:20240904T160000
DTSTAMP:20260409T191024
CREATED:20240807T210627Z
LAST-MODIFIED:20240807T210627Z
UID:5017-1725444000-1725465600@canadianrdn.ca
SUMMARY:Scientific Advancements in Gene Therapies: Opportunities for Global Regulatory Convergence
DESCRIPTION:The Reagan-Udall Foundation for the FDA\, in collaboration with the Bill & Melinda Gates Foundation\, will host a hybrid public workshop on “Scientific Advancements in Gene Therapies: Opportunities for Global Regulatory Convergence.” \nGene therapies work by replacing\, silencing\, and/or modifying specific genes within a cell to treat\, prevent\, or cure a disease\, and have been used to treat both inherited diseases such as sickle cell disease and acquired disorders such as leukemia. \nThis public workshop will provide a baseline about the current state of gene therapy interventions\, including approved products and considerations for currently licensed gene therapy products and regulator roles regarding these therapies\, particularly in low and middle income countries; explore the “next generation” of gene therapies and the breadth of where those products might be deployed; and discuss the opportunities and needs for regulatory oversight of these products in emerging markets. Speakers will include patient advocates\, clinicians\, academic researchers\, biotech/pharma representatives\, and regulators.
URL:https://canadianrdn.ca/event/scientific-advancements-in-gene-therapies-opportunities-for-global-regulatory-convergence/
CATEGORIES:Hybrid,In Person,Industry,Patient Focused,Research Focused,Virtual,Webinars
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/08/39f5c73d-521e-4971-85ec-2b7914ec65eb.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240829T080000
DTEND;TZID=UTC:20240831T170000
DTSTAMP:20260409T191024
CREATED:20240523T212750Z
LAST-MODIFIED:20240531T023825Z
UID:4213-1724918400-1725123600@canadianrdn.ca
SUMMARY:21st BI-ANNUAL NATIONAL SCLERODERMA CONFERENCE
DESCRIPTION:Held in beautiful St. John’s\, NL\, the 21st Bi-Annual National Scleroderma Conference offers an information-rich opportunity for people living with scleroderma\, their caregivers\, family members\, friends\, and medical professionals.  \n​Research updates\, panel discussions\, keynotes\, workshops\, and other educational sessions are led by leading scleroderma researchers\, healthcare professionals and other industry leading professionals. Whether you are newly diagnosed or have had scleroderma for many years\, the National Conference is a great way to learn about the disease and become connected with others that are dealing with scleroderma.
URL:https://canadianrdn.ca/event/21st-bi-annual-national-scleroderma-conference/
LOCATION:St John’s Conference Centre\, St John's\, Newfoundland\, Canada
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240726T080000
DTEND;TZID=America/New_York:20240728T170000
DTSTAMP:20260409T191024
CREATED:20240529T195854Z
LAST-MODIFIED:20240531T023953Z
UID:4277-1721980800-1722186000@canadianrdn.ca
SUMMARY:Platelet Disorder Support Association-ITP Conference 2024
DESCRIPTION:This year\, PDSA will host its 24th annual update on immune thrombocytopenia (ITP) for patients\, caregivers and the medical community in San Antonio\, Texas July 26-28. This year’s patient conference will take place at The Westin Riverwalk in downtown San Antonio. Each year the ITP conference provides opportunities to hear the latest information about ITP\, meet others who are coping and living with ITP and receive answers to your medical questions. You will also have the opportunity to ask your questions to PDSA’s Medical Advisors\, who are some of the most experienced ITP doctors in the world. You don’t want to miss out on this tremendous opportunity to hear and talk with these world-renowned experts. \nIn addition to the educational program and social events\, the conference will feature several small group sessions to give you an opportunity to get to know other patients and caregivers in an intimate environment. They will also offer programs for children at our Kids Kamp for children ages 5-12. Like conferences in the past\, this year’s conference will provide a separate track for teens and young adults.
URL:https://canadianrdn.ca/event/platelet-disorder-support-association-itp-conference-2024/
LOCATION:The Westin Riverwalk\, San Antonio\, TX\, United States
CATEGORIES:Caregiver,Conferences,Healthcare,In Person,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240726
DTEND;VALUE=DATE:20240727
DTSTAMP:20260409T191024
CREATED:20240709T234340Z
LAST-MODIFIED:20240709T234340Z
UID:4773-1721952000-1722038399@canadianrdn.ca
SUMMARY:Cavernous Malformation Canada - 2024 Patient Conference
DESCRIPTION:This year our patient conference is ONE DAY ONLY\, with optional activities happening Saturday. \nKeynote by Dr. Brent Derry\, many expert presentations\, and lunch with the scientists\, as well as time to mingle with other patients.
URL:https://canadianrdn.ca/event/cavernous-malformation-canada-2024-patient-conference/
LOCATION:SickKids Hospital Peter Gilgan Centre for Research and Learning\, 170 Elizabeth St Toronto\, ON M5G 1E8\, Canada\, Toronto\, Ontario\, Canada
CATEGORIES:Caregiver,Conferences,Events,In Person,National,Patient Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240711
DTEND;VALUE=DATE:20240714
DTSTAMP:20260409T191024
CREATED:20240613T210500Z
LAST-MODIFIED:20240613T210500Z
UID:4439-1720656000-1720915199@canadianrdn.ca
SUMMARY:PRISMS Leads the Way To Support Those Living with Smith-Magenis Syndrome at 12th International Conference
DESCRIPTION:PRISMS 12th International Conference is the largest conference specifically focused on Smith-\nMagenis Syndrome (SMS) in the world. The conference goal is to educate and share information about SMS while providing opportunities for engagement and community amongst SMS families and professionals. This educational and family support multi-day event is a critical program for the SMS community. \nThe conference theme is “Leading the Way Together” and will share the most recent advances in diagnosis\, treatments\, and management of SMS throughout the lifespan. \nRegistration for PRISMS’ 12th International Conference is now open. The conference will be held at the Hyatt Regency in Dallas\, TX July 11-14\, 2024.
URL:https://canadianrdn.ca/event/prisms-leads-the-way-to-support-those-living-with-smith-magenis-syndrome-at-12th-international-conference/
LOCATION:Hyatt Regency Dallas\, Dallas\, TX\, United States
CATEGORIES:Caregiver,Conferences,Events,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240711
DTEND;VALUE=DATE:20240712
DTSTAMP:20260409T191024
CREATED:20240516T210656Z
LAST-MODIFIED:20240531T025304Z
UID:4104-1720656000-1720742399@canadianrdn.ca
SUMMARY:North America Rare Diseases Summit 2024
DESCRIPTION:This event brings together leading researchers\, healthcare professionals\, patient advocates\, policymakers\, industry experts\, and rare disease patients and families. The summit emphasizes the power of collaboration and solidarity in facing rare diseases.
URL:https://canadianrdn.ca/event/north-america-rare-diseases-summit-2024/
LOCATION:Radisson Blu Aqua Hotel\, Chicago\, IL\, United States
CATEGORIES:Conferences,In Person,Industry,International,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/05/https___a8320c040ef1cfa0d3d4fe4c8801b0ae.cdn_.bubble.io_f1708629607077x199225686610369900_Chicago20july20.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240627
DTEND;VALUE=DATE:20240630
DTSTAMP:20260409T191024
CREATED:20240612T221549Z
LAST-MODIFIED:20240613T000220Z
UID:4421-1719446400-1719705599@canadianrdn.ca
SUMMARY:IFPA Conference the 7th World Psoriasis & Psoriatic Arthritis Conference
DESCRIPTION:Established in 2006\, the IFPA Conference (also known as the World Psoriasis & Psoriatic Arthritis Conference) provides a unique\, cross-specialty platform. Medical and health professionals present frontline clinical research in dermatology\, rheumatology and beyond. Delegates can explore psoriatic disease from different perspectives by networking with patients and industry representatives in attendance. The IFPA conference calls for breakthroughs in research that will improve the understanding of all aspects of psoriatic disease. \nThe next conference will be held 27-29 June\, 2024 in Stockholm\, Sweden. \nThe theme of this Conference is: Uncovering the broad spectrum of psoriatic disease
URL:https://canadianrdn.ca/event/ifpa-conference-the-7th-world-psoriasis-psoriatic-arthritis-conference/
LOCATION:Stockholm Waterfront Congress Centre\, Nils Ericsons Plan 4\, Stockholm\, Sweden
CATEGORIES:Conferences,Events,In Person,Industry,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240626T080000
DTEND;TZID=UTC:20240629T180000
DTSTAMP:20260409T191024
CREATED:20240514T211801Z
LAST-MODIFIED:20240531T025704Z
UID:4002-1719388800-1719684000@canadianrdn.ca
SUMMARY:MitoMed Conference 2024
DESCRIPTION:Each year\, the United Mitochondrial Disease Foundation (UMDF)’s Mitochondrial Medicine Conference brings together the best minds in mitochondrial medicine and gives patients and families the opportunity to meet some of the top clinical mitochondrial specialists from around the world. With over 700 attendees representing almost every state in the U.S. and more than 15 different countries\, the Conference is recognized as the world’s preeminent event for mitochondrial disease.
URL:https://canadianrdn.ca/event/mitomed-conference-2024/
LOCATION:Hilton Cleveland Downtown\, Cleveland\, OH\, United States
CATEGORIES:Conferences,In Person,Industry,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20240626T080000
DTEND;TZID=Europe/Helsinki:20240628T170000
DTSTAMP:20260409T191024
CREATED:20240523T211612Z
LAST-MODIFIED:20240531T025755Z
UID:4210-1719388800-1719594000@canadianrdn.ca
SUMMARY:International Society of Systemic Auto-Inflammatory Diseases(ISSAID) Summer School 2024
DESCRIPTION:ISSAID is delighted to announce the International Society of Systemic Autoinflammatory Disease (ISSAID) Summer School 2024 that will take place on the 26th-28th June 2024. \nThe attendance to the Summer School will be in-person and the venue will be Green Garden Hotel\, in beautiful Warsaw\, Poland. \nThe interactive programme is primarily aimed at junior physicians\, residents\, and fellows. During the course\, you will learn from expert physician-scientists on the recognition\, pathophysiology\, and management of the spectrum of systemic autoinflammatory diseases (SAID) and perplexing presentations of immunodysregulation\, autoinflammation and immunodeficiencies. Behçet’s disease and mimics\, IL-1 mediated diseases\, interferonopathies and undifferentiated SAID will be discussed from different perspectives involving international experts for each specific field. \nYou will gain knowledge on the diagnosis\, treatment\, and management of systemic autoinflammatory diseases\, using a combination of expert-led keynote presentations and case-based discussions. The objective of the Summer School is to support young investigators and clinicians in their training and day-to-day care of these complex diseases in their practice. Another objective is to promote collaborations\, which is a key to improve the care of patients with these rare conditions.
URL:https://canadianrdn.ca/event/international-society-of-systemic-auto-inflammatory-diseasesissaid-summer-school-2024/
LOCATION:Green Garden Hotel\, Warsaw\, Poland
CATEGORIES:Healthcare,In Person,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20240618T080000
DTEND;TZID=UTC:20240619T170000
DTSTAMP:20260409T191024
CREATED:20240603T235839Z
LAST-MODIFIED:20240603T235839Z
UID:4370-1718697600-1718816400@canadianrdn.ca
SUMMARY:IRSF Rett Syndrome Scientific Meeting
DESCRIPTION:Part of ASCEND 2024\, the IRSF Rett Syndrome Scientific Meeting brings together scientists and researchers studying Rett syndrome and related areas from around the world. During this 2-day meeting\, attendees representing academia\, industry\, and governmental agencies will share their latest research advances and discuss ways to leverage learning in the lab to be rapidly deployed in the clinic. \nThe IRSF Rett Syndrome Scientific Meeting is the only annual\, global\, and comprehensive research meeting focused exclusively on Rett syndrome.
URL:https://canadianrdn.ca/event/irsf-rett-syndrome-scientific-meeting/
LOCATION:westminister\, Westminister\, CO\, United States
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Research Focused
END:VEVENT
END:VCALENDAR