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BEGIN:STANDARD
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BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250624T080000
DTEND;TZID=America/Denver:20250628T170000
DTSTAMP:20260409T134610
CREATED:20250207T040321Z
LAST-MODIFIED:20250207T040321Z
UID:7468-1750752000-1751130000@canadianrdn.ca
SUMMARY:United in Hope: 2025 Global Prader-Willi Syndrome Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/united-in-hope-2025-global-prader-willi-syndrome-conference/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250624T080000
DTEND;TZID=America/New_York:20250625T170000
DTSTAMP:20260409T134610
CREATED:20241112T225405Z
LAST-MODIFIED:20241112T225405Z
UID:6982-1750752000-1750870800@canadianrdn.ca
SUMMARY:THE FESTIVAL OF GENOMICS & BIODATA Boston
DESCRIPTION:The Festival is designed principally for scientists and clinicians who are working in the fields of genomics\, other omics\, and/or using biodata \, to further research\, drug discovery\, healthcare and – ultimately – deliver better patient outcomes.\n\nTopics covered include genomics\, single cell/spatial biology\, multiomics\, biodata\, cancer research\, drug discovery\, AI\, microbiome\, proteomics\, liquid biopsy and so much more.
URL:https://canadianrdn.ca/event/the-festival-of-genomics-biodata-boston/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250618T183000
DTEND;TZID=Europe/London:20250618T210000
DTSTAMP:20260409T134610
CREATED:20250520T192927Z
LAST-MODIFIED:20250520T192927Z
UID:8310-1750271400-1750280400@canadianrdn.ca
SUMMARY:The Cambridge Rare Disease Showcase
DESCRIPTION:This annual event celebrates the innovative work and powerful stories emerging from the rare disease community – uniting patient groups\, researchers\, clinicians\, industry professionals\, and more from across the UK and beyond.
URL:https://canadianrdn.ca/event/the-cambridge-rare-disease-showcase/
CATEGORIES:Events,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Atlantic/Azores:20250613T080000
DTEND;TZID=Atlantic/Azores:20250615T170000
DTSTAMP:20260409T134610
CREATED:20250304T032811Z
LAST-MODIFIED:20250304T032811Z
UID:7611-1749801600-1750006800@canadianrdn.ca
SUMMARY:FSHD Connect Europe patient meeting 2025​​​​​​​​​​​​​​​​​
DESCRIPTION:FSHD Europe will organize\, in collaboration with the FSHD Society\, the first FSHD Connect Europe meeting on June 13th – June 15th\, 2025\, in Amsterdam\, The Netherlands. This is a networking meeting for FSHD patients and their families. It is a great opportunity to connect with other patients and families across Europe.
URL:https://canadianrdn.ca/event/fshd-connect-europe-patient-meeting-2025/
CATEGORIES:Caregiver,Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250611T080000
DTEND;TZID=America/Halifax:20250613T170000
DTSTAMP:20260409T134610
CREATED:20250325T075403Z
LAST-MODIFIED:20250325T075403Z
UID:7820-1749628800-1749834000@canadianrdn.ca
SUMMARY:Superficial Siderosis Symposium 2025
DESCRIPTION:Join the Superficial Siderosis Research Alliance (SSRA) for a three-day symposium dedicated to patients\, caregivers\, clinicians\, and researchers focused on advancing care\, treatment\, and research for superficial siderosis.
URL:https://canadianrdn.ca/event/superficial-siderosis-symposium-2025/
CATEGORIES:Conferences,Healthcare,In Person,Industry,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250602T080000
DTEND;TZID=America/Vancouver:20250603T170000
DTSTAMP:20260409T134610
CREATED:20250421T220628Z
LAST-MODIFIED:20250421T220827Z
UID:8010-1748851200-1748970000@canadianrdn.ca
SUMMARY:Advancing Innovation in Rare Disease Research
DESCRIPTION:Join researchers\, clinicians\, and industry leaders to discuss real-world research breakthroughs\, novel #ClinicalTrial designs\, and how NORD’s Rare Disease Centers of Excellence are leading collaborative efforts in #RareDisease innovation.
URL:https://canadianrdn.ca/event/advancing-innovation-in-rare-disease-research/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250531T080000
DTEND;TZID=America/New_York:20250531T170000
DTSTAMP:20260409T134610
CREATED:20250403T023343Z
LAST-MODIFIED:20250403T023343Z
UID:7903-1748678400-1748710800@canadianrdn.ca
SUMMARY:Unity Through Rheumatic Diseases: In-Person Event
DESCRIPTION:Take a Pain Check Foundation is thrilled to invite you to Unity Through Rheumatic Diseases\, an in-person event dedicated to promoting collaboration and driving change in rheumatology. Join us on Saturday\, May 31\, 2025\, from 8:00 AM to 5:00 PM EST at the InterContinental Toronto Centre (225 Front St W\, Toronto\, ON M5V 2X3) for a day of insightful discussions\, networking\, and empowerment.
URL:https://canadianrdn.ca/event/unity-through-rheumatic-diseases-in-person-event-2/
CATEGORIES:Healthcare,In Person,Industry,National,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20250522T080000
DTEND;TZID=America/Kentucky/Louisville:20250525T170000
DTSTAMP:20260409T134610
CREATED:20250501T162129Z
LAST-MODIFIED:20250501T162129Z
UID:8109-1747900800-1748192400@canadianrdn.ca
SUMMARY:CureDuchenne 2025 FUTURES National Conference
DESCRIPTION:This annual event is dedicated to providing education\, connection\, and hope to the entire Duchenne community.
URL:https://canadianrdn.ca/event/cureduchenne-2025-futures-national-conference/
CATEGORIES:Caregiver,Clinical Trials,Conferences,Healthcare,In Person,International,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20250518T080000
DTEND;TZID=America/Vancouver:20250521T170000
DTSTAMP:20260409T134610
CREATED:20250421T222319Z
LAST-MODIFIED:20250421T222319Z
UID:8023-1747555200-1747846800@canadianrdn.ca
SUMMARY:Society for Clinical Trials’ 2025 Annual Meeting “Shaping the Future: The Right Questions\, Robust Answers”
DESCRIPTION:
URL:https://canadianrdn.ca/event/society-for-clinical-trials-2025-annual-meeting-shaping-the-future-the-right-questions-robust-answers/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250513T080000
DTEND;TZID=Europe/Paris:20250515T170000
DTSTAMP:20260409T134610
CREATED:20250130T025241Z
LAST-MODIFIED:20250130T025241Z
UID:7447-1747123200-1747328400@canadianrdn.ca
SUMMARY:15th MGFA International Conference on Myasthenia and Related Disorders
DESCRIPTION:Hosted by the MGFA\, this influential gathering of neuromuscular researchers and medical professionals is a prominent opportunity to present your work and hear from accomplished peers from around the world. We hope that you will be able to join us for this premier scientific gathering of global MG leaders.
URL:https://canadianrdn.ca/event/15th-mgfa-international-conference-on-myasthenia-and-related-disorders/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2025/01/noche-en-den-haag-cut-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250507T080000
DTEND;TZID=America/New_York:20250508T170000
DTSTAMP:20260409T134610
CREATED:20250111T002336Z
LAST-MODIFIED:20250111T002336Z
UID:7361-1746604800-1746723600@canadianrdn.ca
SUMMARY:2025 NMD4C Basic Research Summer School
DESCRIPTION:The annual NMD4C summer school provides lecture-based and hands-on training workshops to neuromuscular trainees in cutting-edge wet lab techniques\, while providing an environment for trainees to present their research and network in-person with colleagues and senior investigators from across Canada.
URL:https://canadianrdn.ca/event/2025-nmd4c-basic-research-summer-school/
CATEGORIES:Events,In Person,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250503T080000
DTEND;TZID=America/Toronto:20250503T170000
DTSTAMP:20260409T134610
CREATED:20250421T222047Z
LAST-MODIFIED:20250421T222047Z
UID:8020-1746259200-1746291600@canadianrdn.ca
SUMMARY:FSHS 360 Conference
DESCRIPTION:Patients and family members affected by FSHD are invited to attend an event hosted by the FSHD Canada Foundation and the FSHD Society! The FSHD 360 Conference Ontario is an event where patients and family can meet leaders in FSHD research and hear the latest updates\, including presentations from NMD4C investigators Dr Lawrence Korngut and Dr Hanns Lochmuller.
URL:https://canadianrdn.ca/event/fshs-360-conference/
CATEGORIES:Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250428T080000
DTEND;TZID=UTC:20250430T170000
DTSTAMP:20260409T134610
CREATED:20240819T212139Z
LAST-MODIFIED:20240828T213717Z
UID:5187-1745827200-1746032400@canadianrdn.ca
SUMMARY:Summit 2025: Ending The Diagnostic Odyssey
DESCRIPTION:A first-of-its kind collaborative event for Undiagnosed\, Ultra-Rare & Rare disease industry\, clinical and community leaders. \nThe diagnostic odyssey for rare diseases is a significant challenge\, often leaving patients and families lost in a maze of tests\, misdiagnoses\, missed opportunities to participate in clinical trials\, and delayed treatment. Summit 2025 brings together a diverse group of stakeholders – patient advocates\, industry leaders\, policymakers\, clinicians\, researchers and payers – to chart a collaborative path towards a future where timely and accurate diagnoses are a reality for all with rare diseases.
URL:https://canadianrdn.ca/event/summit-2025-ending-the-diagnostic-odyssey/
LOCATION:washington\, WA\, United States
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250424T080000
DTEND;TZID=America/New_York:20250425T170000
DTSTAMP:20260409T134610
CREATED:20250118T001616Z
LAST-MODIFIED:20250118T001616Z
UID:7374-1745481600-1745600400@canadianrdn.ca
SUMMARY:Limb-Girdle Muscular Dystrophy Masterclass
DESCRIPTION:Are you involved in diagnosing or managing Limb-Girdle muscular dystrophy (LGMD)? This April 2025\, join TREAT-NMD™ in Montreal\, Canada\, for an in-person educational event designed for healthcare professionals in the neuromuscular field.
URL:https://canadianrdn.ca/event/limb-girdle-muscular-dystrophy-masterclass/
CATEGORIES:In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250424T080000
DTEND;TZID=UTC:20250425T170000
DTSTAMP:20260409T134610
CREATED:20240926T202547Z
LAST-MODIFIED:20240926T202547Z
UID:5930-1745481600-1745600400@canadianrdn.ca
SUMMARY:Neuropsychiatry & Mental Health 2025
DESCRIPTION:Theme: Innovations in Neuropsychiatry and Evolution in Medicines of Neurological Disorders for Better Mental Health.
URL:https://canadianrdn.ca/event/neuropsychiatry-mental-health-2025/
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250408T080000
DTEND;TZID=Europe/Helsinki:20250410T170000
DTSTAMP:20260409T134610
CREATED:20240823T210044Z
LAST-MODIFIED:20240823T210044Z
UID:5357-1744099200-1744304400@canadianrdn.ca
SUMMARY:13th ISSAID Meeting
DESCRIPTION:13th Meeting of the International Society of Systemic Autoinflammatory Diseases (ISSAID)\, which will take place in Paris from April 8th to 10th\, 2025\, at the “Cité Internationale” – a magnificent haven of peace near many transport amenities where you will particularly enjoy the sumptuous Honorat lounge overlooking a lush green park. \nApril in Paris offers a delightful mix of mild weather\, budding greenery\, and a relaxed atmosphere\, perfect for strolling along the Seine after a day of work. \nThe ISSAID 2025 meeting will provide an opportunity for pediatric and adult rheumatologists\, immunologists\, general pediatricians and internists\, scientists\, and others interested in systemic autoinflammatory diseases to come together to share new findings related to autoinflammation and to learn about recent advances in this field. \nThe ISSAID 2025 meeting will highlight the topic of neurologic inflammation\, and we hope it will facilitate better assessment\, care\, and research on this particularly complex subject. We will  present current topics such as artificial intelligence\, mechanisms of inflammation\, and new diseases. \nThe ISSAID 2025 meeting will promote interactions between old and new generations so that the science of SAIDs can be transmitted and best adapted to societal transformations and the challenges of tomorrow’s medicine.
URL:https://canadianrdn.ca/event/13th-issaid-meeting/
LOCATION:paris\, Paris\, France
CATEGORIES:Conferences,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250407T080000
DTEND;TZID=America/New_York:20250408T170000
DTSTAMP:20260409T134610
CREATED:20241118T223850Z
LAST-MODIFIED:20241118T223850Z
UID:7001-1744012800-1744131600@canadianrdn.ca
SUMMARY:Conscience Symposium on Open Drug Discovery
DESCRIPTION:
URL:https://canadianrdn.ca/event/conscience-symposium-on-open-drug-discovery/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,National,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250329T080000
DTEND;TZID=America/Los_Angeles:20250329T133000
DTSTAMP:20260409T134610
CREATED:20250123T230329Z
LAST-MODIFIED:20250123T230329Z
UID:7423-1743235200-1743255000@canadianrdn.ca
SUMMARY:Vancouver Patient Education Meeting – IN-PERSON
DESCRIPTION:
URL:https://canadianrdn.ca/event/vancouver-patient-education-meeting-in-person/
CATEGORIES:Conferences,In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250323T080000
DTEND;TZID=Europe/Paris:20250326T170000
DTSTAMP:20260409T134610
CREATED:20241203T023809Z
LAST-MODIFIED:20241203T023809Z
UID:7113-1742716800-1743008400@canadianrdn.ca
SUMMARY:13th ISNS European Regional Meeting Luxembourg
DESCRIPTION:Newborn Screening LIVE from the Heart of Europe
URL:https://canadianrdn.ca/event/13th-isns-european-regional-meeting-luxembourg/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250318T183000
DTEND;TZID=America/Halifax:20250318T213000
DTSTAMP:20260409T134610
CREATED:20250307T042503Z
LAST-MODIFIED:20250307T042503Z
UID:7694-1742322600-1742333400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 by McGill’s RareDIG
DESCRIPTION:McGill’s RareDIG is excited to welcome you to their seventh edition of Rare Disease Day! Students\, researchers\, physicians\, patients\, and community members\, including the RQMO\, will meet at Jeanne Timmins Amphitheatre at The Neuro (Montreal Neurological Institute-Hospital) in Montreal on March 18th at 6:30 pm to discuss the challenges faced by people with rare diseases\, research and advocacy efforts. Poster presentations will also be prepared by student researchers with a keen interest in making a difference in the rare disease field. \nPresentations are open to all and free of charge. Presentations will be in English only\, and the event will be held in person only\, with no online broadcast.
URL:https://canadianrdn.ca/event/rare-disease-day-2025-by-mcgills-raredig/
CATEGORIES:Events,In Person,Patient Focused,Provincial,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250316T080000
DTEND;TZID=America/Chicago:20250319T170000
DTSTAMP:20260409T134610
CREATED:20241118T224806Z
LAST-MODIFIED:20241118T224806Z
UID:7007-1742112000-1742403600@canadianrdn.ca
SUMMARY:MDA Clinical and Scientific Conference
DESCRIPTION:
URL:https://canadianrdn.ca/event/mda-clinical-and-scientific-conference/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20250228T080000
DTEND;TZID=America/Denver:20250228T160000
DTSTAMP:20260409T134610
CREATED:20250219T015433Z
LAST-MODIFIED:20250219T015433Z
UID:7498-1740729600-1740758400@canadianrdn.ca
SUMMARY:Rare Disease Day 2025 University of Alberta
DESCRIPTION:
URL:https://canadianrdn.ca/event/rare-disease-day-2025-university-of-alberta/
CATEGORIES:Events,In Person,Patient Focused,Policy,Provincial,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2025/02/Rare-Disease-Day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250217T080000
DTEND;TZID=Europe/Paris:20250218T170000
DTSTAMP:20260409T134610
CREATED:20240903T211852Z
LAST-MODIFIED:20240903T211852Z
UID:5555-1739779200-1739898000@canadianrdn.ca
SUMMARY:17th International Conference on Neurology and Neuromuscular Disorders
DESCRIPTION:
URL:https://canadianrdn.ca/event/17th-international-conference-on-neurology-and-neuromuscular-disorders/
CATEGORIES:Conferences,In Person,International,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20250214T080000
DTEND;TZID=Europe/Helsinki:20250215T170000
DTSTAMP:20260409T134610
CREATED:20240731T210032Z
LAST-MODIFIED:20240731T210032Z
UID:4897-1739520000-1739638800@canadianrdn.ca
SUMMARY:PKU CON 2025
DESCRIPTION:PKU CON aims to bring together all stakeholders from around the globe currently involved in the management of patients affected by this inborn error of metabolism with an unique and same\, single goal: optimize the care and assistance for patients affected by Phenylketonuria. \nMany topics will be discussed during this first edition\, starting from a renewed vision of the pathology\, with possible identification of new biomarkers and metabolic control indices\, to updates in the field of dietary and pharmacological interventions\, and addressing relevant assistance-related issues such as burden of illness and unmet needs.
URL:https://canadianrdn.ca/event/pku-con-2025/
LOCATION:milan\, italy\, Milan\, Italy
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/jpeg:https://canadianrdn.ca/wp-content/uploads/2024/07/pkucon25-banner.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20250207T080000
DTEND;TZID=America/Sao_Paulo:20250208T170000
DTSTAMP:20260409T134610
CREATED:20250111T002118Z
LAST-MODIFIED:20250111T002118Z
UID:7358-1738915200-1739034000@canadianrdn.ca
SUMMARY:Update on NMOSD and MOGAD' Meeting\, 7-8 Feb 2025
DESCRIPTION:The Update on NMOSD and MOGAD meeting\, organized by the European Charcot Foundation in partnership with the European Network of NMOSD and MOGAD\, will take place in São Paulo\, Brazil\, on February 7-8\, 2025.
URL:https://canadianrdn.ca/event/update-on-nmosd-and-mogad-meeting-7-8-feb-2025/
CATEGORIES:Conferences,In Person,Industry,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250206T080000
DTEND;TZID=UTC:20250208T170000
DTSTAMP:20260409T134610
CREATED:20240819T212945Z
LAST-MODIFIED:20240819T212945Z
UID:5197-1738828800-1739034000@canadianrdn.ca
SUMMARY:The 8th International TREAT-NMD Conference
DESCRIPTION:The next TREAT-NMD international conference will take place in Dubai\, United Arab Emirates from the 6th to 8th of February 2025.  It will be a fantastic event welcoming delegates from all over the world including academics\, patients and carers\, patient advocacy organisations\, clinical specialists and industry. Delegates will have the opportunity to: \n\nNetwork with partners on key issues and challenges in neuromuscular disease\nEngage with panels of international experts who will inform\, stimulate and challenge debate\nAcquire the latest updates on standards of care\, outcome measures\, patient reviews\, and new developments\n\nIt is a fantastic opportunity for all stakeholders\, including patients\, academics\, clinicians\, registry curators and industry representatives\, to get together to network\, learn and exchange ideas about translational research. \nRegistration is not yet open however to be the first to find out updates on the programme\, themes\, speakers for the conference and to be notified when registration opens\, register your interest here.
URL:https://canadianrdn.ca/event/the-8th-international-treat-nmd-conference/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250129T080000
DTEND;TZID=UTC:20250130T170000
DTSTAMP:20260409T134610
CREATED:20241112T225050Z
LAST-MODIFIED:20241112T225050Z
UID:6979-1738137600-1738256400@canadianrdn.ca
SUMMARY:The Festival of Genomics & Biodata London
DESCRIPTION:The UK’s largest life sciences event is back! \nNow celebrating its 10th year\, the Festival has long been the annual get-together for the UK genomics community. And with more speakers and sessions than ever before\, the 2025 edition is bigger and better than ever! \nAs the genomics sector has expanded\, so has its impact. The Festival now covers a diverse array of topics beyond genomics\, including biodata\, diagnostics\, cancer research\, healthcare\, drug discovery and development\, infectious diseases\, AI\, proteomics\, multi-omics\, single-cell & spatial analysis and so much more.
URL:https://canadianrdn.ca/event/the-festival-of-genomics-biodata-london/
CATEGORIES:Clinical Trials,Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20250121T080000
DTEND;TZID=Europe/Paris:20250124T170000
DTSTAMP:20260409T134610
CREATED:20250109T233514Z
LAST-MODIFIED:20250109T233514Z
UID:7352-1737446400-1737738000@canadianrdn.ca
SUMMARY:2025 International Scientific Conference on Albinism
DESCRIPTION:The Global Albinism Alliance (GAA) is very pleased to announce the 2025 International Scientific Conference on Albinism – ISCA 2025\, that will be held virtually on January 21-24\, 2025. \nISCA is THE meeting point worldwide for all scientists interested in sharing and improving knowledge of the biomedical aspects of albinism and\, more generally\, improving the health of those with albinism. It builds on the momentum created in 2012 with the launch of the EDA (European Days of Albinism) conference series that evolved into ISCA in 2022.
URL:https://canadianrdn.ca/event/2025-international-scientific-conference-on-albinism/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Research Focused
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20241124T080000
DTEND;TZID=America/Halifax:20241125T170000
DTSTAMP:20260409T134610
CREATED:20241007T215427Z
LAST-MODIFIED:20241007T215427Z
UID:6046-1732435200-1732554000@canadianrdn.ca
SUMMARY:Genetic Rare Immune Disorders Symposium (GRIDS)
DESCRIPTION:GRIDS brings together world renowned experts from across the globe to discuss recent developments and unique challenges in the field of lysosomal storage disorders and/or rare genetic diseases.
URL:https://canadianrdn.ca/event/genetic-rare-immune-disorders-symposium-grids/
CATEGORIES:Conferences,Healthcare,In Person,International,Patient Focused,Policy,Research Focused
ATTACH;FMTTYPE=image/png:https://canadianrdn.ca/wp-content/uploads/2024/10/GRIDS-LOGO_800pxW.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241118
DTEND;VALUE=DATE:20241119
DTSTAMP:20260409T134610
CREATED:20240618T030756Z
LAST-MODIFIED:20240618T030756Z
UID:4471-1731888000-1731974399@canadianrdn.ca
SUMMARY:4th Annual Symposium for Researchers and Clinicians on Wiskott Aldrich Syndrome
DESCRIPTION:The fourth international symposium for researchers and clinicians on Wiskott Aldrich Syndrome is being held in Milan\, Italy and offers access to the latest research and analysis related to this rare disease. \nMeeting participants will gain valuable insights into innovative perspectives in both basic and clinical research. The scientific programme will draw together experts from around the world to discuss breakthroughs in basic research\, advances in clinical practice\, novel therapeutic approaches and new insights into stem-cell and cellular therapies. An ideal forum to share knowledge\, connect with professional colleagues and grow your professional network.
URL:https://canadianrdn.ca/event/4th-annual-symposium-for-researchers-and-clinicians-on-wiskott-aldrich-syndrome/
LOCATION:San Raffaele Institute\, Milan\, Italy
CATEGORIES:Conferences,Events,Healthcare,In Person,International,Research Focused
END:VEVENT
END:VCALENDAR